#BTSM transcript

Healthcare Social Media Transcript

From: Sun Aug 18 19:00:00 PDT 2013
To: Sun Aug 18 20:15:00 PDT 2013

What is #BTSM? Who were the influencers during this time period? #BTSM analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
Welcome to tonight's #btsm chat! Take a moment to introduce yourself, explaining the perspective you'll share tonight (patient, family, etc)
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
o minute #btsm chat :)
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
Heads up followers: I will be participating in a tweetchat for the next hour. Join us: http://t.co/30IUunaMkd #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
Who's gonna start? #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ Liz here. Healthily living w/grade 2 astrocytoma for 5 yrs. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
My name is Aislinn. I am a brain tumor survivor. I am now 17 years old, but I was diagnosed when I was 15 #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
I'm S-DAWG. Grade 2/3 anaplastic astrocytoma. Only 4 chemo treatments left 2 go. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@AislinnAce i Aislinn! Glad you are participating! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
John here. I have a grade 2 #oligoastrocytoma. Dx'ed in 2011. Have gone thru a needle biopsy, a craniotomy, and radiation therapy. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
It's just under a year since my cranio to remove a grade 2 astrocytoma. Here to live and tell the tale. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
And I have a grade II/III Rosette Forming Glionerounal Tumor of the Fourth Ventricle, Oligodendroglioma, and Astrocytoma. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce Gosh, that's a mouthful. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce How long did it take you to remember the name and learn how to spell all of that? #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
They couldn't remove all my tumor, so there's some left on my brainstem #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
Hello everyone, I'm Heidi, I was 1st diagnosed 20 years ago, if u can believe that, then 15 years later another surgery #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
not that long because I heard the doctors say it all the time when they were making their "rounds" #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@brainmattersorg Welcome Heidi! If you don't mind me asking, what was the tumor type? #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce :) #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@AislinnAce All all your tumors in the same location generally? #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
in my cerebellum and brainstem #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
should have been clearer...I've had two surgeries, a craniotomy and a translabial surgery. I have a chondrosarcoma #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
I actually haven't heard of that type of tumor Heidi ;) #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@brainmattersorg I always appreciate when I meet folks w double digits in survivor years. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@brainmattersorg I just Googled "translabial" and it doesn't sound brain tumor-related. How did it help? #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
Tonight's theme focuses on social changes post-Dx. It'll be interesting to see how patient, family, friends etc. perspectives differ #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@brainmattersorg My 1st neuro-onc had the nutz 2 tell me I wasn't gonna make it more than a few years. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
THIS --> RT @the_sdawg: @brainmattersorg I always appreciate when I meet folks w double digits in survivor years. #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
My mom had GBM in brainstem and passed 2.5yrs ago #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
RT @TheLizArmy: THIS --> RT @the_sdawg: @brainmattersorg I always appreciate when I meet folks w double digits in survivor years. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
When should we start the discussion? Should we wait for more peple to come? #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@Ashjansen88 Welcome Ashley #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce Here we go Ace! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
T1: Is/was there a change in your public v private behavior post-Dx? Do/did you act differently to keep others from worrying? #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
AWESOME!!!! #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
@TheLizArmy the chondrosarcoma is in the temporal lobe, the translabial surgery was better able to get there #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@CBlotner_ Wow - that's a good/deep question #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@brainmattersorg Wow! Science! Amazing. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
This first topic applies to all perspectives..family, friends, caregivers, etc. all deal with the BT experience in their own way too #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
A1: I've always been "good" and keeping my various faces. So no, however, I do show a more irritability now than before #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Also, I couldn't really speak at that time, so I would draw and write poems of how I was feeling #btsm #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ A1: I didn't change my behavior "to keep others from worrying" because I was worried and thought everyone should be too. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
A1: I have started giving compliments 2 every1 I meet. "Nice shoes, love the purse." For me it helps me keep my own head up 2 b polite #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
sorry I'm late....hanging in the background. (: #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@hav77 always "good" under what terms? #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@uvmer Always glad to have you Nancy! #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 Do u think that's a side fx of radiation or meds? My rad RN warned me irritability was pretty common #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
Also, I'm generally a pretty stoic person to the chagrin of many, I don't let things out much. #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
@TheLizArmy Science is Amazing, I always think about being able to live to see progress #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce I'm glad that you were able to express yourself via poetry as a creative outlet #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
After my surgery, I had hremi-paresis right side. I didn't recognize myself. And I couldn't be happy because I was supposed to be sick #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@CBlotner_ I'm good at keeping my pre-dx john persona. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy GOOD. That's one of the best responses I've heard on the topic. Glad that u were allowed to be u w/o pressure from others #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce I agree w @CBlotner_ Creative outlets r good. I have 2 craft groups. 1 is @ Cancer Ctr. 1 is family/friends #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Can I send one of my first poems I wrote afterwords? is that alright with everyone? #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@the_sdawg Possibly. I do have some brain damage so it might be a result. Or it might just be the circumstances I find myself in. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce Please do :) #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@the_sdawg Compliments are always nice for other people to hear, but how did you feel while you gave compliments? #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@AislinnAce Of course!! Please do send it! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@AislinnAce It would be a pleasure to read. Yes. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 I hear ya. Do u feel frustration? #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce Feel free to send it right now! We'd all love to read your work #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
I'll have to break it up: Staring blankly at a shattered mirror Where void of emptiness appears surreal #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@hav77 That's good to hear John, as long as your persona is what you're comfortable with #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@CBlotner_ I feel good. It helps me smile. I used to pride myself on being a bitch. These says I say "ma'am" and "sir." #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ I agree with @the_sdawg too: I really love giving compliments. Knowing life is short, I want to be the best person I can. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Unbearable silence wandering near The ghost of whom it will never seem real. #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@the_sdawg Yes, all the time. I function okay well enough, but things at the fringe are just "different." Not quite the same. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 I hear that. I get frustrated when I can't find the words I need. Public speaking has been a huge part of my life. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Curiosity in the kindest way Where words wasted to be too serious #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 I get inspired watching Gabby Giffords recover from her brain injury. Same location as my tumor. She obvs has it worse. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Where the words wasted are taken astray Creeping melancholy mysterious. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Where plows dig up the soil of growing land And leave behind the fields filled with forsake #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@the_sdawg Exactly, or when that extra gear you always had stalls out! #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@the_sdawg @hav77 Speaking of word loss... anyone here do a neuropsychological evaluation related to their tumor? #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@the_sdawg Not necessarily. As @AislinnAce reminded me last night, no one has it "worse" per say, we all just have things "different" #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
One under the false pretense of command A barely breathing forgotten mistake. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Keeping close pieces of which I once was But keeping pieces close only because. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@TheLizArmy @CBlotneer_ I will never regret being kind. I will never regret spending time w family. I will never regret saying I luv u #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@the_sdawg @hav77 Gabby Giffords is an inspiration....shows how the brain can re-learn even with parts damaged or missing. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy Yep! How'd the testing go? #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
There! My masterpiece is finished being typed!!! #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#NBA #BTSM Awesome! Matt Barnes launched Athletes vs. Cancer Worldwide 2 Educate♥Awareness♥Motivate people♥2Get regular cancer screenings♥
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce Thanks for sharing! I enjoyed reading what you had to say #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@AislinnAce Beautiful! Thank you for sharing it with us! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
A1: Found myself wandering around in my own thoughts amongst friends&family. Too many worries to stay in the moment until post-craino #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@TheLizArmy @hav77 as in speech therapy? If so, I LOVE speech therapy! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
RT @TheLizArmy: @CBlotner_ I agree with @the_sdawg too: I really love giving compliments. Knowing life is short, I want to be the best pers
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
@TheLizArmy Was asked to do the neurophysical test, skipped it. Thought it would be a downer. Felt I knew what I was experiencing #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@AislinnAce Thank you. Would you mind if I post your poem on my blog? #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@uvmer Word. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ Neuropsych testing went well! Blogged about it about 30 min ago: http://t.co/C4QwbA7DDX #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
SDAWG that's strange to love therapy... and i had neuropsych done too #btsm
tumorwarrior
https://pbs.twimg.com/profile_images/324565747/291658_15409833498049_normal.jpg
RT @CBlotner_: Welcome to tonight's #btsm chat! Take a moment to introduce yourself, explaining the perspective you'll share tonight (patie…
tumorwarrior
https://pbs.twimg.com/profile_images/324565747/291658_15409833498049_normal.jpg
RT @AislinnAce: o minute #btsm chat :)
tumorwarrior
https://pbs.twimg.com/profile_images/324565747/291658_15409833498049_normal.jpg
RT @AislinnAce: I'm ready!! #btsm
tumorwarrior
https://pbs.twimg.com/profile_images/324565747/291658_15409833498049_normal.jpg
RT @TheLizArmy: Heads up followers: I will be participating in a tweetchat for the next hour. Join us: http://t.co/30IUunaMkd #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@TheLizArmy @the_sdawg Yes, I had one several months ago. Going to have another one in a month to see if anything can be done. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@brainmattersorg I saw the testing as a way to confirm my symptoms and affirm that they weren't just in my head #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ To confirm symptoms are "not in your head!" *rimshot* #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
I've really appreciated speech therapy, facial paralysis therapy, swallowing therapy, so many other therapies #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce Thx 4 sharing ur poetry #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
I was in high school when I had everything done, and when I wen back, I found everyone immature. I didn't like friends, and vice-versa #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
A1: I tried not to worry when my mom was diagnosed but I was scared and worried. I didn't show it around her tho. I was positive #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy Hahahaha *smacks myself in the face* #btsm
thecancercardx
https://pbs.twimg.com/profile_images/1437916647/thecancercardX_normal.jpg
RT @CBlotner_: This first topic applies to all perspectives..family, friends, caregivers, etc. all deal with the BT experience in their own
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@TheLizArmy Will definitely read. The full day testing was tiring and I found it to be frustrating. But helpful #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 Plz ask 4 a speech therapy referral. It has helped me regain a sense of confidence and independence. Thank Goddess 4 it #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
very tiring indeed, John #btsm
thecancercardx
https://pbs.twimg.com/profile_images/1437916647/thecancercardX_normal.jpg
@CBlotner_: Tonight's theme social changes post-Dx. interesting to see how patient, family, friends perspectives differ #btsm” Brain cancer
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce I felt the same way. My perspective changed while theirs stayed the same. #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@AislinnAce Must have been difficult. I'm in my 30's with a "developed" sense of self and had trouble post-cranio processing my world #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@Ashjansen88 It sounds hard to walk the line of wanting to look and be positive for a patient while having worries yourself. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce Wow - that's got to be hard. But it's also a "normal" part of aging. Clarifiying which relationships mean the most to u #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
RT @brainmattersorg: I've really appreciated speech therapy, facial paralysis therapy, swallowing therapy, so many other therapies #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
And by "aging" I speak from 32 sage years of experience #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@brainmattersorg I had no idea there were so many forms of therapy available. Thanks for the awareness! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@the_sdawg I'll ask my neuropsychologist about it. My speech seems okay, it's my brain processing that has issues. #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
@CBlotner totally get the confirmation factor about the testing, when I was first diagnosed they didn't have this test #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ Not at all, I'm still, positive and have lots of fun. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
SDAWG, I've clarified that none of my previous relationships matter to me! Unfortunately... #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
T2: How have u adapted to social situations post-dx? Any isolation, increased/decreased worries or big changes w/ a new perspective? #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 It's not all about pronunciation & vocab. Short term memory tips. Logic. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
Sometimes that's the case. MT @AislinnAce I've clarified that none of my previous relationships matter to me! Unfortunately. #btsm #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce That's really hard to do. How do you plan to move forward? #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@hav77 Same here. My neuropsych explained a few tips to help. Most was common knowledge though unfortunately. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Im not sure who T2 is, Catherine, but Im going to answer. I isolated myself for two years. I didnt want to g out. I stayed in my bed. #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
Wish a neuropsyche test was mandatory where possible before any sort of biopsy. I didn't get one prior to my 1st biopsy. No baseline #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@AislinnAce that's really sad actually. Why do you say that? #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 That is such a good point! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@the_sdawg Thanks! Will definitely inquire about it then #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@SAHorwitch Glad to hear that. I myself have struggled to balance fun and realize limitations at hand #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@AislinnAce T2 = Topic 2 #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 4 sure. I can also post a list of workbooks that u can find on Amazon 2 get your brainstorm rumbling #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
John: I became extremely depressed with suicidal thoughts. I had major PTSD. Everything scared me. I wanted to just be alone for once. #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
Rehabilitation is an important facet of brain tumor recovery after brain surgery or another brain tumor treatment. #BTSM
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@CBlotner_ We all knew right from the start that she didn't have much time left but my mom was still the same. I didn't sleep much #BTSM
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ I impose no limitations. As ice said before, the tumor doesn't define me or my life. It's just there. I live for me! #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@hav77 I agree (about mandatory neuropsych pre-infiltrating brain). I am starting to second guess my own brain lately. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce T2 stands for topic number 2, and A2 will stand for answers that some people respond with #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
I was in rehab for 6 straight months and Im about t start again #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@SAHorwitch Holler! #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
my ear lie tweet to you and john were A2s #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@hav77 Unfortunately same here, I had my first testing a few weeks ago..11 months post surgery but still a baseline now. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
ear lie = earlier #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@CBlotner_ Ditto. #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@the_sdawg Hey girl! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy Same. Ack! #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
A2:After diagnosis I didn't want 2 leave my mom's side bc I knew I didn't have much time with her and after she died I isolated myself #BTSM
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ A2: Adapting to social situations changes the further you are out from dx. #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@the_sdawg That'd be great. Thank you. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
my neuropsych testing was about 6 months post surgery #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
BrainTumor patients have many options for rehabilitation♥ Therapy♥Diet♥Exercise♥Occupational therapy♥Physical therapy♥Speech therapy♥ #BTSM
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@Ashjansen88 A2 I did the same thing as you.... #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
a2: Ive stopped covering up my bald spots. Proud to fly my bald flag #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ A2: 1-3 yrs after dx I was tired often, and I felt like all my friends were having fun/being active. #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@AislinnAce Understand. Catherine and I spoke about PTSD a while back. Did you seek any outside help? #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@the_sdawg Woot woot! Fly your flag! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@SAHorwitch Ah! Great mental approach! I work with the cognitive limitations I have from surgery. Doesn't define but does limit #btsm
tumorwarrior
https://pbs.twimg.com/profile_images/324565747/291658_15409833498049_normal.jpg
RT @HYHUTriangle: BrainTumor patients have many options for rehabilitation? Therapy?Diet?Exercise?Occupational therapy?Physical therapy?Spe
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@Ashjansen88 Can't imagine... #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ Occasional awkward looks when I explain why I took a year off school, but I don't act differently at all. I'm open! #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
A2: I was bored by immature high school kids. I locked myself in my room #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@TheLizArmy Tats are on the horizon. #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@uvmer I still do to some extent but my mom wouldn't want me to do that #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce Argh. I wish you had known about @campdream earlier. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@TheLizArmy How were u able 2 deal w energy slumps #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
A1: I now feel a need to rush and do things because I feel like I might not get to if I wait to do it another day. #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM Rehabilitation options will vary depending on the damage caused by the tumor and the type of treatment a patient receives.
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy That's nice to hear for someone in my shoes (one year). Was disappointed in my energy last night (1st night after move-in) #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ A2: A 5 years post DX I feel a bit more normal, but a lot like Spiderman (With great power comes great responsibility.) #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@SAHorwitch @CBlotner_ you are very open! #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@AislinnAce some people are different after an event like this....its not just immature high school kids. Adults too..... #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@CBlotner_ me too. I could be myself for the first time in years! #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@the_sdawg FTW! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@TheLizArmy How so? I know, loaded question. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@the_sdawg Great question! Would love to know how you powered up @thelizarmy #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
whats the question? #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ I never let that limit me either. Told everyone around me to act normal and worked to be normal. I was NOT changing life! #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
PHOTO: My cat is observing the #BTSM tweet chat tonight. http://t.co/XrnUd0Gl7H
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM Many factors affect the brain tumor recovery process, such as the patient's age and health before treatment.
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 I'll send the book list after chat #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@AislinnAce The question was regarding how to boost energy during slumps #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@Ashjansen88 same with me....I pretty much do everything alone. I have a couple of friends I occasionally see, but I'm mostly alone #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@AislinnAce It's hard enough because we've seen and been to places that most people haven't so there's a disconnect for sure #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy Adorable! Name? #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@TheLizArmy Love it #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
A2: It's still a very big adjustment without her here and its hard to talk to my dad and stepmom about things #BTSM
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM Patients can greatly increase their rate and quality of recovery and rehabilitation by taking care of themselves and staying healthy♥
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
RT @uvmer: @AislinnAce some people are different after an event like this....its not just immature high school kids. Adults too..... #bt
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
From surgery I have something called Posterior Fossa Syndrom also. It's weird. It's asperger's, OCD, and ADHD wrapped up. Anyone else? #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@hav77 Responsibility: I am doing well. Feel it is my duty to represent for peeps going back to work, getting jobs, equal treatment. #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@SAHorwitch @CBlotner_ @the_sdawg @TheLizArmy I need b12 shots lol #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@SAHorwitch It's fantastic that you are able to live your life like that! A big chunk of the BT battle post-surgery can be mental too #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@hav77 that makes complete sense #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
I've lived alongside my tumor 4 a long time-don't know what life would b without it, I know I wouldn't appreciate life the way I do #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ I think a lot of it it mental, and people can tend to keep themselves down a lot. I won't allow that of myself! #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@CBlotner_ @SAHorwitch You know that's right! #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@brainmattersorg Thanks for the positive framing #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ @the_sdawg Thanks! His name is Mark Rothko. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@SAHorwitch @CBlotner_ Sometimes we don't have a choice, just like we didn't sign up to have a BT #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@uvmer I try not to alone but I just need my space more so now. I will still go out with some friends tho #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce Word #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy Liz [Ball So Hard] X swings around DC on top of transport busses like Tarzan in the jungle & shouts out legislative change #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM Healthy recovery process includes♥ Eating a healthy diet♥ full of complex carbohydrates♥ is important for long-term energy♥
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM ♥Exercising moderately may help with fatigue and depression♥ and may improve sleep♥
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@AislinnAce @CBlotner_ I believe we always have a choice about our attitude. Might be the only thing we can control & it's important! #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@SAHorwitch Exactly. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
RT @CBlotner_: @TheLizArmy Liz [Ball So Hard] X swings around DC on top of transport busses like Tarzan in the jungle & shouts out legislat
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
T3: What have you done to combat social changes you might have experienced? Have you accepted changes or worked towards improvement? #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@hav77 you really can't until you go through it #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ How did you know?! Except I am Spiderman, not Tarzan. #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM Sleeping for several uninterrupted hours each night helps combat fatigue and aids in physical and emotional recovery♥
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
T3 (con't): Improvement can be anything you see it as. Making new friends, managing energy, trying new adventures, etc. #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@the_sdawg It's important and a lot of people forget that. Being negative doesn't help any healing, physical or mental. #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@brainmattersorg It's only been 2 yrs for me, but all the appts etc...starting to feel normal now. There's a familiarity about them. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy If you're Spiderman then I'm Tarzan. Make me a t-shirt for Halloween..thanks in advance. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
a3: I used 2 hate hugs. Now I give them to all my freinds/fam (w/ consent, of course) and I always say I love you #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ @uvmer OK... Do any of you know HYHITriangle and why they preschedule spam-like tweets during our chats? Drives me crazy. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Im making the transition from HS to college. I'm sort of afraid since I have panic attacks,blackouts,etc. How to act with others? #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM Great articles! Brain Tumor Rehabilitation After Treatment ♥Health & Wellness♥ http://t.co/EcSZRXRnMK
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy I feel ya. I've tried inviting them to join us before - no such luck. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@the_sdawg Same here! #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ I maintained life as same as I could without much change. I think I'm very different than most! Just treatment and move on! #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@TheLizArmy @CBlotner_ @uvmer I was just wondering... #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@TheLizArmy @CBlotner_ :D not really..... #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@CBlotner_ I definitely try and be more open and not avoid some situations #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@the_sdawg Hugs are way underrated. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@SAHorwitch VERY true! In a health world full of so many unknowns, it's nice to be able to find one's positive center. #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@TheLizArmy @CBlotner_ @uvmer I can't stand their tweets period actually. So many hearts...annoying. #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
RT @TheLizArmy: Heads up followers: I will be participating in a tweetchat for the next hour. Join us: http://t.co/30IUunaMkd #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
RT @CBlotner_: Welcome to tonight's #btsm chat! Take a moment to introduce yourself, explaining the perspective you'll share tonight (patie…
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ A3: I am trying to NOT talk about cancer so much. I way casual w/it, and it helps friends if I don't joke about it. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@hav77 @the_sdawg I believe you mean to say "overrated" #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
RT @ThisCassandra: It Could Happen to Anyone: 3 Survivors Move the World (EP 1): http://t.co/z5UQlcavG1 via @youtube #BTSM
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
RT @subatomicdoc: @VABC Discusses Possibility of Brain Cancer Treatment Becoming Personalized http://t.co/p6wLlehfTC via @digitaljournal #b
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@hav77 @the_sdawg HUGS ARE AWESOME!! #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce That's OK 2 have a different point of view. #btsm
teaminspire
https://pbs.twimg.com/profile_images/467406485199130624/0nF2JY92_normal.jpeg
RT @subatomicdoc: @VABC Discusses Possibility of Brain Cancer Treatment Becoming Personalized http://t.co/p6wLlehfTC via @digitaljournal #b
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@SAHorwitch @TheLizArmy @uvmer Regardless of opinions, let's all remember that #btsm is a place for people to openly talk abt BT experiences
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
I'm hypersensitive, so I hate being touched! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
I've accepted the changes in a way. No more enjoying a fine beverage with friends and going out to gastropubs #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@SAHorwitch @TheLizArmy @CBlotner_ :D #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@CBlotner_ you just never know what others are going thru and that next person can maybe relate #BTSM
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ They may be one of those Twitterbot accounts. I don't think they are real. No new content. Lots of RTs. #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ @TheLizArmy @uvmer I agree completely, but they don't add anything or share experience. They spam the chat. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 I miss beer! Can u knock 1 back 4 me plz #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@AislinnAce Some people give great hugs. I was indifferent to them before, but have changed my opinion of them #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
A3: Ive been told I have a problem trusting people. I don't even tell my parents how I'm feeling!!! #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@CBlotner_ @SAHorwitch @TheLizArmy @uvmer I agree! #btsm
jimgm20
https://pbs.twimg.com/profile_images/344513261566630559/75334b0746be1a313626aaa49205627e_normal.jpeg
@the_sdawg @hav77 Having one now for you. #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@the_sdawg @hav77 You can't drink? Whattttttttt. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce I respect that #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@the_sdawg Only if I could, I would! My friends did a urban bike ride to 3 local breweries yesterday. So wanted to join. #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@the_sdawg @hav77 no beer.....I am sorry. I will have one for you. <3 #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@the_sdawg Why? #btsm
myhealthshare
https://pbs.twimg.com/profile_images/479587570070745088/AKHnFfqv_normal.jpeg
RT @subatomicdoc: @VABC Discusses Possibility of Brain Cancer Treatment Becoming Personalized http://t.co/p6wLlehfTC via @digitaljournal #b
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@SAHorwitch Seizure meds. Don't mean I can't puff puff pass ;) #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@jimgm20 @the_sdawg Thanks Jim, especially if it's Stone Ruinten IPA! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy I'm working towards doing tht myself. Always casual but sometimes talked about 2 much. This yr's new setting will b a test #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@CBlotner_ I want to get more involved with the Brain Tumour Foundation of Canada since they are located 30 min from me #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@CBlotner_ @TheLizArmy You can say that again ;) #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@the_sdawg Yikes, don't tell me about that...(lawyer remember?) I stick to being a wino. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@Ashjansen88 Great idea! Let me know if you get involved! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@SAHorwitch @the_sdawg No, I can't. It messes with the keppra and just my brain in general. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@Ashjansen88 That sounds like a great idea! I bet @thelizarmy has some great advocacy tips to share with you #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ @TheLizArmy A new setting was a huge test, but an opportunity for a life that wasn't defined by a BT. It was great! #btsm
BinibiningKez_
And by "aging" I speak from 32 sage years of experience #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce I'm a sexual assault survivor. I used to HATE being touched or touching some1 else (except my gay boyfriend). #BTSM
jimgm20
https://pbs.twimg.com/profile_images/344513261566630559/75334b0746be1a313626aaa49205627e_normal.jpeg
@hav77 @the_sdawg New Belgium Rolle Bolle. Uh, oh. I am on keppra but never told not to imbibe. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@the_sdawg Did you see that?! Total spambot. #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM RT @WalkfortheMind #BrainTumors is something NO ONE wants to talk about. We need to get conversation going and then fund research♥
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@CBlotner_ @Ashjansen88 @TheLizArmy Come do the Race for Hope in DC....we can all meet up. Thats where I met Liz! #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce Now I choose to give hugs - ask for consent first - and if someone doesn't want a hug, it's OK #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@hav77 @the_sdawg Wow, major bummer! Thatttt would suck, sorry y'all! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@hav77 I'm on keppra as well! #btsm
zheatherchamp
https://pbs.twimg.com/profile_images/530918859348267008/2qcTuJAn_normal.png
Can't believe I forgot the #btsm tweet chat! Urg.
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@the_sdawg Damn. Were you his beard or something? #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@TheLizArmy I've been meaning to stop in there for months but keep getting sidetracked with other things. I Drive by there everyday #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@AislinnAce Sometimes it's easier talking to a stranger because there's no history there, so no possible repercussions of what's said #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@TheLizArmy @AislinnAce Didn't realize that little joke was worth spamming :p #btsm
hyhutriangle
https://pbs.twimg.com/profile_images/2205910919/177_normal.jpeg
#BTSM RT NW Bio Receives Regulatory Decision that Will Enable Its Phase III #BrainCancer Trial to Proceed in Germany http://t.co/cpBVTW4M3w
zheatherchamp
https://pbs.twimg.com/profile_images/530918859348267008/2qcTuJAn_normal.png
@CBlotner_ Did you have topics this time? #BTSM
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@uvmer @CBlotner_ @TheLizArmy It depends when it is but it would be a great experience #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@AislinnAce Nope. We can out together. He's my lezbro. I'm his hag. We're soul sisters #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@ZHeatherChamp No worries! You can find the convo on the symplr transcript in a bit. Yes, 3 topics. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@hav77 That's a good point #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@Ashjansen88 @CBlotner_ @TheLizArmy First Sunday in May....?? something like that. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@CBlotner_ @hav77 Gabapentin #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@ZHeatherChamp Welcome aboard friend #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@uvmer @Ashjansen88 @CBlotner_ @TheLizArmy Or y'all can come for the Dallas one! It's awesome. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@the_sdawg Love it! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@SAHorwitch @TheLizArmy Most definitely. It will be exciting to have anonimity amongst peers again #btsm
tumorwarrior
https://pbs.twimg.com/profile_images/324565747/291658_15409833498049_normal.jpg
RT @TheLizArmy: @hav77 Responsibility: I am doing well. Feel it is my duty to represent for peeps going back to work, getting jobs, equal t
tumorwarrior
https://pbs.twimg.com/profile_images/324565747/291658_15409833498049_normal.jpg
RT @AislinnAce: From surgery I have something called Posterior Fossa Syndrom also. It's weird. It's asperger's, OCD, and ADHD wrapped up. A
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@TheLizArmy @CBlotner_ I think it's part of the process of moving forward? ATrying to get back to that function denial state again. #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ Computer is dying. Cat sitting on hand/can't type. I need to jet--but I HEART you guys. Until next week! #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@TheLizArmy Later #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@CBlotner_ Computer is dying. Cat sitting on hand/can't type. I need to jet--but I HEART you guys. #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
Well, that just about wraps up tonight's #btsm chat everyone - see you all next week! #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@TheLizArmy @CBlotner_ good night Liz xxx #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@TheLizArmy Adios super star #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
I've been to the one in D.C. and the one in N.Y., wish I knew you all...definitely let's meet #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ @TheLizArmy No one in law school knew for a while. It doesn't HAVE to be the first thing people know about us! #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@hav77 @TheLizArmy @CBlotner_ I never want to get back to the denial state again because waking up was the hardest part for me. #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@SAHorwitch Excacty #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@uvmer @TheLizArmy @CBlotner_ good night Liz #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
@SAHorwitch Word. #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@brainmattersorg for sure Heidi.....2014! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@jimgm20 @the_sdawg Don't know... #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@SAHorwitch Same here now in college #btsm
jimgm20
https://pbs.twimg.com/profile_images/344513261566630559/75334b0746be1a313626aaa49205627e_normal.jpeg
I'll try to remember earlier so I don't jump into the convo fashionably late at 10:47. #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@the_sdawg I like your style. #btsm
brainmattersorg
https://pbs.twimg.com/profile_images/2269183329/t8eiiaaaohj35a8cx6xf_normal.jpeg
Night all, it's been a pleasure! #btsm
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
@TheLizArmy Bye Liz! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@brainmattersorg Hopefully one day we all will! #btsm
the_sdawg
https://pbs.twimg.com/profile_images/3771778282/6265788edbb8058fcab2b41d76a4e7e7_normal.jpeg
@SAHorwitch Awww shucks #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@SAHorwitch @uvmer @CBlotner_ @TheLizArmy Would love to go to Dallas! When is that one? #btsm
thelizarmy
https://pbs.twimg.com/profile_images/378800000843277418/8bda506550c1e00a16de2d5d8114bc62_normal.jpeg
IDEA: Brain tumor survivor campaign. Awesome stat + awesome stat + awesome stat + BT survivor = complete shock and awe #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
Bye Heidi #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@jimgm20 always good to see you Jim! #btsm
cblotner_
https://pbs.twimg.com/profile_images/529127985975005184/oJR0R3nG_normal.jpeg
@jimgm20 Hey Jim! Hope to see you back here next Sunday #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@CBlotner_ It's not hiding it just not advertising. You learn the difference! Doesn't mean you're not a proud survivor. More to life! #btsm
zheatherchamp
https://pbs.twimg.com/profile_images/530918859348267008/2qcTuJAn_normal.png
@CBlotner_ A1: Post-I don't share like I did. I don't trust as I did. Especially to those I once trusted & thought were my friends. #BTSM
sahorwitch
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@CBlotner_ And good luck in college. My first time to not go back to some sort of school, enjoy it! #btsm
aislinnace
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@ZHeatherChamp @CBlotner_ Totally #btsm
the_sdawg
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Well, I need to go take my nitey nite meds. @hav77 I will post the speech therapy workbooks in the AM #btsm
zheatherchamp
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@CBlotner_ I'm just going to your profile to find the topics & searching the hash tag too. :) Thanks! #BTSM
uvmer
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@ZHeatherChamp @CBlotner_ you really find out who your real friends are...for many, its just too much for them to handle. #btsm
hav77
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@CBlotner_ Hope you're coping with it well. #btsm
the_sdawg
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@hav77 In the mean time, check out http://t.co/e8QHtAnXFL. Lots of the same kinds of memory activities #btsm
zheatherchamp
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@the_sdawg Thanks! 4 min over time. :) hah. #BTSM
sahorwitch
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@Ashjansen88 @uvmer @CBlotner_ @TheLizArmy I think it's in Nov, I'll check the date. I've done it before and it's fun! #btsm
aislinnace
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@the_sdawg @hav77 OMG i forgot about them! thanks!!!! #btsm
hav77
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@the_sdawg Goodnight and thanks again. #btsm
ashjansen88
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@SAHorwitch @uvmer @CBlotner_ @TheLizArmy I think I might be in Europe in Oct/Nov to visit my sister and nephew but if not wud love 2 #btsm
jimgm20
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Good night. Back to work tomw with teacher meetings. 4 yrs ago @ this time, I had to tell my colleagues I was heading into surgery. #btsm
hav77
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@AislinnAce @TheLizArmy @CBlotner_ Oddly enough, I've found many similarities to the Matrix for some reason. It's pandora's box #btsm
aislinnace
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Pleasure chatting with everyone, but i have to skedaddle. Nighty-night! #btsm
hav77
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@jimgm20 lol #btsm
uvmer
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Sweet dreams to all my #btsm friends. Great to be a part of the group! See you all on #BrainTumorThursday. xxx
hyhutriangle
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#BTSM ♥Lord God♥ send peaceful sleep to refresh our tired bodies♥ May your help always renew us and keep us strong♥ #GoodNight
ashjansen88
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@SAHorwitch @uvmer @CBlotner_ Good night everyone. Have to get up early for doc appt #btsm
hav77
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@AislinnAce Goodnight #btsm
aislinnace
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@uvmer we meet on thursday???? #btsm
tumorwarrior
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RT @HYHUTriangle: #BTSM RT NW Bio Receives Regulatory Decision that Will Enable Its Phase III #BrainCancer Trial to Proceed in Germany http…
sahorwitch
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@Ashjansen88 @uvmer @CBlotner_ @TheLizArmy If I can walk, then I'm def in. Should be out of a cast by then! #btsm
hav77
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@jimgm20 have a good one Jim. Glad you won't have to tell them the same thing. #btsm
zheatherchamp
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A2: I'm sad to say that at 2 years out I am still struggling with isolation/social situations. More so w/friend situations. #BTSM
uvmer
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@AislinnAce #BrainTumorThursday happens every thurs where people from all over the world share info, support and love. Check it out. #btsm
jimgm20
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@hav77 Thanks John #btsm
hyhutriangle
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#BTSM ♥Into your hands Lord♥ we commend our souls and bodies♥ beseeching you to keep us this night under your protection and strengthen us♥
aislinnace
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@ZHeatherChamp Same exact way. Camp Mak-A-Dream really helped #btsm
uvmer
https://pbs.twimg.com/profile_images/463506572816039936/KwQRfg9C_normal.jpeg
@SAHorwitch @Ashjansen88 @CBlotner_ @TheLizArmy Cast??? #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@SAHorwitch @uvmer @CBlotner_ @TheLizArmy Everyone can come to London, Ontario in April for the run/walk #btsm
hav77
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@the_sdawg Thanks. Lumosity has been good I think. #btsm
uvmer
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@ZHeatherChamp ....with me too #btsm
aislinnace
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@uvmer I definitely will! #btsm
zheatherchamp
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A3: I kayaked for the first time yesterday (to mark 2 yrs)! This was the first of many adventures celebrating ME and my new life. #BTSM
uvmer
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@AislinnAce Cool....see you then! #btsm
sahorwitch
https://pbs.twimg.com/profile_images/420064157187067904/hHpupvzB_normal.jpeg
@uvmer @Ashjansen88 @CBlotner_ @TheLizArmy 2 weeks out from ankle reconstruction! Have a hot pink big cast! #btsm http://t.co/DXMljqZlR5
zheatherchamp
https://pbs.twimg.com/profile_images/530918859348267008/2qcTuJAn_normal.png
@AislinnAce How are you managing it? How long ago was your surgery? CC @CBlotner_ #BTSM
hav77
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@uvmer Goodnight Nancy #btsm
aislinnace
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peace out, my fellow comrades #btsm
zheatherchamp
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@uvmer So sad. And disappointing. I don't get it. I wouldn't bolt on my friends but I agree. CC @CBlotner_ #BTSM
uvmer
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@hav77 Good night Johnny! Sleep well... xxx #btsm
ashjansen88
https://pbs.twimg.com/profile_images/534058013456625664/q8kh9vjG_normal.jpeg
@SAHorwitch @uvmer @CBlotner_ @TheLizArmy Nice cast lol. Good night everyone..Up early for doc appt tomorrow. HAve a good night #btsm
zheatherchamp
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@uvmer How are you managing it if I may ask? #BTSM
livestrongcat7
https://pbs.twimg.com/profile_images/525139497462550529/GCyqa9dN_normal.jpeg
RT @AislinnAce: From surgery I have something called Posterior Fossa Syndrom also. It's weird. It's asperger's, OCD, and ADHD wrapped up. A
hav77
https://pbs.twimg.com/profile_images/3487979929/200547daec4ce07723f98fe4ec511d2e_normal.jpeg
I'm out too. Have a goodnight and fruitful day tomorrow all. #btsm
aislinnace
https://pbs.twimg.com/profile_images/378800000793052284/e372ea21933199dd5ae36a462c295b16_normal.jpeg
@ZHeatherChamp It's been a long and difficult struggle. But every year I get a little better. Maybe 3 is my lucky number ;) #btsm

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