#BCSM transcript

Healthcare Social Media Transcript

From: Mon Nov 26 18:00:00 PST 2012
To: Mon Nov 26 19:15:00 PST 2012

What is #BCSM? Who were the influencers during this time period? #BCSM analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

fischmd
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Good evening! It is nice to be with this inspiring group. This is my first tweet chat. #rookie #bcsm
AileenGraef
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Evening, evryone. Not a cancer patient but my mom was and experienced the hospice/palliative care with her #bcsm
chemobrainfog
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@colleen_young **waving to you** #bcsm
jodyms
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Hi everyone, I'm Jody Schoger - welcome to our weekly chat. I'm co-moderating along with @drattai and @stales. #bcsm
kathykastner
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Good evening @jodyms @ctsinclair @fischmd : how could I resist a chat with #hpm in it?#bcsm
jodyms
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I'm going to make a few announcements before we start officially:) #bcsm
readeatwriterun
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This is fantastic. MT @jodyms: hat cancer is really like:The Back Story http://t.co/4rty8cdt via @NancysPoint (is author on Twitter?) #bcsm
chemobrainfog
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@fischmd Welcome! #bcsm
jodyms
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We usually take a few minutes to introduce ourselves. While you're doing that I want to make a special welcome to our guests... #bcsm
brevagenplus
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Hi folks! Great to be back after - hope you all had a great Thanksgiving (if you celebrate) #bcsm
fischmd
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@chemobrainfog Big smile. Thank you! #bcsm
mdanderson_poe
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Good evening. This is my first #bcsm tweet chat. Not a cancer patient, but have many loved one's who have been through palliative care.
jodyms
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Two wonderful physicians @fischmd, an oncologist at MDAnderson w/specialties in palliative medicine & survivorship and #bcsm
ctsinclair
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Good evening all #BCSM
drattai
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hello everyone, especially first-timers! Deanna Attai, breast surgeon in LA, co-moderating with @jodyms and @stales #bcsm
ThisKatieNow
Hey all! Can't stay around tonight, but wanted to say howdy. Enjoy the chatty chat and I'll look for the transcript tomorrow. PEACE #bcsm
breastcaunder45
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Thanks all, glad you liked it and hello #bcsm chat tonight! @ReadEatWriteRun @jodyms @NancysPoint
a4breastcancer
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Hi Donna, AnneMarie, Jody..... Just got off flights Dr Attai..AliciaHi Everyone #bcsm
jodyms
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@CTSinclair, a palliative medicine physicians & advocate, editor of @pallimed & #HPM co-founder. We're lucky to have them tonight. #bcsm
obogler
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Hi everyone - cool to have Dr. Fisch on tonight - a colleague and friend of mine at MD Anderson #bcsm
drattai
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@ctsinclair @fischmd thank you so much for joining us tonight for such an important topic #bcsm
ctsinclair
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Hello everyone, glad to be invited to join this very active tweetchat. Have been listening in the last few weeks. #BCSM
jodyms
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Welcome @drattai @fischMD @ctsinclair @colleen_young - and welcome all:) #bcsm
drattai
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@ThisKatieNow we will definitely post the transcript - thanks for stopping by! #bcsm
stales
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Hi everyone! #bcsm
kathykastner
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intro: developed BestEndings .com result of learning from #hpm and @ctsinclair #bcsm
stales
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Welcome to tonight's chat! Looking forward to tonight's chat! #bcsm
fightingfancy
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know any ladies going through chemo under 40 who need a Fighting Fancy bag? Mailing them out daily! RT and help me spread the word! #bcsm
colleen_young
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Hi Colleen here, community manager and moderator for @VirtualHospice. #bcsm
ChapmandeRojas
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Hanging out at #BCSM chat this evening for first time. Beloved family member currently undergoing chemo for breast cancer.
ctsinclair
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@DrAttai @jodyms @stales Thank you very much for the invite. I love to connect with other health care tweetchat groups. #BCSM
annwax
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Hi to everyone. Glad to make the chat tonite. Nurse, author, consultant speaker on health and wellness. #bcsm
xeni
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#BCSM Hi everyone, Xeni from @BoingBoing. I was dx'd w/Stage2 IDC on 12/01/2011. I'm honorary aunt of @AileenGraef; was there with her mom.
jodyms
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Tonight's topic -- palliative care & hospice - has been on my mind for a long time. The mopre we know, the less fearful we are. #bcsm
cjmeta
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Hi! Hope everyone had a wonderful Thanksgiving! I'm CJ .. Pres of METAvivor & living 6 yrs with MBC to lung. #bcsm
advancedcancera
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Advanced #Holistic & Medical treatments in #Scottsdale AZ 480-240-2600; Breast Cancer Cause and Consequences >> http://t.co/tGbHBya3 #BCSM
brevagenplus
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@ctsinclair welcome! glad you're joining in. #bcsm
xeni
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Non-cancer peeps: for the next hour, I'll be participating in the weekly Breast Cancer Social Media chat (#BCSM). Mute if you like. or STFU.
advancedmedaz
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Advanced #Holistic & Medical treatments in #Scottsdale AZ 480-240-2600; Breast Cancer Cause and Consequences >> http://t.co/IUAOaTi0 #BCSM
drew
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RT @xeni: Non-cancer peeps: for the next hour, I'll be participating in the weekly Breast Cancer Social Media chat (#BCSM). Mute if you like. or STFU.
brevagenplus
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@ChapmandeRojas Wonderful that you're here as a supporter - awareness is an amazing gift. #bcsm
jodyms
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My mother died of cancer when I was 32; she had beautiful care. I have a special place in my heart for professionals in this field. #bcsm
catpaw
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RT @xeni: Non-cancer peeps: for the next hour, I'll be participating in the weekly Breast Cancer Social Media chat (#BCSM). Mute if you like. or STFU.
virtualhospice
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Tonight #bcsm is talking palliative and hospice care. We'll be participating for the next hour. @colleen_young tweeting.
drattai
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@FightingFancy thanks for letting us know we're trying to keep the tweets relevant to tonight's topic of hospice & palliative medicine #bcsm
ctsinclair
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Great to see some familiar faces from #hpm chats here. Looking forward to making some new friends tonight and learn from each other #BCSM
stales
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@xeni HA HA. Love that disclaimer #bcsm
cjmeta
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RT @jodyms: Tonights topic -- palliative care/hospice. The more we know, the less fearful we are. #bcsm
ctsinclair
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@xeni I love your disclaimer for flooding your tweetstream. #BCSM
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @jodyms: Tonights topic -palliative care & hospice has been on my mind for a long time. The more we know, the less fearful we are #bcsm
jodyms
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I have two more announcements then I'll start the questions! 1) Please keep your RT volume down. This leaves room for more convo:) #bcsm
kathykastner
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RT @CJMeta: RT @jodyms: Tonights topic -- palliative care/hospice. The more we know, the less fearful we are. #bcsm
best_endings
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RT @CJMeta: RT @jodyms: Tonights topic -- palliative care/hospice. The more we know, the less fearful we are. #bcsm
nancyspoint
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Good evening all. Nancy here. Writer, blogger, advocate, 2 1/2 yrs post bc dx. welcome to guests. #bcsm
stales
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Great to see so many people here tonight! #bcsm
annwax
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@ChapmandeRojas You will meet amazing ppl in this #BCSm chat. Also you will gather a gr8t deal of information
ageekmom
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RT @xeni: Non-cancer peeps: for the next hour, I'll be participating in the weekly Breast Cancer Social Media chat (#BCSM). Mute if you like. or STFU.
fischmd
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My Mom was diagnosed with #breastcancer when I was 11 yrs old, was treated and recurred on the other side #bcsm
cjmeta
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Homecared my father-in-law for his last yr - lung cancer. Hospice was a great help. #bcsm
uvmer
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Hello to everyone. I'm a lurking #fearlessfriend. #bcsm
ctsinclair
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RT @jodyms: Tonights topic-palliative care & hospice - has been on my mind for long time. The more we know, the less fearful we are. #BCSM
jodyms
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2) I'll pose questions to @fischmd and @ctsinclair then open up the forum for questions and sharing. How's that? #bcsm
breastcaunder45
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,@ReadEatWriteRun @jodyms @NancysPoint Yes #bcsm is a great group as I have recently had the privilege to learn!
cjmeta
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Helped my mom homecared my dad ... he died Alzheimers age 73. She had no help. It was pretty rough. Hospice wld've been such a help. #bcsm
drattai
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Hospice / palliative care is such an important topic - and not well understood by patients and physicians #bcsm
fischmd
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My Mom survived breast cancer and lived long enough to develop 2 additional cancers. I'm grateful.. #bcsm
chemobrainfog
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I just held my best friend's hand. Her dad died last week. In home hospice was incredible. #bcsm
best_endings
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RT @DrAttai: Hospice / palliative care is such an important topic - and not well understood by patients and physicians #bcsm
jodyms
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@fischmd @ctsinclair Q1: Let's start with clear distinctions between palliative care and hospice. Many lump these together. #bcsm
jhjones
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Following http://t.co/ot5YuZNH Breast Cancer Social Media 6-7 Pacific, 9-10 Eastern right now.Subject Palliative Care tonight #BCSM
drseisenberg
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Dr. E, breast cancer medical oncologist and co-songwriter with breast cancer patients. #bcsm
brevagenplus
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Ditto --> RT @stales: Great to see so many people here tonight! #bcsm
drattai
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glad to see you tonight - lurkers always welcome! RT @uvmer: Hello to everyone. Im a lurking #fearlessfriend. #bcsm
stales
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RT @jodyms: 2) Ill pose questions to @fischmd and @ctsinclair then open up the forum for questions and sharing. Hows that? #bcsm
stales
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Welcome to all the #fearlessfriends tonight. #bcsm
fischmd
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T1: #HPM features: comprehensive, interdisciplinary, pts & families, context is serious illness, goal is prevent/relieve suffering #bcsm
cjmeta
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RT @jodyms: @fischmd @ctsinclair Q1: Lets start with clear distinctions between palliative care and hospice. Many lump these together. #bcsm
uvmer
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@DrAttai (: #bcsm
jbaldwinglenn
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Hi All; Newby to Twitter. 2nd #BCSM tweetchat. Stage 1A bc diagnosis 12/16/11. Grndfther had wonderful hospice care 25 yrs ago. #BCSM
SFVMathTutor
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RT @xeni: Non-cancer peeps: for the next hour, I'll be participating in the weekly Breast Cancer Social Media chat (#BCSM). Mute if you like. or STFU.
abhuret
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Hi All -- not home so will try my best via mobile. Hugs! #bcsm
ctsinclair
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T1: I like to tell it as an origins story. Palliative care has really sprung from the hospice movement... #BCSM
jodyms
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My tweetchat is moving particularly slow this evening. #bcsm
ctsinclair
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...to take the patient/family centered approach to symptom control, instead of disease focus. But with less focus on the prognostics #BCSM
jodyms
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RT @ctsinclair: T1: I like to tell it as an origins story. Palliative care has really sprung from the hospice movement... #bcsm
hey_leia
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I went through the hospice experience when my dad died in 2007 (cholangiocarcinoma) - I'm an only child and very grateful for hopsice #bcsm
drseisenberg
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Hospice peeps are the best on the planet! #bcsm
cjmeta
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Definitions pls. #bcsm
jodyms
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@ctsinclair @fischmd a patient/family centered approach with less focus on prognostics. I like that! #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @jodyms @fischmd @ctsinclair Q1: Let's start with clear distinctions between palliative care and hospice. Many lump these together #bcsm
ctsinclair
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Hospice and palliative care share a lot of themes: as @fischmd noted. Big difference is the hospice benefit is defined by prognosis. #BCSM
best_endings
https://pbs.twimg.com/profile_images/2118349440/BestEndings_normal.png
RT @jodyms: @ctsinclair @fischmd a patient/family centered approach with less focus on prognostics. I like that! #bcsm
fischmd
https://pbs.twimg.com/profile_images/459125087405228032/PGVZ221X_normal.jpeg
T1: Good info about #HPM from NCI & ASCO (definitions, podcasts, clinical opinions) http://t.co/aNpleZWM http://t.co/kfSLok1b #bcsm
nancyspoint
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@danceswithpens hi donna. great to see you here. #bcsm
annwax
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@ctsinclair When I first started oncology nursing Hospice and palliative care were only at talking stages re cancer. #bcsm
jodyms
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@CJMeta which part, CJ? They are defining what palliative care is now. #bcsm
timallenmdjd
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RT @obogler: RT @DrAttai: 30 minutes until #BCSM - tonights chat - @fischmd & @ctsinclair on palliative care/hospice cc: @jodyms @st ...
drattai
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getting away from prognosis, focusing on what the patient and family need @jodyms: @ctsinclair @fischmd #bcsm
cjmeta
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@jodyms Txs! ... was lost. #bcsm
ctsinclair
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@CJMeta Palliative Care - is relieving the symptoms of a disease or disorder through a whole person approach not just disease focused #BCSM
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @ctsinclair: Hospice & palliative care share themes: as @fischmd noted. Big difference is hospice benefit is defined by prognosis. #bcsm
smerv
https://pbs.twimg.com/profile_images/300184041/myphoto_normal.jpg
RT @obogler: RT @DrAttai: 30 minutes until #BCSM - tonights chat - @fischmd & @ctsinclair on palliative care/hospice cc: @jodyms @st ...
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
RT @ctsinclair: Hospice & palliative care share a lot of themes: as @fischmd noted. Big dif: hospice benefit is defined by prognosis. #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
RT @fischmd: T1: Good info about #HPM from NCI & ASCO http://t.co/LBvLea2E http://t.co/IFcS0xN1 #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @fischmd: T1: Good info about #HPM from NCI & ASCO (defs, podcasts, clinical opinions) http://t.co/ooVGAf5G http://t.co/Kqh7cmc9 #bcsm
jodyms
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Everyone - please remember to keep your RT's down for now so we can see the answers to the questions. #bcsm
fischmd
https://pbs.twimg.com/profile_images/459125087405228032/PGVZ221X_normal.jpeg
T1: Great answers to common questions about #palliative care and #hospice http://t.co/oh5yGCLl #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
RT @fischmd: T1: Great answers to common questions about #palliative care and #hospice http://t.co/pq15z9k6 #bcsm
annwax
https://pbs.twimg.com/profile_images/577632606/ann_normal.jpg
@stales @ctsinclair @fischmd palliative care can be something as just checking on a homebound pt, just see if they r eating right. #bcsm
talkabouthealth
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Excited about #hpm chat tonight on #bcsm! Murray here :) TY to @fischmd & @ctsinclair for sharing.
mdandersonnews
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RT @fischmd: T1: Great answers to common questions about #palliative care and #hospice http://t.co/hfIpO8vW #bcsm
virtualhospice
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On our forum member explained, Palliative care is where you get to give info about yourself, not only ask for info about the disease. #bcsm
ctsinclair
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Palliative care is for anyone diagnosed w/ a serious illness. "At any age, at any stage a PC team can help your quality of life" #BCSM
jodyms
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@fischmd T1a: from the links, what part do you like to emphasize with patients? Or someone new to the concept? #bcsm
drattai
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MT @ctsinclair: @CJMeta Palliative Care -relieving the symptoms of a disease/disorder - whole person approach not just disease focused #bcsm
stales
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RT @fischmd: T1: Great answers to common questions about #palliative care and #hospice http://t.co/MB6yds3I #bcsm
survivorrunner
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#bcsm Here and lurking tonight:) Kind of nervous about the topic.
stales
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RT @jodyms: Everyone - please remember to keep your RTs down for now so we can see the answers to the questions. #bcsm
drattai
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@annwax that's correct even simple things count as palliative care. It's about comfort and addressing needs #bcsm
davidkroll
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RT @jodyms: Everyone - please remember to keep your RT's down for now so we can see the answers to the questions. #bcsm
ctsinclair
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@annwax We have come a long way. #BCSM
jodyms
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@fischMD @ctsinclair T1a: my sense is that few of us are familiar w/palliative services or how to obtain them. #bcsm
virtualhospice
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What is palliative care? http://t.co/Tuj42G9r #bcsm
fischmd
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@jodyms I emphasize that #HPM is centered on the person and family. To understand the person is key to relief of suffering #bcsm
uvmer
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First heard the words palliative care in the very dire stages of partner's brain cancer...horrifying words to me. #bcsm
ctsinclair
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@SurvivorRunner If anything we say makes you run the other way, DM me later and I'll make sure to clear up any confusion. #BCSM
jodyms
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@SurvivorRunner That's why we are talking about it. Just learning a little bit helps, I've found. #bcsm
jodyms
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RT @VirtualHospice: What is palliative care? http://t.co/SMoiMdoz #bcsm
annwax
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@DrAttai Anyone can participate in comfort. I try to stress this with my patient's friends and family. Many feel they mst do something #bcsm
ctsinclair
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T1a: Most access to palliative care is in the hospital with a PC team. But they are starting to move into clinics and outpatient #BCSM
drattai
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@SurvivorRunner you'll be ok - you're among friends here! #bcsm
kathykastner
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RT @jodyms: @SurvivorRunner That's why we are talking about it. Just learning a little bit helps, I've found. #bcsm
abhuret
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Q1 the difference between the two has never been clear. #bcsm
survivorrunner
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@jodyms I agree, just brings up fears that sometimes get buried I think. #bcsm
annwax
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@ctsinclair We have come a long way. Hvr, more ppl are not aware of the benefits of hospice. #bcsm
jodyms
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T1: When I was in treatment the palliative care services were WAY off the beaten path...it was frightening to me then. No more. #bcsm
bcsisterhood
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Hello everyone. Brenda Coffee here. I will catchup with the conversation. So glad to see all of you. #BCSM
drattai
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@ctsinclair important point as much care is being moved from the hospitals to outpatient settings #bcsm
virtualhospice
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.@jodyms You're right there. Not only what is pall care, but when can I get it and where and how are common questions. #bcsm
survivorrunner
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@ctsinclair Thank you:) #bcsm
ctsinclair
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T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #BCSM
brandie185
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Evening all ... just jumping in now! #bcsm
jodyms
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@ctsinclair Q1b: are they readily identified as palliative care? I was wondering if wording varies. #bcsm
stales
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RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #bcsm
ctsinclair
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T1a: But you will find most palliative care programs are attached/affiliated with hospice because of shared values and expertise. #BCSM
annwax
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@BCSisterhood welcome! #bcsm
gmasandi1
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@ctsinclair Hospice focuses on comfort when cure is not possible. Admission determined by Medicare guidelines #LCD #BCSM
jodyms
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RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice - obviously isn't tho, correct? #bcsm
kathykastner
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RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #BCSM
cjmeta
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Have been reading link. Hve trouble w concept. Have had mets six yrs. Def defines my treatment as palliative. Do u agree? #bcsm
fischmd
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@DrAttai It is so important to integrate #palliative care early into course of serious illness...outpatient access is key #bcsm
colleen_young
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Also important to note that palliative care is not necessarily end-of-life care. Can you elaborate @ctsinclair @fischmd #bcsm
stales
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RT @ctsinclair: T1a: you'll find most palliative care programs are attached/affiliated w/ hospice because of shared values & expertise #bcsm
bcsisterhood
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@annwax Thanks:) #BCSM
stales
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RT @fischmd: @DrAttai It is so important to integrate #palliative care early into course of serious illness...outpatient access is key #bcsm
ctsinclair
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@jodyms T1b: Wording does vary 'Supportive Care' being the most common alternate name. http://t.co/lJx76Ms9 hasa good directory #BCSM
drattai
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@fischmd agree - difficult sometimes to discuss - from all sides #bcsm
bcsisterhood
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RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #BCSM
virtualhospice
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@ctsinclair In Canada we have home palliative care and home hospice care in many regions. Not so in US? #bcsm
abhuret
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@xeni love! Lol! #bcsm
a4breastcancer
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I think friends and family misconceive because they both have to do with making the loved one as comfortable as possible #bcsm
jodyms
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Great comments frm @ctsinclair & @fischmd: if anything discussed is anxiety provoking ask add'l questions & get the answers u need. #bcsm
mike_stellar
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RT @xeni: Non-cancer peeps: for the next hour, I'll be participating in the weekly Breast Cancer Social Media chat (#BCSM). Mute if you like. or STFU.
nancyspoint
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I wish I had understood the difference when my mom was ill a few years ago. #bcsm
miamicrime
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#bcsm (breast cancer social media) until 10 pm. Joining in a little late #scary subject
uvmer
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@colleen_young got the sense that palliative care and end of life care were pretty much the same...maybe stage we were in #bcsm
annwax
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@gmasandi1 @ctsinclair Hvr, thr r some ppl that do get better on hospice and they get off hospice. #bcsm
talkabouthealth
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RT @fischmd: @DrAttai It is so important to integrate #palliative care early into course of serious illness...outpatient access is key #bcsm
drattai
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@CJMeta yes, you fit the definition of palliative - does it make sense to you? #bcsm
drseisenberg
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RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #bcsm
jodyms
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RT @stales: RT @fischmd: @DrAttai It is so imp to integrate #palliative care early into course of serious illness..outpt access is key #bcsm
fischmd
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@colleen_young #palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #bcsm
ctsinclair
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Palliative Care teams in hospital can be called for in very complex situations like the ICU, but they can help upstream in care too. #BCSM
moyecome
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RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #BCSM
jodyms
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Q1: From my experience w/a friend? Supportive services should begin long before the patient is in terrible pain. That is unnecessary. #bcsm
stales
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RT @fischmd: #palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #bcsm
eileenzfuentes
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Good Evening #BCSM'rs... joining in late but happy to be here now :)
colleen_young
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@CJMeta That would be my understanding. You should be elligible for palliative care. #bcsm
drseisenberg
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RT @fischmd: palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #bcsm
bcsisterhood
https://pbs.twimg.com/profile_images/202326272/twittericon_normal.jpg
@colleen_young #palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #BCSM
jodyms
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RT @fischmd: @colleen_young #palliative care is an approach that is valid for all serious illness & into long-term survivorship too #bcsm
drattai
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@uvmer @colleen_young sometimes they are all the same - not always #bcsm
ctsinclair
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@uvmer Palliative Care can handle EOL (end of life) situations and in hospitals this is often how they are used when starting up #BCSM
stales
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@miamicrime Yes - it's a scary topic for many of us. Good to learn about it tonight from the experts. #bcsm
drseisenberg
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It seems to me that every patient going through chemotherapy should have a palliative care team... #bcsm
abhuret
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@drseisenberg @ctsinclair #bcsm that's been my misconception too.
annwax
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@jodyms In this day and age, a person should not be in pain. #bcsm
jodyms
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Q1: There are distinct differences; palliative services can be added at any time they are necessary in the course of survivorship. #bcsm
mdanderson_poe
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@fischmd: how does one, MD Anderson for example, integrate #palliative care early into course of serious illness? #bcsm
ctsinclair
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Once a palliative care team is established they work hard to not just be the in-hospital EOL team. PC teams want to help earlier #BCSM
bcsisterhood
https://pbs.twimg.com/profile_images/202326272/twittericon_normal.jpg
RT @drseisenberg: It seems to me that every patient going through chemotherapy should have a palliative care team... #BCSM
gmasandi1
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@annwax @ctsinclair True we do "graduate" some when they no longer meet the Hospice guidelines #BCSM
colleen_young
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@uvmer My understanding is that palliative is symptom management, which may be at end of life, but also may not be end stage. #bcsm
ctsinclair
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RT @drseisenberg: It seems to me that every patient going through chemotherapy should have a palliative care team... "RTx1000" #BCSM
jodyms
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@annwax I agree. But it happens. #bcsm
drattai
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@annwax complete pain-free is not always a realistic goal. But it's a goal. #bcsm
nancyspoint
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@drseisenberg I agree. it should at least be discussed as an option. #bcsm
miamicrime
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@ctsinclair who are the members of a PC team? #bcsm
aliciabloom
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@colleen_young #palliative care has been shown to improve QoL & positively impact survival when provided concurrently with cancer tx #bcsm
fischmd
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@stales I appreciate how difficult (and confusing) this topic can be...it is often discussed during vulnerable times #bcsm
danceswithpens
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some confusion exists also bc as stage 4 they tell us we are basically receiving palliative tx, which differs with the specialty #bcsm
colleen_young
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@uvmer In other words, you may be discharged from a palliative unit. It's not the "death" place as it is often misconceived as. #bcsm
survivorrunner
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@drseisenberg Really? I've never heard it in reference to me... #bcsm
jodyms
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T2: So the question becomes, how/when does palliative care become part of the breast cancer discussion? #bcsm
drseisenberg
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RT @fischmd: @stales I appreciate how difficult (and confusing) this topic can be...it is often discussed during vulnerable times #bcsm
drattai
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@fischmd @stales unfortunately no one wants to talk about it when it's not a critical issue #bcsm
colleen_young
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TY RT @fischmd: #palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #bcsm
annwax
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@DrAttai Many times simple hydration helps to relive pain. #bcsm. I find that many pt's r not well hydrated
danceswithpens
https://pbs.twimg.com/profile_images/2219040055/moi2_n1vuig_normal.jpg
then when they say, donna, you should consult with palliative med, it is scary bc it feels like options are gone #bcsm
bcsisterhood
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@danceswithpens So thrilled you're home! #BCSM
ctsinclair
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@a4breastcancer The word "Comfortable" can be overused in healthcare and people only start to see it as a code-word for hospice. #BCSM
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
Haven't seen palliative care offered separate of hospice. With mets u get treatment only. Shortly before death-hospice + palliative. #bcsm
uvmer
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@colleen_young I met the palliative care doc when I was taking my partner home from icu because we wanted to be home. #bcsm
cleo4muse
https://pbs.twimg.com/profile_images/2242689913/image_normal.jpg
RT @breastcancerfnd: Now Undeniable: #BreastCancer That Comes With the Job. Jeanne Rizzo via @HuffingtonPost http://t.co/PdztNpLR #BCSM
fischmd
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@colleen_young the goals of care for patients receiving palliative care vary, it depends on the individual situation #bcsm
drattai
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@annwax yes, you're right #bcsm
bcsisterhood
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RT @annwax: @DrAttai Many times simple hydration helps to relive pain. #bcsm. I find that many pts r not well hydrated #BCSM
jodyms
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@ctsinclair @fischMD I don't understand why palliative/supportive therapies aren't introduced from the get-go. #bcsm
gmasandi1
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@ctsinclair @uvmer Many of our Hospice patients begin in palliative care. #bcsm
kathykastner
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RT @jodyms: @ctsinclair @fischMD I don't understand why palliative/supportive therapies aren't introduced from the get-go. #bcsm
drseisenberg
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@SurvivorRunner If symptoms out of control during therapy than totally appropriate... #bcsm
ctsinclair
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T2: palliative care can be an important addition to a good oncology team when working with patients with breast cancer #BCSM
drattai
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@danceswithpens no - it's about providing the best quality of life possible for you #bcsm
adamslisa
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discussion of palliative care going on at weekly #bcsm (breast cancer social media) chat until 10 PM /EST.
dmwalsh618
https://pbs.twimg.com/profile_images/527860956488302592/yXdd-kv__normal.jpeg
@jodyms When? At the first visit. QOL and supportive care should be a part of treatment from day 1. #bcsm
moyecome
https://pbs.twimg.com/profile_images/1884118175/image_normal.jpg
RT @ctsinclair: T2: palliative care can be an important addition to a good oncology team when working with patients with breast cancer #BCSM
fischmd
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@CJMeta Ideally, palliative care is delivered concomitant with treatment to control the disease. They work hand-in-hand. #bcsm
stales
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RT @ctsinclair: T2: palliative care can be an important addition to a good oncology team when working with patients with breast cancer #bcsm
jodyms
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@danceswithpens That is understandable; but it's important to know what they are offering, I think. #bcsm
drattai
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@danceswithpens working with you to allow you to be as comfortable and functional as possible #bcsm
drseisenberg
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That's what it's all about, yes! RT @DrAttai: @danceswithpens no - its about providing the best quality of life possible for you #bcsm
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
When 1st DXd w mets, pts need palliative but don't get it. After they adjust, they don't need it until thgs get bad. #bcsm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@drseisenberg I would agree. A palliative referreral should be part of chemo. #bcsm Why is it not?
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @jodyms: T2: So the question becomes, how/when does palliative care become part of the breast cancer discussion? #bcsm
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
RT @fischmd: @CJMeta Ideally, palliative care is delivered concomitant with treatment to control the disease. They work hand-in-hand. #bcsm
bcsisterhood
https://pbs.twimg.com/profile_images/202326272/twittericon_normal.jpg
RT @fischmd: @CJMeta Ideally, palliative care is delivered concomitant with treatment to control the disease. They work hand-in-hand. #BCSM
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
T2: A friend I was in treatment with received palliative services during treatment when her pain from radiation was terribly difficult #bcsm
drseisenberg
https://pbs.twimg.com/profile_images/458999025308422144/oCx1sW0f_normal.jpeg
we need to make comfort, peace and overall patient experience from and center once and for all... #bcsm
ctsinclair
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@uvmer Your experience is not uncommon. If you went back to talk to that PC team, I bet they are working to not just be in the ICU. #BCSM
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
RT @colleen_young: @drseisenberg I would agree. A palliative referreral should be part of chemo. #bcsm Why is it not? #bcsm
nancyspoint
https://pbs.twimg.com/profile_images/3273009015/4a53182deff24946a73232fa1caf2f05_normal.jpeg
why is palliative care not being discussed early on? #bcsm
colleen_young
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@aliciabloom Exactly. #bcsm
brevagenplus
https://pbs.twimg.com/profile_images/518873783059226624/Sv2VKCBK_normal.jpeg
@ChapmandeRojas @annwax @xeni Serendipity is a great thing - enjoy! #bcsm
annwax
https://pbs.twimg.com/profile_images/577632606/ann_normal.jpg
@DMWalsh618 @jodyms QOL and supportive care is supposed to start on time before u sign up for treatment. #bcsm
mdandersonnews
https://pbs.twimg.com/profile_images/3405930334/d2477a37cfd6061961e65f30272fba06_normal.jpeg
RT @fischmd: @CJMeta Ideally, palliative care is delivered concomitant with treatment to control the disease. They work hand-in-hand. #bcsm
lanisia
https://pbs.twimg.com/profile_images/1538093631/profile_normal.jpg
#bcsm good friend is palliative care doc. She says now that patient satisfaction getting emphasis oncologists now want her on team early on
fischmd
https://pbs.twimg.com/profile_images/459125087405228032/PGVZ221X_normal.jpeg
T2: #HPM is good medicine (pts feel better+avoid hospitals, it lowers costs). Dr. Tom Smith via youtube: http://t.co/z9yAfWOv #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
@uvmer Palliative Care teams see a lot of suffering from disease and symptoms in hospitals, and the system can be too afraid to use PC #BCSM
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @aliciabloom #palliative care has been shown to improve QoL & positively impact survival when provided concurrently with cancer tx #bcsm
virtualhospice
https://pbs.twimg.com/profile_images/579673206/cvh_logo_for_facebook_normal.jpg
Don't forget palliative care includes family and friends too, not just the patient. #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
@NancysPoint That IS the question to me as well. #bcsm
survivorrunner
https://pbs.twimg.com/profile_images/2334878865/image_normal.jpg
@drseisenberg Maybe that's why I didn't hear about it? #bcsm
kathykastner
https://pbs.twimg.com/profile_images/2937917362/4d1e3e9b19b763df6a77636a394a0d84_normal.png
RT @VirtualHospice: Don't forget palliative care includes family and friends too, not just the patient. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
You may be surprised to hear that doctors and nurses have similar misconceptions about palliative care and underutilize it. #BCSM
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
are there enough PC teams for every patient undergoing chemo? not sure about that. usually falls on med onc to triage #bcsm
lanisia
https://pbs.twimg.com/profile_images/1538093631/profile_normal.jpg
@fischmd I would think it increases compliance and therefore outcomes too. #bcsm
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
RT @jodyms: T2: A friend received palliative services during treatment when her pain from radiation. Yes .they don't normally get it. #bcsm
drseisenberg
https://pbs.twimg.com/profile_images/458999025308422144/oCx1sW0f_normal.jpeg
Y RT @chemo_babe: good friend is palliative care doc. She says now that patient satisfaction getting emphasis oncologists now want #bcsm
virtualhospice
https://pbs.twimg.com/profile_images/579673206/cvh_logo_for_facebook_normal.jpg
@danceswithpens Palliative care should not be presented at last option. #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @chemo_babe good friend is palliative care dr. She says now that patient satisfaction getting emphasis oncs want her on team early #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
RT @ctsinclair: Palliative Care teams see a lot of suffering frm disease & symptoms & the system can be too afraid to use #bcsm
nancyspoint
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@ctsinclair how do we change this? #bcsm
fischmd
https://pbs.twimg.com/profile_images/459125087405228032/PGVZ221X_normal.jpeg
One limitation to more ideal use and integration of palliative care is that the workforce (experts, teams) is too small. #bcsm
silkyd67
https://pbs.twimg.com/profile_images/1449222418/AstroBurger_normal.jpg
RT @xeni: Non-cancer peeps: for the next hour, I'll be participating in the weekly Breast Cancer Social Media chat (#BCSM). Mute if you like. or STFU.
gmasandi1
https://pbs.twimg.com/profile_images/1207187335/palm_tree_normal.jpg
@NancysPoint It is all about educating the community about Palliative care. #BCSM
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @ctsinclair: @uvmer Palliative Care teams see lot of suffering from disease & symptoms in hosp, and system can be afraid 2 use PC #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
Palliative care teams often share a lot of values with the patient empowerment movement. Be informed, be involved. #BCSM
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
@ctsinclair @fischMD I started to learn so much from the weekly #HPM chats. Extremely comfortating, as cancer pt: to learn abt it #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @fischmd: One limitation to more ideal use and integration of palliative care is that the workforce (experts, teams) is too small. #bcsm
xeni
https://pbs.twimg.com/profile_images/542192783075704832/03eDUAO2_normal.jpeg
@drattai For many of us, palliative care ends up=prescriptions for pills. No broader discussion of other tools—massage, for instance. #BCSM
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@ctsinclair Thats why I always assumed PC was the same as EOL care....which was so terrifying. Didn't want to even say the words #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
@fischmd yes - that was my point. Especially for all of the outpatient chemo patients #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @ctsinclair: You may be surprised to hear that doctors & nurses have similar misconceptions about palliative care & underutilize it #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
Good point worth emphasizing: palliative care does not mean "the end of the road." #bcsm
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
Ha! Before treatment. It can take weeks to get first MD appt after DX w mets. No one helps. Office staff attitude: deal with it. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
@NancysPoint PC teams do a lot to try and break down misconceptions in hospitals. Takes a lot of time and 1:1 convos. #BCSM
fischmd
https://pbs.twimg.com/profile_images/459125087405228032/PGVZ221X_normal.jpeg
To some extent, since the expertise is too scarce, PC tends to be offered closer to the end-of-life. That will change... #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
RT @ctsinclair: Palliative care teams often share a lot of values with the patient empowerment movement. Be informed, be involved. #bcsm
danceswithpens
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@VirtualHospice I think it is more the perception by the patient perhaps than the reality. #bcsm
miamicrime
https://pbs.twimg.com/profile_images/530075739601661953/G3pLjny5_normal.jpeg
#bcsm things are getting good for me. Finished treatment Jan.26. On tamoxifen & pain is manageable. The idea that 1 day I may need PC is sad
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
good pt RT @xeni: @drattai For many of us, palliative care = Rxs for pills. No broader discussion of other tools—massage, for instance #bcsm
lanisia
https://pbs.twimg.com/profile_images/1538093631/profile_normal.jpg
@xeni @drattai right: proven therapies like acupuncture for neuropathy not covered by insurance #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @fischmd: To some extent, since the expertise is too scarce, PC tends to be offered closer to the end-of-life. That will change #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
@xeni and that's too bad - many aspects to helping with comfort. Massage, discussing sleep patterns, eating habits, so many things #bcsm
bcsisterhood
https://pbs.twimg.com/profile_images/202326272/twittericon_normal.jpg
RT @ctsinclair: You may be surprised to hear that doctors & nurses have similar misconceptions about palliative care & underutilize it #BCSM
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
@CJMeta Or try a different referral network? Does that make sense? #bcsm
craftychicky
https://pbs.twimg.com/profile_images/514004230902784004/EMNiPiAT_normal.jpeg
@chemo_babe I have clients that have done concurrent care w/oncology & palliative care for symptom mgmt. improved quality of life #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
@uvmer You are not alone. Even PC teams feel frustration that palliative care often equated with hospital EOL care. #BCSM
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
Never heard of a palliative team at the 3 diff cancer ctrs I've been to in yrs of mets. #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @uvmer: @ctsinclair Thats why I always assumed PC was the same as EOL care....which was so terrifying. Didnt want to say the words #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
Yes @danceswithpens @VirtualHospice I think it is more the perception by the patient perhaps than the reality. #bcsm
danceswithpens
https://pbs.twimg.com/profile_images/2219040055/moi2_n1vuig_normal.jpg
PC physician approached me w it's time for you to decide whether u want to keep treating or to do other things . . . scared me . . . #bcsm
carlamazzone1
https://pbs.twimg.com/profile_images/2845869317/6a3fba3d823895e62731adf31072568f_normal.jpeg
Excellent book called The Best Care Possible by Ira Byock,MD. Great for clinical & lay persons. #bcsm
lanisia
https://pbs.twimg.com/profile_images/1538093631/profile_normal.jpg
@craftychicky it's amazing but I paid out of pocket $$ #bcsm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@ctsinclair Family member given 12 months, I asked for palliative referreral. Oncologist said "Why, he's not symptomatic yet." argh #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
@chemo_babe @xeni unfortunately that's true. But slowly changing with more data. These therapies can be almost lifesaving #bcsm
drseisenberg
https://pbs.twimg.com/profile_images/458999025308422144/oCx1sW0f_normal.jpeg
We have to think of palliative care not as "pre-hospice", but QOL care from day one. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
Palliative care teams are probably the most open to CAM therapies in nearly all the specialties. @xeni @DrAttai #BCSM
xeni
https://pbs.twimg.com/profile_images/542192783075704832/03eDUAO2_normal.jpeg
@miamicrime so glad to hear! Do remember as discussed here earlier, "palliative care" does not equal "hospice/end of the road care." #bcsm
kathykastner
https://pbs.twimg.com/profile_images/2937917362/4d1e3e9b19b763df6a77636a394a0d84_normal.png
RT @ctsinclair: Palliative care teams are probably the most open to CAM therapies in nearly all the specialties. @xeni @DrAttai #BCSM
danceswithpens
https://pbs.twimg.com/profile_images/2219040055/moi2_n1vuig_normal.jpg
(cont) even tho my onc said i have more options; PC doc made it feel like I did not; maybe her style did not synch w me #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
@danceswithpens not the best approach, that's for sure #bcsm
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
@jodyms Dif referral network? Just seems if available it shld be evident. Wasn't evident at Hopkins or Georgetown. #bcsm
fischmd
https://pbs.twimg.com/profile_images/459125087405228032/PGVZ221X_normal.jpeg
T2: #Palliative care (broadly defined) is valid for #breastcancer pts integrated throughout the course of illness #bcsm
lanisia
https://pbs.twimg.com/profile_images/1538093631/profile_normal.jpg
RT @drseisenberg: We have to think of palliative care not as "pre-hospice", but QOL care from day one. #bcsm
virtualhospice
https://pbs.twimg.com/profile_images/579673206/cvh_logo_for_facebook_normal.jpg
@DrAttai Unfortunately there is not equal access to palliative care and definitely not enough to hospice. At least not in Cda. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
RT @CarlaMazzone1: Excellent book called The Best Care Possible by @IraByock MD. Great for clinical & lay persons. "I second!" #BCSM
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
The word hospice used to scare me. Then my father-in-law got very sick and went into a hospice facility, now I understand the process #bcsm
lsihra
https://pbs.twimg.com/profile_images/2897261405/294a9ab7b30745c7114f9007d4e66602_normal.jpeg
RT @LizSzabo: Tonight at 9pm ET #bcsm will explore palliative care w/ @fischmd @ctsinclair. RT @ctsinclair @VirtualHospice
bcsisterhood
https://pbs.twimg.com/profile_images/202326272/twittericon_normal.jpg
RT@drseisenberg We have to think of palliative care not as "pre-hospice", but QOL care from day one. #bcsm #BCSM
GPille
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RT @VirtualHospice: Don't forget palliative care includes family and friends too, not just the patient. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
@colleen_young Sigh, I have sadly heard that story too many times. But an empowered patient can demand/seek out palliative care #BCSM
annwax
https://pbs.twimg.com/profile_images/577632606/ann_normal.jpg
@danceswithpens it can be scary when a pc physician puts that in front of you and u hv to decide ur future. #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
@fischMD @CTSinclair One a pt's deepest fears? Abandonment. How does pt assure care is welll coordinated? #bcsm
a4breastcancer
https://pbs.twimg.com/profile_images/378800000678704067/9885fbf7dd0706ad5ee60611ab940386_normal.jpeg
not surprised doctors and nurses have misconceptions from experience of as patient and family member- #bcsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@ctsinclair where are PC people "housed"...how do they become integrated? Only brought in by docs who understand what PC really is? #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
@stales We can sharemore of these in a moment:) #bcsm
drseisenberg
https://pbs.twimg.com/profile_images/458999025308422144/oCx1sW0f_normal.jpeg
Nobody ever wants to go through treatment for breast cancer or any cancer. But if one must, they must be comfortable throughout such. #bcsm
virtualhospice
https://pbs.twimg.com/profile_images/579673206/cvh_logo_for_facebook_normal.jpg
@danceswithpens You're right and we hope our website helps debunk the myths around palliative care and hospice. #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
@stales sometimes it's hard to understand the process until you've been through it with a family member or friend #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
Please friends: we all know the chat is underway. No more need to RT announcements about tonight's chat. #bcsm
cjmeta
https://pbs.twimg.com/profile_images/435633903500419072/--hYKqSq_normal.jpeg
@ctsinclair Seek out palliative care? Only if they understd it. I bet almost none do. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
Important point: Palliative Care teams love success/survivor stories too. I collect them. Not always about death and acceptance. #BCSM
fischmd
https://pbs.twimg.com/profile_images/459125087405228032/PGVZ221X_normal.jpeg
T3: "To prescribe pills is easy but to reach an understanding with people is very hard." -Franz Kafka #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
excellent point RT @GPille: RT @VirtualHospice: Dont forget palliative care includes family and friends too, not just the patient. #bcsm
craftychicky
https://pbs.twimg.com/profile_images/514004230902784004/EMNiPiAT_normal.jpeg
@chemo_babe @xeni @drattai some insurance plans (here in SD at least) are providing some acupuncture coverage. Nice change #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @ctsinclair: Palliative Care teams love success/survivor stories too. I collect them. Not always about death and acceptance. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
@uvmer Right now because of low workforce numbers, hospital based consults is where most PC exists. Funding for outpatient is weak. #BCSM
drseisenberg
https://pbs.twimg.com/profile_images/458999025308422144/oCx1sW0f_normal.jpeg
@fischmd great one. #bcsm
fischmd
https://pbs.twimg.com/profile_images/459125087405228032/PGVZ221X_normal.jpeg
T3: No two people react the same to their illness or want the same exact things from their MD, nurse, family, friends.. #bcsm
feistybluegecko
https://pbs.twimg.com/profile_images/1631781971/Copy__3__of_July_August_2011__mac__1136_resize_normal.jpg
Good morning all from Tuesday, sorry I am late again..... trying to find out the topic... #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
fischmd T3: "To prescribe pills is easy but to reach an understanding with people is very hard." -Franz Kafka #bcsm
drseisenberg
https://pbs.twimg.com/profile_images/458999025308422144/oCx1sW0f_normal.jpeg
yay RT @craftychicky: @chemo_babe @xeni @drattai some insurance plans (here in SD at least) are providing some acupuncture coverage. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
Hospice and Palliative Care is more than just opioids and pills (although important). Listening is our main tool. #BCSM
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @ctsinclair: @colleen_young I have sadly heard story too many times. But an empowered patient can demand/seek out palliative care #bcsm
xeni
https://pbs.twimg.com/profile_images/542192783075704832/03eDUAO2_normal.jpeg
Nothing if not Kafkaesque. RT @fischmd: "To prescribe pills is easy but to reach an understanding w people is very hard." -Franz Kafka #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
RT @fischmd: T3: No two people react the same to their illness or want the same exact things from their MD, nurse, family, friends.. #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
how true RT @fischmd T3: "To prescribe pills is easy but to reach an understanding with people is very hard." -Franz Kafka #bcsm
bcsisterhood
https://pbs.twimg.com/profile_images/202326272/twittericon_normal.jpg
@feistybluegecko Hello to the woman from tomorrow:) #BCSM
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
@feistybluegecko hospice and pallative care #bcsm
drseisenberg
https://pbs.twimg.com/profile_images/458999025308422144/oCx1sW0f_normal.jpeg
RT @ctsinclair: Hospice and Palliative Care is more than just opioids and pills (although important). Listening is our main tool. #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @ctsinclair: Hospice and Palliative Care is more than just opioids and pills (although important). Listening is our main tool. #bcsm
ctsinclair
https://pbs.twimg.com/profile_images/507055317704650752/Hd_CvM2p_normal.png
Surgery is to a surgeon as a family meeting is to a palliative care team. #BCSM
miamicrime
https://pbs.twimg.com/profile_images/530075739601661953/G3pLjny5_normal.jpeg
@fischmd I can relate to Dr. Smith's commentary on patient's denial #bcsm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@ctsinclair Don't you worry. I demanded it and got a consult on the spot And I have the @VirtualHospice & #hpm teams at my fingertips #bcsm
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
T3: It's so difficult for patients. No uniform services offered from one location to the next or even called the same thing. #bcsm
drattai
https://pbs.twimg.com/profile_images/1143609443/website_photo_normal.jpg
@feistybluegecko welcome - we're discussing hospice and palliative care with @ctsinclair and @fischmd #bcsm
drseisenberg
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RT @stales: RT @ctsinclair: I have sadly heard story too many times. But an empowered patient can demand/seek out palliative care #bcsm
cjmeta
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OK ... family & friends. But most don't think of it as palliative care. U get the same when u have 24 flu & we don't call P-care. #bcsm
nancyspoint
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so impt!RT @ctsinclair: Hospice and Palliative Care is more than just opioids and pills Listening is our main tool. #bcsm
stales
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@ctsinclair does pallative care differentiate between physical comfort and emotional comfort? #bcsm
hey_leia
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I noticed today that the cancer center where I'm being treated offers #sonic healing classes http://t.co/RhhSE5mG #BCSM
chemobrainfog
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Key point @fischmd: No 2 pts are the same. Must be difficult balancing act to determine what suits a particular pt/family. #bcsm
jodyms
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Awesome @ctsinclair Surgery is to a surgeon as a family meeting is to a palliative care team. #bcsm
ctsinclair
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@CJMeta We are making inroads. But culture change doesn't usually come fast. Unless you are technology. #BCSM
drattai
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we have family meetings, too!! RT @ctsinclair: Surgery is to a surgeon as a family meeting is to a palliative care team. #bcsm
practicalwisdom
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RT @ctsinclair: Surgery is to a surgeon as a family meeting is to a palliative care team. #BCSM
mdandersonnews
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RT @jodyms: T3: No two people react the same to their illness or want the same exact things from their MD, nurse, family, friends.. #bcsm
stales
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RT @jodyms: T3 Its so difficult for patients. No uniform services offered from one location to the next or even called the same thing #bcsm
jodyms
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T4: Let's open this up - do some of you have experiences w/either palliative and/or hospice that you'd like to share? Or questions? #bcsm
miamicrime
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@feistybluegecko palliative care and hospice #bcsm
fischmd
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@miamicrime Denial is not a flaw, it is part of the process for many individuals. You are not alone... #bcsm
drattai
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@jodyms that makes it very hard - like lots in oncology care - treatment patterns can vary tremendously #bcsm
ctsinclair
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We could have a whole chat just about family meetings and goals of care. @jodyms @DrAttai @stales #BookmarkForFuture #BCSM
stales
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RT @fischmd: T3: No two people react the same to their illness or want the same exact things from their MD, nurse, family, friends.. #bcsm
YvonFitz
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RT @VirtualHospice: Don't forget palliative care includes family and friends too, not just the patient. #bcsm
annwax
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Have to go. TY to everyone for allowing me to be connected to all of you. It is always a great chat #Bcsm
jodyms
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@DrAttai That's because YOU are an amazing physican. Hour-long meetings with breast surgeon is not the norm. #bcsm
fischmd
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Holly Prigerson on grief: "the state of emotional unrest and frustration assoc with wanting what one cannot have http://t.co/crqxUVtO #bcsm
stales
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RT @jodyms: T4: Lets open this up - do some of you have experiences w/either palliative and/or hospice that youd like to share? ques? #bcsm
ctsinclair
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@stales Yes if you seen palliative care in one place, you can easily say you have seen palliative care in one place. #BCSM
lanisia
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@jodyms T4: I love hospice nurses. So much wisdom about #eol issues -- and pain management! #bcsm
jodyms
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@ctsinclair Great idea - bookmarked as noted:)P #bcsm
virtualhospice
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@ctsinclair I won't clog up the chat, but at the end I'll share some wonderful threads from our discussion forums about hopsice & pc. #bcsm
drattai
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@jodyms they are in my practice! #bcsm
feistybluegecko
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@miamicrime thank you :) #bcsm
stales
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@annwax good night, thanks for joining us #bcsm
jodyms
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RT @fischmd: @miamicrime Denial is not a flaw, it is part of the process for many individuals. You are not alone... #bcsm
abhuret
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@fischmd It needs to -- and I hope it does. Survivorship is such a gray area and so many are uncomfortable with the term. #bcsm
danceswithpens
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T4 How do i prepare for my PC OP consult? Husband and me #bcsm
stales
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RT @chemo_babe: @jodyms T4: I love hospice nurses. So much wisdom about #eol issues -- and pain management! #bcsm
drseisenberg
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BCSM = Because Comfort Serves Many #bcsm
eweysgrammy
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RT @chemo_babe: @jodyms T4: I love hospice nurses. So much wisdom about #eol issues -- and pain management! #bcsm
fischmd
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Recognizing and managing grief is a key part of #palliative care #bcsm
craftychicky
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#bcsm I wish there were more honest discussions on #palliative care at the outset of treatment so patients know their options. QOL key
drattai
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the whole PC / hospice care team - made up of amazing people unlike any you'll ever meet #bcsm
jodyms
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@chemo_babe I agree - hospice nurses and pain management professionals that helped my mother were Godsends. #bcsm
virtualhospice
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@stales Palliative care includes both physical and emotional comfort. #bcsm
ctsinclair
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@DrAttai Yes I think the family meeting has really been elevated in all specialties partly due to increase value on communication #BCSM
drseisenberg
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The best. RT @chemo_babe: @jodyms T4: I love hospice nurses. So much wisdom about #eol issues -- and pain management! #bcsm
cjmeta
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When father-in-law was dying in our home, social worker helped us all. I wasn't the patient but had palliative care from them. #bcsm
gmasandi1
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@chemobrainfog @fischmd Meeting patient/family goals are important. #BCSM
drseisenberg
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RT @fischmd: Recognizing and managing grief is a key part of #palliative care #bcsm
virtualhospice
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+1 RT @jodyms: Awesome @ctsinclair Surgery is to a surgeon as a family meeting is to a palliative care team. #bcsm
nancyspoint
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Agree! RT @DrAttai: the whole PC / hospice care team - made up of amazing people unlike any youll ever meet #bcsm
drattai
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@danceswithpens my suggestion - figure out what you want, what's realistic. Ask these questions. And see how they can help #bcsm
Essvari
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RT @drseisenberg: BCSM = Because Comfort Serves Many #bcsm
aliciabloom
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RT @ctsinclair: Surgery is to a surgeon as a family meeting is to a palliative care team. #BCSM
bcsisterhood
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That's so important for patient & family. RT @fischmd: Recognizing and managing grief is a key part of #palliative care #BCSM
ctsinclair
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@DrAttai Not saying we have the market cornered on family meetings, but it is our most complex diagnostic and therapeutic tool in PC #BCSM

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