#LupusChat transcript

Healthcare Social Media Transcript

From: Sun May 20 12:00:00 PDT 2012
To: Sun May 20 13:15:00 PDT 2012

What is #LupusChat? Who were the influencers during this time period? #LupusChat analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
*shoots a billion glitter cannons* Are YOU ready for today's Mental Health themed #LupusChat happening right NOW!?
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
*shoots a billion glitter cannons* Are YOU ready for today's Mental Health themed #LupusChat happening right NOW!?
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
RT @SLEYoungLeaders: The #LupusChat discussing mental health while living w/ lupus begins in 15 minutes at 3pm Et! Hope to see u there ~ ...
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Welcome to our 3rd lupus chat! Today's topic of #LupusChat is on 'Mental Health & Lupus and is being co-hosted by Dr. @NSkoufalos
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Welcome to our 3rd lupus chat! Today's topic of #LupusChat is on 'Mental Health & Lupus and is being co-hosted by Dr. @NSkoufalos
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @Lupus_Chat: *shoots a billion glitter cannons* Are YOU ready for todays Mental Health themed #LupusChat happening right NOW!? #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @TiffanyAndLupus: *shoots a billion glitter cannons* Are YOU ready for today's Mental Health themed #LupusChat happening right NOW!?
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Our conversation today won't only be on Mental Health. We’ll also discuss dealing w/ diagnosis, positive coping & communication! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Our conversation today won't only be on Mental Health. We’ll also discuss dealing w/ diagnosis, positive coping & communication! #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Let's go over basic twitter chat rules first: Questions will begin w/ T1, T2 & should be answered in the same way. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Let's go over basic twitter chat rules first: Questions will begin w/ T1, T2 & should be answered in the same way. #LupusChat
iamtheeboss20
https://pbs.twimg.com/profile_images/3656926466/7d8ac8d60a7f7edc579cd46dfc6d18ec_normal.jpeg
RT @TiffanyAndLupus: *shoots a billion glitter cannons* Are YOU ready for today's Mental Health themed #LupusChat happening right NOW!?
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Our lupus twitter chat "hashtag" is ~> #LupusChat. This is our main focus & should be the only hashtag used during our discussion
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Our lupus twitter chat "hashtag" is ~> #LupusChat. This is our main focus & should be the only hashtag used during our discussion
drmikesevilla
https://pbs.twimg.com/profile_images/1575118804/IMG_6850_normal.jpg
RT @TiffanyAndLupus: Welcome to our 3rd lupus chat! Today's topic of #LupusChat is on 'Mental Health & Lupus and is being co-hosted by Dr. @NSkoufalos
lesenmitlupus
RT @Lupus_Chat: Welcome to our 3rd lupus chat!Todays topic ´s on MentalHealth&Lupus and is being co-hosted by Dr.@NSkoufalos #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Our #LupusChat discussions will sometimes feature patient or doctor experts; so let's do our best to stay on topic with them.
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Our #LupusChat discussions will sometimes feature patient or doctor experts; so let's do our best to stay on topic with them.
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
*shoots glitter cannons* Now, who’s ready for #LupusChat to begin!?
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
*shoots glitter cannons* Now, who’s ready for #LupusChat to begin!?
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
I'd like to introduce Dr. @NSkoufalos! We thank her for joining us at #LupusChat to discuss the importance of mental health with lupus.
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
I'd like to introduce Dr. @NSkoufalos! We thank her for joining us at #LupusChat to discuss the importance of mental health with lupus.
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
RT @TiffanyAndLupus: *shoots glitter cannons* Now, who’s ready for #LupusChat to begin!? #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Now let's introduce ourselves: Name, blog/website, connection to lupus and a fun hashtag to describe yourself! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Now let's introduce ourselves: Name, blog/website, connection to lupus and a fun hashtag to describe yourself! #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
Hi everyone. I'm Dr. Nicoletta Skoufalos, clinical psychologist & lupus patient. http://t.co/XF9ZAl5L. I'm #gypsybutterfly #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Tiffany, Health/Lupus blogger at http://t.co/1PCFwPqO, Diagnosed w/lupus 2 years & 4 months. Hashtag @ me~> #GlitterMermaidLover #LupusChat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
Ginger, http://t.co/170W7TyI, lupus patient, #totallyawesome #lupuschat
lesenmitlupus
@Lupus_Chat I´m Bianca, have lupus, don´t have a blog/site anymore. #LupusChat
vaughnsays
https://pbs.twimg.com/profile_images/2523267909/6kI0bQOt_normal
@TiffanyAndLupus Vaughn, #medstudent wanted to check out #lupuschat see whats being discussed!
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @TiffanyAndLupus: *shoots glitter cannons* Now, who’s ready for #LupusChat to begin!?
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Tiffany, Health/Lupus blogger at http://t.co/V69iyQgW, Diagnosed w/lupus 2 years & 4 months. Hashtag @ me~> #GlitterMermaidLover #LupusChat
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
ok i'll start, Sabine, http://t.co/ntE2VonC, patient 7 years and counting #alwayssunny #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
@gingerlee Hey Ginger! Darn right you're awesome, loving your hashtag! #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
SLE Lupus Foundation Young Leadership Board - http://t.co/6F97KqZP-we raise $ 4 patient svcs & research #leadinglupie #LupusChat #lupuschat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
Cathy Pitts, Lupie for 6 years, Really impacted by memory and focus issues for 3 years. You can call me #ChattyCathy #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
@Vaughnsays Welcome Vaughn, thank you for joining us! #LupusChat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
MarlaJan, http://t.co/hauXXPUu, dx SLE 2008 #luckfupus #LupusChat
lesenmitlupus
Oh my fun hashtag: bookworm and pink addicted #LupusChat
iamtheeboss20
https://pbs.twimg.com/profile_images/3656926466/7d8ac8d60a7f7edc579cd46dfc6d18ec_normal.jpeg
I am RT @TiffanyAndLupus: *shoots glitter cannons* Now, who’s ready for #LupusChat to begin!?
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
Dr. Nicoletta Skoufalos, clinical psychologist, lupus patient 2 yrs. http://t.co/UWYe9WjT, #gypsy butterfly #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
@lalez88 @cathy_pitts @marlajan @SLEYoungLeaders Welcome to #LupusChat
lesenmitlupus
Haha, that´s nice! RT @marlajan: #luckfupus #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
@lesenundlupus Love it, I'm a bookworm too :) #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Let's think about how lupus makes us feel and how these emotions can affect our mental health while living with lupus. #LupusChat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
trying my blog link again! http://t.co/MLSd9iEI #LupusChat
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
we are international tonight (i count at least two german guests ;) ) #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T1: What role does psychotherapy & psychology have in your life while living with lupus? #LupusChat
lesenmitlupus
@lalez88 Hi! :) Two Germans tonight #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @TiffanyAndLupus: T1: What role does psychotherapy & psychology have in your life while living with lupus? #LupusChat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @TiffanyAndLupus: T1: What role does psychotherapy & psychology have in your life while living with lupus? #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T1: I used my experience as a psychologist to help myself effectively cope with the many life changes that lupus forced me 2make #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
T1-Having a person that helps me find my own way of living as best I can has been so helpful since I was diagnosed. #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @TiffanyAndLupus: T1: What role does psychotherapy & psychology have in your life while living with lupus? #lupuschat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T1 I recently went through a full-day neuro psychological testing as the final step in finding reason for memory and focus issues #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T1: I then used my own experience living w/lupus&my background in psychology to help others w/lupus thru psychotherapy #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @SLEYoungLeaders: RT @Lupus_Chat: *shoots a billion glitter cannons* Are YOU ready for todays Mental Health themed #LupusChat happeni ...
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T1 When 1st dx, I tried to tell myself I didnt need to make changes. That sure caught up w/ me! #LupusChat
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
T1: At first it had no role but I learned that talking to a therapist is a way to sort through what is going on this week #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Let's think about the emotions we have felt or still feel after being diagnosed with lupus & what each of them are. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Let's think about the emotions we have felt or still feel after being diagnosed with lupus & what each of them are. #LupusChat
lesenmitlupus
RT @gingerlee: T1-Having a person that helps me find my own way of living as best I can has been so helpful since I was diagnosed #LupusChat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T1 Resigned job of 23 yrs. Can't remember what I'm doing or how to do it. Some daz better, some worse. No physical reason found. #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T1-To deal with things that may bog us down, linking up with support groups or other patients has been a great outlet #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T1- I ran myself into the ground, & it caught up 2 me mentally & physically. Big. Time. I #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @Lupus_Chat: Think about the emotions we have felt or still feel after being diagnosed with lupus & what each of them are. #lupuschat
lesenmitlupus
T1 I didn´t have any contact yet, but since christmas my memory and concentration are not that good anymore #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T1-Fear, confusion, hope... #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T1: About 8 months after being diagnosed w/lupus I sought help from a therapist b/c I felt depressed, sad, and angry. #LupusChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T1: Allows me to speak with a team or person who cares about getting me back on track and coping. #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T2: When receiving a lupus diagnosis; is it common to experience denial? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T2: When receiving a lupus diagnosis; is it common to experience denial? #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2: Similar to other traumatic experiences, when being diagnosed w/ lupus, people can experience range of emotions, like denial. #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
T1-Fear, depression, anxiety, & at one point I felt like it wasn't even worth fighting. #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @Lupus_Chat: T2: When receiving a lupus diagnosis; is it common to experience denial? #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2:It can be very hard to accept a diagnosis of a disease that there is no cure for&that aspects of your life may have to change #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
@lalez88 Yes! Sometimes we feel that seeking help with mental health is a bad thing. There is a negative stigma around it! #LupusChat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T1: Fear, sadness, isolation, stress, overwhelmed. Searching for spt group. Just this dialog is great. #LupusChat
carrieeckles
https://pbs.twimg.com/profile_images/476123922900205569/pIFK4Ali_normal.jpeg
@TiffanyAndLupus I think psychotherapy helps you move past the initial shellshock of diagnosis which goes along w/T2 #LupusChat
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
T2: My denial brought me just to a place to go and seek help w/ a therapist. I guess no one wants to believe how sick they are! #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
T2-I had denial until I couldn't come up with any excuses as to why I was so sick all the time. I felt defeated when I admitted. #lupuschat
lesenmitlupus
T2 Yes! After searching information I told myself that my lupus´s not that worse and I can do everything I could before... #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2:Some people may try continue doing things exactly as they did before receiving the diagnosis and may avoid talking about lupus #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T1- I joined local lupus support group, my new twitter friends, friends and family help & I see therapist #LupusChat
carrieeckles
https://pbs.twimg.com/profile_images/476123922900205569/pIFK4Ali_normal.jpeg
@TiffanyAndLupus I was very much in denial. With PTSD, my thought was: I can't have ANOTHER thing wrong with me. I wanted to run. #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @TiffanyAndLupus: @lalez88 Sometimes we feel seeking help w/ mental health is a bad thing. There's a negative stigma! #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T2- my 4 year denial brought me to my current leave of absence from work Im on now. Ran myself into the ground #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@TiffanyAndLupus Good pt.All human beings experience unpleasant emotions@times&there's nothing wrong w/asking for help. #lupuschat
todebra
https://pbs.twimg.com/profile_images/1458338769/profilepic_normal.jpg
T1: Therapy essential for dealing with flare-related depression and feeling of losing former self. Also changes in relationships #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @TiffanyAndLupus: T2: When receiving a lupus diagnosis; is it common to experience denial? #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T2.1: What other emotions can we experience after a lupus diagnosis? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T2.1: What other emotions can we experience after a lupus diagnosis? #LupusChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T2: No, I knew something was "wrong" with me prior to testing lupus positive and they explained it was something autoimmune. #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@TiffanyAndLupus Being able to ask for what you need is part of living well with lupus&maintaining a great quality of life #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
Yes i didnt want to accept it RT @TiffanyAndLupus T2: When receiving a lupus diagnosis; is it common to experience denial? #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @Lupus_Chat: T2.1: What other emotions can we experience after a lupus diagnosis? #lupuschat
lesenmitlupus
When u tell others slesymptoms and you come to fatigue then they tell you that they´re tired,too.So you ask urself if u´re crazy #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @NSkoufalos: Being able to ask for what you need is part of living well with lupus&maintaining a great quality of life #lupuschat
todebra
https://pbs.twimg.com/profile_images/1458338769/profilepic_normal.jpg
@TiffanyAndLupus T2: I certainly think so! Don't we all think we're superwomen (& men)?! Very hard to accept a different reality. #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T2- I was relieved 2 get dx cause I thought I was crazy. Some Drs said nothing wrong w/ me #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T2: As Dr. @NSkoufalos mentioned; there is nothing wrong with asking for help when we need it! #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2:Anger and depression are also common experiences that people have after being diagnosed with lupus. #lupuschat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T2 Yes. Have not seen therapist since dx. Lots of friends, family support. But need professional guidance. Guess I'll be calling. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Let's remove the negative stigma of mental health & walk a positive path to wellness while living with lupus. #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2:People may feel angry @ the world or a higher power for being diagnosed. Angry that it is not fair. Also@ time angry at self. #lupuschat
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
T2.1: Shock and helpless , would be my state after I realised what the dx really meant for me and my life #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
T2-I was scared. Very, very scared. I didn't want to have something that couldn't be 'fixed'. #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @TiffanyAndLupus: T2.1: What other emotions can we experience after a lupus diagnosis? #LupusChat
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
RT @TiffanyAndLupus: T2: As Dr. @NSkoufalos mentioned; there is nothing wrong with asking for help when we need it! #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @TiffanyAndLupus: T2: As Dr. @NSkoufalos mentioned; there is nothing wrong with asking for help when we need it! #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @marlajan: T2- I was relieved 2 get dx cause I thought I was crazy. Some Drs said nothing wrong w/ me #LupusChat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
@marlajan Oh my goodness, I thought the same thing! I was worried I'd totally lost my mind for a while. #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @NSkoufalos: T2:Anger and depression are also common experiences that people have after being diagnosed with lupus. #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2:Some may blame themselves, even though it is NOT their fault. #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
I can totally RELATE! RT @gingerlee: T2-I was scared. Very, very scared. I didnt want to have something that couldnt be fixed. #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Thanks to @LupusOrg; We have some clinical statistics & facts to share about clinical depression & lupus. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Thanks to @LupusOrg; We have some clinical statistics & facts to share about clinical depression & lupus. #LupusChat
lesenmitlupus
2.1 Being shocked, helpless, angry, depressed, sad, crazy... Just thinking why and why me #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2:Some people may also get depressed &experience feeling out control& helpless as so many unexplainable things are happening #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T2- and after relief came the holy schneikies, there's no cure for this! #LupusChat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
Fear, confusion, anger, depression, RT @TiffanyAndLupus T2.1: What other emotions can we experience after a lupus diagnosis? #LupusChat
lesenmitlupus
RT @NSkoufalos: T2:Some may blame themselves, even though it is NOT their fault. #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2:Sometimes people can feel hopeless as if theres no possibility for change. BUT this is NOT TRUE.This is when therapy can help #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
"Between 15 and 60 percent of people with a chronic illness will experience clinical depression." - @LupusOrg #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
"Between 15 and 60 percent of people with a chronic illness will experience clinical depression." - @LupusOrg #LupusChat
kaalvoetfeetjie
https://pbs.twimg.com/profile_images/378800000503146106/98b8885d90d13e2890ee910f4c5bd2fe_normal.jpeg
RT @gingerlee: T2-I was scared. Very, very scared. I didn't want to have something that couldn't be 'fixed'. #lupuschat
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
RT @lesenundlupus: 2.1 Being shocked, helpless, angry, depressed, sad, crazy... Just thinking why and why me #lupuschat
kaalvoetfeetjie
https://pbs.twimg.com/profile_images/378800000503146106/98b8885d90d13e2890ee910f4c5bd2fe_normal.jpeg
RT @NSkoufalos: T2:Anger and depression are also common experiences that people have after being diagnosed with lupus. #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Me too! RT @gingerlee: T2-I was scared. Very, very scared. I didnt want to have something that couldnt be fixed. #LupusChat
kaalvoetfeetjie
https://pbs.twimg.com/profile_images/378800000503146106/98b8885d90d13e2890ee910f4c5bd2fe_normal.jpeg
RT @Lupus_Chat: Thanks to @LupusOrg; We have some clinical statistics & facts to share about clinical depression & lupus. #LupusChat
amaijad11
https://pbs.twimg.com/profile_images/3427354627/f50d350391c84aefb652d9376331a813_normal.jpeg
@TiffanyAndLupus denial is common, but gratitude at first that I wasn't crazy. Then anger. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
This is very important! ~> RT @NSkoufalos: T2:Some may blame themselves, even though it is NOT their fault. #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T2:Eventually people can get to a point of acceptance/transcendence. This is what psychotherapy can be helpful with. #lupuschat
kaalvoetfeetjie
https://pbs.twimg.com/profile_images/378800000503146106/98b8885d90d13e2890ee910f4c5bd2fe_normal.jpeg
RT @Lupus_Chat: "Between 15 and 60 percent of people with a chronic illness will experience clinical depression." - @LupusOrg #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@Kaalvoetfeetjie It can be terrifying.It is a traumatic experience #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
"Clinical depression may be a result of the ways in which lupus physically affects your body." - @LupusOrg #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
"Clinical depression may be a result of the ways in which lupus physically affects your body." - @LupusOrg #LupusChat
mykdzrule
https://pbs.twimg.com/profile_images/526443294159818753/pHTHi1vd_normal.jpeg
@TiffanyAndLupus scared to death and alone! #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @TiffanyAndLupus: "Clinical depression may be a result of the ways in which lupus physically affects your body." - @LupusOrg #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
"Some medicines used to treat lupus such as prednisone may play a role in causing clinical depression." -@LupusOrg #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
"Some medicines used to treat lupus such as prednisone may play a role in causing clinical depression." -@LupusOrg #LupusChat
kaalvoetfeetjie
https://pbs.twimg.com/profile_images/378800000503146106/98b8885d90d13e2890ee910f4c5bd2fe_normal.jpeg
RT @Lupus_Chat: "Clinical depression may be a result of the ways in which lupus physically affects your body." - @LupusOrg #LupusChat
amaijad11
https://pbs.twimg.com/profile_images/3427354627/f50d350391c84aefb652d9376331a813_normal.jpeg
@NSkoufalos: T2:Eventually people can get to a point of acceptance/transcendence. This is what psychotherapy can be helpful with. #lupuschat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T2.1 "ask for what you need" researched on web and blogs. Have long list to share with my Rheumi this wk. No more "nothing wrong" #LupusChat
lesenmitlupus
That was my thought, too. RT @MYKDZRULE: @and alone! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
@amaijad11 Its very common to feel we are "crazy" just b/c we need mental health help with lupus. Important to know WE ARE NOT! #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@TiffanyAndLupus It is reciprical.The way lupus makes us feel physically can result in depression&depression can worsen lupus sx #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T3: What is the role of psychotherapy? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T3: What is the role of psychotherapy? #LupusChat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
RT @Lupus_Chat: "Clinical depression may be a result of the ways in which lupus physically affects your body." - @LupusOrg #LupusChat
lckoby
https://pbs.twimg.com/profile_images/489992134964293632/QCi4ggEs_normal.jpeg
Prednisone messes with me #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
This #LupusChat is proof that none of us are alone. RT @MYKDZRULE: @TiffanyAndLupus scared to death and alone! #LupusChat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @TiffanyAndLupus: T2: As Dr. @NSkoufalos mentioned; there is nothing wrong with asking for help when we need it! #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @NSkoufalos: It is reciprical.The way lupus makes us feel physically can result in depression&depression can worsen lupus sx #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@TiffanyAndLupus Most people who see psychologists are not "crazy" just people living the human experience #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @TiffanyAndLupus: T3: What is the role of psychotherapy? #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
RT @NSkoufalos: @TiffanyAndLupus Most people who see psychologists are not "crazy" just people living the human experience #lupuschat
mykdzrule
https://pbs.twimg.com/profile_images/526443294159818753/pHTHi1vd_normal.jpeg
@TiffanyAndLupus oh i no. i meant when i was diagnosed with it, thats how i was feeling #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T3:Psychotherapy can serve many purposes:Helping you accept the changes u need 2 make living w/lupus, helping u ask 4 what u need #lupuschat
lesenmitlupus
RT @TiffanyAndLupus: This #LupusChat is proof that none of us are alone.RT @MYKDZRULE:@TiffanyAndLupus scared to death and alone! #LupusChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @NSkoufalos: @TiffanyAndLupus Most people who see psychologists are not "crazy" just people living the human experience #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T3:In psychotherapy u can learn how 2 effectively communicate with others about ur experience living with lupus #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T3: You can learn active coping in psychotherapy, the opposite of living in denial. You learn to accept yourself as a lupie #lupuschat
Nicoleliza
https://pbs.twimg.com/profile_images/378800000592475582/69a254aa71b27eab5615543927d6dc3a_normal.jpeg
#LupusChat why im seeing my psiquiatric for 5 years, and feel terrible always??
adekerose
https://pbs.twimg.com/profile_images/378800000782107803/d91b619d5140a9882da66301888cf55d_normal.jpeg
@TiffanyAndLupus @LupusOrg #LupusChat Predisone has been both a blessing and a curse for me.
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T3: Psychotherapy can help with overall health. If we can ease our mind, the body will follow. That's what I see in me! #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T3: You want to move passed denial,anger,&depression to a place of transcendence #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T4: How can we effectively communicate to others that we have lupus? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T4: How can we effectively communicate to others that we have lupus? #LupusChat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @marlajan: T2- I was relieved 2 get dx cause I thought I was crazy. Some Drs said nothing wrong w/ me #LupusChat
todebra
https://pbs.twimg.com/profile_images/1458338769/profilepic_normal.jpg
T3: good reason to go is it gives you an outlet to vent freely about how you feel about your situation w/o burdening loved ones. #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @NSkoufalos: T2:Anger and depression are also common experiences that people have after being diagnosed with lupus. #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
RT @TiffanyAndLupus: T4: How can we effectively communicate to others that we have lupus? #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @TiffanyAndLupus: T4: How can we effectively communicate to others that we have lupus? #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
@AdekeRose Amen to that! Prednisone = Devil! makes me InSaNe #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@Nicoleliza I'm sorry to hear that.This is something you should definitely discuss w/your psychiatrist&see what's suggested #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Yes, there IS a silver lining! RT @NSkoufalos: T3: You want to move pass denial,anger,& depression to a place of transcendence #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T4:This can be challenging b/c when u share that u have lupus u might receive a range of unpleasant responses #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T3: Psychotherapy can help equip you with the tools and slight life adjustments needed to cope and keep your mental health intact.#LupusChat
lesenmitlupus
RT @TiffanyAndLupus: T4: How can we effectively communicate to others that we have lupus? #LupusChat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
T4-This is my main problem. I can't explain or get most non-lupus folks to understand what lupus is. #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T4:Just say it w/confidence as if there is nothing stigmatizing about what u are saying&ask for support&strength from ur loved 1s #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @Lupus_Chat: Thanks to @LupusOrg; We have some clinical statistics & facts to share about clinical depression & lupus. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T4: For me, I began blogging to share my experience with friends & family. This helped some of them understand what I experience. #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@gingerlee The thing that I have found very helpful is giving them a book to read with people's experiences of living w/lupus #lupuschat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T4 I do this every day. Quick answer is: each lupie has different symptoms. These are mine. Others can be... #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
@gingerlee Yes! It's not an easy thing to explain how lupus makes us feel or even what exactly it is. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
RT @NSkoufalos: T4:This can be challenging b/c when u share that u have lupus u might receive a range of unpleasant responses #lupuschat
amaijad11
https://pbs.twimg.com/profile_images/3427354627/f50d350391c84aefb652d9376331a813_normal.jpeg
@TiffanyAndLupus. T4 learning to communicate about the disease has been a problem. #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @TiffanyAndLupus: T4: How can we effectively communicate to others that we have lupus? #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T4:If you provide people with literature about it, it might help them better understand; however, some wont ever get it #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @NSkoufalos: T4:This can be challenging b/c when u share that u have lupus u might receive a range of unpleasant responses #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T4: Took me a while, but once I was comfy sharing, I just made it plain & fully described what #lupus is & how it cld affect me #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T4- most ppl dont understand cause we "look SO good" it's hard for them 2 believe we are sick #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T4:Some people might make u feel worse by comparing it to other illnesses or b/c of their own anxiety insisting that u will be ok #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T4: We must acknowledge that no matter how hard we try; some people will still not understand lupus or what it does to our lives. #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T4:Other people might break down&u might end up having to take care of them, when u r the one in need of support. #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
@NSkoufalos Or having ones that just won't read the literature but swear they want to learn. That's frustrating as hell. #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T4: Some people get it, so don't. We'll keep trying with the don'ts!! #lupuschat
lesenmitlupus
T4 The spoon theory helps me a lot to explain this disease #LupusChat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @Lupus_Chat: "Clinical depression may be a result of the ways in which lupus physically affects your body." - @LupusOrg #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @marlajan: T4- most ppl dont understand cause we "look SO good" it's hard for them 2 believe we are sick #LupusChat
lesenmitlupus
T4 And it helped my family and friends to understand what it means to have sle #LupusChat
amaijad11
https://pbs.twimg.com/profile_images/3427354627/f50d350391c84aefb652d9376331a813_normal.jpeg
@NSkoufalos this is where knowledge is power. About our bodies &disease. @tiffanyandlupus. #lupuschat
adekerose
https://pbs.twimg.com/profile_images/378800000782107803/d91b619d5140a9882da66301888cf55d_normal.jpeg
@NSkoufalos @TiffanyAndLupus #lupuschat I agree completely.
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
RT @lesenundlupus: T4 The spoon theory helps me a lot to explain this disease #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@marlajan This is the curse of what is called "invisible disorder" This can make people feel invalidated&is likely2 shut you down #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
@TiffanyAndLupus @LupusOrg #LupusChat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
@SLEYoungLeaders What was your best way of explaining it to folks? Most of the time I end up not getting the point across. #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Yes! RT @AmaijaD11: @NSkoufalos this is where knowledge is power. About our bodies &disease. @tiffanyandlupus. #LupusChat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T4 Yes, people tend to compare to their own aches or memory probs. Difficult to get past how debilitating Lupus can be #LupusChat
todebra
https://pbs.twimg.com/profile_images/1458338769/profilepic_normal.jpg
T4: Walk for a cause and invite friends/family. Knowledge and fundraising in one! @Alliance4lupus or @lupusorg #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T4- I shared my blog w/ some friends & I think they really starting to understand. #LupusChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T4: Tbh I avoid disclosing it, except to my school, workplace ect...Not everyone is understanding and thinks you want pity points.#LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T4.1: How can we effectively express how lupus makes us feel? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T4.1: How can we effectively express how lupus makes us feel? #LupusChat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
When I was on a high dosage of Prednisone I experienced the depression n thoughts of death @TiffanyAndLupus @LupusOrg #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@gingerlee that lupus is a disease where the body can attack any tissue in the body & u can't see that. #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@gingerlee That there will b times I'm 2 sick 2 hang out & don't take it personal. Sometimes I just can't do. #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
@NSkoufalos Yes, I find that alot. I also know ppl I can tell the truth how I feel instead of just saying "I'm fine" #LupusChat
mykdzrule
https://pbs.twimg.com/profile_images/526443294159818753/pHTHi1vd_normal.jpeg
RT @TiffanyAndLupus: @gingerlee Yes! It's not an easy thing to explain how lupus makes us feel or even what exactly it is. #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@gingerlee Then ask if they understand that. #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T4.1:It is important express it verbally to someone who will not invalidate your experience.You don't want to express by acting #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @TiffanyAndLupus: T4.1: How can we effectively express how lupus makes us feel? #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
@LifeUnbound Yes! I don't want pity, I want people to see me as a person that's ill. And that illness kicks my ass sometimes. #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @TiffanyAndLupus: T4.1: How can we effectively express how lupus makes us feel? #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T4.1:Sometimes when we feel angry/depressed ect..people can cope by behaving in dangerous ways,rather than sharing their pain. #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
@TrophyWife6969 Yup. Prednisone is one of the lupus treatments that made me experience lots of depressing thoughts. I sought help #LupusChat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
@SLEYoungLeaders That makes sense. I shall try that approach more often. #lupuschat
mykdzrule
https://pbs.twimg.com/profile_images/526443294159818753/pHTHi1vd_normal.jpeg
@TiffanyAndLupus @gingerlee i have a hard time explaining how it feels. if u dont have it, u dont knows just how bad it feels. #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T4.1:Its ok @ cry and feel vulnerable at times while@ the same time expressing that ur still the same person who still has goals #lupuschat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T4.1 Spoon theory does help explain exhaustion and need to bank my energy and time in the sun #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
That's right! @LifeUnbound I dont want pity, I want pple 2 see me as a person thats ill. And that illness kicks my ass sometimes. #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T5: What are some of the reactions that can occur after disclosing/sharing our diagnosis? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T5: What are some of the reactions that can occur after disclosing/sharing our diagnosis? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
One of the things in my daily nutrition that helps me manage my mental health besides my therapist is taking vitamin b complex! #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@TiffanyAndLupus And it can make people very anxious too #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@gingerlee Let me know how it goes! #lupuschat
lesenmitlupus
RT @Lupus_Chat: T5: What are some of the reactions that can occur after disclosing/sharing our diagnosis? #LupusChat
Richie927
@TiffanyAndLupus very true i get dpressed times i used to be 6' and 245 now im 165 alot less stronger and my hands are the worse #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
That's great! RT @marlajan: T4- I shared my blog w/ some friends & I think they really starting to understand. #LupusChat
amaijad11
https://pbs.twimg.com/profile_images/3427354627/f50d350391c84aefb652d9376331a813_normal.jpeg
@NSkoufalos @TiffanyAndLupus expressing feelings and frustrations in a safe way .. journaling is a great example #lupuschat
___lilla___
https://pbs.twimg.com/profile_images/533042739034988545/nZeEaU18_normal.jpeg
@Lupus_Chat T4.1: I blog how I feel and do not leave anything out. Family and friends who want to know have full access. #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @Lupus_Chat: T5: What are some of the reactions that can occur after disclosing/sharing our diagnosis? #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T5:People's reactions can fall into a number of different categories.Sometimes u share to get help&the person u tell breaks down. #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Yes! @LifeUnbound. The majority of us with lupus do NOT want pity. We want to be understood, compassion, empathy, and kindness. #LupusChat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T5 "Doesn't House always say It's Not Lupus?!?!" #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T5:In this case you end up become the helpee instead of the helper when you're the one who needed the help #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
T5-So many don't take it seriously when I tell them. It makes me sad, seeing them not quite 'get' what I've disclosed to them. #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T5:Other times,people may respond in what is called an "abusive response" when ur blamed4 being sick or called a failure #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T5: Some of the reactions I've received after sharing my diagnosis were shocking. I lost friends & family I thought were lifelong #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T5:Also there can be the "patronizing"response which can appear as seemingly helpful but does not allow room for any sadness #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
RT @marlajan: T5 "Doesn't House always say It's Not Lupus?!?!" #LupusChat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T5 Most ppl have little to no knowledge. Im an RN & health care professionals I work with have no clue. #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T5:The patronizing response is when the person u tell is too anxious to tolerate saying anything to u other than "u will be ok" #lupuschat
___lilla___
https://pbs.twimg.com/profile_images/533042739034988545/nZeEaU18_normal.jpeg
@Lupus_Chat T5: over compensation from guilt.... my parents went on a dangerous cycle of trying to control my life to "help" me. #LupusChat
lesenmitlupus
@TiffanyAndLupus But now you know who you´re real friends are! :) And I think you got some new friends in our pack ;) #LupusChat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @TiffanyAndLupus: T4.1: How can we effectively express how lupus makes us feel? #LupusChat
mykdzrule
https://pbs.twimg.com/profile_images/526443294159818753/pHTHi1vd_normal.jpeg
@TiffanyAndLupus @LifeUnbound i agree! and we want so badly for there 2 be alot more awareness on the disease. #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @NSkoufalos: T5:In this case you end up become the helpee instead of the helper when you're the one who needed the help #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
RT @NSkoufalos: T5:In this case you end up become the helpee instead of the helper when you're the one who needed the help #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T6: What are some healthy ways to cope while living with lupus? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T6: What are some healthy ways to cope while living with lupus? #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @TiffanyAndLupus: T6: What are some healthy ways to cope while living with lupus? #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T5- Ive had someone tell me "at least its not cancer." That was awesome. #LupusChat
lesenmitlupus
RT @TiffanyAndLupus: T6: What are some healthy ways to cope while living with lupus? #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T6:Active coping is the way to go.Be active in asking for accomodations when u need them #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T6: Chats like this are great! Talking w/ fellow lupies and making sure to do what I can when I can! #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
T5: I get asked if its contagious. Lol. #LupusChat #Lupus-#MCTD
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T5 It gets old having to explain it to EVERYONE I see. So, 'Fine' is what most hear. Hard for them to grasp why I can't be @ work #LupusChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @MYKDZRULE: @TiffanyAndLupus @LifeUnbound i agree! and we want so badly for there 2 be alot more awareness on the disease. #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T6:Continue to move towards ur goals but do not avoid making some modifications to prevent any exhaustion #lupuschat
todebra
https://pbs.twimg.com/profile_images/1458338769/profilepic_normal.jpg
T6: Get plenty of sleep! I've learned to nap when I'm exhausted. The one "med" without side effects! #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @TiffanyAndLupus: @gingerlee Yes! It's not an easy thing to explain how lupus makes us feel or even what exactly it is. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Yes, ask for help! RT @NSkoufalos: T6:Active coping is the way to go. Be active in asking for accomodations when u need them #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
:) By educating others we help break stigma. RT @LifeUnbound: T5: I get asked if its contagious. Lol. #LupusChat #Lupus #LupusChat
carrieeckles
https://pbs.twimg.com/profile_images/476123922900205569/pIFK4Ali_normal.jpeg
@TiffanyAndLupus T6: Accept lupus for what it is and keep living life. Really *living* your life is the only way to truly cope. #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T6:Tweak your values.Some of us may have had 25goals.Pick which 1's are most important to u&decide which u can realistically do #lupuschat
___lilla___
https://pbs.twimg.com/profile_images/533042739034988545/nZeEaU18_normal.jpeg
@Lupus_Chat T6: Research every med rxed, know side effects, share side effects with family/friends. From my experience- vital! #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T6:Do not be afraid to change ur lifestyle.Do not be motivated by fear, which will only lead to passive coping,which isnt helpful #lupuschat
amaijad11
https://pbs.twimg.com/profile_images/3427354627/f50d350391c84aefb652d9376331a813_normal.jpeg
@TiffanyAndLupus @NSkoufalos asking for help can be hard for so many ... what tools do we have to equip people that struggle? #lupuschat
lesenmitlupus
T6 Yoga, taking a rest whenever needed, talking to other lupies who understand me #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T6: It's been tough, but my healthy ways of coping while living w lupus is to "JUST SAY NO!" If I can't do it I don't & No guilt! #LupusChat
sashakane
https://pbs.twimg.com/profile_images/462482160062963713/ykSgcbdj_normal.jpeg
My best friend had lupus for many years. I saw how she bravely fought the pain and side affects from steroids. YOU are ALL Heroes #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
T6 my rheum told me I had to "RESPECT THE #LUPUS!" I'm finally JUST learning to do it. Best. Decision. Ever. #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
This can b hard but necessary RT @NSkoufalos: T6:Active coping is the way 2go. Be active in asking 4 accomodations when u need em #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T6:Speak to someone who understands.Go to therapy or join a support group. Become an advocate and help others. Be active! #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @Lupus_Chat: T5: What are some of the reactions that can occur after disclosing/sharing our diagnosis? #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@SashaKane Thank you! #lupuschat
___lilla___
https://pbs.twimg.com/profile_images/533042739034988545/nZeEaU18_normal.jpeg
@Lupus_Chat T6: know your body's limitations yet do not baby yourself. Allow yourself to live and love life in spite of lupus. #LupusChat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
@TiffanyAndLupus Amen, sista! #LupusChat
Richie927
#lupuschat after hearing all of this really takes the voodoo out of seeing a phsyc doc im gonna ask my doc and maybe even find a support grp
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@TiffanyAndLupus You are right. No guilt! You don't want to be living with this. #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
@TiffanyAndLupus Counselling, Journalling/Blogging, Support Groups via Social Media, and great relationship with your doctor(s). #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T6: Supporters like you always help! RT @SashaKane: YOU are ALL Heroes #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
T6:You had no control over getting this illness.You were a victim there so DO NOT make yourself a victim in life. #lupuschat
lesenmitlupus
@SashaKane Thank you so much! #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@Richie927 That's great! #lupuschat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @SLEYoungLeaders: T6: Chats like this are great! Talking w/ fellow lupies and making sure to do what I can when I can! #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
RT @marlajan: T6 my rheum told me I had to "RESPECT THE #LUPUS!" I'm finally JUST learning to do it. Best. Decision. Ever. #LupusChat
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @TiffanyAndLupus: :) By educating others we help break stigma. RT @LifeUnbound: T5: I get asked if its contagious. Lol. #LupusChat #L ...
lesenmitlupus
RT @PrincessLilla:T6:know your bodys limitations yet do not baby yourself. Allow yourself to live and love life in spite of lupus #LupusChat
sallyloumccabe
https://pbs.twimg.com/profile_images/521401189628649472/PsQV4D_I_normal.jpeg
#lupuschat twitter is the 1st and only psychotherapy ive had for lupus!The only one i need as far as im concerned!Spoonies keep me sane :-)
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T6: Saying NO to those who try push us past our boundaries & health limitations is a healthy way of coping. It's our choice! #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
Awesome!!!RT @Richie927: after hearing all of this takes the voodoo out of seeing a phsyc doc & maybe even find a support grp #lupuschat
cathy_pitts
https://pbs.twimg.com/profile_images/462467324818116608/XlImQABZ_normal.jpeg
T6 Definitely cut back on activities. Say 'no' with an expl that I don't have energy today. I've had2 use 'Lupus' in explanation #LupusChat
amaijad11
https://pbs.twimg.com/profile_images/3427354627/f50d350391c84aefb652d9376331a813_normal.jpeg
@TiffanyAndLupus these sunday chats are awesome!! thx for all of this. #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
@NSkoufalos @TiffanyAndLupus Yes! I don't want to be dealing with this, but it's there & not leaving, so I'm gonna cope w/ it. #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T6: Learning to respect our health limits is important! Just saying no, can help us prevent flares we sometimes walk into! #LupusChat
lupus_gurl
https://pbs.twimg.com/profile_images/534050467954061312/H7IelXTH_normal.jpeg
RT @SLEYoungLeaders: RT @TiffanyAndLupus: T6: What are some healthy ways to cope while living with lupus? #lupuschat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
@TiffanyAndLupus Saying 'no' & admitting I'm too ill to do certain things sometimes is my weakness. Still working on that.... #lupuschat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@gingerlee Yes. You are a fighter! #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
That's right @TiffanyAndLupus! #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Our chat is coming to an end! I know, we can't believe it either! Any last final thoughts on todays dicussions? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
Our chat is coming to an end! I know, we can't believe it either! Any last final thoughts on todays dicussions? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
RT @sallyloumccabe: #lupuschat twitter is the 1st and only psychotherapy ive had for lupus!The only one i need as far as im concerned!Sp ...
lesenmitlupus
Thats true! RT @TiffanyAndLupus: T6:Learning to respect our health limits is important!Just saying no,can help us prevent flares #LupusChat
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
@gingerlee Its ok to hit down spots sometimes but when one gets down you just pick yourself back up and so life goes on #lupuschat
___lilla___
https://pbs.twimg.com/profile_images/533042739034988545/nZeEaU18_normal.jpeg
@Lupus_Chat As hard as it is, you need to remove negative people from your life until they are ready to be emotionally supportive #LupusChat
Richie927
@TiffanyAndLupus Is also important to let people know what your limits are and that they change often depending on way u feel. #lupuschat
marlajan
https://pbs.twimg.com/profile_images/414412727659286528/Sso3zhVw_normal.jpeg
RT @gingerlee Saying 'no' & admitting I'm too ill to do certain things sometimes is my weakness. Still working on that #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T6: It's also important to remember & acknowledge that having health limitations does NOT weaken us or make us "lesser than"! #LupusChat
gingerlee
https://pbs.twimg.com/profile_images/1130656628/62f7dc75-0016-4cff-ba2d-a7862b100687_normal.png
I just want to thank all the people that took part in #lupuschat today. Always good to know there are others out there...
lifeunbound
https://pbs.twimg.com/profile_images/2900274738/b167481a51543b013b2a8f6a6ff8694a_normal.png
RT @sallyloumccabe: #lupuschat twitter is the 1st and only psychotherapy ive had for lupus!The only one i need as far as im concerned!Sp ...
nskoufalos
https://pbs.twimg.com/profile_images/1918642116/27246949_uj75_normal.jpg
Learn how to ebb&flow w/the changes in your feelings, environment, relations that come w/lupus.Make meaning out of ur experience #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/531226147921461248/8XtWmXlM_normal.jpeg
T6: Respecting our bodies & health is a good thing. It shows we care about our health and life. We have 1 life & must respect it! #LupusChat
trophywife6969
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RT @NSkoufalos: T5:In this case you end up become the helpee instead of the helper when you're the one who needed the help #lupuschat
trophywife6969
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RT @Lupus_Chat: T6: What are some healthy ways to cope while living with lupus? #LupusChat
nskoufalos
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If anyone is interested, check out my blog http://t.co/2i7jCTgf #lupuschat
fraziermaravia
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So time if fill like know what, I go though in my fam#LupusChat
tiffanyandlupus
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Final Thoughts: I'm glad to have learned today that seeking mental health help is NOT a bad thing & we must take the initiative. #LupusChat
marlajan
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Thank you everyone! This chat rocked my socks! Hour went by so fast! #luckfupus #LupusChat
sleyoungleaders
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@Lupus_Chat Awesome chat that's causing change! Thx @NSkoufalos & @TiffanyAndLupus can't wait to talk with everyone next time :) #lupuschat
trophywife6969
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Staying positive. Meditation.laughter RT @Lupus_Chat T6: What are some healthy ways to cope while living with lupus? #LupusChat
___lilla___
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@Lupus_Chat When you are feeling down about what you can't do, make a list of all you have accomplished... mind blowing :-) #LupusChat
sleyoungleaders
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RT @NSkoufalos: If anyone is interested, check out my blog http://t.co/2i7jCTgf #lupuschat
lupus_chat
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"Successfully managing lupus starts w/ awareness of your particular symptoms and how your illness affects you" -@LupusOrg #LupusChat
___lilla___
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RT @NSkoufalos: If anyone is interested, check out my blog http://t.co/2i7jCTgf #lupuschat
trophywife6969
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Exercising. Gettin rid of stressful ppl in ur life RT @Lupus_Chat T6: What are some healthy ways to cope while living with lupus? #LupusChat
nskoufalos
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Really important last thought:If u seek out a psychotherapist,make sure its someone u feel comfortable w/.Like any other doc shop #lupuschat
nskoufalos
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shop around... #lupuschat
lupus_chat
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Follow Dr. @NSkoufalos & check her blog for informative posts on how to have a positive life w/ #lupus. http://t.co/agpJJCQW #LupusChat
tiffanyandlupus
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Follow Dr. @NSkoufalos & check her blog for informative posts on how to have a positive life w/ #lupus. http://t.co/zdEmaNpc #LupusChat
tiffanyandlupus
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Follow Dr. @NSkoufalos & check her blog for informative posts on how to have a positive life w/ #lupus. http://t.co/ZkaCAwtX #LupusChat
tiffanyandlupus
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I want to *glitter bomb hug* each and everyone of you for joining in on #LupusChat today! Looking forward to our future convos!
nskoufalos
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Thanks everyone for joining today. Such a great experience! You are such amazing ladies!!! #lupuschat
lesenmitlupus
In this chat I´ve learned a lot about getting mental help and being a bit more "egoistic" in a positive/healthy way #LupusChat
lifeunbound
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Lupus has positively in a sense changed my perspective on life as I began to learn from it rather than resent it. #LupusChat
trophywife6969
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Meet lupus patients! they are like fam to me RT @TiffanyAndLupus T6: What are some healthy ways to cope while living with lupus? #LupusChat
lifeunbound
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RT @NSkoufalos: If anyone is interested, check out my blog http://t.co/2i7jCTgf #lupuschat
lupus_chat
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I want to thank each of our #lupuschat participants; especially Dr. @NSkoufalos for shedding great insight on mental health & lupus.
tiffanyandlupus
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I want to thank each of our #lupuschat participants; especially Dr. @NSkoufalos for shedding great insight on mental health & lupus.
lifeunbound
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RT @TiffanyAndLupus: I want to *glitter bomb hug* each and everyone of you for joining in on #LupusChat today! Looking forward to our fu ...
lesenmitlupus
@NSkoufalos Thank you so much! #LupusChat
trophywife6969
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RT @TiffanyAndLupus: :) By educating others we help break stigma. RT @LifeUnbound: T5: I get asked if its contagious. Lol. #LupusChat #L ...
lupus_chat
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If you missed today's #LupusChat at 3pm, no worries! We'll be sharing the transcript re-cap later today around 6pm Est. #lupuschat
tiffanyandlupus
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If you missed today's #LupusChat at 3pm, no worries! We'll be sharing the transcript re-cap later today around 6pm Est. #lupuschat
___lilla___
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@AmaijaD11 Absolutely! I didn't talk to my grandmother for several years. #LupusChat
lupus_chat
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Our next #LupusChat will be held on May 27th 3pm Est! Check our tweets for details. Thank you everyone for joining the conversation!
___lilla___
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RT @Lupus_Chat: If you missed today's #LupusChat at 3pm, no worries! We'll be sharing the transcript re-cap later today around 6pm Est. #lupuschat
trophywife6969
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RT @sallyloumccabe: #lupuschat twitter is the 1st and only psychotherapy ive had for lupus!The only one i need as far as im concerned!Sp ...
nskoufalos
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Have a good Sunday all. Thank you again for sharing your thoughts with the group. #lupuschat
lupus_chat
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See you all next week! *hugs & glitter* #LupusChat
sleyoungleaders
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RT @TiffanyAndLupus: If you missed todays #LupusChat at 3pm, no worries! Transcript re-cap later today around 6pm Est. #lupuschat
tiffanyandlupus
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RT @NSkoufalos: Thanks everyone for joining today. Such a great experience! You are such amazing ladies!!! #lupuschat
tiffanyandlupus
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RT @NSkoufalos: If anyone is interested, check out my blog http://t.co/2i7jCTgf #lupuschat
tiffanyandlupus
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RT @NSkoufalos: If anyone is interested, check out my blog http://t.co/mt4c846C #lupuschat
lesenmitlupus
Thanks to everyone!Hope to see you all next week or on twitter/facebook! RT @Lupus_Chat: See you all next week! *hugs & glitter* #LupusChat
lesenmitlupus
RT @NSkoufalos: If anyone is interested, check out my blog http://t.co/qaw68Lrx #LupusChat
fraziermaravia
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RT @TiffanyAndLupus: If you missed today's #LupusChat at 3pm, no worries! We'll be sharing the transcript re-cap later today around 6pm Est. #lupuschat
lupus_chat
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P.S. Feel free to continue ur conversations here. #LupusChat is about finding support & community online. So mingle & we'll see u next week!
lifeunbound
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RT @NSkoufalos: Have a good Sunday all. Thank you again for sharing your thoughts with the group. #lupuschat
trophywife6969
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I love the #LupusChat

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