#LupusChat transcript

Healthcare Social Media Transcript

From: Sun Jun 17 12:00:00 PDT 2012
To: Sun Jun 17 13:15:00 PDT 2012

What is #LupusChat? Who were the influencers during this time period? #LupusChat analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
#LupusChat starts NOW! *Shoots multi-colored glitter-bombs into thee air* Join us here~> http://t.co/DFAFV3qY
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
#LupusChat starts NOW! *Shoots multi-colored glitter-bombs into thee air* Join us here~> http://t.co/uiByaP2y
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
#LupusChat starts NOW! *Shoots multi-colored glitter-bombs into thee air* Join us here~> http://t.co/7n6bTxdO
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
Heading over to the #LupusChat
ayejayaye
https://pbs.twimg.com/profile_images/513863933678346241/6LPqPqtU_normal.jpeg
RT @Lupus_Chat: #LupusChat starts NOW! *Shoots multi-colored glitter-bombs into thee air* Join us here~> http://t.co/uiByaP2y
lesenmitlupus
RT @TiffanyAndLupus: #LupusChat starts NOW! *Shoots multi-colored glitter-bombs into thee air* Join us here~> http://t.co/7n6bTxdO
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
Hi everyone~ #lupuschat
lesenmitlupus
Hello my lupies :) #LupusChat
ayejayaye
https://pbs.twimg.com/profile_images/513863933678346241/6LPqPqtU_normal.jpeg
Hey Im trying to #LupusChat but I dont get it =(
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
Hi everyone! #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
Hi everyone! #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
How's everyone doing out there? #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
Chat ground rules: Please stay on topic & be courteous to our host! Our hashtag is #LupusChat & this is our only tag!
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Chat ground rules: Please stay on topic & be courteous to our host! Our hashtag is #LupusChat & this is our only tag!
treato_com
https://pbs.twimg.com/profile_images/475971959797194752/dwn7CLRF_normal.jpeg
RT @TiffanyAndLupus: #LupusChat starts NOW! *Shoots multi-colored glitter-bombs into thee air* Join us here~> http://t.co/7n6bTxdO
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
I GOT SOME GLITTER IN MY EYE #LUPUSCHAT #lupuschat
ayejayaye
https://pbs.twimg.com/profile_images/513863933678346241/6LPqPqtU_normal.jpeg
I got it now =) feeling great and I hope everyone is feeling well also! #lupuschat
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
We're already there! RT #LupusChat starts NOW! *Shoots multi-colored glitter-bombs into thee air* Join us here~> http://t.co/wcCBHWMn
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
Not feeling so good but keeping my chin up~ #lupuschat
lalez88
https://pbs.twimg.com/profile_images/1144839235/dreirad_normal.jpg
#LupusChat has to be without me again my Internet has given up or I'd too slow right now .... Enjoy
kittycatlitter
https://pbs.twimg.com/profile_images/513329066217201664/bvzRud7J_normal.png
I completed my 30 mile trek, 12.2 on foot and 17.7 mile on bike in 5hrs today, it was tough! but all for lupus uk :0) #lupuschat #lupuschat
lesenmitlupus
@lalez88 Oh see you soon, have a nice evening and fun watching soccer! #LupusChat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
@kittycatlitter Awesome. WTG #lupuschat
lesenmitlupus
@Joanpenfold That´s the right attitude :) #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
Now! Time for introduction: Name, website or blog, connection to lupus, and a fun hashtag to describe yourself! GO! #LupusChat
kittycatlitter
https://pbs.twimg.com/profile_images/513329066217201664/bvzRud7J_normal.png
@Joanpenfold Thank you, it was tough, and I know my own lupus will pay me a visit soon, feeling it already, but so glad I did it #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
@lesenmitlupus Thank you. Sometimes I have to remind myself =) #lupuschat
lesenmitlupus
@kittycatlitter Wow, sounds great!!! #LupusChat
lesenmitlupus
I´m Bianca,36 from Germany,have SLE,raynaud and perhaps lupus nephritis,starting a new blog soon... #butterflybookworm #LupusChat
rachfrost1969
@doctorakerkar Had one lupus antibody test positive so having more tests. Does that mean I have lupus as well as RA? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Tiffany, http://t.co/1PCAZfhE, 2+ yrs dx w/lupus, fun hashtag about me: #GlitteratiQueen #LupusChat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
Dr. Akerkar, Rheumie http://t.co/7ec8vfv1 http://t.co/uHBBrqjf #ConquerArthritis #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Now! Time for introduction: Name, website or blog, connection to lupus, and a fun hashtag to describe yourself! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Now! Time for introduction: Name, website or blog, connection to lupus, and a fun hashtag to describe yourself! #LupusChat
lesenmitlupus
RT @TiffanyAndLupus #GlitteratiQueen<- love this one!!! #LupusChat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
Joan, blog not lupus related but run by 2 lupies http://t.co/VrirYzX1, I have lupus and APS and fibro, #HerRoyalJoaness (from DD) #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
Name: Candice Website: http://t.co/T7ymWodB Lupus since 2004 #smiling_inSpiteof_lupus #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
@rachfrost1969 Let us not depend tests alone for a diagnosis. #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Tiffany, http://t.co/V69e1gg2, 2+ yrs dx w/lupus, fun hashtag about me: #GlitteratiQueen #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @doctorakerkar: Dr. Akerkar, Rheumie http://t.co/7ec8vfv1 http://t.co/uHBBrqjf #ConquerArthritis #lupuschat
rachfrost1969
@doctorakerkar That gives me some hope! Thank you. Test results due this week #LupusChat
ayejayaye
https://pbs.twimg.com/profile_images/513863933678346241/6LPqPqtU_normal.jpeg
Im Aja from Detroit I have been diagnosed with SLE since November 2011. No blog or website yet. #Ilovemusic #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @SLEYoungLeaders: Name: Candice Website: http://t.co/T7ymWodB Lupus since 2004 #smiling_inSpiteof_lupus #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @SLEYoungLeaders: Name: Candice Website: http://t.co/T7ymWodB Lupus since 2004 #smiling_inSpiteof_lupus #lupuschat
kittycatlitter
https://pbs.twimg.com/profile_images/513329066217201664/bvzRud7J_normal.png
Cat, blog; http://t.co/KAa3r2aM 1yr dx with SLE and Raynauds fun hashtag about me...#ILoveKickBoxing #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
Okay! Get ready for T1 coming up soon. Please stay on topic as to respect our host & fellow participants. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Okay! Get ready for T1 coming up soon. Please stay on topic as to respect our host & fellow participants. #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @SLEYoungLeaders: Name: Candice Website: http://t.co/vGKJFvJf Lupus since 2004 #smiling_inSpiteof_lupus #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Okay! Get ready for T1 coming up soon. Please stay on topic as to respect our host & fellow participants. #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T1: What do you do regarding to lupus advocacy & awareness in local your area? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1: What do you do regarding to lupus advocacy & awareness in local your area? #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @TiffanyAndLupus: T1: What do you do regarding to lupus advocacy & awareness in local your area? #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @doctorakerkar: Dr. Akerkar, Rheumie http://t.co/7ec8vfv1 http://t.co/uHBBrqjf #ConquerArthritis #lupuschat
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @doctorakerkar: Dr. Akerkar, Rheumie http://t.co/7ec8vfv1 http://t.co/uHBBrqjf #ConquerArthritis #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @doctorakerkar: Dr. Akerkar, Rheumie http://t.co/7ec8vfv1 http://t.co/uHBBrqjf #ConquerArthritis #lupuschat
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @doctorakerkar: Dr. Akerkar, Rheumie http://t.co/hUnD9aWY http://t.co/z0gwOn3v #ConquerArthritis #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @doctorakerkar: Dr. Akerkar, Rheumie http://t.co/mOZYwwfr http://t.co/fm23KJ0x #ConquerArthritis #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
Hanging head in shame, too long a drive. Blog and tweet and educate Lupus 5 years #lupuschat
kittycatlitter
https://pbs.twimg.com/profile_images/513329066217201664/bvzRud7J_normal.png
@Lupus_Chat I talk about it freely to friends,blog, and run local races (just did a 30 miler today) to raise funds for @lupusuk #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T1: I joined the SLE Young Leadership Board to get more involved in addition to volunteering my time at the hospitals I frequent. #lupuschat
lesenmitlupus
T1: Nothing until now :( but I´m looking forward to some ideas to finally start awareness here #LupusChat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
T1: lupus day celebrations recently. Trying to organize lupus communities. #lupuschat
ayejayaye
https://pbs.twimg.com/profile_images/513863933678346241/6LPqPqtU_normal.jpeg
T1 I support @Love_Live_Lupus in my Metro Detroit area to raise awareness and funds #lupuschat
lesenmitlupus
T1 and I´m working on a new blog and perhaps a group here in this area #LupusChat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
@SLEYoungLeaders That is awesome #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
t1: Lupus posters in my clinic & the lupus band that my staff wears... #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
T1 a lot more needs to be done though... #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
That's great! Love to hear more. RT @doctorakerkar: T1: lupus day celebrations recently. Trying to organize lupus communities. #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@lesenmitlupus no worries! This chat is here so we can share our ideas on how to get started in awareness #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
+100!!! RT @doctorakerkar: t1: Lupus posters in my clinic & the lupus band that my staff wears... #LupusChat
kittycatlitter
https://pbs.twimg.com/profile_images/513329066217201664/bvzRud7J_normal.png
Oh and I also wear a lupus band and have a lupus shopping tote, often been a conversation starter with the lady at the checkout #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@lesenmitlupus the blog is a great start! I'd encourage all patients to blog as a way to get ur voice out there #lupuschat
lesenmitlupus
@SLEYoungLeaders And that´s just one reason why i really do love these chats here :) #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1: 2 years ago I started ~> @Againstlupus as a way to shae my diagnosis w/family & friends. Today it's now an open community! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Me too! RT @lesenmitlupus: @SLEYoungLeaders And that´s just one reason why i really do love these chats here :) #LupusChat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
I also wear lupus jewelry of several sorts, bracelet and necklace and yes, good convo starters #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
@kittycatlitter Yes indeed! the band & likes are a conversation starters... many patients kp asking me abt the band! #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1.1: Can you tell us about successful projects you've completed? What have you done most recently? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @SLEYoungLeaders: @lesenmitlupus no worries! This chat is here so we can share our ideas on how to get started in awareness #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
#Lupus band #LupusChat http://t.co/nF2RqHky
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @lesenmitlupus: T1: Nothing until now :( but I´m looking forward to some ideas to finally start awareness here #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @lesenmitlupus: T1: Nothing until now :( but I´m looking forward to some ideas to finally start awareness here #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @lesenmitlupus: T1: Nothing until now :( but I´m looking forward to some ideas to finally start awareness here #LupusChat
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
That's awesome! RT @ILockHartS: T1 I support @Love_Live_Lupus in my Metro Detroit area to raise awareness and funds #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T1.1: We just participated in our #White4Fight Lupus Fundraiser where over 200 ppl came together 2 raise money 4 lupus research #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
I wrote about National Lupus Month to my blog and just last week added a bio, w/lupus included. Mention often in posts #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1.1: I recently went to DC for the #HealthData conference & spoke on their consumer panel about my lupus diagnosis story. #LupusChat
lesenmitlupus
@SLEYoungLeaders Wow, over 200 people, that´s fantastic! #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@lesenmitlupus awesomeness :) #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
@SLEYoungLeaders #White4Fight Lupus Fundraiser -- that's a gr8 initiative... #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
@TiffanyAndLupus Wow Tiff that is so cool! Thank you #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T1.1: It was a great opportunity for me to share with healthcare professionals that patient stories have clinical data! #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
There's so many ways out there to spread the word about lupus on and offline! Kudos to all we're doing :) #lupuschat
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @doctorakerkar: #Lupus band #LupusChat http://t.co/nF2RqHky
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @doctorakerkar: #Lupus band #LupusChat http://t.co/nF2RqHky
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @doctorakerkar: #Lupus band #LupusChat http://t.co/nF2RqHky
ayejayaye
https://pbs.twimg.com/profile_images/513863933678346241/6LPqPqtU_normal.jpeg
T1 1:Walked in a local lupus walk to raise funds #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @doctorakerkar: @SLEYoungLeaders #White4Fight Lupus Fundraiser -- that's a gr8 initiative... #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
RT @doctorakerkar: @SLEYoungLeaders #White4Fight Lupus Fundraiser -- that's a gr8 initiative... #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @doctorakerkar: @SLEYoungLeaders #White4Fight Lupus Fundraiser -- that's a gr8 initiative... #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
@TiffanyAndLupus Yes indeed. It is very important for us to know the story on d other side of the table. Often missed. #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
I find at times Dr's minimize my complaints as I am very proactive in my care and read up, think I know more than them! #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
@Joanpenfold One should be proactive. The net empowers the patients. #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
This is important to raise funds for research! RT @ILockHartS: T1 1:Walked in a local lupus walk to raise funds #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
:) You know I will NEVER stop advocating for us lupies! RT @Joanpenfold: @TiffanyAndLupus Wow Tiff that is so cool! Thank you #lupuschat
Lov_Byrd
@doctorakerkar: #Lupus band #LupusChat http://t.co/JFBlvGWK”---love the band!
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
@doctorakerkar Absolutely. Bleed out 5 years ago from APS and spent months in hosp. You betcha I am proactive. #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
What is your expectation form Rheumies. What shd we do for awareness? #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Great conversation going on! So we know there are may different ways to raise awareness & advocacy in our areas online/offline! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Great conversation going on! So we know there are may different ways to raise awareness & advocacy in our areas online/offline! #LupusChat
lesenmitlupus
RT @TiffanyAndLupus: :) You know I will NEVER stop advocating for us lupies <- You´re really awesome, Tiff! #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
You all are more than welcome to check out the photos from #Whiet4Fight here: http://t.co/2XznKPuW #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
What is your expectation from Rheumies. What shd we do for awareness? #lupuschat
lesenmitlupus
RT @SLEYoungLeaders: You all are more than welcome to check out the photos from #Whiet4Fight here: http://t.co/3ji5CLdj #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Way to go @DocterAkerker! You headlined our next question. T2: How can we encourage #rhem drs to join us in spreading awareness? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Way to go @DocterAkerker! You headlined our next question. T2: How can we encourage #rhem drs to join us in spreading awareness? #LupusChat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
RT @SLEYoungLeaders: You all are more than welcome to check out the photos from #Whiet4Fight here: http://t.co/BTVqKQwq #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
I do not see a rheum, only primary, hematologist, and pain Dr. #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
I am sure #rhuem docs aware of the lack of awareness. Our efforts r probably limited to raising awareness among GPs/ other docs. #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T2: I'd encourage them 2 keep up to date w/ clinical research and research papers regarding innovations in lupus treatment #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T2: I'd like my #rheum drs to have a better relationship w/ me as a patient. My life is in your hands! We should be friends! #LupusChat
lesenmitlupus
Perhaps rheumies could take part in workshops more often and participate in chats like this and take part in clinical research #LupusChat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
@doctorakerkar Agree with that. #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
RT @TiffanyAndLupus T2: I'd like my #rheum drs to have a better relationship w/ me as a patient. We should be friends! #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T2: If #rheum drs embraced lupus patient advocates togeher the could encourage patients to be more pro-active & aware of disease. #LupusChat
lesenmitlupus
RT @TiffanyAndLupus: T2: Id like my #rheum drs to have a better relationship w/ me as a patient. My life is in your hands! #LupusChat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
@lesenmitlupus Research & workshops- definitely yes. Chats like this help us understand your part of the story. #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
I have printed articles to take to my primary tomorrow when I go see her. I hope she is receptive. #lupuschat
trophywife6969
https://pbs.twimg.com/profile_images/3330944942/ca99009bcd4eac9019b2144912a7885f_normal.jpeg
RT @doctorakerkar: @SLEYoungLeaders #White4Fight Lupus Fundraiser -- that's a gr8 initiative... #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T2: I even see some #rheum drs, join with lupus organizations & get involved in infomation seminars off & online! @doctorakerkar #LupusChat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@Joanpenfold Yes!!!! Here's to doctors being receptive! First step is starting the convo! #lupuschat
lesenmitlupus
@TiffanyAndLupus and i think this is a win-win situation, better informed patients and so an easier job for the docs #LupusChat
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @doctorakerkar: What is your expectation from Rheumies. What shd we do for awareness? #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @doctorakerkar: What is your expectation from Rheumies. What shd we do for awareness? #lupuschat
butterrflysarah
https://pbs.twimg.com/profile_images/3472392049/fea094c63c8567a21da3f1c7249f5912_normal.jpeg
Any fellow #lupies out there had any experience with hereditary issues? ie parents have it too or :-( yr kids? #lupuschat
lesenmitlupus
Wanted to ask it too RT @TiffanyAndLupus: RT @doctorakerkar:What is your expectation from Rheumies. What shd we do for awareness? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Let us kno! RT @Joanpenfold: I have printed articles to take to my primary tomorrow when I go see her. I hope she is receptive. #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
I think the Rheumies here are just not used to #Lupies, One Rheumie read my chart in hosp and refused to see me. Too complicated! #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
@lesenmitlupus win-win situation -- yes indeed. And the patients can alert their docs in time if they r aware of #Lupus. #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
@butterrflysarah hold this question Sarah! We'll get to it after #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
@butterrflysarah hold this question Sarah! We'll get to it after #LupusChat
ayejayaye
https://pbs.twimg.com/profile_images/513863933678346241/6LPqPqtU_normal.jpeg
@butterrflysarah Yes, My aunt passed away from sle and my father has lupus #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
It's also up to us as patients to be knowledgeable about what's going on in the Lupus community so we can talk 2 our rheumies #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Agreed that we'd love more involvement from our #rheum drs when it comes to lupus awareness/advocacy on/offline! Coming up is T3 #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Agreed that we'd love more involvement from our #rheum drs when it comes to lupus awareness/advocacy on/offline! Coming up is T3 #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T3: Any future plans in the works for upcoming advocacy/awareness events involving lupus? #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T3: Any future plans in the works for upcoming advocacy/awareness events involving lupus? #LupusChat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
T3: using the print media. Nothing has a reach bigger than the print media. #lupuschat
lesenmitlupus
RT @TiffanyAndLupus: T3: Any future plans in the works for upcoming advocacy/awareness events involving lupus? #LupusChat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
I would love to do a fundraiser on my blog but I need #Lupies to help by spreading the word, tweets and facebook, social medias #lupuschat
lalupuslady
https://pbs.twimg.com/profile_images/524728081219461120/D8xpw2AV_normal.jpeg
Thrilled to bring #LupusChat to the #140conf this Tuesday!
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
Very true! RT @doctorakerkar: T3: using the print media. Nothing has a reach bigger than the print media. #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
RT @Joanpenfold I would love to do a fundraiser on my blog but I need #Lupies to help by spreading the word, tweets and facebook. #lupuschat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
@Joanpenfold I am sure everybody would help. #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T3: We'll be at the #140conf the 19-20. Check us out in the NYC area here: http://t.co/9yYttEQR #lupuschat
lesenmitlupus
RT @doctorakerkar: T3: using the print media. Nothing has a reach bigger than the print media. #LupusChat
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
RT @SLEYoungLeaders We'll be at the #140conf the 19-20. Check us out in the NYC area here: http://t.co/U887Ih4f #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
Are you aware that if your G+ group shared with their group, and so on, you reach over 10,000 people? #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
@doctorakerkar I will get w/my partner and fellow #Lupie and get something started!!! #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
T3: You can also catch #140conf via Ustream here: http://t.co/ExHlL8VR #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
T3: I'll be speaking at the #140conf with @LAlupusLady on June 19th 4:45pm about #LupusChat! It'll be live usteamed: http://t.co/dweesUBi
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
T3: I'll be speaking at the #140conf with @LAlupusLady on June 19th 4:45pm about #LupusChat! It'll be live usteamed: http://t.co/QVTIHskZ
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @LAlupusLady: Thrilled to bring #LupusChat to the #140conf this Tuesday!
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @LAlupusLady: Thrilled to bring #LupusChat to the #140conf this Tuesday!
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @LAlupusLady: Thrilled to bring #LupusChat to the #140conf this Tuesday!
doctorakerkar
https://pbs.twimg.com/profile_images/3163312978/d686277141c18c91178d898fa2a1246f_normal.png
I think I'll have to logout. It's too late here in India. It was gr8 chatting with all of you! #lupuschat
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @SLEYoungLeaders: T3: We'll be at the #140conf the 19-20. Check us out in the NYC area here: http://t.co/SHpWkLti #lupuschat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
RT @SLEYoungLeaders: T3: We'll be at the #140conf the 19-20. Check us out in the NYC area here: http://t.co/9yYttEQR #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
RT @SLEYoungLeaders: T3: We'll be at the #140conf the 19-20. Check us out in the NYC area here: http://t.co/DdP83fX0 #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
@doctorakerkar TY GN #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
I talk on 6/19 at 4:45pm w/ @Lalupuslady! RT @SLEYoungLeaders: T3: You can catch #140conf via Ustream here: http://t.co/rrj1YNEY #lupuschat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
I talk on 6/19 at 4:45pm w/ @Lalupuslady! RT @SLEYoungLeaders: T3: You can catch #140conf via Ustream here: http://t.co/cAlg4Wxd #lupuschat
lesenmitlupus
@TiffanyAndLupus 4:45 pm NYCtime is a quite pleasant time for Germany :) #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Wow! Time has flown by. It's time for us to say farewell. please share any Final Thoughts you had from today's #LupusChat
joanpenfold
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Thank you. My first chat was nice. Will be back. Not intimidated anymore LOL #lupuschat
lesenmitlupus
I got some new ideas becoming more active in spreading awareness - thanks for this chat and all participants! #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Woohoo! Success! RT @Joanpenfold: Thank you. My first chat was nice. Will be back. Not intimidated anymore LOL #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
FinalThoughts: Awareness can start where you are- whether it's by blogging or taking part in a lupus walk, get out there & shine! #lupuschat
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
@lesenmitlupus I'm sooo happy 2 hear it! I'm looking forward 2 reading your blog :) #lupuschat
lesenmitlupus
RT @SLEYoungLeaders:Awareness can start where you are-whether its by blogging or taking part in a lupus walk,get out there&shine! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Final thoughts: Our Drs DO want to engage w/us & spread awareness/advocacy @DocterAkerker is proof of that! Thank you for joining #LupusChat
lesenmitlupus
@SLEYoungLeaders Oh then I think I must write in English, too, but that´s not a problem :) #LupusChat
lesenmitlupus
So have a nice sunday, here in Germany it´s nearly done...going to bed now. Hope to see you all again soon - bye!*lupiehugs* #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Thank you @SLEYoungLeaders for co-hosting #LupusChat with us today & sharing how we can spread/share awareness & advocacy!
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Thank you @SLEYoungLeaders for co-hosting #LupusChat with us today & sharing how we can spread/share awareness & advocacy!
sleyoungleaders
https://pbs.twimg.com/profile_images/477511777173778432/rP60MLlN_normal.jpeg
Thanks so much for joining us today! Look out for the next chat Tues. June 19th @ 4:45PM for special chat: http://t.co/ExHlL8VR #lupuschat
joanpenfold
https://pbs.twimg.com/profile_images/483297107277647872/aKILzF5E_normal.jpeg
RT @tiffanyandlupus: Thank you @SLEYoungLeaders for co-hosting #LupusChat with us today & sharing how we can spread/share awareness &...
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Much #lupielove & thanks to @DocterAkerker for joining us at #LupusChat; please feel free to join us again 6/19 4:45pm via @140conf unstream
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Make sure you guys are all following @SLEYoungLeaders to stay updated on all their awesome advocacy & awareness in NYC! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Make sure you guys are all following @SLEYoungLeaders to stay updated on all their awesome advocacy & awareness in NYC! #LupusChat
tiffanyandlupus
https://pbs.twimg.com/profile_images/522518778345955329/P36nU5Is_normal.jpeg
Next #LupusChat is a *SPECIAL* edition, coming to you LIVE via the #140conf ustream at 4:45pm on 6/19th ~> http://t.co/cAlg4Wxd #LupusChat
lupus_chat
https://pbs.twimg.com/profile_images/2108283597/LupusChat_normal.jpg
Next #LupusChat is a *SPECIAL* edition, coming to you LIVE via the #140conf ustream at 4:45pm on 6/19th ~> http://t.co/gfkoNa67 #LupusChat
againstlupus
https://pbs.twimg.com/profile_images/1107387443/d0ec56c6-9ca0-4c0b-bf6a-5e29b6eda71a_normal.png
RT @TiffanyAndLupus: Next #LupusChat is a *SPECIAL* edition, coming to you LIVE via the #140conf ustream at 4:45pm on 6/19th ~> http: ...

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