#HAchat transcript

Healthcare Social Media Transcript

From: Tue Oct 02 12:00:00 PDT 2012
To: Tue Oct 02 13:00:00 PDT 2012

What is #HAchat? Who were the influencers during this time period? #HAchat analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
Are you ready to tackle the Tough Stuff? Join us now! http://t.co/7uc0zf9o How do the Health Advocates handle it? Find out today... #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
Joining in the @wegohealth #HAchat about the Tough Stuff: dark topics surrounding illness and health. Join us! #HAchat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
RT @makethislookawe: Ready to tackle the Tough Stuff? Join us now! http://t.co/0XlbXcoi How do the Health Advocates handle it? #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Welcome to the Health Activist Tweetchat! Today starts Tough Stuff Month, focusing on the most difficult topics for Health Activists #HAchat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
@ibeatcancrtwice well, welcome . . . #HAchat is always interesting, and usually fun, too #HAchat
susanmees
https://si0.twimg.com/profile_images/420660989/susan_at_the_red_sox__2__normal.jpg
RT @wegohealth: Welcome to the chat! Today starts Tough Stuff Month, focusing on the most difficult topics for Health Activists #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Let’s introduce ourselves: Name/username, blog name or URL, health community or condition & hashtag about you. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @wegohealth: Welcome to the Health Activist Tweetchat! Today starts Tough Stuff Month #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Welcome to the chat! Today starts Tough Stuff Month, focusing on the most difficult topics for Health Activists #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Let’s introduce ourselves: Name/username, blog name or URL, health community or condition & hashtag about you. #HAchat
ibeatcancrtwice
https://pbs.twimg.com/profile_images/1722136601/coed_for_Twitter_normal.jpg
Hi, this is Jamie @ibeatcancrtwice www http://t.co/hs9jOa6b #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
Rhiann here from My Brain Lesion and Me (http://t.co/cXyfUmFZ) all about neuro condition and invisible illness #ill #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Caitlin from WEGO Health here. Excited for all the guest posts that Health Activists are writing for Tough Stuff month! #hachat
ibeatcancrtwice
https://pbs.twimg.com/profile_images/1722136601/coed_for_Twitter_normal.jpg
breast cancer and mental health #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @wegohealth: Let’s introduce ourselves: Name/username, blog name or URL, health community or condition & hashtag about you. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
Pam Curtis/MakeThisLookAwe http://t.co/1tgEDiKG #AutoimmuneHypophysitis with #ChronicMigraine and #Neuropathy #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
Hi, I am Amy! I blog at http://t.co/d8PpaFln, #mentalhealth issues and #fibromyalgia #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
Oops! May or may not have just tweeted from @wegohealth. Sorry guys! Still excited for guest posts this month!! #hachat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
Wendy Burnett, http://t.co/xjNnfksD, blogging about #fibromyalgia #spoonie #pain #CAM #altmed #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
Hello everyone! ZipCare here. Working on making care more available online. Learn more here: http://t.co/2mGzTkmr #Hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Amanda here - really looking forward to getting real with all of you. Health Activists bravery keeps me going. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
As we do introductions and all say hello - we'll tweet some background about October, today's chat, and tough stuff. #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
Hi, I'm Jane, http://t.co/irs4wbJx , interested in advocacy for #depression and #sjogrens syndrome #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
Brenda, primary blog at http://t.co/wpPQIaLN, primary condition type 2 diabetes #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
Hello to all the wonderful familiar faces, and welcome to the newcomers! @wegohealth, thank you for hosting! http://t.co/7uc0zf9o #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
This month we’re hoping to uncover some of the biggest challenges & darkest issues we face as patients, Health Activists & people. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
Recent posts elsewhere include http://t.co/7yRU1Tx4 on Alzheimer's at @wegohealth and #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
The goal of this month is the same as our activism: bring awareness to what’s real. Often what’s unspoken & scary – needs attention. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
@MakeThisLookAwe Great to see you too!! #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: This month we’re hoping to uncover the biggest challenges & darkest issues we face as patients & Health Activists. #HAchat
AutoimmuneGal
https://pbs.twimg.com/profile_images/2290442909/buh74f2k5sscbyehxvs2_normal.jpeg
I'm AutoimmuneGal and blog at http://t.co/VuPbpsXc. #sjogrens and other #AutoimmuneDiseases #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
http://t.co/NtJAFmNz on @tudiabetes about Yizkor (memorial) #hachat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
Absolutely LOVE the topic this month @wegohealth ! #HAchat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
MT @wegohealth: The goal of Oct is same as our activism: bring awareness to what’s real. Often what’s unspoken & scary – needs attn #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@serenebutterfly Aw, thanks! Glad to be here... it's been a while! (Been working) #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Today let’s run the chat like a brainstorm session – we'll share a broad topic & you can answer what comes to mind for you/your cmty #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
@AutoimmuneGal Yay! Good to see you! #HAchat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
Aloha, Everyone! Happy October! #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
So glad!! RT @Abeeliever: Absolutely LOVE the topic this month @wegohealth ! #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Our other Oct. chats have panels simultaneously on: death &Health Activism, pt mortality, in-community conflict, judgment/stigma #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: The goal of this month is: bring awareness to what’s real. Often what’s unspoken & scary – needs attention. #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
MT @wegohealth: The goal of Oct is same as our activism: bring awareness to what’s real. Often what’s unspoken & scary – needs attn #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Today chat is a brainstorm session – well share a broad topic & you can answer what comes to mind for you/your cmty #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Quick chat note: Please only share what you’re comfortable with & be kind to yourself. Please be respectful & sensitive to others :) #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Ok - let’s get started! Chat freely & remember we have the Catharsis Carnival for a more personal outlet http://t.co/sqkwUkZQ #HAchat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
Yes! Desperately needed . . .RT @caitlin_cumming: So glad!! RT @Abeeliever: Absolutely LOVE the topic this month @wegohealth ! #HAchat
ibeatcancrtwice
https://pbs.twimg.com/profile_images/1722136601/coed_for_Twitter_normal.jpg
What's real for me right now is my gagging at Pinktober #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
First topic will be on the patient journey: symptoms, diagnosis, disclosure, treatment. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Quick chat note: Please only share what you’re comfortable sharing. Please be respectful & sensitive to others :) #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Topic 1: What are the biggest challenges you (and others) face on the patient journey? #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
RT @ibeatcancrtwice: Whats real for me right now is my gagging at Pinktober #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Topic 1: What are the biggest challenges you (and others) face on the patient journey? #HAchat
JBBC
https://pbs.twimg.com/profile_images/378800000744898251/c0c9314b39daf38aaadc5be6308bd4f9_normal.jpeg
RT @wegohealth: Topic 1: What are the biggest challenges you (and others) face on the patient journey? #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T1: Being understood, feeling listened to and taken seriously, biggest challenge on the patient journey for me. #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @wegohealth: Topic 1: What are the biggest challenges you (and others) face on the patient journey? #Hachat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
RT @wegohealth: Topic 1: What are the biggest challenges you (and others) face on the patient journey? #HAchat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
T1: Allowing the patient to take it at their own pace... questions, acceptance, decisions when it seems urgent. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T1: The biggest challenge that I face on the patient journey is finding a doctor to listen and understand what I am facing #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T1. Staying focused, and getting those around me to understand that there are real health implications if they encourage me to stray #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @wegohealth: Topic 1: What are the biggest challenges you (and others) face on the patient journey? #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T1: The patient journey is terribly lonely. It's something that other people don't understand unless they've been there themselves. #HAchat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
T1: for me, the biggest challenge is just getting people to understand that I really AM sick, and that it has a huge effect #HAchat
JBBC
https://pbs.twimg.com/profile_images/378800000744898251/c0c9314b39daf38aaadc5be6308bd4f9_normal.jpeg
@wegohealth: Lack of understanding from others and/or stigma can be an issue Topic 1: #HAchat
susanmees
https://si0.twimg.com/profile_images/420660989/susan_at_the_red_sox__2__normal.jpg
RT @nursesantos: T1: Allowing the patient to take it at their own pace... questions, acceptance, decisions when it seems urgent. #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @Abeeliever: T1: Being understood, feeling listened to and taken seriously, biggest challenge on the patient journey for me. #HAchat
Strangely_T1
https://pbs.twimg.com/profile_images/2913137795/093239dcd5705ace9e86130d00787b56_normal.png
T1 misinformation, public perception... stigma, even among HCPs sometimes #diabetes #depression #hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T1: For many, the challenge is getting an accurate diagnosis; for others, it's getting appropriate treatment. #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T1: It took me around 17 years to get a diagnosis, so finding answers to what I was experiencing was a BIG challenge! #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T1: Also, finding physicians who take diagnosis of #fibromyalgia seriously, who are compassionate and understanding, not dismissive #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @tmana: T1: For many, the challenge is getting an accurate diagnosis; for others, its getting appropriate treatment. #Hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T1: Also, just because a medication is labeled "for control of X condition" doesn't mean it's right for YOUR particular case of X #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T1: With an invisible illness is certainly hard - people are very skeptical to believe that there is anything wrong as I seem normal #HAchat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
T1: another huge challenge for #fibromyalgia patients is getting effective pain treatment, especially now (#DEA, #opiophobia) #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
T1: Probably the biggest challenge right now is maintaining energy and drive to work on my health issues. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
@Abeeliever Should I ask how many times you've been told "it's all in your head"? #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T1: There's how people *think* health care works (TV), & then there's reality: diagnosis takes 7-10 YEARS on average. Meanwhile: >.< #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Sounds like a lot of us agree; Tough: being misunderstood, finding people to listen, seeking diagnosis, misinformation, disconnects. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T1.1: What has been your biggest fear as a patient? (Or caregiver or healthcare professional) #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
@tmana implied or straight out said it? =) #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
Sometimes docs don't take the time to understand patients and their stories. According to the chat, there's a lot of that going on. #Hachat
AutoimmuneGal
https://pbs.twimg.com/profile_images/2290442909/buh74f2k5sscbyehxvs2_normal.jpeg
T1: And getting the right diagnosis can be a lengthy and trying process. The patient has to be so persistent. #HAchat
DarryleP
https://pbs.twimg.com/profile_images/3281269888/0aa58ba495d57a9226ebd75e83ad06de_normal.jpeg
I think a huge challenge for #cancer patients is sorting thru the mass of information to find what is right for you. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T1.1: Not being able to afford treatment, long-term side-effects of treatment, the potential for treatments to stop working... #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @serenebutterfly: T1: Invisible illness is hard. People are very skeptical to believe there is anything wrong as I seem normal. #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
hi. a little late to the chat. but Peachy here. patient of #arthritis. looking forward to the chat! #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @wegohealth: T1.1: What has been your biggest fear as a patient? (Or caregiver or healthcare professional) #HAchat
susanmees
https://si0.twimg.com/profile_images/420660989/susan_at_the_red_sox__2__normal.jpg
RT @DarryleP: I think a huge challenge for #cancer patients is sorting thru the mass of information to find what is right for you. #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T1.1: My biggest fear is certainly that they would never find out what was wrong and I would be stuck in limbo forever #HAchat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
T1.1: Fear of giving or receiving medication that causes bad reaction. #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T1.1: Fear of not knowing all of my rights. #hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
@Abeeliever LOL I know it's not funny that you've been suffering. It's the humor in being able to sort the levels of inccompetence #hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
Late to the party, but I made it! Catching up now. #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Sounds like a lot agree: being misunderstood, finding people to listen, diagnosis, misinformation, disconnects. #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @nursesantos: T1.1: Fear of giving or receiving medication that causes bad reaction. #Hachat
diamondie
https://pbs.twimg.com/profile_images/420518460041359360/zkohyxIm_normal.jpeg
@kimmieCollas Most #fibromyalgia patients would benefit a lot more from LDN than opioids - but it's even harder to get. :-/ #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: T1.1: What has been your biggest fear as a patient? (Or caregiver or healthcare professional) #HAchat
karenjulius
https://pbs.twimg.com/profile_images/415210425194520576/wcXbbZgY_normal.jpeg
Regarding #cancer, people don't know what to say, how to react. It's awkward. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T1.1: Another fear was that I was totally alone and that there was no one out there who understands. Clearly I was wrong!! #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T1.1 One of my biggest fears as a patient is being thought of as purely "psychosomatic" #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
@PeachyPains How about fear of your rights being trampled over by know-it-all HCPs and family members? #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @serenebutterfly: T1.1: My biggest fear is certainly never finding out what was wrong, I would be stuck in limbo forever #Hachat
Strangely_T1
https://pbs.twimg.com/profile_images/2913137795/093239dcd5705ace9e86130d00787b56_normal.png
T1.1 Patient: Burnout Caregiver: Burnout Employee: Burnout - too many 24x365 responsibilities at times #hachat
klgold
https://pbs.twimg.com/profile_images/419113604495855616/U22B7eYR_normal.jpeg
T1.1 Fear of a bigger flare, not being able to live a full life #lupus #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @wegohealth: Topic 1: What are the biggest challenges you (and others) face on the patient journey? #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
@tmana Oh, I know, it is funny, must have humor ... and that is something all of us cross conditions can relate too! #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T1.2: What part of the “patient journey” is the toughest for you or members of your community? #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @wegohealth: T1.1: What has been your biggest fear as a patient? (Or caregiver or healthcare professional) #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
Sorry I'm late guys! It's been a rough week for me. #HAchat
susanmees
https://si0.twimg.com/profile_images/420660989/susan_at_the_red_sox__2__normal.jpg
T1.1 I'm always afraid that my medication will stop working or that my condition will get worse. #hachat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
so true! RT @tmana: @PeachyPains How about fear of your rights being trampled over by know-it-all HCPs and family members? #hachat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
RT @wegohealth: T1.1: What has been your biggest fear as a patient? (Or caregiver or healthcare professional) #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
T1: Biggest challenge as infertility patient is getting gen'l public to understand this is a disease and NOT a choice. #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @wegohealth: T1.2: What part of the “patient journey” is the toughest for you or members of your community? #Hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T1.1 My biggest fear: PAIN that they won't treat. Getting labeled as a drug-seeker and dismissed. Suffering alone & no one caring. #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
Me 2! *hugs* RT @susanmees: T1.1 Im always afraid that my medication will stop working or that my condition will get worse. #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
T1.1 Biggest fear has really been surviving without cracking up, succumbing to self-harm, etc. #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T1.1 Another great big fear of mine is that all symptoms will return that I have currently "managed". #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Welcome to everyone just joining - great to have you! We're wrapping up our brainstorm on the toughest parts of the patient journey. #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
THIS RT @klgold: T1.1 Fear of a bigger flare, not being able to live a full life #lupus #HAchat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
T1.1: my biggest fear is that the DEA and addictionologists will succeed in their attempts to restrict access to opioid medications #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @tmana: @PeachyPains How about fear of your rights being trampled over by know-it-all HCPs and family members? #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
T1.1: My biggest fear as an infertility patient is that I'll never get to parent. In the 2ww now & still very present. #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
Getting the right diagnosis seems to be, well, most certainly is, so frustrating and often scary for patients. #Hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @wegohealth: T1.2: What part of the “patient journey” is the toughest for you or members of your community? #hachat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T1.1 Also, being alone with no one to help care for me. Big fear. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @susanmees: T1.1 Im always afraid that my medication will stop working or that my condition will get worse. #HAchat
AutoimmuneGal
https://pbs.twimg.com/profile_images/2290442909/buh74f2k5sscbyehxvs2_normal.jpeg
@klgold. I fear bigger flares too and suddenly getting sicker. It is hard to accept what is beyond our control. #hachat #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T1.1: Chronic pain isn't visibly seen. I always worry about being labeled when asking for pain relief. #HAchat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
@wegohealth T1.1: The unknown. & knowing that I'm doing the best I can,but #diabetes a bitch & people always judge & assume #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
RT @MakeThisLookAwe: RT @susanmees: T1.1 Im always afraid that my medication will stop working or that my condition will get worse. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: T1.2: What part of the “patient journey” is the toughest for you or members of your community? #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T1.2 for people with type 2, it's being accepted as *having* #diabetes. For people with type 1.5 (LADA), it's getting correct dx/tx #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @TiffanyAndLupus: T1.1: Chronic pain isnt visibly seen. I always worry about being labeled when asking for pain relief. #Hachat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T1.2: could be feeling alone and the unknown. That one's journey isnt always yours. #hachat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
RT @Strangely_T1: T1 misinformation, public perception... stigma, even among HCPs sometimes #diabetes #depression #hachat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
@DiamonDie What's LDN? #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
@TiffanyAndLupus Sorry you're having a bad week girl. Sending you healing vibes. :) #hachat
karenjulius
https://pbs.twimg.com/profile_images/415210425194520576/wcXbbZgY_normal.jpeg
RT @AutoimmuneGal: @klgold. I fear bigger flares too and suddenly getting sicker. It is hard to accept what is beyond our control. #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
RT @wegohealth: T1.2: What part of the “patient journey” is the toughest for you or members of your community? #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Great comments everyone. This topic could be a chat (or series of chats in itself)! #HAchat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
T1.2: Not knowing how best to help someone can be agonizing. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Our second topic will be on our relationships with ourselves – sometimes the toughest relationship there is. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T1.2 That is, within the patient community. For every1 I think it's fear of complications, ranging from amputations to sudden death #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T1.2: Learning acceptance and making peace w/ our disease seems hardest for everyone. It's scary, and it's hard to make peace w that #HAchat
klgold
https://pbs.twimg.com/profile_images/419113604495855616/U22B7eYR_normal.jpeg
T1.2 ever changing health care laws...just let me see a doctor without it costing a fortune #lupus #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @nursesantos: T1.2: Not knowing how best to help someone can be agonizing. #HAchat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
RT @wegohealth: T1.2: What part of the “patient journey” is the toughest for you or members of your community? #HAchat
diamondie
https://pbs.twimg.com/profile_images/420518460041359360/zkohyxIm_normal.jpeg
@TiffanyAndLupus Low dose naltrexone, the most effective treatment for e.g. fibro, #mecfs and all autoimmune diseases (incl. SLE). #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T1.2: For me, right now getting over a flare is the hardest. Sometimes even though I do everything right I just can't get better! #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @wegohealth: Our second topic will be on our relationships with ourselves – sometimes the toughest relationship there is. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @klgold: T1.2 ever changing health care laws...just let me see a doctor without it costing a fortune #lupus #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Our second topic will be on our relationships with ourselves – sometimes the toughest relationship there is. #HAchat
DarryleP
https://pbs.twimg.com/profile_images/3281269888/0aa58ba495d57a9226ebd75e83ad06de_normal.jpeg
Another huge challenge for any patient is to BE patient. #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @klgold: T1.2 ever changing health care laws...just let me see a doctor without it costing a fortune #lupus #Hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
Just mentioning that many HCPs think T1 diabetes is curable & self-imposed (both wrong) @diabetesalish @Strangely_T1 #hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RE: T1.2 - hardest part of being a part of the infertility community is when folks DO resolve & move on. Hard to be left behind. #hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @MakeThisLookAwe: RT @nursesantos: T1.2: Not knowing how best to help someone can be agonizing. #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Topic 2: What tough stuff have you faced in your relationship with yourself? (selfesteem, doubt, depression, body image, guilt, etc) #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
Story of my life right now. #2ww #IVF RT @DarryleP: Another huge challenge for any patient is to BE patient. #hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
@klgold Not sure how much of that is laws and how much is insurance. And changes in insurance plans, policies, carriers, coverage #hachat
kirstenwalters
https://pbs.twimg.com/profile_images/378800000848200473/f021dfafdd0230a6196b85e5ad1f5c5b_normal.jpeg
@wegohealth I hate second guessing my doctor even when in the end I know I'm right. Don't want to be a problem patient. #hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @klgold: T1.2 ever changing health care laws...just let me see a doctor without it costing a fortune #lupus #hachat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
T1.2: The press never seems to get #diabetes right, therefore a majority of the public gets diabetes wrong. #fact #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @KeikoZoll: RE: T1.2 - hardest part of being a part of my community is when folks DO resolve & move on. Hard to be left behind. #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @wegohealth: Topic 2: What tough stuff have you faced in your relationship with yourself? #Hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@wegohealth T2: I am astounded at the sheer depth that depression can go in the wake of an infertility Dx. #hachat
klgold
https://pbs.twimg.com/profile_images/419113604495855616/U22B7eYR_normal.jpeg
@tmana it's all the same now isn't it? #HAchat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
Topic 2: What tough stuff have you faced in your relationship with yourself? (selfesteem, doubt, depression, body image, guilt, etc) #HAchat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
RT @diabetesalish: T1.2: The press never seems to get #diabetes right, therefore a majority of the public gets diabetes wrong. #fact #HAchat
JBBC
https://pbs.twimg.com/profile_images/378800000744898251/c0c9314b39daf38aaadc5be6308bd4f9_normal.jpeg
@wegohealth: All of the named! Topic 2: What tough stuff have you faced in your relationship with yourself? #HAchat
pamelamadsen
https://pbs.twimg.com/profile_images/378800000691138079/d7252416da935a3e99e0b13509762594_normal.png
RT @KeikoZoll: Story of my life right now. #2ww #IVF RT @DarryleP: Another huge challenge for any patient is to BE patient. #hachat
PatrickMcConnel
https://pbs.twimg.com/profile_images/627719187/4fullsize_normal.jpg
RT @diabetesalish: T1.2: The press never seems to get #diabetes right, therefore a majority of the public gets diabetes wrong. #fact #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2: I have battled long and hard with anxiety and depression; always hard on myself about my looks as was called names at school #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T2: All of the above! Guilt is a big one... and depression #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@wegohealth T2: That said, I am also amazed to see how I and others have recovered. The healing process is constant. #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @KirstenWalters: @wegohealth I hate second-guessing my doctor, even when I know I'm right. Don't want to be a "problem patient." #HAchat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
ALL T2: What tough stuff have you faced in your relationship w/yourself? (selfesteem, doubt, depression, body image, guilt, etc) #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T2: Body image is an issue for every female, even those without eating disorders. Diabetes FORCES you to eat disorderedly. #hachat
Strangely_T1
https://pbs.twimg.com/profile_images/2913137795/093239dcd5705ace9e86130d00787b56_normal.png
T2 long-term clinical depression, actually being ashamed that I "survived" this long when so many others, esp children, didn't #hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
T2: When I found out I had infertility, I was ashamed of myself, my body - I felt like a failure as a woman. #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @diabetesalish: T1.2: The press never seems to get #diabetes right, therefore a majority of the public gets diabetes wrong. #fact #Hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T2: What tough stuff have you faced in your relationship with yourself? (self-esteem, doubt, depression, body image, guilt, etc.) #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2: I have also felt like a freak and an outsider because of my symptoms, dizziness started when I was 8 which is v.young for that #HAchat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
@tmana T2 isn't "self-imposed" either. It's not just caused by eating the wrong things, although that can affect it. #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T2: that some dreams have to be changed, altered, or vanish due to inability. #hachat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T2: After my SLE dx depression sneaked up gradually. I lost friends, my hair fell out, my confidence dimmed, and I felt so alone. #HAchat
klgold
https://pbs.twimg.com/profile_images/419113604495855616/U22B7eYR_normal.jpeg
@wegohealth T2: definitely body image when #lupus becomes visible; #HAchat
Strangely_T1
https://pbs.twimg.com/profile_images/2913137795/093239dcd5705ace9e86130d00787b56_normal.png
@tmana @diabetesalish hello ladies #hachat
AutoimmuneGal
https://pbs.twimg.com/profile_images/2290442909/buh74f2k5sscbyehxvs2_normal.jpeg
T2: Important to be kind to youself. Separate your illness from your self. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T2. Many HCPs consider "lifestyle diseases" (hypertension, diabetes, etc.) to be self-imposed and force guilt upon the patient. #hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@myzipcare @diabetesalish: Ditto this re: infertility and a whole host of other medical conditions! #hachat
klgold
https://pbs.twimg.com/profile_images/419113604495855616/U22B7eYR_normal.jpeg
RT @PeachyPains: T2: that some dreams have to be changed, altered, or vanish due to inability. #HAchat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
RT @PeachyPains: T2: that some dreams have to be changed, altered, or vanish due to inability. #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
Preach. RT @PeachyPains: T2: that some dreams have to be changed, altered, or vanish due to inability. #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
T2 lack of self-esteem, depression, self-harm, doubt, guilt, weight gain, etc #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
YES! RT @AutoimmuneGal: T2: Important to be kind to youself. Separate your illness from your self. #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2: Now, I also tend to worry about body image and if I will pile on the pounds as I find it hard to be active due to weak legs #HAchat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
t2. Dear #Diabetes #Guilt: http://t.co/jnimlkdI #HAchat #doc #dsma
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
@kimmieCollas All of us are considered at fault for not maintaining a BMI of 19-22, a workout queen's physique, and model-like looks #hachat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T2: I have really struggled with my sense of self-worth as a result, which I feel like I have now improved upon! #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
THIS! RT @PeachyPains: T2: that some dreams have to be changed, altered, or vanish due to inability. #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @AutoimmuneGal: T2: Important to be kind to youself. Separate your illness from your self. #Hachat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
Hey Twitter Peeps - in a Twitter chat right now for @WEGOHealth & #HAChat. Sorry for the barrage of tweets on my end!
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T2.1: How did you confront these personally? How have you confronted them in your community (if you have done so)? #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @PeachyPains: T2: that some dreams have to be changed, altered, or vanish due to inability. #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
Well said!! RT @PeachyPains: T2: that some dreams have to be changed, altered, or vanish due to inability. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T2: Losing my sense of self. I could no longer do the things that made me, me. I forgot my value. I had to find a way to love myself #HAchat
AutoimmuneGal
https://pbs.twimg.com/profile_images/2290442909/buh74f2k5sscbyehxvs2_normal.jpeg
Great point @PeachyPains. The changing expectations and plans for the future. #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T2: the constant threat of needing insurance in order to maintain current lifestyle but fear of going on disability. #hachat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Sorry I'm late! Ms. Rants from http://t.co/PHB6or2R - looks like an amazing discussion so far! #HAchat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
@Strangely_T1 @tmana HELLO #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
THIS! RT @PeachyPains: T2: that some dreams have to be changed, altered, or vanish due to inability. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T2: Sometimes taking care of one's self (especially when one's role is to do so for spouse/kids/parents) imposes its own guilt #hachat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
YES. RT @PeachyPains: T2: that some dreams have to be changed, altered, or vanish due to inability. #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @wegohealth: T2.1: How did you confront these personally? How have you confronted them in your community (if you have done so)? #Hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @wegohealth: T2.1: How did you confront these personally? How have you confronted them in your community (if you have done so)? #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
If you deal with a chronic illness of any kind, join me in the #HAchat right now! =) (health activist chat)
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@wegohealth T2.1: Everything I do at http://t.co/YCZyU9Gj is about reassuring ppl that their stories MATTER. #hachat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
@KeikoZoll @myzipcare AGREED #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
RT @AutoimmuneGal: Great point @PeachyPains. The changing expectations and plans for the future. #HAchat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
@tmana yep. It's very frustrating, because the "common knowledge" of what's healthy is all WRONG . . . #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @Abeeliever: If you deal with a chronic illness of any kind, join me in the #HAchat right now! =) (health activist chat) #hachat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
RT @wegohealth: T2.1: How did you confront these personally? How have you confronted them in your community (if you have done so)? #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T2. Also, taking up more than "one's fair share of resources" imposes guilt, and the seemingly-inevitable decline, depression #hachat
susanmees
https://si0.twimg.com/profile_images/420660989/susan_at_the_red_sox__2__normal.jpg
RT @Abeeliever: If you deal with a chronic illness of any kind, join me in the #HAchat right now! =) (health activist chat) #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @KeikoZoll: @wegohealth T2.1: Everything I do at http://t.co/COWhPHII is about reassuring ppl that their stories MATTER. #Hachat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
@nursesantos ;) #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2.1: In terms of depression and anxiety I have gotten help from counsellors and psychiatrists - hard but worth it #HAchat
AutoimmuneGal
https://pbs.twimg.com/profile_images/2290442909/buh74f2k5sscbyehxvs2_normal.jpeg
MT @MakeThisLookeAwe losing my sense of self. Couldn't do the things that made me. I forgot my value. Had to find way to love myself #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
Confronting one's emotions, "owning" how your Dx makes you feel, impacts your life - it's all key to healthy coping over time. #hachat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T2.1: making new dreams! not letting the disease have my entire life. im multiple parts &deserve the best even though its a battle #hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T2.1: I confronted this at the beginning by being hypervigilant, but once things got under control -- maybe *too* controlled... #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
T2.1 Years of individual and group therapy (cognitive therapy), yoga, meditation, sheer bloody-mindedness. :) #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2.1: Writing helps a lot; scribbling away all my thoughts and worries can be so cathartic #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T2.1: Reaching out to others and sharing our patient experiences helps us know we aren't alone w/illness! #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T2.1 Personally, I had to learn (re-learn) that I am still valuable and wonderful even with my challenges and seeming "deficits" #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T2.2: What’s one tip you have for speaking about these personal issues? #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
thanks for all the RT everyone. :) looks like i'm not the only one who has had to deal with failed dreams. XO #hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T2.1 ...I relaxed, and that led to my current lassitude. I'm not able to do "moderate"; it's either all the way or not at all... #hachat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
Yes, make new dreams! RT @PeachyPains: T2.1: making new dreams! not letting the disease have my entire life... #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @JaneWaterman: T2.1 Years of individual and group therapy (cognitive therapy), yoga, meditation, sheer bloody-mindedness. :) #Hachat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
RT @MakeThisLookeAwe losing my sense of self. Couldnt do the things that made me. I forgot my value. Had to find way to love myself #hachat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
T2.1: These chats are incredibly helpful, and provide a good reminder that I'm not alone #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
RT @serenebutterfly: T2.1: In terms of depression/anxiety I've gotten help from counsellors and psychiatrists - hard but worth it #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T2.1: I've confronted this my re-inventing myself. I imagine a future me that I could be proud of and I aim for *that*. #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
MT Abeeliever T2.1 Personally, I had to learn that I am still wonderful even with my challenges and seeming "deficits" #HAchat #hachat
Strangely_T1
https://pbs.twimg.com/profile_images/2913137795/093239dcd5705ace9e86130d00787b56_normal.png
T2.1 anti-depressants for years, finally talk therapy. Been sharing the parts that relate to #diabetes at http://t.co/2YILZLQL #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @wegohealth: T2.2: What’s one tip you have for speaking about these personal issues? #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2: I started volunteering to take my mind off things and to help others less fortunate #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @CIRants: T2.1: These chats are incredibly helpful, and provide a good reminder that Im not alone #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T2.2 Just be honest and share your heart, others will hear you and relate. #HAchat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
This makes me feel good :) RT @cirants: T2.1: These chats are incredibly helpful, and provide a good reminder that I'm not alone #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T2.2: Be honest, don't take naysayers personally, and consider every experience a time to teach, and to learn #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @CIRants: T2.1: These chats are incredibly helpful, and provide a good reminder that Im not alone. -- Exactly. It helps many! #Hachat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
T2.2: Share only what you feel comfortable with; give and receive support willingly; don't judge others based on a Tweet. #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
I <3 volunteering! RT @serenebutterfly: T2: I started volunteering to take my mind off things and to help others less fortunate #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
T2.2 Writing helps. Don't share more than you're comfortable with. Don't talk in depth to people until you know if they're an ally #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: T2.2: What’s one tip you have for speaking about these personal issues? #HAchat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
YES! the only reason I've survived this long is because I'm a stubborn b*tch RT @JaneWaterman: T2.1 "sheer bloody-mindedness" :) #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
Yay! RT @apdolan: This makes me feel good :) RT @cirants: T2.1: These chats are helpful, provide a good reminder that Im not alone #HAchat
JBBC
https://pbs.twimg.com/profile_images/378800000744898251/c0c9314b39daf38aaadc5be6308bd4f9_normal.jpeg
+1 RT @CIRants: T2.1: These chats are incredibly helpful, and provide a good reminder that I'm not alone #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T2.1: When my hair started to fall out.....I shaved my head! I was tired of illness dictating my beauty. Also to uplift other lupies #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
RT @wegohealth: T2.2: What’s one tip you have for speaking about these personal issues? #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
T2.2 Just speak from the heart. Be honest and true and you will find people who understand and want to connect. #HAchat
JBBC
https://pbs.twimg.com/profile_images/378800000744898251/c0c9314b39daf38aaadc5be6308bd4f9_normal.jpeg
Great question! RT @wegohealth: T2.2: What’s one tip you have for speaking about these personal issues? #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
Re: T2.1 There's power in our patient stories, so I encourage every1 who is comfortable to share them: http://t.co/8Tax6nKS #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Great tips, everyone. For our third topic let’s move onto the other relationships we have – with others. #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @nursesantos: T2.2: Share what you feel comfortable with; give and receive support willingly; dont judge others based on a Tweet. #Hachat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T2.2 everyone is dealing with an issue. Respect it and learn from it. May be helpful for you. #hachat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
RT @wegohealth: Great tips, everyone. For our third topic let’s move onto the other relationships we have – with others. #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @JaneWaterman: T2.2 Writing helps. Dont share more than youre comfortable with. #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
@kimmieCollas LOL ;) #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @wegohealth: T2.2: What’s one tip you have for speaking about these personal issues? #hachat
LAlupusLady
https://pbs.twimg.com/profile_images/378800000652705958/efc809491755d95284bcd704d578d376_normal.png
#hachat hi... hugs!
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T2.2: Speak from the heart, with compassion and honesty. These are tender subjects and shouldn't be spoken about harshly. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
Topic 3: What are some of the most challenging interactions you’ve had with others in your life about your health or their health? #HAchat
doilooksick
https://pbs.twimg.com/profile_images/378800000277494269/0299ad0ac9fdf2897c934d0f158a3642_normal.png
I used to be of the mind that health is private. Now it's no holds barred. I try to censor the "lady talk" with male friends, tho. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T2.2: Just finding someone you trust and is empathetic to talk too really helps; a close friend; someone not judgemental #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @wegohealth: Great tips, everyone. For our third topic let’s move onto the other relationships we have – with others. #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
T2.2: You don't have to be the next Emerson or Tolstoy. Just tell your story like it is. Let your style come through. You matter. #hachat
Strangely_T1
https://pbs.twimg.com/profile_images/2913137795/093239dcd5705ace9e86130d00787b56_normal.png
T2.2 everyone has to find their own comfortzone, don't share anything that you are not comfortable sharing #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T2:2 Honesty gives relief to the mouth that speaks it, and comfort to the ear that hears it. Be brave. Be understanding. Just try. #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@DoILookSick Yeah, I've pretty much given up on the fact that I will never be quiet about my vagina ever again. #hachat
karenjulius
https://pbs.twimg.com/profile_images/415210425194520576/wcXbbZgY_normal.jpeg
I think self-doubt is my big thing today. #HAchat
AutoimmuneGal
https://pbs.twimg.com/profile_images/2290442909/buh74f2k5sscbyehxvs2_normal.jpeg
T2.2 Changed plans do not mean failure. Learning flexibility can be a gift. #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
RT @TiffanyAndLupus T2.2: Speak from the heart with compassion &honesty. These are tender subjects &shouldnt be spoken about harshly #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T3: Relatives who have not been given complete information about their conditions and refuse to ask/confront their HCPs for more #hachat
CMROpen
https://si0.twimg.com/profile_images/2460547484/image_normal.jpg
RT @TiffanyAndLupus: RT @TiffanyAndLupus: T2.1: Reaching out to others and sharing our patient experiences helps us know we aren't alone w/illness! #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: Topic 3: What are some of the most challenging interactions you’ve had w/others about your health or their health? #HAchat
JBBC
https://pbs.twimg.com/profile_images/378800000744898251/c0c9314b39daf38aaadc5be6308bd4f9_normal.jpeg
@wegohealth: Topic 3: ignornance of condition by others has been a challenge - has led to judging without knowing facts fully #HAchat
klgold
https://pbs.twimg.com/profile_images/419113604495855616/U22B7eYR_normal.jpeg
T3 judgement from others is hard. Just because it's not well known doesn't mean it doesn't exist #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T3: Once my husband (ex-husband) told me that he thought I was making it all up (the pain and the fatigue). I never got over that. #HAchat
ceaton85
https://pbs.twimg.com/profile_images/3186657703/59342efc6b81f231d4a671290688b51a_normal.jpeg
RT @TiffanyAndLupus: RT @TiffanyAndLupus: T2.1: Reaching out to others and sharing our patient experiences helps us know we aren't alone w/illness! #HAchat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
RT @AutoimmuneGal: T2.2 Changed plans do not mean failure. Learning flexibility can be a gift. #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
Gift & art! RT @AutoimmuneGal: T2.2 Changed plans do not mean failure. Learning flexibility can be a gift. #hachat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T3: Former friends of mine couldn't understand my body's new limitations w/lupus. To them I was "selfish, lazy, or inattentive." #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T3: Probably anyone I come into contact with!! Hard to explain a condition which is rare and unusual #HAchat
karenjulius
https://pbs.twimg.com/profile_images/415210425194520576/wcXbbZgY_normal.jpeg
@DoILookSick I like your attitude! #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
Yes! RT @KeikoZoll: @DoILookSick Yeah, Ive pretty much given up on the fact that I will never be quiet about my vagina ever again. #HAchat
LAlupusLady
https://pbs.twimg.com/profile_images/378800000652705958/efc809491755d95284bcd704d578d376_normal.png
#hachat T3 the "reveal" of an illness to new friends and/or partners is hard, everyone has baggage but a chronic illness is scary.
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T3: reminding family and friends of the changes even if its 12+ years since diagnosis! Then when its right to let new ppl know. #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
Exactly!! I can relate!! RT @klgold: T3 judgement from others is hard. Just because its not well known doesnt mean it doesnt exist #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @wegohealth: Topic 3: What are some of the most challenging interactions you’ve had with others about your/their health? #hachat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
Yes! RT @AutoimmuneGal: T2.2 Changed plans do not mean failure. Learning flexibility can be a gift. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T3: Largely, other folk w/ type 2 who don't care for themselves, and the communities who don't think $$$ is an issue in self-care #hachat
NataliaForsyth
https://pbs.twimg.com/profile_images/378800000501805618/c03f8632255eb935265536b4ee9748ab_normal.jpeg
RT @wegohealth: Topic 3: What are challenging interactions you’ve had with others in your life about your health or their health? #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
T3: For the love of G-d, never tell someone who discloses their infertility to you to "just relax and it will happen." #hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @TiffanyAndLupus: Yes! RT @AutoimmuneGal: T2.2 Changed plans do not mean failure. Learning flexibility can be a gift. #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @LAlupusLady: #hachat T3 the "reveal" of an illness to new friends and/or partners is hard, everyone has baggage but a chronic illnes ...
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
RT @Strangely_T1: RT @Strangely_T1: T2.2 everyone has to find their own comfortzone, don't share anything that you are not comfortable sharing #hachat
doilooksick
https://pbs.twimg.com/profile_images/378800000277494269/0299ad0ac9fdf2897c934d0f158a3642_normal.png
When I get upset with hubby, he's admitted that he tends to write it off as endo talking. Good and bad. What feelings are legit? #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
I can relate!! RT @klgold: T3 judgement from others is hard. Just because its not well known doesnt mean it doesnt exist #hachat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
me too > MT @Abeeliever: T3: Once my husband (ex) told me that I was making it up (the pain and the fatigue). I never got over that. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T3: It's letting people know that although I may look fine and normal that I still have the same challenges; I'm not suddenly cured! #HAchat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
*Loving* this #HAchat - wish I could RT nearly everything! But that would look messy/confusing. :D
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T3: Explaining health circumstances in a dating relationship (new relationship), quite awkward and unnerving. #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T3: The famous Q: Am I feeling this way because of my disease or because of something I did that created it? #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T3: Stigma, stigma, stigma. Other people knowing what's "best" for you (without your consent or a medical degree). #HAchat
Strangely_T1
https://pbs.twimg.com/profile_images/2913137795/093239dcd5705ace9e86130d00787b56_normal.png
T3 the time my now ex-wife got pissed when the Dr told me I was doing my D mgmt well and she'd see me in a year... #hachat
susanmees
https://si0.twimg.com/profile_images/420660989/susan_at_the_red_sox__2__normal.jpg
@KeikoZoll I'd say that's good advice for all conditions - never tell someone to "relax" or "its in their head". #hachat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T3: Most challenging for me recently, is how to tell new friends/relationships about my health challenges... #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
@kimmieCollas So sorry you experienced that, too! #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
T3: People expecting more because I "look" ok, or act ok for a short time; they think I must always be ok then #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
@TiffanyAndLupus I think most of us really don't know what lupus *IS*, & that makes it harder. We try 2 hlp but can't/don't know how #hachat
LAlupusLady
https://pbs.twimg.com/profile_images/378800000652705958/efc809491755d95284bcd704d578d376_normal.png
yes. “@Abeeliever: T3: Explaining health circumstances in a dating relationship (new relationship), quite awkward and unnerving. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @TiffanyAndLupus: T3: Most challenging for me recently, is how to tell new friends/relationships about my health challenges... #HAchat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
T3: Being told not to talk about it, being told others have it worse, being told you could do activities A,B,C if you tried. #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @TiffanyAndLupus: T3: Most challenging for me recently, is how to tell new friends/relationships about my health challenges... #Hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T3: We all want to "make it all better" for the other, but can't, and don't know how to react. So we take it out on the patient :( #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
T3.1: What are the challenges you face leading a health cmty & your relationships with members? (We'll have a whole chat on this) #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
me 2 RT @TiffanyAndLupus: T3: Most challenging for me recently, is how to tell new friends/relationships about my health challenges #hachat
doilooksick
https://pbs.twimg.com/profile_images/378800000277494269/0299ad0ac9fdf2897c934d0f158a3642_normal.png
Many of our relationships are not 24/7 - people outside our home tend to only see us on "good days" so it can seem unreal. #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@susanmees It's so true. Doing so a) blames that person and b) invalidates their experience. #hachat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
YES! MT @serenebutterfly: T3: letting people know although I look normal I still have the same challenges; Im not suddenly cured! #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
YES! RT @JaneWaterman: T3 Being told not to talk about it, being told others have it worse, being told you could do activities A,B,C #hachat
NataliaForsyth
https://pbs.twimg.com/profile_images/378800000501805618/c03f8632255eb935265536b4ee9748ab_normal.jpeg
agreed! MT @TiffanyAndLupus: T3: Challenging for me recently, is how to tell new friends/relationships about my health challenges... #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
@tmana Yes. This is why I share with my friends/family what they CAN help me with. Like making a meal, picking up icyhot, etc.. #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T3: Relationships are hard. It's painful to feel misunderstood by our loved ones. #HAchat
diabetesalish
https://pbs.twimg.com/profile_images/1618053519/24af04a0-4f77-4d85-b5b6-c9002de8930b_normal.png
T3: #Diabetes isn't 1 size fits all. Also & regardless of the disease or condition, if there's a family history, get tested #hachat
NataliaForsyth
https://pbs.twimg.com/profile_images/378800000501805618/c03f8632255eb935265536b4ee9748ab_normal.jpeg
RT @wegohealth: T3.1: What are the challenges you face leading a health cmty & your relationships with members? #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T3.1: One issue is that "diabetes" is a big community with many sub-communities, many of which are at odds with each other for $... #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: T3.1: What are the challenges you face leading a health community & your relationships with members? #HAchat
caitlin_cumming
https://pbs.twimg.com/profile_images/1778504499/n5319340_35763843_2512_normal.jpg
Truth. RT @Abeeliever: T3: Relationships are hard. Its painful to feel misunderstood by our loved ones. #hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
T3.1 Not really knowing how to start, and not having enough energy, so just doing what I can - like taking part in #HAchat :)
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
T3.1 just being able to keep up . . . flares, fatigue, etc can make it impossible to post or respond sometimes #HAchat
Hyacinths4
https://pbs.twimg.com/profile_images/1186944223/98d87141-f7a2-41d6-b589-1b97729ea697_normal.png
RT @Abeeliever: T3: Explaining health circumstances in a dating relationship (new relationship), quite awkward and unnerving. #HAchat
doilooksick
https://pbs.twimg.com/profile_images/378800000277494269/0299ad0ac9fdf2897c934d0f158a3642_normal.png
T3.1 fluctuation of interest. Some days your audience is huge, others its just 1 person and u wonder if everythings ok. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T3.1: It's trying to write in a way that people can relate to what I am going through despite my condition being rare or unheard of #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T3: I'm now experiencing for the FIRST time since I've been diagnosed..how to balance a relationship w/ healthissues. Very scary!!!! #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
YES! RT @DoILookSick Many of our relationships are not 24/7 - ppl outside our home tend to only see us on "good days" so unreal #hachat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
We can save 3.1 for our chat on it - we'll really zoom-in on community "mean girls" & drama. Will be an important chat! #HAchat
susanmees
https://si0.twimg.com/profile_images/420660989/susan_at_the_red_sox__2__normal.jpg
RT @Abeeliever: T3: Relationships are hard. Its painful to feel misunderstood by our loved ones. #hachat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T3.1 ...and approach (cure, therapy, assist less affluent with condition, quality of life). #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
T3:1 In leading a community, I always have to remind folks not to compare. It's not fair to yourself. Everyone struggles. #HAchat
klgold
https://pbs.twimg.com/profile_images/419113604495855616/U22B7eYR_normal.jpeg
T3.1 Oooo I'm guilty of being preachy about what helps me. #HAchat
doilooksick
https://pbs.twimg.com/profile_images/378800000277494269/0299ad0ac9fdf2897c934d0f158a3642_normal.png
Another one is not leaving anyone out, trying to make your posts about chronic pain relevant to mental illness, etc. #HAchat
Hyacinths4
https://pbs.twimg.com/profile_images/1186944223/98d87141-f7a2-41d6-b589-1b97729ea697_normal.png
RT @kimmieCollas: T3.1 just being able to keep up . . . flares, fatigue, etc can make it impossible to post or respond sometimes #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@wegohealth re: T3.1 - sometimes ppl play the "Pain Olympics." It doesn't matter who suffers more/worse - we're in this together. #hachat
AutoimmuneGal
https://pbs.twimg.com/profile_images/2290442909/buh74f2k5sscbyehxvs2_normal.jpeg
T3: I've started to explain #AutoimmuneDisease to both friends & strangers. Educating makes me feel like I can make a difference. #HAchat
LAlupusLady
https://pbs.twimg.com/profile_images/378800000652705958/efc809491755d95284bcd704d578d376_normal.png
@wegohealth within the community people need to respect others while staying true to who they are. Don't hate me for who I am #HAchat
wegohealth
https://pbs.twimg.com/profile_images/2793120407/58e696017429723d9c397699835dacea_normal.png
BRAINSTORM topic! Topic 4 let’s list topics that may not relate to us personally but are tough & deserve attention/awareness. #HAchat
NataliaForsyth
https://pbs.twimg.com/profile_images/378800000501805618/c03f8632255eb935265536b4ee9748ab_normal.jpeg
MT @MakeThisLookAwe: T3:1 I always have to remind folks not to compare. Its not fair to yourself. Everyone struggles. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T3.1: One hot-button issue has been the degree to which people with type 2 #diabetes are accepted by the type 1 community #hachat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @kimmieCollas: T3.1 just being able to keep up . . . flares, fatigue, etc can make it impossible to post or respond sometimes #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@klgold I don't think that's a fault, tho; the variety of patient experiences gives us more things to try/talk to our docs. #hachat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T3.1: Leading a community can be super challenging when dealing w/health issues. I feel guilty when I can't update them regularly. #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
RT: KeikoZoll re: T3.1 - sometimes ppl play the "Pain Olympics." It doesn't matter who suffers more/worse - we're in this together #hachat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
RT @DoILookSick Many of our relationships are not 24/7 - ppl outside our home tend to only see us on "good days" so unreal #hachat #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @wegohealth: BRAINSTORM! Let’s list topics that may not relate to us personally but are tough & deserve attention/awareness. #hachat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
Topic 4: list topics that may not relate to us personally but are tough & deserve attention/awareness. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @AutoimmuneGal: T3: I explain #AutoimmuneDisease to friends & strangers. Educating makes me feel like I can make a difference. #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
@wegohealth October is Breast Cancer Awareness Month. MEN GET IT TOO. #hachat
devionsmama2
https://pbs.twimg.com/profile_images/3428025475/1c5e9d07539849666df58344b8edd87c_normal.jpeg
RT @TiffanyAndLupus: RT @TiffanyAndLupus: T1.1: Chronic pain isn't visibly seen. I always worry about being labeled when asking for pain relief. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
@KeikoZoll That reminds me of the "bad type of diabetes" discussion. All are bad. Usually, the worst type is the one YOU have. #hachat
kimmieCollas
https://pbs.twimg.com/profile_images/378800000045442269/563ddedaddbc9343742664be567cb4a9_normal.jpeg
MT @MakeThisLookAwe: T3:1 always have to remind folks not to compare. Its not fair to you. Everyone struggles. #HAchat
TiffanyAndLupus
https://pbs.twimg.com/profile_images/3222908622/63d5500aa72939bb078cbd8601cf63c6_normal.jpeg
T4: Death, is a tricky subject that most don't want to discuss, but it's important when living with a chronic illness. #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @LAlupusLady: within the community people need to respect others while staying true to who they are. Don't hate me for who I am #HAchat
keikozoll
https://pbs.twimg.com/profile_images/452185059512967168/Dr7DFB2v_normal.png
RT @TiffanyAndLupus: T4: Death is a tricky subject most dont want to discuss, but its important when living with a chronic illness. #hachat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
RT @KeikoZoll: @wegohealth October is Breast Cancer Awareness Month. MEN GET IT TOO. #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
T4: Within our communities? Getting accurate LADA diagnoses. Finding/affording healthy food. Getting families to eat healthy. #hachat
NataliaForsyth
https://pbs.twimg.com/profile_images/378800000501805618/c03f8632255eb935265536b4ee9748ab_normal.jpeg
Gender issues, pain management, addiction, infertility, death, feelings in general! #HAchat
LAlupusLady
https://pbs.twimg.com/profile_images/378800000652705958/efc809491755d95284bcd704d578d376_normal.png
@wegohealth how our condition effects us in a total body sense of mentally, physically, emotionally and (sshhh....) sexually #Hachat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
Mental health conditions need more compassion and awareness. Not all illnesses are just physical. #HAchat
cirants
https://pbs.twimg.com/profile_images/1490617589/Twitter_normal.JPG
RT @KeikoZoll: @wegohealth October is Breast Cancer Awareness Month. MEN GET IT TOO. #HAchat
nursesantos
https://pbs.twimg.com/profile_images/1441476176/2011-07-13_Claire_P._Santos_RN_for_Twitter_normal.jpg
RT @TiffanyAndLupus: T4: Death- tricky subject that most dont want to discuss, but its important when living with a chronic illness. #HAchat
klgold
https://pbs.twimg.com/profile_images/419113604495855616/U22B7eYR_normal.jpeg
T4 @KatharineS84 isn't participating but I'll vouch for her that #cysticfibrosis isn't just for kids anymore #HAchat
makethislookawe
https://pbs.twimg.com/profile_images/1927681872/2000px-718smiley.svg_normal.png
RT @wegohealth: BRAINSTORM! T4: let’s list topics that may not relate to us personally but are tough & deserve attention/awareness. #HAchat
PeachyPains
https://pbs.twimg.com/profile_images/2525465794/oesa1dlw0lrxp0u8dqfx_normal.jpeg
T4: Um, ahem. relations... #hachat
karenjulius
https://pbs.twimg.com/profile_images/415210425194520576/wcXbbZgY_normal.jpeg
@TiffanyAndLupus I agree about death. I almost said it myself but stopped. You got it. #HAchat
doilooksick
https://pbs.twimg.com/profile_images/378800000277494269/0299ad0ac9fdf2897c934d0f158a3642_normal.png
@TiffanyAndLupus Quite often, we as "sick people" are a reminder of death to those around us. That's important to remember. #HAchat
Strangely_T1
https://pbs.twimg.com/profile_images/2913137795/093239dcd5705ace9e86130d00787b56_normal.png
T3.1 reminding people that the worst kind of diabetes is the kind that effects you are a loved one... it doesn't matter the type #hachat
tcperret
https://pbs.twimg.com/profile_images/378800000268519208/ed2ba984df76bcd760f8df4400ee4dab_normal.jpeg
Is anyone using an online personal health record and willing to share opinions and reviews? #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
T4 Abuse in relationships related to health issues #HAchat
tmana
https://pbs.twimg.com/profile_images/583165198/twitterProfilePhoto_normal.jpg
@TiffanyAndLupus To what degree does death NEED to be discussed, at what point along the illness journey? #hachat
apdolan
https://pbs.twimg.com/profile_images/2703884470/96ee9ae70f9ee331b0118acb5cab13e0_normal.png
Yes to ALL RT @NataliaForsyth: Gender issues, pain management, addiction, infertility, death, feelings in general! #HAchat
Abeeliever
https://pbs.twimg.com/profile_images/1393287015/ALK3crop_normal.jpg
You mean sex? lol RT @PeachyPains: T4: Um, ahem. relations... #HAchat
myzipcare
https://pbs.twimg.com/profile_images/1484540529/twitterlogo_normal.png
RT @CIRants: RT @KeikoZoll: @wegohealth October is Breast Cancer Awareness Month. MEN GET IT TOO. #Hachat
BlackbirdAtNght
https://pbs.twimg.com/profile_images/2389259948/2bdfa4aspma965qrxvda_normal.jpeg
RT @myzipcare: Mental health conditions need more compassion and awareness. Not all illnesses are just physical. #HAchat
NataliaForsyth
https://pbs.twimg.com/profile_images/378800000501805618/c03f8632255eb935265536b4ee9748ab_normal.jpeg
T4: I think talking about death is one of the only ways to cope with losing someone and so many people can't/don't discuss it. #HAchat
serenebutterfly
https://pbs.twimg.com/profile_images/2538013115/8801f6ba-d266-4497-8731-1c1685cd39bc_normal.png
T4: Euthanasia is a big topic over in the UK at the moment; debate whether it is correct to euthanise patients and in what circums #HAchat

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