#BCSM transcript

Healthcare Social Media Transcript

From: Mon Jan 30 18:00:00 PST 2017
To: Mon Jan 30 19:00:00 PST 2017

What is #BCSM? Who were the influencers during this time period? #BCSM analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

drattai
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good evening everyone, welcome to the #bcsm chat!
clearscanorg
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RT @talkabouthealth: Current status of using everolimus(Afinitor)to treat early stage #breastcancer?Dr.Hortobagyi @MDAndersonNews https://…
drattai
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Deanna Attai, breast surgeon in LA, moderating solo tonight #bcsm
drattai
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#bcsm love to @stales, attending a memorial service for a friend tonight
drattai
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#bcsm love to @kathygori had surgery today
drattai
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anyone else need some #bcsm love? you got it!
doctorkarpoff
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Hi all. Breast surgeon from slightly upstate NY listening and learning from all. Hope all are well #bcsm
itsthebunk
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RT @DrAttai: #bcsm love to @kathygori had surgery today
itsthebunk
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RT @DrAttai: Deanna Attai, breast surgeon in LA, moderating solo tonight #bcsm
itsthebunk
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RT @DrAttai: #bcsm love to @stales, attending a memorial service for a friend tonight
drattai
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@doctorkarpoff hi Howard - welcome! #bcsm
bewiseraboutbc
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RT @DrAttai: Information from the #SurvOnc17 symposium - transcript, abstract and program links https://t.co/O6zpg8fPhc #bcsm
itsthebunk
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HI everyone - feeling very much under the weather but happy to join my favorite chat/community on the interwebs :-) #bcsm
shereesepubhlth
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.@DrAttai I really wish I'd known of this symposium. I would've loved to attend/speak/share #bcsm
shereesepubhlth
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RT @talkabouthealth: Current status of using everolimus(Afinitor)to treat early stage #breastcancer?Dr.Hortobagyi @MDAndersonNews https://…
itsthebunk
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@ShereesePubHlth @DrAttai There will be one next year! @asco #bcsm
brooksx2
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Hello --lurking!! #bcsm
thecancergeek
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Lurking a little tonight in #bcsm. #bcsm
drattai
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tonight we'll discuss the @ASCO #SurvOnc17 symposium held this past weekend - info and links here: https://t.co/O6zpg8fPhc #bcsm
itsthebunk
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RT @DrAttai: tonight we'll discuss the @ASCO #SurvOnc17 symposium held this past weekend - info and links here: https://t.co/O6zpg8fPhc #b
boobiesmonday
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RT @DiepFlapBreast: #BreastCancer survivors share their top 10 tips to prepare for #BreastReconstruction. #bcsm https://t.co/PwHdrDa11O htt…
drattai
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hello lurkers! #bcsm
jamienholloway
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@DrAttai @stales Hugs, Alicia.Tough day I'm sure. #bcsm
drattai
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For those new to the chats, here's some info on how it works: https://t.co/segQT3hQwz #bcsm
jamienholloway
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Hi all, Jamie in Northern VA. Breast cancer survivor and NED 4yrs after TNBC. #bcsm
drattai
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for those new to #bcsm, here's some info on how this community started: https://t.co/GCUVtm61rG #bcsm
dr_dana
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Happy Monday!Breast surgeon in Little Rock.Looking forward to this chat. #bcsm
itsthebunk
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Hi from Liza in LA. NED from 3 separate primary dxs of invasive #breastcancer. I was at the symposium! #bcsm
drattai
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please take a few minutes to introduce yourselves, even if you plan only to lurk #bcsm
elissa_malcohn
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Greetings from Florida! Dx March 2014, Stage Ia ER/PR+ Her2 negative, BCS/chemo/rads. Currently on anastrazole and NED. #bcsm
answersbyond5
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@DrAttai Hello from the AB5 team! Glad to be here and looking forward to learnings from #SurvOnc17 ! #bcsm
lamourangelique
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I am here from soCal --making a quick salad and right back to you #bcsm
drattai
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since it's just me moderating tonight, can't personally welcome everyone - but welcome! #bcsm
itsthebunk
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@DrAttai Waving hi!! :-) #bcsm
cancergeek
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RT @MaryAnneMolter: @BreastImaging @JoanLunden @russo310 @NBSaphierMD @DrIanWeissman @CancerGeek @JBBC @DrPaulaGordon @RadiologyACR
drattai
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we'll get started in another minute - T1 coming up... #bcsm
bethhilary
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Hi, I'm Beth, grad student / medical anthropologist, interested in cancer survivorship #bcsm
shereesepubhlth
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#BrCa news https://t.co/D2jNYSrf1s #bcsm
garmischgirl
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Hello All! Preparing dinner while we meet ;-) #bcsm
itsthebunk
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Big hello to all I know, and those I don't! This community is one of the best #breastcancer things in my life! #bcsm
stage4kelly
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@DrAttai @itsthebunk @ASCO @BCSMChat any discussion of the metastatic patient? #acsm #bcsm
corrie_painter
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Hi #bcsm, tweeting from under a massive blanket in Massachusetts. Breast angiosarcoma survivor, and keenly interested in survivorship
lamourangelique
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I am Angelique from SoCal stage II 7 year survivor! happy to be here--spent the weekend writing and published a companion to my book #bcsm
drattai
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2017 was the 2nd year that @ASCO put on a survivorship conference - next year it will be in Orlando https://t.co/Z8O14b1HtT #bcsm
shereesepubhlth
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Hi everyone. I'm Shereese, here in Maryland. I'm a Healthcare strategist & I developed a #survivorship app. #bcsm https://t.co/CpkLJL9KtB
drattai
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NO and I think that was a big void in the program #bcsm https://t.co/M437cMO9se
regreader
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RT @DrAttai: tonight we'll discuss the @ASCO #SurvOnc17 symposium held this past weekend - info and links here: https://t.co/O6zpg8fPhc #b
elissa_malcohn
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YAY! Marking my calendar! MT @DrAttai: next year it will be in Orlando https://t.co/iPPpO7GVcV #bcsm
drattai
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so we'll get started with T1 in a sec. I'll try to address as many side comments / questions as I can #bcsm
ibcresearch
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Hello! Ginny #inflammatorybreastcancer 1994, nurse & advocate (& tired!) #bcsm
itsthebunk
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@stage4kelly @DrAttai @ASCO @BCSMChat Great Q-I didn't hear anything re mets. Not sure if conference planners view it as separate? #bcsm
itsthebunk
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RT @DrAttai: NO and I think that was a big void in the program #bcsm https://t.co/M437cMO9se
itsthebunk
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RT @DrAttai: 2017 was the 2nd year that @ASCO put on a survivorship conference - next year it will be in Orlando https://t.co/Z8O14b1HtT #b
drattai
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T1: A main theme for #SurvOnc17 was collaboration of primary care docs and oncologists in overall survivorship planning #bcsm
itsthebunk
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RT @DrAttai: T1: A main theme for #SurvOnc17 was collaboration of primary care docs and oncologists in overall survivorship planning #bcsm
treasamcp
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RT @DrAttai: 2017 was the 2nd year that @ASCO put on a survivorship conference - next year it will be in Orlando https://t.co/Z8O14b1HtT #b
itsthebunk
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RT @stage4kelly: @DrAttai @itsthebunk @ASCO @BCSMChat any discussion of the metastatic patient? #acsm #bcsm
barbieslosingit
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@itsthebunk Hi, Liza! Sorry you're under the weather, honey. #bcsm
drattai
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T1: What's your experience with this care coordination between your oncologist and primary care provider (PCP)? #bcsm
elissa_malcohn
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@itsthebunk @stage4kelly @DrAttai @ASCO @BCSMChat They shouldn't! Terrible omission. #bcsm
itsthebunk
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@barbieslosingit Hi there! Was SO GREAT to meet you in person :-) XOXO #bcsm
denniskeim
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Hi, #bcsm friends! Sorry I'm late. Stage 1 in 2013. Hormone positive. ITCs. Taking tamoxifen and still...NED in Nebraska.
lamourangelique
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@DrAttai my onc sent me to my primary care dr--I was looking and she suggested the primary. Onc also sent me to my complementary dr #bcsm
kathygori
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2x bc'er Checking in from bed after surgery at @UCSF 2day prophylactic ooph ... not feeling so good #bcsm
drattai
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@Elissa_Malcohn @itsthebunk @stage4kelly @ASCO - agree - commented on my evaluation. Mets pts have unique survivorship needs #bcsm
stage4kelly
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@itsthebunk @DrAttai @ASCO @BCSMChat issues of survivorship for those of us in chronic tx need to be addressed #DontIgnoreStageIV #bcsm
itsthebunk
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T1. Care coordination is approximately ZERO. It is basically non-existent for me. I have to do the heavy lifting. #bcsm
itsthebunk
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RT @stage4kelly: @itsthebunk @DrAttai @ASCO @BCSMChat issues of survivorship for those of us in chronic tx need to be addressed #DontIgnor
lamourangelique
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@kathygori @UCSF hang in there-- #bcsm
drattai
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RT @stage4kelly: @itsthebunk @DrAttai @ASCO @BCSMChat issues of survivorship for those of us in chronic tx need to be addressed #DontIgnor
denniskeim
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RT @DrAttai: #bcsm love to @kathygori had surgery today
doctorkarpoff
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RT @DrAttai: @Elissa_Malcohn @itsthebunk @stage4kelly @ASCO - agree - commented on my evaluation. Mets pts have unique survivorship needs #…
drattai
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@stage4kelly @itsthebunk @DrAttai @ASCO agree 100% #bcsm
elissa_malcohn
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T1 Not much coord; no direct contact at all. I get different bloodwork from each + provide ea w/the other's results. That's about it. #bcsm
itsthebunk
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@kathygori @UCSF Hi Kathi! Sending big hugs XOXOXOXO Feel better! #bcsm
barbieslosingit
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@DrAttai What coordination? Seriously. One year NED, recently finished the worst of tx, and NO coordination. #bcsm
doctorkarpoff
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RT @DrAttai: T1: What's your experience with this care coordination between your oncologist and primary care provider (PCP)? #bcsm
itsthebunk
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RT @Elissa_Malcohn: T1 Not much coord; no direct contact at all. I get different bloodwork from each + provide ea w/the other's results. Th…
mommyscancer
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9PM - Happening right now! #breastcancer https://t.co/BVeM5fo5KA
actorielle
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Sorry I'm late--Danielle, #lcsm advocate, dropping in to learn and to say hi to you, my awesome friends! #bcsm
itsthebunk
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RT @DrAttai: @Elissa_Malcohn @itsthebunk @stage4kelly @ASCO - agree - commented on my evaluation. Mets pts have unique survivorship needs #…
denniskeim
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RT @DrAttai: tonight we'll discuss the @ASCO #SurvOnc17 symposium held this past weekend - info and links here: https://t.co/O6zpg8fPhc #b
drattai
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@kathygori hello, welcome and go back to bed! xoxoxo #bcsm
kathygori
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@Dr_Dana very very sore and am to stay in bed for tonight except for exciting accompanied trips to the WC #bcsm
barbieslosingit
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@itsthebunk You're a delight. We'll be meeting again, I'm certain. :) #bcsm
drattai
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If you're just joining, we're discussing #SurvOnc17. T1 - was there care coordination between your oncologist and primary doc? #bcsm
elissa_malcohn
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@kathygori @UCSF (((Hugs))) and healing vibes! <3 #bcsm
itsthebunk
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@kathygori @Dr_Dana I remember those exciting adventures too well :-( We miss you! #bcsm
lamourangelique
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talking with the amazing folks at #bcsm feel free to ignore me or if you are a caregiver or a survivor or a dr join us!
jamienholloway
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T1: oncologist and PCP know each other and exchange results. But not sure "care coordination" are an appropriate description. #bcsm
drattai
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@jamienholloway good point - exchanging results not the same as coordinating care #bcsm
kathygori
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@DrAttai yes that is where I am just letting you all know I'm ok ... there was some old scar tissue likely from something caused by #bcsm
dr_dana
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@kathygori We like compliant patients;) #bcsm
corrie_painter
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T1 I have been relying on my oncology team (PA/Oncologist/Surgeon) to treat all symptoms for 7years. I know it's not ok #bcsm
itsthebunk
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@DrAttai @stage4kelly @ASCO I agree 100% too! #bcsm #acsm
corrie_painter
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@IBCResearch Why hello there! #BCSM
denniskeim
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RT @DrAttai: 2017 was the 2nd year that @ASCO put on a survivorship conference - next year it will be in Orlando https://t.co/Z8O14b1HtT #b
carter3236
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RT @OncNursingNews: Online Coping Curriculum Improves Fatigue and Depression in Breast Cancer Survivors. @DCRINews https://t.co/qsF1EPiZgw…
cultperfectmoms
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@DrAttai since I was de novo mets, my onc has become my PCP--in his office at least every 2 weeks. #bcsm
drattai
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@corrie_painter personally I think whatever works for YOU is ok. But too bad PCP can't be more involved #bcsm
subatomicdoc
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Good evening, #bcsm friends! Matt Katz, radiation oncologist in Massachusetts here
carter3236
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RT @DrAttai: T1: A main theme for #SurvOnc17 was collaboration of primary care docs and oncologists in overall survivorship planning #bcsm
lamourangelique
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my onc center changed hands and is now a part of a bigger hospital --it was but now it really is and things are different there #bcsm
ibcresearch
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@kathygori So sorry u r feeling crummy. Sending healing thoughts. #bcsm
kathygori
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@DrAttai my old first chemo back in 90 which gave me some other problems...but everything looks excellent they say this hurts more #bcsm
subatomicdoc
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RT @DrAttai: If you're just joining, we're discussing #SurvOnc17. T1 - was there care coordination between your oncologist and primary doc?…
drattai
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@kathygori @Dr_Dana you've got a few surgeons here telling you to put down the computer/ phone! Glad went well but you need rest! #bcsm
kathygori
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@DrAttai then the last mx I had #bcsm
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
@corrie_painter Still not sure I'll ever graduate from my oncologist completely! #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@subatomicdoc hi Matt, thanks for joining, we're discussing #SurvOnc17 #bcsm
runilimary
https://pbs.twimg.com/profile_images/603588730054516736/waIKxdvs_normal.jpg
Just joined! Stage 1 dx over 11 yrs ago. Now work for nonprofit in Austin, TX helping those with #breastcancer #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@corrie_painter Been basically doing same. But have "new" pcp (felt bad trying to see onc for cold/flu/cough) so trying it for past yr #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
@kathygori @DrAttai So glad to hear that you're okay, Kathy. Hope you feel better and heal up soon! #bcsm
dr_dana
https://pbs.twimg.com/profile_images/579082634212552704/9T6OXoy7_normal.jpeg
@DrAttai @kathygori I never said that...Kathy on pain meds should be https://t.co/IjSoknzWGF #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
T1 so what I'm hearing is that many still rely on oncologist for management of long term symptoms #bcsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
@DrAttai Hi Deanna! Glad to be with you. I look forward to hearing more about #SurvOnc17 #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
LOL! RT @Dr_Dana: @DrAttai @kathygori I never said that...Kathy on pain meds should be https://t.co/o5Qq3UuWsV #bcsm
kathygori
https://pbs.twimg.com/profile_images/1728103968/image_normal.jpg
@DrAttai @Dr_Dana ok ... obeying ... goodnight all. Thanks for all the good thoughts #bcsm
ibcresearch
https://pbs.twimg.com/profile_images/793511255688384512/63aQnJrp_normal.jpg
@corrie_painter I pay more out-of-pocket to see specialist/onc than PCP. Not good. #bcsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
T1 Historically the oncologist was not the most visible in the Pt's care and collaboration was marginal. That has greatly changed IMHO #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
YES RT @DrAttai: T1 so what I'm hearing is that many still rely on oncologist for management of long term symptoms #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@kathygori @DrAttai @Dr_Dana Goodnight Kathi! XOXO #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@ShereesePubHlth as you'll see from this group, experiences are all over the map #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
@kathygori @DrAttai @Dr_Dana Goodnight! Rest well. #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@RuniLimary Hi and welcome :) #bcsm
kathygori
https://pbs.twimg.com/profile_images/1728103968/image_normal.jpg
@itsthebunk @Dr_Dana @DrAttai I'd send you a pic they took later #bcsm https://t.co/aVxbVPOPF3
stage4kelly
https://pbs.twimg.com/profile_images/790765536426590208/t6a4psfY_normal.jpg
@itsthebunk @corrie_painter my PCP worked for me when she was in high school and I spent years trying to talk her out of medicine! #bcsm
corrie_painter
https://pbs.twimg.com/profile_images/584369721342038016/42XYDZeL_normal.jpg
@DrAttai Yes, partly out of fear that a PCP wouldn't be familiar with cancer symptoms, and would refer me back to team anyway #BCSM
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@stage4kelly @itsthebunk @corrie_painter wow! #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
RT @corrie_painter: @DrAttai Yes, partly out of fear that a PCP wouldn't be familiar with cancer symptoms, and would refer me back to team…
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @stage4kelly: @itsthebunk @corrie_painter my PCP worked for me when she was in high school and I spent years trying to talk her out of m…
kim_builta
https://pbs.twimg.com/profile_images/778723568242692096/66agijkN_normal.jpg
Hello all. 1st time here stage4 since 2010. Living in the moment. #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@DrAttai @stage4kelly @corrie_painter amazing!! #bcsm
lamourangelique
https://pbs.twimg.com/profile_images/437063837938749441/_oRh2HE0_normal.jpeg
@kim_builta Welcome! #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
@kim_builta Welcome! #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T1: Most of the coordination between my GP and onc seems to come from me although I'm not always privy to all communications. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
hello, welcome and hugs RT @kim_builta: Hello all. 1st time here stage4 since 2010. Living in the moment. #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@kim_builta Hi! welcome :-) #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
I think I missed another who is on chat for 1st time, if so, welcome... #bcsm
runilimary
https://pbs.twimg.com/profile_images/603588730054516736/waIKxdvs_normal.jpg
T1: no comprehensive cancer center here. I asked my med Onc to refer me to a pcp. They collaborate well together and this helps #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
RT @denniskeim: T1: Most of the coordination between my GP and onc seems to come from me although I'm not always privy to all communication…
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @corrie_painter: @DrAttai Yes, partly out of fear that a PCP wouldn't be familiar with cancer symptoms, and would refer me back to team…
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@denniskeim hold that thought.... #bcsm
ibcresearch
https://pbs.twimg.com/profile_images/793511255688384512/63aQnJrp_normal.jpg
YES @corrie_painter I think that's what keeps many of us going back to the onc even many yrs later. #bcsm https://t.co/YtsmqmZEmZ
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@RuniLimary goes to show care doesn't need to be all under one roof to be coordinated #bcsm
leah_sieck
https://pbs.twimg.com/profile_images/652299526888366080/vlFsdlEy_normal.jpg
RT @DiepFlapBreast: #BreastCancer survivors share their top 10 tips to prepare for #BreastReconstruction. #bcsm https://t.co/PwHdrDa11O htt…
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @DrAttai: @RuniLimary goes to show care doesn't need to be all under one roof to be coordinated #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
welcome - another #bcsm newbie! https://t.co/tRI7wIN2rH
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@RuniLimary That's amazing! Good to hear this :) #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @RuniLimary: T1: no comprehensive cancer center here. I asked my med Onc to refer me to a pcp. They collaborate well together and this…
onehandedpotter
https://pbs.twimg.com/profile_images/781531525447770112/WaNMq8h__normal.jpg
RT @subatomicdoc: Good evening, #bcsm friends! Matt Katz, radiation oncologist in Massachusetts here
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@RuniLimary My pleasure! Here's a link to some info on the chat https://t.co/8XpomZpaVd - Also, consider using tchat.io to participate #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
T2 -for those who have had to do this on their own how did you hack your own survivorship care plan? How do you manage your care? #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
T2 and pts coordinating their own care may become more necessary - fewer docs, not able to spend as much time w/pts, other factors #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@stage4kelly @DrAttai @ASCO @BCSMChat It was all doctors & scientists (and a few advocates) at the conference. Also, all cancers, #bcsm 1/2
onehandedpotter
https://pbs.twimg.com/profile_images/781531525447770112/WaNMq8h__normal.jpg
RT @DrAttai: If you're just joining, we're discussing #SurvOnc17. T1 - was there care coordination between your oncologist and primary doc?…
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
so @denniskeim you said you coordinate much of your care - can you share your tips? #bcsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @DrAttai: T2 -for those who have had to do this on their own how did you hack your own survivorship care plan? How do you manage your ca…
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@stage4kelly @DrAttai @ASCO @BCSMChat However, yes, sadly I agree with you that usually MBC is "too scary for pink crowd." :( #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @DrAttai: so @denniskeim you said you coordinate much of your care - can you share your tips? #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @DrAttai: T2 -for those who have had to do this on their own how did you hack your own survivorship care plan? How do you manage your ca…
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @DrAttai: T2 and pts coordinating their own care may become more necessary - fewer docs, not able to spend as much time w/pts, other fac…
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
T2: Again- a PCP who specializes in oncology pts- knows what to look for, what extra screenings needed, etc, would be golden #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
T2 Was already eating healthy/exercising. Attended Healthy Living class at radiation ctr. 1/ #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T2: I used to have all my blood work done at my cancer center but they got a better stick person at my GPs and I got lazy. :) #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
T2 Started Creativity Heals support grp, go to BC grp. Meet w/LCSW as needed. Reg checkups w/onc team + PCP. 2/ #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
T2. My issue is: am so burned out/sick & tired of pushing to try & get my various docs to communicate w/ea other and back to me #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T2: I wish they would automatically sync their examinations and reports. I ask for them to send them over when it seems important. #bcsm
ibcresearch
https://pbs.twimg.com/profile_images/793511255688384512/63aQnJrp_normal.jpg
YES! @jamienhollowayPCP who specializes in oncology pts- knows what to look for, what extra screenings needed, etc, would be golden #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
T2 My radiation ctr is fabulous. Deep bench of support, continuing programs. LCSW available to pts any time, incl yrs after tx. #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
T2. I am not in acute cancer tx phase, so feel like 2nd class patient. Always having to herd cats to try & get answers/reports, info #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T2: The oncology labs are pro at sticks, the GP offices often not so much. Good to have all reports in one spot with computer access. #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
T2 I also get copies of all test results and make sure my med team members are all informed. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@jamienholloway #SurvOnc17 aim was just that - better understanding of issues between PCP and onc #bcsm
dawnmgibson
https://pbs.twimg.com/profile_images/487037416717312000/TFslcFnS_normal.jpeg
RT @itsthebunk: T1. Care coordination is approximately ZERO. It is basically non-existent for me. I have to do the heavy lifting. #bcsm
dawnmgibson
https://pbs.twimg.com/profile_images/487037416717312000/TFslcFnS_normal.jpeg
RT @itsthebunk: Big hello to all I know, and those I don't! This community is one of the best #breastcancer things in my life! #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@jamienholloway meeting was co-sponsored by @ASCO and primary care organizations #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
T2. My PCP is not part of same health corporation, aka hospital, as my onc, so harder to sync info btwn them & get it to me #bcsm
corrie_painter
https://pbs.twimg.com/profile_images/584369721342038016/42XYDZeL_normal.jpg
T2 survivorship = symptom, anxiety, frantic email to PA, scans, often biopsies, results, reset. 'normal health' doesn't factor in. #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @corrie_painter: T2 survivorship = symptom, anxiety, frantic email to PA, scans, often biopsies, results, reset. 'normal health' doesn't…
irinabrooke1
https://pbs.twimg.com/profile_images/784581108826533888/Hq1W2hAz_normal.jpg
RT @DiepFlapBreast: #BreastCancer survivors share their top 10 tips to prepare for #BreastReconstruction. #bcsm https://t.co/PwHdrDa11O htt…
barbieslosingit
https://pbs.twimg.com/profile_images/799681737345277952/bKUoagQs_normal.jpg
@itsthebunk Medical self-care burnout. How can we handle it? #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T2: It helped some when I still had a breast cancer nurse navigator. It would be great if there was one person who coordinated things. #bcsm
corrie_painter
https://pbs.twimg.com/profile_images/584369721342038016/42XYDZeL_normal.jpg
@kim_builta adding a heart in solidarity, certainly don't love anything about it #BCSM
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@SPECFORD59 yes that's an issue as well - pts need to be educated that it's ok to share care w/med onc #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T2: If I was really on top of things, I'd have my own folder with all reports. I was more into this during active care. #bcsm
chigrl13
https://pbs.twimg.com/profile_images/1136844829/f0032aad-360d-40e1-af27-7e196048ae9d_normal.png
Godspeed my sister https://t.co/yeDxvFY1CL
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@barbieslosingit @itsthebunk that's a big one for everybody - we could do a whole chat on self care burnout - any tips? #bcsm
kindredbelle
https://pbs.twimg.com/profile_images/843776622973140992/wPzW0Dmj_normal.jpg
Dr. Ruddy on the progress of #breastcancer vaccines https://t.co/7zVnolL8rU #BCSM @JBBC @LivingBeyondBC
chigrl13
https://pbs.twimg.com/profile_images/1136844829/f0032aad-360d-40e1-af27-7e196048ae9d_normal.png
RT @DrAttai: anyone else need some #bcsm love? you got it!
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
Being in a multi specialty group with PCP, Onc, surgery, Plastics, radiology helps us keep care coordinated for patients in system; #bcsm
ijohnpereira
https://pbs.twimg.com/profile_images/563487569040515072/WKwQ2UrC_normal.jpeg
Interesting @ShereesePubHlth. What changed and how? #bcsm Ian checking in to learn :)
specford59
https://pbs.twimg.com/profile_images/1217256686/v0Ho0S0U_normal
@DrAttai #bcsm nowadays I follow q3-4 x 1 yr then q 6 mos x 5 yrs. then I offer to see q yr or see prn. More often then not folks like qy fu
irinabrooke1
https://pbs.twimg.com/profile_images/784581108826533888/Hq1W2hAz_normal.jpg
@LguzzardiM @nytimes #bcsm she absolutely knew about it beforehand. Article isn't stating the truth. Her PS has treated her very well.
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @denniskeim: T2: It helped some when I still had a breast cancer nurse navigator. It would be great if there was one person who coordina…
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
@DrAttai @barbieslosingit @itsthebunk I quit when it got to be more work than what it seemed worth. :) #bcsm
_brandiii
https://pbs.twimg.com/profile_images/836060938063265793/BtoaLwDf_normal.jpg
#bcsm my mom kept binder of all notes and records and took to each appointment with nursing friend - forced everyone to be on same page
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
@denniskeim I scan everything in that's not already downloaded from pt portal. Lets me coordinate more easily that way. #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@denniskeim YES, exactly! We "survivors" need a survivorship care navigator. #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
YES RT @denniskeim: @DrAttai @barbieslosingit @itsthebunk I quit when it got to be more work than what it seemed worth. :) #bcsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
.@IJohnPereira engagement priorities and greater attention to survivorship activities & outcomes IMHO #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @DrAttai: @barbieslosingit @itsthebunk that's a big one for everybody - we could do a whole chat on self care burnout - any tips? #bcsm
irinabrooke1
https://pbs.twimg.com/profile_images/784581108826533888/Hq1W2hAz_normal.jpg
RT @jamienholloway: T2: Again- a PCP who specializes in oncology pts- knows what to look for, what extra screenings needed, etc, would be g…
ibcresearch
https://pbs.twimg.com/profile_images/793511255688384512/63aQnJrp_normal.jpg
RT @DrAttai: anyone else need some #bcsm love? you got it!
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @barbieslosingit: @itsthebunk Medical self-care burnout. How can we handle it? #bcsm
ijohnpereira
https://pbs.twimg.com/profile_images/563487569040515072/WKwQ2UrC_normal.jpeg
Would it help if you were? #bcsm T1 @denniskeim
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@ShereesePubHlth @IJohnPereira again - the group will tell you regardless of history, their experiences are all over the place #bcsm
irinabrooke1
https://pbs.twimg.com/profile_images/784581108826533888/Hq1W2hAz_normal.jpg
@jamienholloway #bcsm that is very helpful.
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@malefitness Ouch! #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
to refresh - T2 is how did you manage your own survivorship care coordination? Any tips to share? Any pointers for us docs? #bcsm
specford59
https://pbs.twimg.com/profile_images/1217256686/v0Ho0S0U_normal
@DrAttai #bcsm I will also call pcp or derm or rad Onc in exam room in presence of Pt to coordinate care.
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @DrAttai: @ShereesePubHlth @IJohnPereira again - the group will tell you regardless of history, their experiences are all over the place…
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T2: I try to keep on top of some of the literature as part of my continuing care. You folks all are a great help in keeping up too. #bcsm
doctorkarpoff
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I like to keep my patients continue to follow them until they chose not to or I retire (or I win lottery/retire-no success yet!) #bcsm
shereesepubhlth
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@DrAttai @IJohnPereira noted. I certainly recognize diverse roles but I was just citing how the onc used to be viewed. #bcsm
irinabrooke1
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RT @kim_builta: Hello all. 1st time here stage4 since 2010. Living in the moment. #bcsm
lamourangelique
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@DrAttai encourage med students into this area of medicine--survivorship --we need them! #bcsm
drattai
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@SPECFORD59 advantage of being under one roof. I'm in a private practice setting - we're all in different places. Lots of phone / txt #bcsm
drattai
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RT @LAmourAngelique: @DrAttai encourage med students into this area of medicine--survivorship --we need them! #bcsm
ijohnpereira
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Raises a point @RuniLimary. What is meant by a "comprehensive" cancer centre. Does (or should) this definition include PCPs? #bcsm T1
irinabrooke1
https://pbs.twimg.com/profile_images/784581108826533888/Hq1W2hAz_normal.jpg
RT @LivingBeyondBC: More women may be able to avoid #chemotherapy based on #genomic test results. Read more: https://t.co/PNTAboQisI #breas
runilimary
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T2: I found the Livestrong and ASCO careplans helpful to navigate survivorship #bcsm
elissa_malcohn
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THIS. MT @denniskeim: T2: I try to keep on top of some of the literature as part of my continuing care. #bcsm
drattai
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@LAmourAngelique YES! One of the breakout sessions I attended was on educating the younger generation - med students, etc #bcsm
denniskeim
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T2: Last time with my GP I asked some questions about Vit. D levels. The nurse said that should be directed to my onc. I agreed. #bcsm
irinabrooke1
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@LivingBeyondBC #bcsm I had the oncotype done which came to 25.
itsthebunk
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T2. For docs: understand that we're trying to stay on top of health; chasing down info = exhausting. Hire uber-competent support staff #bcsm
lamourangelique
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@DrAttai when I speak with students about breast health I always encourage the ones dreaming of med school to go into this #bcsm
itsthebunk
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RT @IJohnPereira: Raises a point @RuniLimary. What is meant by a "comprehensive" cancer centre. Does (or should) this definition include PC…
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
RT @itsthebunk: T2. For docs: understand that we're trying to stay on top of health; chasing down info = exhausting. Hire uber-competent su…
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@IJohnPereira @RuniLimary Excellent point!!!!! The MedOnc office/clinic should have their own PCPs for survivorship care! #bcsm
elissa_malcohn
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T2 I quiz my team, get perspectives from ea. They sometimes view a decision point through different lenses. I balance w/own needs. #bcsm
_brandiii
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@DrAttai T2: Not onc pt, only previvor. But I became friends with office staff, NPs, PAs and they became passionate advocates for me. #bcsm
specford59
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#bcsm forgot the tag https://t.co/D18IueubCe
drattai
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@itsthebunk yes especially since electronic medical records in different practices often don't talk to each other #bcsm
ijohnpereira
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In Canada we have GP-oncs. Some programs offer additional fellowships for family docs (e.g https://t.co/g871AfNwjC) @jamienholloway #bcsm T2
ijohnpereira
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In Canada we have GP-oncs. Some programs offer additional fellowships for family docs (e.g https://t.co/8In03DGJA8) @jamienholloway #bcsm T2
stage4kelly
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@IJohnPereira @itsthebunk @RuniLimary it should, because ignoring survivorship is not "comprehensive" #bcsm
elissa_malcohn
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T2 When dealing with meds, also recognize that pharmacist is also part of team. Mine gave me good info that I didn't get from docs. #bcsm
drattai
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@_brandiii finding your advocate is crucial - often too much to deal with on own #bcsm
itsthebunk
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RT @Elissa_Malcohn: T2 When dealing with meds, also recognize that pharmacist is also part of team. Mine gave me good info that I didn't ge…
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @IJohnPereira: In Canada we have GP-oncs. Some programs offer additional fellowships for family docs (e.g https://t.co/8In03DGJA8) @jami
drattai
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@Elissa_Malcohn YES! A good pharmacist can be a great advocate #bcsm
drattai
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T3 coming up in a minute... #bcsm
itsthebunk
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YES RT @DrAttai: @itsthebunk yes especially since electronic medical records in different practices often don't talk to each other #bcsm
bethhilary
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@DrAttai @LAmourAngelique social scientists, social workers, psychologists can also be instrumental - & it's hard to find training! #bcsm
anticancerclub
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Brain Training 101 for #ChemoBrain https://t.co/D08CZst662 #chemotherapy #cancer #bcsm
drattai
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RT @bethhilary: @DrAttai @LAmourAngelique social scientists, social workers, psychologists can also be instrumental - & it's hard to find t…
specford59
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@DrAttai #bcsm important to include cardiodocs in fu of Adria / Her2-pts,radiation left breast pts. For at least base line and post Rx eval
elissa_malcohn
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T2 I also download now in more timely manner; my health ins site archive changed, now goes back only 2 yrs; used to be decade-plus. #bcsm
denniskeim
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RT @itsthebunk: T2. For docs: understand that we're trying to stay on top of health; chasing down info = exhausting. Hire uber-competent su…
corrie_painter
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@itsthebunk @DrAttai some start ups are trying to solve this for us, like https://t.co/aDg45kh0jv #BCSM
drattai
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T3 Survivors, even w/mets - many living longer. How to differentiate "long term effects" from treatment vs just getting older #bcsm
all4my_5jesus
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RT @anticancerclub: Brain Training 101 for #ChemoBrain https://t.co/D08CZst662 #chemotherapy #cancer #bcsm
stage4kelly
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@IJohnPereira @itsthebunk @jamienholloway yet another area in which the US would do well to follow Canada's example! #bcsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @DrAttai: @itsthebunk yes especially since electronic medical records in different practices often don't talk to each other #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
T3a How do we manage the stress and concern we might have when can't tell disease / treatment related vs age related? #bcsm
doctorkarpoff
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RT @DrAttai: T3 Survivors, even w/mets - many living longer. How to differentiate "long term effects" from treatment vs just getting older…
specford59
https://pbs.twimg.com/profile_images/1217256686/v0Ho0S0U_normal
@bethhilary @DrAttai @LAmourAngelique also hard to get timely appts. #bcsm
itsthebunk
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@SPECFORD59 @DrAttai Yes, now there's onco-cardio. Saw one, but couldn't get her 2get my info to me. It got to my onc, but not to me #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @DrAttai: T3a How do we manage the stress and concern we might have when can't tell disease / treatment related vs age related? #bcsm
ibcresearch
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BIG ISSUE, no one knows this! RT @DrAttai: T3 How to differentiate "long term effects" from treatment vs just getting older #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @IBCResearch: BIG ISSUE, no one knows this! RT @DrAttai: T3 How to differentiate "long term effects" from treatment vs just getting old…
lamourangelique
https://pbs.twimg.com/profile_images/437063837938749441/_oRh2HE0_normal.jpeg
@DrAttai This is what we all want to know--am I off balance because of age or ???--really try not to jump to scary conclu #bcsm
twitliveevents
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January 30, 2017 at 10:00PM Twitter Chat - #BCSM #TwitterChat Visit https://t.co/52cTeoQ3Zw for more events.
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @corrie_painter: @itsthebunk @DrAttai some start ups are trying to solve this for us, like https://t.co/aDg45kh0jv #BCSM
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
@DrAttai Crucial question! I have no ans except to inform docs of any changes. This is also issue for my partner, who has MS. #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@corrie_painter @DrAttai @PicnicHealth Funny startup name, because trying to round up yr med info ain't no picnic! #bcsm (Hi Corrie!)
specford59
https://pbs.twimg.com/profile_images/1217256686/v0Ho0S0U_normal
@itsthebunk @DrAttai old school paternalism?#bcsm
jamienholloway
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T3: The million dollar question! Age v. late treatment effects v. cancer progression. #bcsm
drattai
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T3 hard for docs sometimes also to sort out what might be treatment related vs possible sign of recurrence vs just getting older #bcsm
bldcancerdoc
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RT @itsthebunk: T2. I am not in acute cancer tx phase, so feel like 2nd class patient. Always having to herd cats to try & get answers/repo…
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @DrAttai: T3a How do we manage the stress and concern we might have when can't tell disease / treatment related vs age related? #bcsm
corrie_painter
https://pbs.twimg.com/profile_images/584369721342038016/42XYDZeL_normal.jpg
@IBCResearch @DrAttai story of my life, my 'will I continue to get older', life #BCSM
ibcresearch