#HAchat transcript

Healthcare Social Media Transcript

From: Tue May 29 7:12:00 PDT 2012
To: Wed May 30 7:12:00 PDT 2012

What is #HAchat? Who were the influencers during this time period? #HAchat analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/2xDxuNrh us at 3pm ET to discuss
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
RT @wegohealth: Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/8mG7wc51 us at 3pm ET to discuss
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
@wegohealth You need to have a gap between the bit.ly link and join. Best of luck with the #HAchat today on patient identity.
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/CqUrCLLM - Join us at 3pm ET to discuss
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
RT @wegohealth: Today's #HAchat is on patient identity and how we look at diagnosis: http://t.co/zHxjR6Mp - Join us at 3pm ET to discuss
DiabetesSocMed
https://pbs.twimg.com/profile_images/378800000723577673/30fc56e332578b3ed2fb95d3fc11868d_normal.jpeg
RT @wegohealth: Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/CqUrCLLM - Join us at 3pm ET to discuss
tuftspreppain
https://pbs.twimg.com/profile_images/1417520892/twitter_normal.jpg
Sounds like a great topic today on #hachat at 3 PM EDT Exploring pt identity -- how does/doesn't illness define you http://t.co/3yFfgrlg
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
Sounds like a great topic today on #hachat at 3 PM EDT Exploring pt identity -- how does/doesn't illness define you http://t.co/lhfAAnpy
sansumdiabetes
https://pbs.twimg.com/profile_images/2695565759/d1fe2d567ce53d0c3e5c433bdbaa3269_normal.png
RT @wegohealth: Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/CqUrCLLM - Join us at 3pm ET to discuss
sikcell
https://pbs.twimg.com/profile_images/1459308431/2131823_normal.jpg
RT @wegohealth: Today's #HAchat will be on patient identity and how we look at diagnosis: http://t.co/CqUrCLLM - Join us at 3pm ET to discuss
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
What’s the difference between how you see yourself pre-diagnosis & post-diagnosis? Discuss with us in 1hr: http://t.co/QOa3y0JN #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Whoaaaa! Did ya'll see the #HaChat topic for the @wegohealth chat today at 3pm est? "Pre-diagnosis you vs post-diagnosis you" I'm SO there!
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
How can we work together to make newly diagnosed patients feel comfortable with themselves? Join the #HAchat in 1hr to discuss!
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @apdolan: How can we work together to make newly diagnosed patients feel comfortable with themselves? Join the #HAchat in 1hr to discuss!
SLEYoungLeaders
https://pbs.twimg.com/profile_images/378800000077794209/b54b701e4ac877a4140c6791bd57902d_normal.jpeg
RT @apdolan: How can we work together to make newly diagnosed patients feel comfortable with themselves? Join the #HAchat in 1hr to discuss!
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @apdolan: How can we work together to make newly diagnosed patients feel comfortable with themselves? Join the #HAchat in 1hr to discuss!
intractablepain
https://pbs.twimg.com/profile_images/2443910795/343416535_normal.jpg
RT @wegohealth: How'd ya see yourself pre-diagnosis vs. post? Discuss in 20m http://t.co/OyOgW59o #HAchat #chronicpain #chronicillness
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Join us in 30 to talk patient identity (diagnosis, perception, labels, &more) - use #HAchat or visit: http://t.co/WzGttRNw #hcsm
EricGlazer
https://pbs.twimg.com/profile_images/60567341/Smile_5_retouched_normal.jpg
RT @wegohealth: Join us in 30 to talk patient identity (diagnosis, perception, labels, &more) - use #HAchat or : http://t.co/75HJu1U4 #hcsm
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
RT @wegohealth: Join us in 30 to talk patient identity (diagnosis, perception, labels, &more) #HAchat http://t.co/0XlbXcoi #hcsm
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
About to start our tweetchat about patient identity - join us! http://t.co/WzGttRNw #HAchat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
RT @wegohealth: About to start our tweetchat about patient identity - join us! http://t.co/qiJp6Wzm #hachat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: About to start our tweetchat about patient identity - join us! http://t.co/WzGttRNw #HAchat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
Join me for a #HAchat TweetChat at: http://t.co/5e6SUrm8 #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Welcome to the Health Activist Tweetchat! Today we'll be discussing patient identity, diagnosis, & more. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @wegohealth: Welcome to the Health Activist Tweetchat! Today we'll be discussing patient identity, diagnosis, & more. #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: Welcome to the Health Activist Tweetchat! Today we'll be discussing patient identity, diagnosis, & more. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
The @Wegohealth #HaChat starts NOW, join us as we discuss our patient identities & diagnosis ~> http://t.co/RppT0tkH #HaChat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Let’s quickly introduce ourselves: Name/username, blog name or URL, health community or condition & hashtag about you. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
The @Wegohealth #HaChat starts NOW, join us as we discuss our patient identities & diagnosis ~> http://t.co/gsYAvB52 #HaChat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
hi im laurie recovering bipolar 2 and wego health activist #HAchat
wecan4health
https://pbs.twimg.com/profile_images/421351109286838272/JsQvNcxe_normal.jpeg
@tiffanyandlupus #hachat ?? Sounds interesting, may just have to set up a stream for that! Hi @wegohealth
caitlin_cumming
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Caitlin, Community Coordinator Extrordinaire here at @wegohealth. Excited for today's #HAchat! #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
In May we’re focusing on Setting The Record straight and today’s chat will focus on that – with regards to identity & diagnosis. #HAchat
wegohealth
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Welcome and feel free to jump in at any time! #HAchat
wegohealth
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Today let’s start by looking at how people’s health conditions play into how they see themselves. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Topic 1: How do people’s health conditions (symptoms, diagnoses, treatment, etc) factor into how they see themselves? #HAchat
serenebutterfly
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Rhiann here from Brain Lesion and Me (http://t.co/cXyfUmFZ) #hachat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
RT @wegohealth: Topic 1: How do people’s health conditions (symptoms, diagnoses, treatment etc) factor into how they see themselves? #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
RT @wegohealth: About to start our tweetchat about patient identity - join us! http://t.co/dQ4ydPWD #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@HealthcareNovel Yes! #HaChat stands for :Health Activist Chat. Hey @wegohealth this is Robert, awesome health advocate :)
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
Katharine here! I blog at From A to Pink about living w/ #cysticfibrosis. http://t.co/FjlKSfcR #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Sorry I'm late! Hi! #HAchat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@wegohealth sometimes you become the label. it becomes your defining characteristic #hachat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
RT @wegohealth Topic 1: How do people’s health conditions (symptoms, diagnoses, treatment, etc) factor into how they see themselves? #HAchat
caitlin_cumming
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@HealthcareNovel Welcome, Robert! Hope you'll join us. Any friend of @TiffanyAndLupus is a friend of @wegohealth #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: Today let’s start by looking at how people’s health conditions play into how they see themselves. #HAchat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
participating with a 3 year old sleeping across my chest. can barely reach the keyboard :) #hachat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
@marandacarvell such dedication! #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @marandacarvell: @wegohealth sometimes you become the label. it becomes your defining characteristic #HAchat
serenebutterfly
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T1: Although our conditions do not define us as a person, sometimes it's all that other people see - asking us how we are #hachat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T1: It can be difficult to see yourself withOUT the disease. #cysticfibrosis #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
We have to remember our conditions are not who we are but rather that it is a part of us #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @KatharineS84: T1: It can be difficult to see yourself withOUT the disease. #cysticfibrosis #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
RT @KatharineS84: T1: It can be difficult to see yourself withOUT the disease. #cysticfibrosis #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T1.1: What’s the difference between how you see yourself pre-diagnosis and post-diagnosis? #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @serenebutterfly: We have to remember our conditions are not who we are but rather that it is a part of us #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T1: I struggled w/ppl finding out I had CF before they got to know ME. Didn't want them to only see me as "sick." #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
It's easy to feel "less than" other people, or automatically more limited than others. #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
diagnosis can feel like you're losing your identity. now that you have X you can no longer do Y. #HAchat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
sometimes i feel stuck once illness identified ( a fence sitter) move through it with supportive therapy, than back to work mode #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T1.1: For the most part I see myself as the same, but stronger. It's my feelings toward the future that have changed. #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T1: I think sometimes people start to define themselves by their illnesses and negative symptoms. #HAchat
Dyverse_Steele
t1 sometimes the stigma of disease can even affect your own thinking maybe it is in my head a little bit #hachat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Yes! MT @KatharineS84 T1: I struggled w/ppl finding out I had CF before they got to know ME. Didn't want them 2 only c me as "sick." #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: RT @serenebutterfly: We have to remember our conditions are not who we are but rather that it is a part of us #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T1.1 - Before the diagnosis I thought myself as being weird or weak, after I realise it's because I have a neurological condition #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @KatharineS84 T1: I struggled w/ppl finding out I had CF before they got to know ME. Didn't want them to only see me as "sick." #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Ooops! Forgot my intro. pardon my lateness! Tiffany, lupus/health blogger at http://t.co/ExJzDA3A, #GlitteratiMermaid :) #HaChat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Yes RT @Dyverse_Steele: t1 sometimes the stigma of disease can even affect your own thinking maybe it is in my head a little bit #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Getting a diagnosis was a relief - I had a course of action after 11 years of not knowing what was wrong. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @LifeUnbound: T1: I think sometimes people start to define themselves by their illnesses and negative symptoms. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
RT @caitlin_cumming: diagnosis can feel like youre losing your identity. now that you have X you can no longer do Y. #hachat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1: For many their illness is a crutch, a destroyer of all they did & loved. For some denial is better than accepting our reality... #HaChat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Excellent segue: RT @CIRants: Getting a diagnosis was a relief - I had a course of action after 11yr of not knowing what was wrong. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
For our next topic let’s talk about diagnosis in particular. #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T1.1: Having an answer to why I was sick all the time was a relief. Initially I felt more in control. #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
Agreed! RT @LifeUnbound: T1: I think sometimes people start to define themselves by their illnesses and negative symptoms. #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Diagnosis can provide community - other who understand and who can provide insight. #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
RT @CIRants: Getting a diagnosis was a relief - I had a course of action after 11 years of not knowing what was wrong. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1: I know that during my lupus diagnosis I fell into a deep despair and a cold, lonely, and frustrating state of self-pity. #HaChat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
T1.1: Before the diagnosis I was full of doubts about myself: wondering was I doing something wrong in my lifestyle. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @wegohealth: T1.1: What’s the difference between how you see yourself pre-diagnosis and post-diagnosis? #HAchat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@serenebutterfly me too #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T1.1 The reactions have been different post diagnosis - more understanding now they know it's not 'in my head' or imagined #hachat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Ooops! Forgot my intro. pardon my lateness! Tiffany, lupus/health blogger at http://t.co/kKEfL4Rz, #GlitteratiMermaid :) #HaChat
Dyverse_Steele
t1 when you are first diagnosed with any chronic illness you will change #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Topic 2: Does a definitive diagnosis (with a name, etc) make a difference? How? #HAchat
makethislookawe
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T1:1 I'm 2 completely different people before/after my condition. I can't be her anymore. Her activities hurt. She is not me. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @TomKindlon: T1.1: Before the diagnosis I was full of doubts about myself: wondering was I doing something wrong in my lifestyle. #HAchat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
Been there... MT @TiffanyAndLupus: For many illness is destroyer of all they loved. For some denial is better than accepting reality #HaChat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @Dyverse_Steele: t1 when you are first diagnosed with any chronic illness you will change #HAchat
Dyverse_Steele
t1.1 you can no longer be as care free as you once was #hachat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1.1: I have accepted that I have lupus. That I am not whats considered "normally healthy." I feel much lighter after leaving denial #HaChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: RT @Dyverse_Steele: t1 when you are first diagnosed with any chronic illness you will change #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
I'm participating in Health Activist chat on TweetChat! http://t.co/7uc0zf9o (Sorry I'm late... log-in issues ^_^) #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T2: Having a diagnosis has pros & cons. It gives you some power, some options, but it also opens up other scary doors. #HAchat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
Ditto! MT @MakeThisLookAwe: I'm 2 completely different people before/after. Can't be her anymore. Her activities hurt. She is not me #HAchat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@wegohealth it's been good for my emotional health in many ways. i know i have A, B, C and not just tired/crazy/whatever #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Topic 2: Does a definitive diagnosis (with a name, etc) make a difference? How? #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2: I found my diagnosis bittersweet - upset as there's nothing they can do to fix me but relieved that there was a name to it #hachat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@wegohealth also we've made some life changes as a family now that i know i'm not going to 'get better'. has made life easier #hachat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
T2: Diagnosis helped as could lower expectations: wasn't expected to keep up to the level of healthy people, which I couldn't do #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
MT @KatharineS84: T2: Having a dx has pros & cons. It gives you some power, some options, but it also opens up other scary doors. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
MT @KatharineS84: T2: a diagnosis has pros & cons. It gives you some power, some options, but it also opens up other scary doors #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
Exactly, means you have to do something about it RT @KatharineS84: It gives you some power, but it also opens up other scary doors. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1.1: Post-diagnosis me now feels very empowered by my life choices after diagnosis. By owning & admitting it I feel much happier. #HaChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @wegohealth: Topic 2: Does a definitive diagnosis (with a name, etc) make a difference? How? #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
Some of my diagnoses opened doors for treatment. Knowing what it was was a relief. We weren't just flying blind anymore. #HAchat
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
Hi all, sorry to be late #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2: Diagnosis is also a great tool to finding out more about symptoms being experienced and what is going on with your body, etc #hachat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@wegohealth it's a lot easier to have a plan of action, even if i don't always love the plan ;) #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
MT @serenebutterfly: T2: I found my diagnosis bittersweet - upset theres nothing they can do but relieved that theres a name to it #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T2: That period of "un-diagnosed or misdiagnosis" are frustrating & scary. Finally knowing the name of the issue brings some relief. #HaChat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
T1: Keep saying I would be such different person without. Much smarter, stronger, wiser now. Don't think I'd like alternative me #HAchat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
T2: Diagnosis helped me a lot: advice one gives to a healthy person with my symptoms isn't what one gives to somebody with #MECFS #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
Sorry I'm late! Mocha here, blogging at http://t.co/Um6RALto part of the #DOC with t1 diabetes&a butt load of other stuff #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
I was too caught up in whether people believed me or not before I found out I had an Systemetic Autoimmune Illness making it worse.#HAchat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
T2: 2nd opinion was bigger than dx- at young age, I needed more guidance and someone who actually cared. Who knew how to talk to me #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T2: Definetly! Though many people fear labels, I believe just "knowing" specifically what you have relieves a lot of anxiety. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T2: The diagnosis (#dx) was never scary for me. I was already suffering/surviving the symptoms. #HAchat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@TiffanyAndLupus absolutely. we went thru a period when we thought i was going to die and i was terrified to be alone #hachat
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@TiffanyAndLupus T2 Yes, having a name for an illness somehow brings validity to symptoms #hachat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Diagnosis sets expectations - higher or lower, they are what they are, and it provides a chance to accept them. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Now let's talk semantics. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
Agreed!! RT @pamressler: @TiffanyAndLupus T2 Yes, having a name for an illness somehow brings validity to symptoms #hachat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
diagnosis was relief laurie wego, gives oportunities 2 seek support from others with like diagnosis , know i am not alone anymore #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T1: I see all of my health stuff as part of me, like my hair color or my sense of humor, at least on a good day. #HAchat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
T1.1 @TiffanyAndLupus exactly! But I'm watching someone else deal with it very differently right now, too. We all have our moments. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T2.1: In your community, in particular, are there labels/names that are used as a way to unite people post-diagnosis? #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
RT @pamressler: @TiffanyAndLupus T2 Yes, having a name for an illness somehow brings validity to symptoms #HAchat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@wegohealth dx also helps explain to ppl what is 'wrong' with you. I have XYZ is something ppl can understand #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Some sort of "proof" yes RT @pamressler: T2 Yes, having a name for an illness somehow brings validity to symptoms #HAchat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@wegohealth compared to a random list of symptoms #hachat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @wegohealth T2.1: In your community, in particular are there labels/names that are used as a way to unite people post-diagnosis? #HaChat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: T2.1: In your community, are there labels/names that are used as a way to unite people post-diagnosis? #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: Some sort of "proof" yes RT @pamressler: T2 Yes, having a name for an illness somehow brings validity to symptoms #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Yes good point: RT @marandacarvell: dx also helps explain to ppl what is wrong with you. I have XYZ is something ppl can understand #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T1.1: I don't see myself differently because of a diagnosis. I see myself being relived, since this "thing" now has a name. #HAchat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
T2: Diagnosis helped as could call in support of other people: couldn't do that when didn't have a label for my symptoms #HAchat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
yes at Wh T2 lables like survivor, mentoring like people,activist #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T2.1: In the lupus community, I like to think of us as "Lupus Warriors", we often call each other "lupies". :) #HaChat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
RT @wegohealth: Some sort of "proof" yes RT @pamressler: T2 Yes, having a name for an illness somehow brings validity to symptoms #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @TiffanyAndLupus: T2.1: In the lupus community, I like to think of us as "Lupus Warriors", we often call each other "lupies". :) #HaChat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
2.1: I have to give a shout-out to #spoonie for being such a uniting/inclusive word - despite the wide range of diagnoses/symptoms #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T2: It helps me. It lets me know that there are things to do. It helps me focus my research. It lets me connect to others. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T2:1 For all invisible diseases, pre- and post-diagnosis, But You Don't Look Sick's #spoonie!!! #bydls #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T2.1: We refer to each other and cysters (females) and fibros (males). It does make it feel like more of a "club" than an illness. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T2.1: Some in lupus com refer to themselves as butterflies which is not only the shape of facial rash we get; it's a symbol of hope. #HaChat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @lauriepna: yes at Wh T2 lables like survivor, mentoring like people,activist #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Yes! RT @MakeThisLookAwe: T2:1 For all invisible diseases, pre- and post-diagnosis, But You Dont Look Sicks #spoonie!!! @bydls #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
MT @wegohealth: 2.1: I have to give a shout-out to #spoonie for being such a uniting/incl word - despite the wide range of dx/symp #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
@caitlin_cumming Exactly! And that there are some things out of your control, inevitables. #hachat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T2.1: Having something to call ourselves, like "lupies" helps us find each other on social networks like Twitter! #HaChat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T2:1 My disease is rare (less than 400 cases), so I call us #medicalunicorns #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
LOVE THIS. @KatharineS84: We refer to each other and cysters (females) and fibros (males). #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Love this! RT @KatharineS84 T2.1: We refer to each other and cysters (females) and fibros (males). More of a "club" than an illness #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2.1: There are no names or labels that I use as I have yet to meet anyone with the same diagnoses as me so get support via symptoms #hachat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
terms like #spoonie help ppl connect and create an instant community of ppl who 'get' you #hachat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1.1: I get confused by backlash I've gotten for talking about lupus so much, even from patients! Some feel I let it dictate my life #HaChat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T2.2: Conversely – any words/phrases that you do not identify with? (Example: Diabetic vs. Person With Diabetes) #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
I love this!! RT @MakeThisLookAwe: T2:1 My disease is rare (less than 400 cases), so I call us #medicalunicorns #hachat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@wegohealth love @whatthejules #chronicallyawesome hashtag for uniting others who lift me up, don't bring me down, yet still get me #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Important to note: MT @serenebutterfly: T2.1 No names/labels I use as Ive yet to meet 1w/ same diagnoses; I get support via symptoms #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T2.1: Yes and no. In the #DOC, we differentiate type, but that's about it. A lot of people are miss-typed, so...yeah. #HAchat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
at marandacarvell what does "spoonie mean? #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T2.2: I'm not a fan of terms like "suffering from." Makes it seem like my life is constantly unbearable. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Yes! RT @marandacarvell: terms like #spoonie help ppl connect and create an instant community of ppl who get you #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@serenebutterfly Ty! I even got to meet another unicorn! http://t.co/YVw2sH5C #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @KatharineS84 T2.2: I'm not a fan of terms like "suffering from." Makes it seem like my life is constantly unbearable. #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T2.2: I prefer to be called a "person with diabetes" because it forces people to remember I'm a person too. #HAchat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
T2.2 Yuppie Flu is one term that has been used instead of M.E. or Chronic Fatigue Syndrome. It's not a good term at all. #HAchat
jbbc
https://pbs.twimg.com/profile_images/378800000744898251/c0c9314b39daf38aaadc5be6308bd4f9_normal.jpeg
@wegohealth: T2.2 any words/phrases that you do not identify with? "sufferer" #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
RT @KatharineS84: T2.2: I'm not a fan of terms like "suffering from." Makes it seem like my life is constantly unbearable. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@KatharineS84 Oh, but sometimes I *was* "suffering from," _and_ my life was unbearable (re: pain control) #HAchat
Wyld_Celtica_V
https://pbs.twimg.com/profile_images/378800000686880858/1a0c0eefec2652b55a28eb4ebe584931_normal.jpeg
RT @KatharineS84: T2.2: I'm not a fan of terms like "suffering from." Makes it seem like my life is constantly unbearable. #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: Yes! RT @marandacarvell: terms like #spoonie help ppl connect and create an instant community of ppl who get you #HAchat
Dyverse_Steele
some people would rather hide their illness from everyone including themselves sometimes it takes a strong person to talk #hachat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
See this for the spoon theory http://t.co/CuXJkPR2 RT @lauriepna at marandacarvell what does "spoonie mean? #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
RT @wegohealth: Yes! RT @marandacarvell: terms like #spoonie help ppl connect and create an instant community of ppl who get you #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @TomKindlon: T2.2 Yuppie Flu is one term that has been used instead of M.E. or Chronic Fatigue Syndrome. Not a good term at all. #HAchat
Dyverse_Steele
i am a fan of everything as long as you keep talking about it through talking/being social comes awareness and spiritual healing #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Always great to re-share this! Thanks RT @CIRants See this for the spoon theory http://t.co/yomBqyGN #HAchat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
@wegohealth @LifeUnbound @KatharineS84 check out this awesome post about dx, treatment, and the words we use: http://t.co/Croes252 #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Let’s talk about how a diagnosis or label can influence how others see us. #HAchat
JonnayD
https://pbs.twimg.com/profile_images/1900179107/JTD_Logo_normal.gif
@TiffanyAndLupus I support ur cause. Although not dx w/the condition I know what its lk 4many who are. Love ur dedication&commitment #HaChat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
@MakeThisLookAwe Me too! But when someone is talking ab me, I don't want to hear "she suffers from cystic fibrosis." That's not me. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Topic 3: - How does a diagnosis play into how others see you? #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
Hi all, It's jules of whatthejules. sorry I am late #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
@mandylipka Thank you! This looks like a great read. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Yes! RT @wegohealth: Let’s talk about how a diagnosis or label can influence how others see us. #HaChat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
For all your hashtag definition needs! http://t.co/llAB4fNK And for #spoonie see http://t.co/WxVEwuFK #HAchat
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
Agree, love this RT @wegohealth: Always great to re-share this! TY RT @CIRants See this for the spoon theory http://t.co/8VLZ3o9M #hachat
MrsTeepot
https://pbs.twimg.com/profile_images/423485030665437184/6LoYm0uq_normal.jpeg
RT @wegohealth: Let’s talk about how a diagnosis or label can influence how others see us. #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
RT @wegohealth: Topic 3: - How does a diagnosis play into how others see you? #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T3: lots of strangers see me as something to be pitied, or that I did something to deserve it, or some combination. #HAchat
Dyverse_Steele
T3 word stigma stigma stigma lawd knows we have a hard enough time dealing with us then we got to deal with others jeez lol #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T3: Diagnosis just reminds people that I am unwell; sometimes that's all they see. People ask how my symptoms are, not 'how I am' #hachat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T3: My friends see me as a "dia-bad-ass" #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @wegohealth: Topic 3: - How does a diagnosis play into how others see you? #HAchat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
<3 @KatharineS84: We refer to each other as cysters (females) & fibros (males). It makes it feel like more of a "club" than illness #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T3 is often where our myth/misconceptions come into play... #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
My pain & reactions to it became legitimate RT @wegohealth: Topic 3: How does a diagnosis play into how others see you? #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
I LOVE this SO hard! #dsma RT @PurdueMocha T3: My friends see me as a "dia-bad-ass" #HaChat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T3: Not all conditions are visible however, and my symptoms such as balance issues can be misconstrued as being drunk #hachat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
For some people, diagnosis "justifies" my "odd" movements or actions. #HAchat
Dyverse_Steele
waves at Tiffany hey beautiful one #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@KatharineS84 Oh, absolutely... we need to be sensitive. I say suffering from pain, but surviving disease ^_^ #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T3: Post-diagnosis varies depending on the persons friends & family. Many have different reactions. Some good, some bad. #HaChat
MyPerog
https://pbs.twimg.com/profile_images/2663790440/20e6f23c0f4d9ceb20f5e13fc3539016_normal.jpeg
RT @TiffanyAndLupus: I LOVE this SO hard! #dsma RT @PurdueMocha T3: My friends see me as a "dia-bad-ass" #HaChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
*swoops in for a big bear hug* :) RT @Dyverse_Steele: waves at Tiffany hey beautiful one #HaChat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
RT @MakeThisLookAwe: @KatharineS84 Oh, absolutely... we need to be sensitive. I say suffering from pain, but surviving disease ^_^ #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
Too cool not to pass on... RT: @PurdueMocha T3: My friends see me as a "dia-bad-ass" #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
@makethislookawe Yes! I like "surviving" or "thriving with." Has a much more positive spin on someone's overall quality of life. #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
If the perception of others isn't exactly what you'd like... T3.1 Have you ever confronted stereotypes/misconceptions directly? How? #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T3: My family are more sympathetic; all my symptoms are now accounted for and not caused by anxiety and am not imagining it #hachat
marandacarvell
https://si0.twimg.com/profile_images/2954386244/2b6569394721d3fd708e684a6b63805b_normal.jpeg
@wegohealth ppl are more accepting of my limitations now that i 'have' something #hachat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
T3: video: "Stuff People Say to M.E. sufferers" http://t.co/IqOZdilM (I didn't make it) #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: Topic 3: - How does a diagnosis play into how others see you? #HAchat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
at marandacarvell thanks for the awesome spoon description enlightening #HAchat
eatwiserx
https://pbs.twimg.com/profile_images/2280859823/967a6252-1345-433d-95a7-dff57559689d_normal.png
RT @tiffanyandlupus: I LOVE this SO hard! #dsma RT @PurdueMocha T3: My friends see me as a "dia-bad-ass" #HaChat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@KatharineS84 "surviving" or "thriving with" - it gives value to the struggle and recognizes all the hard work :^D #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
RT @TomKindlon: video: "Stuff People Say to M.E. sufferers" http://t.co/kOGTFXxp (I didn't make it) #HAchat #HaChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T3: Some of my friends felt that my diagnosis made me "act" more sick. Pffft! They were in denial that my health was just declining. #HaChat
MrsTeepot
https://pbs.twimg.com/profile_images/423485030665437184/6LoYm0uq_normal.jpeg
RT @wegohealth: Always great to re-share this! Thanks RT @CIRants See this for the spoon theory http://t.co/yomBqyGN #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @TomKindlon T3: video: "Stuff People Say to M.E. sufferers" http://t.co/A7yVOiRF (I didn't make it) #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T3: Accomodations started being made to help me. I don't have to fight as much anymore for advocacy and help. #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
@MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
T3: this is why I like #chronicallyawesome so much. We are awesome! #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T3: Some feel that when you speak about your illness/diagnosis repeatedly that you're letting your disease take over.... #HaChat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T3.1: Yeah, I've tried to give information and different resources, but people stuck in their ways don't listen very well. #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
RT @julianna12369: T3: this is why I like #chronicallyawesome so much. We are awesome! #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
AMEN!! RT @KatharineS84: @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HAchat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
T3 a deficit people are supportive at the onset than drop the ball and never talk about it again #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T3.1: I confront stereotypes by living my life w/ #cysticfibrosis in a positive way. I share my story & answer any & all questions. #HAchat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
RT @LifeUnbound: T3: Accomodations started being made to help me. I don't have to fight as much anymore for advocacy and help. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T3: Fellow patients had different reactions to my speaking out about lupus. More community, comfort, understanding, and empowerment. #HaChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
!!!! THIS RT @MakeThisLookAwe: AMEN!! RT @KatharineS84: @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HaChat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
For our last topic let’s talk about how we can help others come to terms with themselves after diagnosis or new health challenges. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T4: What tips do you have for someone who is coming to terms with themselves as a patient (pre or post-diagnosis)? #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
T3.1 I am straightforward and as informative as possible. Mostly it's ignorance & I try to correct it. #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T3: People who do not have relatives or friends w/ chronic illness sometimes undermine the amount of pain i'm capable of feeling. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T3: Learning to accept that some won't handle our diagnosis well no matter how much we try to educate them. This doesn't reflect us! #HaChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @MakeThisLookAwe: AMEN!! RT @KatharineS84: @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
RT @wegohealth: let’s talk about how we can help others come to terms with themselves after diagnosis or new health challenges. #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Yes! RT RT @MakeThisLookAwe: AMEN!! RT @KatharineS84: @MakeThisLookAwe Exactly! Gives us credit rather than pity :) #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: T4: What tips do you have for someone who is coming to terms with themselves as a patient (pre or post-diagnosis)? #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @CIRants: T3.1 I am straightforward and as informative as possible. Mostly its ignorance & I try to correct it. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@LifeUnbound Yes, some will be insensitive due to ignorance. I try not to think ill of them....it's hard though <3 #HaChat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
T4: Take it one day at a time. Your dx doesn't define you, you define your dx. And as always, be your own advocate! #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
T4: I am in the process of making FAQ's, White Papers and TIPS that are more from a patient perspective, upbeat and hopeful #HAchat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
T4 accept and come to terms with it ourself than b activist and talk about it.i plan to amend my works best practice in managing it #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @wegohealth: T4: What tips do you have for someone who is coming to terms with themselves as a patient (pre or post-diagnosis)? #HaChat
mandylipka
https://pbs.twimg.com/profile_images/446751717896368128/6_F3OP0P_normal.jpeg
@julianna12369 great to hear - would love to see final product #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T4: You are not alone. It is OK to have all these emotions. It's OK to be you. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @mandylipka: T4: Take it one day at a time. Your dx doesnt define you, you define your dx. And as always, be your own advocate! #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T4: It's not your fault. Remember that. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T4: I would say after diagnosis, people should read blogs of other patients to see the 'real story' instead of some horror stories #hachat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
T4: I think that someone's first intro to their dx should be hopeful, not frightening #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: T4: What tips do you have for someone who is coming to terms with themselves as a patient (pre or post-diagnosis)? #HAchat
blairnboca
https://pbs.twimg.com/profile_images/378800000423835546/8e9b0d50a781081fd6df3345f7f57ea6_normal.jpeg
@wegohealth @Dyverse_Steele : I agree #HAchat #fibromyalgia
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Love to read it! MT @julianna12369: T4: Im in the process of making FAQs, White Papers &TIPS from a pt perspective, upbeat & hopeful #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
T4: Do your own research and get informed so you don't believe the myths. #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Me too! RT @mandylipka: @julianna12369 great to hear - would love to see final product #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @LifeUnbound: T4: Its not your fault. Remember that. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T4: Also find some great support groups or online community for invaluable support, advice and to meet others like yourself #hachat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
T4: so my first tip is, don't go looking for all the worst case info, look for those of us who live well daily with our DX #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Agree! MT @serenebutterfly: T4: After diagnosis, read blogs of other patients to see the real story instead of some horror stories #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
RT @julianna12369: T4: I think that someones first intro to their dx should be hopeful, not frightening #hachat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
T4: (Tips for "new" patients) "Things work out best for those who make the best out of how things work out" #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Yes! RT @PurdueMocha: T4: You are not alone. It is OK to have all these emotions. Its OK to be you. #HAchat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
thanks for the awesome input all #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T4: Acceptance of your illness is tough but it is NOT impossible. Leaving the land of denial brings relief & power. It's up to us. #HaChat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
You can bet I will make a big deal out of it when it's done! RT @CIRants: Me too! RT @mandylipka: - would love to see final product #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: Yes! RT @PurdueMocha: T4: You are not alone. It is OK to have all these emotions. Its OK to be you. #HAchat
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
Yes RT @serenebutterfly: RT @julianna12369: T4: I think that someones first intro to their dx should be hopeful, not frightening #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Great: MT @julianna12369: T4: First tip is, dont go looking for worst case info, look for those of us who live well daily w our DX #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T4: Do not take this personally. This is not punishment. No one deserves to get sick. It just happens sometimes. To more than most! #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
YES RT @wegohealth: Agree! MT @serenebutterfly:T4: read blogs of other patients to see the real story instead of some horror stories #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @TomKindlon T4: "Things work out best for those who make the best out of how things work out" #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T4: For those trying to get a diagnosis, I would say hang in there - I had to wait around 17/18 years for one but got one in the end #hachat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
MT @julianna12369: T4: First tip is, dont go looking for worst case info, look for those of us who live well daily w our DX #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T4: Understand that there is a dual side to all things. There IS laughter to be had even while we endure the tears. #HaChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @wegohealth: RT @TomKindlon T4: "Things work out best for those who make the best out of how things work out" #HAchat
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
T4 Are there ways that we, in healthcare, can support newly diagnosed by connecting them with others? #hachat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T4: To go easy on yourself. Any diagnosis that alters your life takes time to adjust to. Talk about it. Ask for help. #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
T4: TIP: surround yourself with comfort, not negativity. When they get you down, walk away... WALK AWAY #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
And T4.1: How can we, as Health Activists, work together to make newly patients feel comfortable no matter who/where they are? #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
LOVE THIS, so TRUE!!! ~> RT @TomKindlon T4: "Things work out best for those who make the best out of how things work out" #HaChat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T4: Remember that each patient is different. You CAN defy odds. And that optimism and hope are your best friends. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T4: I like to encourage the newly diagnosed to reach out & speak out with the chronic 'veterans' in the patient community :) #HaChat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
T4: Let yourself feel what you feel. Find the most supportive friends and family you have, and lean on them for support. #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T4: If you feel distressed, please go to your nearest hospital, call a distress centre, talk to your doctor or seek counselling. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T4.1: I think WEGO Health is a great source for info and sign posts for other organisations or blogs for further information #hachat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
@ pam wrestler yes T4 lobby our governments for more finantial supports. #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
t4: tip: don't think it won't work, give it a shot. If it worked for so many of us, give it a try...except crazy snake oil stay away #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
T4: In other words, your attitude has a big effect things. How you choose to react & live w/it is so important. #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
@TiffanyAndLupus that is because you are beautifully brilliant and #chronicallyawesome my love #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
T4.1: I think giving people access to groups, whether online or in meat space, is important. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
Sometimes, things won't work out for the best. But we can #MakeThisLookAwesome, even if it is only to defy slowly dying! #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T4: It's important that we DO NOT minimize what we're going through to family, friends, or doctors. This HURTS our + health journey! #HaChat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
wegohealth provides a safe forum for patients to find information in a safe caring environment #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
T4 Tip: get a few emails or numbers of GURU's to contact. I just got my new #EDS dx and found my EDS Mom right away to help. #HAchat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
Had fun participating in the #HAchat today, going to go head home now and read over everyones responses.
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@julianna12369 As are you my sweets :) #HaChat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
T4: Tip: the #chronicallyawesome are up all night and in all timezones. tweet and eamail at any hour, you will get an answer #HAchat
wegohealth
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MT @TiffanyAndLupus: T4: DO NOT minimize what were going through to family, friends, or doctors. This HURTS our + health journey! #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
RT @lauriepna: wegohealth provides a safe forum for patients to find information in a safe caring environment #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
RT @lauriepna: wegohealth provides a safe forum for patients to find information in a safe caring environment #hachat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
I'm so excited to start using #chronicallyawesome! #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
MT @TiffanyAndLupus: T4: DO NOT minimize what were going through to family, friends, or doctors. This HURTS our + health journey! #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
MT @julianna12369: T4: Tip: the #chronicallyawesome are up all night &in all timezones. tweet/email at any hour, youll get an answer #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @TiffanyAndLupus: T4: DO NOT minimize what were going through to family, friends, or doctors. This HURTS our + health journey! #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
MT @TiffanyAndLupus: T4: DO NOT minimize what we're going through to family, friends, or doctors. This HURTS our + health journey! #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
I am excited for you to use it! RT @KatharineS84: Im so excited to start using #chronicallyawesome! #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
RT @KatharineS84: I'm so excited to start using #chronicallyawesome! #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T4: There IS a difference btwn expressing our feelings & chronically whining. Please express yourself & find positive support! #HaChat
serenebutterfly
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T4.1 Maybe to provide newly diagnosed with leaflets about they can expect, info for further support and what they can expect #hachat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
@KatharineS84 It's an umbrella of all chronic illness. You got it, it's chronic? Then it's awesome to us! #chronicallyawesome #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T4: What helps me keep a positive perspective w/lupus is this: If expressing something sad/negative, end it with a positive! :) #HaChat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
RT @KatharineS84 Its an umbrella of all chronic illness. You got it, its chronic? Then its awesome to us! #chronicallyawesome #hachat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
RT @julianna12369 Its an umbrella of all chronic illness. You got it, its chronic? Then its awesome to us! #chronicallyawesome #HaChat
ShyDi47
https://pbs.twimg.com/profile_images/378800000009076684/30aedccb23acbcf1149dc9fc35b99dfc_normal.jpeg
@TiffanyAndLupus I know all about the #whiners sad part is they don't do anything about bettering themselves #Hachat
lauriepna
https://pbs.twimg.com/profile_images/378800000321676014/32f7ee418bc5803bc3e0ae5637d3e6c2_normal.jpeg
i found "healthy M moods Magazine a great help, http://t.co/oSTDNt6G #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
Well have to go guys, thanks for the great chat - going to indulge in a guilty pleasure and watch CSI!! Take care everyone xx #hachat
ShyDi47
https://pbs.twimg.com/profile_images/378800000009076684/30aedccb23acbcf1149dc9fc35b99dfc_normal.jpeg
I sure came in late into this chat. #Hachat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T4: Just because we have to adjust our lifestyles post-diagnosis does not mean we can't still enjoy it. Find your NEW happy! #HaChat
wegohealth
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Well it’s about that time – great chat today everyone, thanks so much for coming! Final thoughts? #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
@TiffanyAndLupus I have found more gifts since my DX then I ever would have imagined @wegohealth #HAchat
mvennitti
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So sorry I missed your chat today. Really wanted to join for the first time. #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@ShyDi47 At the end of the day no one will live our lives for us. We're responsible for our own actions & the actions we don't take! #HaChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @wegohealth: Well it’s about that time – great chat today everyone, thanks so much for coming! Final thoughts? #HaChat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
RT @wegohealth: Well it’s about that time – great chat today everyone, thanks so much for coming! Final thoughts? #HAchat
cirants
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Thanks for the great chat! #HAchat
ShyDi47
https://pbs.twimg.com/profile_images/378800000009076684/30aedccb23acbcf1149dc9fc35b99dfc_normal.jpeg
Even with all the negativity eventually something positive will come out of if. There is a light @ the end of the tunnel. #Hachat
lauriepna
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final thoughts , accepting help from others has always been hard for me but now I try it #HAchat
ShyDi47
https://pbs.twimg.com/profile_images/378800000009076684/30aedccb23acbcf1149dc9fc35b99dfc_normal.jpeg
So sorry looks like I missed a great chat. #Hachat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
Final Thoughts: We choose the label we want to carry, we walk the life we want to walk. Our limits are our own. We make our rules. #HAchat
PurdueMocha
https://pbs.twimg.com/profile_images/3445211103/7ed2b21af7a7f34e85da1750f5b2f51f_normal.jpeg
Final thoughts: #chronicallyawesome, #spoonie ...I'm learning new terms from awesome people! #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Final Thoughts: Take responsibility for your own health, life, and results. Positive actions reap positive results regardless of dx! #HaChat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
This was probably one of my favorite chats. Gets to the heart of what the #chronicallyawesome deal with. Thanks all! #HAchat
mvennitti
https://pbs.twimg.com/profile_images/3780860087/27698c5b6a8688d441976ae54c7e871a_normal.jpeg
I found you that is a positive in my life. #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
@PurdueMocha Welcome to Team #chronicallyawesome, the never say NO WAY, people of all chronic lifestyles! #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Just a reminder: we will have Health Activist Tweetchats every Tuesday on 3pm ET here – so follow @wegohealth & invite your friends. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
Final thoughts: I am grateful for my disease, as it has led me to a community that is truly caring and compassionate. TY everyone! #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
That's the way to do it & think, love it :) RT @mvennitti: I found you that is a positive in my life. #HaChat
ShyDi47
https://pbs.twimg.com/profile_images/378800000009076684/30aedccb23acbcf1149dc9fc35b99dfc_normal.jpeg
@lauriepna #accepting help can be difficult for sure it can hurt your #dignity. #Hachat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
RT @KatharineS84: This was probably one of my favorite chats Gets to the heart of what the #chronicallyawesome deal with. Thanks all #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @julianna12369: @TiffanyAndLupus I have found more gifts since my DX then I ever would have imagined @wegohealth #HAchat
tomkindlon
https://pbs.twimg.com/profile_images/1635242695/e9d2af06-e3d1-4276-a4b4-9c94c851f99c_normal.png
RT @lauriepna: final thoughts , accepting help from others has always been hard for me but now I try it #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Next week’s chat will kick off our June theme – Health Technology! Be ready to talk: apps, devices, EHRs, virtual medicine & more! #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
RT @wegohealth: Just a reminder: we will have Health Activist Tweetchats every Tuesday on 3pm ET here – so follow @wegohealth #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
I can't believe I almost missed this chat. Thanks @hotelqueen for poking me in the dislocated rib! #HAchat
Craig_J_85
https://pbs.twimg.com/profile_images/378800000153393962/cc4ee6e351a66b25601f84a5f8d177a0_normal.jpeg
@KatharineS84 Loving the #cysticfibrosis #HAchat tweets. A lot of us can certainly relate to them.
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @KatharineS84: This was probably one of my favorite chats Gets to the heart of what the #chronicallyawesome deal with. #HAchat
julianna12369
https://pbs.twimg.com/profile_images/2187912947/814BC8AC-F368-403E-848D-37064A667E0A_normal
RT @wegohealth: Next week’s chat will kick off our June theme – Health Technology! apps, devices, EHRs, virtual medicine & more! #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@MakeThisLookAwe You know some would call us crazy! But I feel the same. I regret nothing I've gone through in life. Not even lupus! #HaChat
jbbc
https://pbs.twimg.com/profile_images/378800000744898251/c0c9314b39daf38aaadc5be6308bd4f9_normal.jpeg
MT @wegohealth: Next week’s chat will kick off our June theme – Health Technology! #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@TiffanyAndLupus It took me a long time to come to peace with my disease, but I finally have. It's a great place. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Next week’s chat, June's theme – Health Technology! Be ready to talk: apps, devices, EHRs, virtual medicine & more! #HAchat
katharinescriv
https://pbs.twimg.com/profile_images/500005651339169792/B7p4p4Lr_normal.jpeg
MT @MakeThisLookAwe I am grateful for my disease, as it has led me to a community that is truly caring & compassionate. TY everyone! #HAchat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Seriously I cannot thank @wegohealth enough for their awesomeness. Every week #HaChat never ceases to amaze me! Kudos A.
CharliFibroChic
https://pbs.twimg.com/profile_images/378800000729905658/47b3bf7e871d185386aa58923632ac03_normal.jpeg
RT @wegohealth: RT @TomKindlon T4: "Things work out best for those who make the best out of how things work out" #HAchat
mvennitti
https://pbs.twimg.com/profile_images/3780860087/27698c5b6a8688d441976ae54c7e871a_normal.jpeg
@MakeThisLookAwe @TiffanyAndLupus Just found you on #HAchat. What a great group of people. Love..I'm#chronicallyawesome. #raredisease
CharliFibroChic
https://pbs.twimg.com/profile_images/378800000729905658/47b3bf7e871d185386aa58923632ac03_normal.jpeg
RT @julianna12369: T4: TIP: surround yourself with comfort, not negativity. When they get you down, walk away... WALK AWAY #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@mvennitti Nice to meet you! This is a great group. May I ask, what's your #raredisease? #HAchat
CharliFibroChic
https://pbs.twimg.com/profile_images/378800000729905658/47b3bf7e871d185386aa58923632ac03_normal.jpeg
@julianna12369 @TiffanyAndLupus #HAchat but they don't believe, come up with all these crazy ideas as to what u could hv, stop talking to u,
CharliFibroChic
https://pbs.twimg.com/profile_images/378800000729905658/47b3bf7e871d185386aa58923632ac03_normal.jpeg
@julianna12369 @TiffanyAndLupus #HAchat I hv only so much energy & what they do hurts, I don't hv it to educate them :/
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@mvennitti Wow... that's a handful! I've got #AutoimmuneHypophysitis a fancy term for pituitary autoimmune disease #HAchat
FeliciaFibro
https://pbs.twimg.com/profile_images/1011985119/FFTwitterAvatar_normal.jpg
Dealing with my annoying insurance for an hour led me to forget about the #hachat! Boo! Realized it just as it ended. #spoonie #fibro
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@ElysiaCG @julianna12369 It may hurt, but illness also teaches us who are REAL family/friends are. This is a double-edged sword. #HaChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@ElysiaCG @julianna12369 We must learn to let go of those that hurt us & embrace those that show us love. #HaChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@ElysiaCG @julianna12369 Educate, because we have that knowledge. Then it is up to them to comprehend/accept. #HaChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@ElysiaCG @julianna12369 & know that if they react negatively it is NOT a reflection of the beautifully kind person you are. #HaChat
zheatherchamp
https://pbs.twimg.com/profile_images/519684628148281344/NDoSMvxc_normal.jpeg
@KatharineS84 @makethislookawe What is #hachat? Thanks! cc: #raredisease
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@ZHeatherChamp #hachat is Health Activist chat, a TweetChat event hosted by @wegohealth every Tues 3p EST
creativeaspie
https://pbs.twimg.com/profile_images/526323845813506048/kppGMj2W_normal.jpeg
RT @wegohealth: T1.1: What’s the difference between how you see yourself pre-diagnosis and post-diagnosis? #HAchat
fibroaction
https://pbs.twimg.com/profile_images/1737914366/ef3ed5c0-7bcb-4f60-9f8c-9b48c745ccb7_normal.png
RT @wegohealth: Always great to re-share this! Thanks RT @CIRants See this for the spoon theory http://t.co/yomBqyGN #HAchat
pueblokc
https://pbs.twimg.com/profile_images/283001621/kc_sparkler_small_normal.jpg
RT @wegohealth: Always great to re-share this! Thanks RT @CIRants See this for the spoon theory http://t.co/yomBqyGN #HAchat
mvennitti
https://pbs.twimg.com/profile_images/3780860087/27698c5b6a8688d441976ae54c7e871a_normal.jpeg
@ZHeatherChamp Follow #chronicallyawesome for empowering attitudes from chronically ill patients. Also follow #HAchat for education.

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