#BCSM transcript

Healthcare Social Media Transcript

From: Mon Aug 01 18:00:00 PDT 2016
To: Tue Aug 02 19:00:00 PDT 2016

What is #BCSM? Who were the influencers during this time period? #BCSM analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

vitorflorez
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RT @NCICancerStats: Learn more about #BreastCancer subtypes from our infographic: https://t.co/2BBOMfEHF1 #BCSM https://t.co/GEA0jQrvMx
talkibc
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Howdy from a hot night in Texas. #bcsm
drattai
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good evening everyone! #bcsm
itsthebunk
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Hi everyone - dropping in to say hi. Had awful Mx/DIEP-Recon Surgery related #PTSD event today so need to sit this one out. #bcsm
drattai
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welcome to tonight's #bcsm chat - I'm Deanna Attai, breast surgeon in LA, co-moderating with @stales
stales
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hi everyone! #bcsm
itsthebunk
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But will hang out during the introductions to say hi to my favorite people! #bcsm
elissa_malcohn
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Greetings from Florida! (((Hugs))) @itsthebunk #bcsm
drattai
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@itsthebunk xoxoxo time for some self care #bcsm
bethlgainer
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Hi everyone, after a long number of Monday evenings working! #bcsm
itsthebunk
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@DrAttai Thank you :-) xoxoxoxoxo #bcsm
drattai
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please take some time for introductions (usual routine) #bcsm
thecancergeek
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Howdy #bcsm! Has everyone done their homework (reading the papers?) ;) Kudos to @DrAttai for such clear statements about complex topic #bcsm
gvglaw
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Hiiiiiii #BCSM from Greeley, Colo!
itsthebunk
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@Elissa_Malcohn Hi Elissa! xoxo #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @DrAttai good info prior to tonight's #bcsm CPM - recon side effects we wish we knew about @6state https://t.co/GQ7mTjbwTC
itsthebunk
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RT @Elissa_Malcohn: Greetings from Florida! (((Hugs))) @itsthebunk #bcsm
healthuktd
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RT @DrAttai: #bcsm chat starts in 15 minutes! We'll discuss the @ASBrS CPM consensus statement https://t.co/Eo6YUuaJLi all are welcome
itsthebunk
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RT @DrAttai: @itsthebunk xoxoxo time for some self care #bcsm
drattai
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For those new to the chats, here's some info on how this chaos all falls into place: https://t.co/segQT3hQwz #bcsm
doctorkarpoff
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hi all Breast surgeon from slightly upstate NY checking in Hope all are well #bcsm
stales
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@doctorkarpoff Welcome! #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @DrAttai For those new to the chats, here's some info on how this chaos all falls into place: https://t.co/0KzBtOpPgz #bcsm
drattai
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@doctorkarpoff hi Howard - glad to see you here for the CPM chat #bcsm
stales
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@itsthebunk hi there. #bcsm
stales
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@gvglaw hi there #bcsm
jamienholloway
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Hi all, joining from home. For tonight's purposes: Stage2 TNBC, bilateral mastectomy (yes, the dreaded CPM) and implant recon #bcsm
jpete008
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Hi all. Jane from Denver. Four year cancerversary. All's well! #bcsm
stales
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@Jpete008 happy cancerversary! #bcsm
elissa_malcohn
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@Jpete008 Happy cancerversary! #bcsm
6state
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RT @stales: RT @DrAttai good info prior to tonight's #bcsm CPM - recon side effects we wish we knew about @6state https://t.co/GQ7mTjbwTC
stales
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@jamienholloway hi there! #bcsm
doctorkarpoff
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@stales CPM very important: always lengthy discussions in the office; strong opinions #bcsm
itsthebunk
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@stales @DrAttai @6state Something I should probably read - but not tonight. Any mention of #PTSD as side effect of DIEP? #bcsm
denniskeim
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Howdy! BC DX in 2013. Stage 1, 0 Nodes, Isolated Tumor Cells (ITCs) in 1/2 nodes. One side mastectomy, 6x TC chemo, tamoxifen. NED. #bcsm
itsthebunk
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@stales Hi :-) XOXO #bcsm
jamienholloway
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@stales Hi Alicia! #bcsm
drattai
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Discussing @ASBrS consensus statement on CPM, published last week in @AnnSurgOncol - 2 parts, linked in blog https://t.co/Eo6YUuaJLi #bcsm
6state
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@NickiDurlester @letlifehappen Looks who's in the house. Hi Cali gals! #bcsm
bethlgainer
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@itsthebunk @stales @DrAttai @6state Have had DIEP and PTSD. #bcsm
itsthebunk
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@Bethlgainer @itsthebunk @stales @DrAttai @6state hugs, Beth xoxo #bcsm
drreginahampton
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Hi everyone. Breast surgeon in DC/Maryland #bcsm
elissa_malcohn
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@Bethlgainer @itsthebunk @stales @DrAttai @6state (((Hugs))) #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @doctorkarpoff @stales CPM very important: always lengthy discussions in the office; strong opinions #bcsm
bethlgainer
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@itsthebunk Thanks! Back at ya! #bcsm
stales
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@thecancergeek hi there! #bcsm
stales
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@Bethlgainer hi there #bcsm
stales
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@Elissa_Malcohn hello, hello! #bcsm
drattai
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@DrReginaHampton hi Regina! glad to have you here for the CPM discussion #bcsm
doctorkarpoff
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I liked the consensus statement: Printed it out Nice to hand to patients Summary terrific hard to convince the already convinced #bcsm
6state
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Dinner time here... I'll jump in when I can and "lurk & learn" @stales #bcsm
stales
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@DrReginaHampton hi there! thanks for joining us #bcsm
drreginahampton
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@doctorkarpoff I agree, it should generate thoughful discussion so women can make informed decisions #bcsm
drattai
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So for some background - medical organizations periodically evaluate "hot topics", come together to evaluate the literature #bcsm
itsthebunk
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Sorry I can't stick around tonight, but the topic is a big trigger for me. I will see you all next week! Big hugs to all! #bcsm
dr_dana
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Scooting in from Little Rock.Breast surgeon.Hot topic tonight! #bcsm
doctorkarpoff
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RT @DrReginaHampton: @doctorkarpoff I agree, it should generate thoughful discussion so women can make informed decisions #bcsm
elissa_malcohn
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@itsthebunk xoxoxo Wishing you a good evening. #bcsm
drattai
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The @ASBrS CPM consensus statement was based on increasing mastectomy rates, help make sense of the science #bcsm
dr_dana
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@doctorkarpoff Great idea! #bcsm
drattai
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@Dr_Dana thanks for joining! We've now got 4 breast surgeons including @doctorkarpoff @DrReginaHampton #bcsm
jpete008
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I'm so happy to hear this! So important to have all facts. #bcsm
jamecancerdoc
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Setting the Body’s ‘Serial Killers’ Loose on Cancer https://t.co/91hXnCNmCh #bcsm #breastcancer #cancer @clevelandclinic
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @DrAttai: The @ASBrS CPM consensus statement was based on increasing mastectomy rates, help make sense of the science #bcsm
drattai
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the @asbrs consensus conference brought together national and international experts - @FionaMacNeill1 from the UK participated #bcsm
dr_dana
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@itsthebunk Awww.Sending soothing thoughts. #bcsm
deecalhounsmhn
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RT @NCICancerStats: Learn more about #BreastCancer subtypes from our infographic: https://t.co/2BBOMfEHF1 #BCSM https://t.co/GEA0jQrvMx
drattai
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and none of it would have happened without the incredible cat-herding skills of @DrJudyBoughey who organized the conference #bcsm
bethlgainer
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@itsthebunk xoxo #bcsm
drkdhoffman
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RT @DrAttai: and none of it would have happened without the incredible cat-herding skills of @DrJudyBoughey who organized the conference #bcsm
drattai
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we are also honored to have the patient voice represented - @stales participated in the discussion and the manuscript #bcsm
drattai
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RT @Dr_Dana: @itsthebunk Awww.Sending soothing thoughts. #bcsm
samleerx
https://pbs.twimg.com/profile_images/53239713/melnme_normal.jpg
RT @NCICancerStats: Learn more about #BreastCancer subtypes from our infographic: https://t.co/2BBOMfEHF1 #BCSM https://t.co/GEA0jQrvMx
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @DrAttai: The @ASBrS CPM consensus statement was based on increasing mastectomy rates, help make sense of the science #bcsm
medivizor
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RT @DrAttai: and none of it would have happened without the incredible cat-herding skills of @DrJudyBoughey who organized the conference #bcsm
orenfu
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RT @DrAttai: and none of it would have happened without the incredible cat-herding skills of @DrJudyBoughey who organized the conference #bcsm
oratoryacom
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RT @DrAttai: and none of it would have happened without the incredible cat-herding skills of @DrJudyBoughey who organized the conference #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
an amazing experience RT @DrAttai also honored to have patient voice represented: @stales participated in discussion/manuscript #bcsm
drattai
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the full statements part 1: https://t.co/4TCUGnLG6G part 2: https://t.co/y2Jp83eKwU #bcsm - open access via @AnnSurgOncol
itsthebunk
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RT @Dr_Dana: @itsthebunk Awww.Sending soothing thoughts. #bcsm
stales
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She did a great job RT @DrAttai and none of it would have happened without the incredible cat-herding skills of @DrJudyBoughey #bcsm
doctorkarpoff
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RT @DrAttai: and none of it would have happened without the incredible cat-herding skills of @DrJudyBoughey who organized the conference #bcsm
drattai
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before we get to the statements, would be curious if any of the group have participated in developing guidelines, consensus statements #bcsm
stales
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RT @DrAttai the @asbrs consensus conf brought together national & international experts - @FionaMacNeill1 from the UK participated #bcsm
garmischgirl
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Hello from Bend, OR. DX 4/2012 IDC IIA TNBC PR+ G3 0/6 nodes. Good for today. #bcsm
stales
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@garmischgirl hi there! #bcsm
denniskeim
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@itsthebunk Good thoughts to you, Liza! #bcsm
drattai
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I hope that more organizations actively seek out patients to participate in their statement / guideline development #bcsm
stales
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RT @DrAttai before we get to statements, would be curious if anyone has participated in developing guidelines consensus statements #bcsm
thecancergeek
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@DrAttai I have never, but I am very curious about how the shared manuscript writing worked once you all met & decided on the content #bcsm
jamienholloway
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THIS. RT @DrAttai: I hope that more organizations actively seek out patients to participate in their statement / guideline development #bcsm
stales
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#hcsm RT @DrAttai I hope that more organizations actively seek out patients to participate in their statement / guideline development #bcsm
drreginahampton
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RT @DrAttai: I hope that more organizations actively seek out patients to participate in their statement / guideline development #bcsm
drattai
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the goal of the statements was to present a framework for discussion among patients and MDs, not to set practice mandate #bcsm
doctorkarpoff
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RT @DrAttai: the goal of the statements was to present a framework for discussion among patients and MDs, not to set practice mandate #bcsm
bethlgainer
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@DrAttai I haven't ever participated, wonder about how patients got involved. #bcsm
itsthebunk
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RT @denniskeim: @itsthebunk Good thoughts to you, Liza! #bcsm
itsthebunk
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@denniskeim Thank you, Dennis! :-) #bcsm
doctorkarpoff
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At the end of the day, patient makes the choices: have to be INFORMED choices #bcsm
jamienholloway
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@stales @DrAttai I was part of an ASCO guidelines panel on treatment of early breast cancer https://t.co/BUfkHJE6qY #bcsm
drkristenwells
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RT @corrie_painter: Dear 725 #MBCproject pts who have sent in saliva kits, THANK YOU! It may be spit to some, but it's a wealth of knowledge to come to us #BCSM
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @jamienholloway: @stales @DrAttai I was part of an ASCO guidelines panel on treatment of early breast cancer https://t.co/BUfkHJE6qY #bcsm
garmischgirl
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LX. I go other way - error on side of under treatment. Modern medicine scares me as it is today. #bcsm
shanna_marzilli
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Yes! Patient perspective so important and often ignored. #bcsm https://t.co/bb2seiwsZv
drattai
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@jamienholloway @stales fabulous - how did you find the experience? A positive one I hope #bcsm
bethlgainer
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RT @Shanna_Marzilli Yes! Patient perspective so important and often ignored. #bcsm https://t.co/d4SQrENmdL
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @Shanna_Marzilli Yes! Patient perspective so important and often ignored. #bcsm https://t.co/YIW0mxUbMo
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
yes. RT @doctorkarpoff At the end of the day, patient makes the choices: have to be INFORMED choices #bcsm
drreginahampton
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It's interesting how providers can take guidelines as hard rules. Can be confusing for patients. #bcsm
stales
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RT @DrAttai the goal of the statements was to present a framework for discussion among patients and MDs, not to set practice mandate #bcsm
drattai
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@Bethlgainer sometimes right place / right time. Joining organizations w/pt membership category is one way to get foot in the door #bcsm
drattai
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@Bethlgainer also many advocacy organizations can help #bcsm
stales
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yes it can RT @DrReginaHampton It's interesting how providers can take guidelines as hard rules. Can be confusing for patients. #bcsm
bethlgainer
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RT @DrReginaHampton It's interesting how providers can take guidelines as hard rules. Can be confusing for patients. #bcsm
jamienholloway
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@DrAttai @stales It was a good experience- my opinion was solicited and respected. #bcsm
jpete008
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Patient-centered medicine must ensure patient is well-informed of pros and cons. #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@DrAttai Good to know. Thanks! #bcsm
drchristinemay
https://pbs.twimg.com/profile_images/629096762649636864/bo21Jfge_normal.jpg
Joining late. Sorry! #bcsm
thecancergeek
https://pbs.twimg.com/profile_images/430641398031740928/Edjlb7tB_normal.jpeg
@drattai Yes many authors is why I wondered about the logistics of busy surgeons doing this. #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
@DrAttai I am pushing hard for the international ibc consortium to address surgery needs for ibc. It is a different ball game. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@jamienholloway @stales very glad to hear that #bcsm
harriseve
https://pbs.twimg.com/profile_images/597587858208108544/lciZB9-U_normal.jpg
Should average-risk women remove a healthy breast because their other one has a tumor? #bcsm https://t.co/whr1ApBJgW
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@thecancergeek all committed to making this happen - nothing out there like it #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@garmischgirl lumpectomy shouldn't be considered under treatment - perfectly appropriate for early stage BC #bcsm
harriseve
https://pbs.twimg.com/profile_images/597587858208108544/lciZB9-U_normal.jpg
Yes! RT @DrAttai: I hope that more organizations actively seek out patients to participate in their statement / guideline development #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @DrAttai: @garmischgirl lumpectomy shouldn't be considered under treatment - perfectly appropriate for early stage BC #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
T1 - as a patient - what do you think of the national trend for increasing mastectomy rates, esp removal of non-cancer breast? #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
Lumpectomy vs mastectomy is intertwined in this. #bcsm
thecancergeek
https://pbs.twimg.com/profile_images/430641398031740928/Edjlb7tB_normal.jpeg
@TalkIBC did you see IBC mentioned in the 1st paper? IBC=example of when CPM shld be discouraged due 2 potential of delaying rads :) #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @jamienholloway: @DrAttai @stales It was a good experience- my opinion was solicited and respected. #bcsm
drchristinemay
https://pbs.twimg.com/profile_images/629096762649636864/bo21Jfge_normal.jpg
So incredibly important! #bcsm https://t.co/YxRCkFxdAv
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@thecancergeek @TalkIBC yes we tried to cover all scenarios! #bcsm
drreginahampton
https://pbs.twimg.com/profile_images/2666733185/59d365f5e9b338bdbfc045675289cc27_normal.jpeg
@DrAttai @garmischgirl Lumpectomy is a great, well proven option #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
@DrAttai both my breast, gone. both had cancer. so no decision for me but I do think there is an false sense of security. #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
@jamienholloway @stales @DrAttai I was part of HER2 testing and Post Mast Radiation (PMRT) soon to be published- ASCO Guidelines #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @paspears88: @jamienholloway @stales @DrAttai I was part of HER2 testing and Post Mast Radiation (PMRT) soon to be published- ASCO Guidelines #bcsm
petltemisses
https://pbs.twimg.com/profile_images/763005133148028928/GpWkO65F_normal.jpg
RT @DrAttai: and none of it would have happened without the incredible cat-herding skills of @DrJudyBoughey who organized the conference #bcsm
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
T1: I'm guessing improved plastic surgery options have made CPM a better choice than in the past. #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
I so often hear the words, I just wanted to do everything I can. Very hard to argue, but statistics don't prove that. #bcsm
thecancergeek
https://pbs.twimg.com/profile_images/430641398031740928/Edjlb7tB_normal.jpeg
@DrAttai its great to have IBC mentioned and y'all agree with the IBC expert consensus ;) #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
T1: As patient, my job is to do all I can to save my life. Initially did lumpectomy and rads. Wanted to conserve breast. #bcsm
annsurgoncol
https://pbs.twimg.com/profile_images/446647424983900161/o1qswKmi_normal.jpeg
RT @DrAttai: the full statements part 1: https://t.co/4TCUGnLG6G part 2: https://t.co/y2Jp83eKwU #bcsm - open access via @AnnSurgOncol
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@paspears88 @jamienholloway @stales wonderful! #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
@thecancergeek yes, very important point but so lost on pts. we have to educate more. #bcsm
annsurgoncol
https://pbs.twimg.com/profile_images/446647424983900161/o1qswKmi_normal.jpeg
RT @DrAttai: #bcsm https://t.co/hsl9ojn33Z
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
T1 - as a patient - what do you think of the national trend for increasing mastectomy rates, esp removal of non-cancer breast? #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @Bethlgainer: T1: As patient, my job is to do all I can to save my life. Initially did lumpectomy and rads. Wanted to conserve breast. #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
T1: But 5 yrs later had a real scare. Though mass was benign, I made the sound decision to remove both breasts. #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
For tonight - @jamienholloway I also had CPM - but no reconstruction - #bcsm
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
@DrAttai #bcsm yes but after I ended treatment early gyno recommended I pursue MX. #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @paspears88 For tonight - @jamienholloway I also had CPM - but no reconstruction - #bcsm
spannerinme
https://pbs.twimg.com/profile_images/726297191233376256/jyvDHGZC_normal.jpg
RT @DrAttai: Discussing @ASBrS consensus statement on CPM, published last week in @AnnSurgOncol - 2 parts, linked in blog https://t.co/Eo6YUuaJLi #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
T1 Complicated. Interplay of science, fear, practicality, body image conditioning. All need to be addressed. I chose BCS. #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
T1: Had DIEP flap recon; it is a complicated decision. #bcsm
drreginahampton
https://pbs.twimg.com/profile_images/2666733185/59d365f5e9b338bdbfc045675289cc27_normal.jpeg
@jamienholloway Agree.....plastic surgeons have made mastectomy more "palatable", especially for younger women. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@Bethlgainer I think many pts change their preference if cancer recurs. Doesn't mean 1st decision was the wrong one tho #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @DrAttai: @Bethlgainer I think many pts change their preference if cancer recurs. Doesn't mean 1st decision was the wrong one tho #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
never an easy decision RT @Bethlgainer: T1: Had DIEP flap recon; it is a complicated decision. #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
At the end of treatment, someone w/ lmpctmy has equal OS as double mast. If one is CPM. #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@DrAttai I agree that lumpectomy and rad was right decision initially. I was a breast conservationist. #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
T1 - probably not just one thing - many differences - recon, attitude, patient preference, #bcsm
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
T1: I hate the idea that CPM is chosen only by the uninformed. To me, CPM was abt not having the anxiety of mammograms and symmetry #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@Jpete008 exactly. Overall survival no different lumpectomy vs mastectomy. CPM adds nothing to survival but may be other reasons to do #bcsm
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
LX with no rads (4 days) or chemo (1xA/C) - less is more for me for now. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
RT @jamienholloway: T1: I hate the idea that CPM is chosen only by the uninformed. To me, CPM was abt not having the anxiety of mammograms and symmetry #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T1: Was my hardest decision. All the information I had said don't do two, statistically. Less surgery is good surgery was my thinking. #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
i mainly deal w pts dx tn ibc or ibc. many young & get double mx. Many drs like it. Recon easier. mixed message. #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
@DrAttai @Jpete008 Why clear understanding of pros/cons necessary. #bcsm
dcbonadies
https://pbs.twimg.com/profile_images/507206811707899905/siXU8z0E_normal.jpeg
RT @karenBRCAMTL: My newest #breastcancer project more to come #mastectomy #brca #hereditarycancernews #genetictesting #bcsm https://t.co/ptxZdJK1VY
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
One of our goals with the consensus statement - provide a framework for discussion. We recognize it's not only fear driving this #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
T1: Bilateral mastectomy was an informed choice for me. Dense, dense, dense br. tissue. #bcsm
drreginahampton
https://pbs.twimg.com/profile_images/2666733185/59d365f5e9b338bdbfc045675289cc27_normal.jpeg
@jamienholloway I hear this from many of my patients too #bcsm
dr_dana
https://pbs.twimg.com/profile_images/579082634212552704/9T6OXoy7_normal.jpeg
I find that pts who've known someone who had a new primary in oposite br or local recurrence after BCT opt for more aggressive surgery #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
@Bethlgainer informed choice for me too. #bcsm
amigoquimio
https://pbs.twimg.com/profile_images/432591428192305152/Q0HKu2EG_normal.jpeg
RT @JCO_ASCO: Could obesity be a risk factor for anthracycline- & trastuzumab-induced cardiotoxicity in breast cancer? https://t.co/Mud2wMpoKl #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
RT @stales @Bethlgainer informed choice for me too. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@Dr_Dana agree. Can't discount impact of friend / family experience. We all make decisions based on our personal experiences #bcsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
@Elizabe85727641 thank you :) #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @DrAttai 1 of our goals w/ consensus statement - provide a framework for discussion. Recognize it's not only fear driving this #bcsm
gvglaw
https://pbs.twimg.com/profile_images/744944697257267201/V9xa-fze_normal.jpg
T1: plastic surgeon tried to convince me "it's a free boob job and maybe tummy tuck if you do the flap." Ugh. #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
@Dr_Dana and that happens a lot in ibc, so that makes it harder for me to help them make an informed decision, not one of antidotes. #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
T1: Didn't want to consider doing chemo a second time. That factored into my thinking process but wasn't the decider obviously. #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@gvglaw Ugh is right. Ridiculous. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
I'm glad to see so many who choose bilat mastectomy hear it was an informed decision. Incredibly important #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
Bad form! RT @gvglaw: T1: plastic surgeon tried to convince me "it's a free boob job and maybe tummy tuck if you do the flap." Ugh. #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
@gvglaw did you slap him? #bcsm
shanna_marzilli
https://pbs.twimg.com/profile_images/826841872358338561/7o9agpc4_normal.jpg
@jamienholloway yes x100 #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@gvglaw UGH is right. Cannot compare to to cosmetic procedures #bcsm
gvglaw
https://pbs.twimg.com/profile_images/744944697257267201/V9xa-fze_normal.jpg
FYI - bilateral mastectomy was very necessary for me and I do not regret that decision. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@TalkIBC @gvglaw ha ha! #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
@Dr_Dana exactly... many of my friend have had new cancer in opp breast - very scary and emotionally really bad #bcsm
aquababie
https://pbs.twimg.com/profile_images/843572873054838784/X5nJl6TQ_normal.jpg
@DrAttai I opted to have both removed, even though only 1 had cancer. I’m ok with my decision. #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
@gvglaw me too. and I am a double wide flattie. no regrets. #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
Fear has to be addressed to, my surgeon helped address mine over four visits. Cancelled Dbl mast, lumpectomy instead. #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @Jpete008 Fear has to be addressed to, my surgeon helped address mine over 4 visits. Cancelled Dbl mast, lumpectomy instead. #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
@gvglaw good. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@Jpete008 fear is cited in many studies as reason for increasing CPM. MD job is to explain facts, ask about misconceptions, etc #bcsm
harriseve
https://pbs.twimg.com/profile_images/597587858208108544/lciZB9-U_normal.jpg
My life’s dream=to reduce familiarity bias! #evidencebasedmedicine #bcsm https://t.co/v216BMqEzH
aquababie
https://pbs.twimg.com/profile_images/843572873054838784/X5nJl6TQ_normal.jpg
@Bethlgainer Informed choice for me too. #bcsm
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
Is there any truth to micro environment in breast offering any protection or just fear of my own tissue? I hate model body is enemy. #bcsm
a4breastcancer
https://pbs.twimg.com/profile_images/800797951954038784/_oPIkfbE_normal.jpg
Important surgeons lay out options/had lump- local recur Mast w recon 8 surgeries later-now have painful intecostal nerve damage. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@Jpete008 but puts and many MDs realize - it's not just fear - there are some practical concerns #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
@Jpete008 My surgeon was still giving me the option the morning of surgery. I was firm in my decision by then. #bcsm
gvglaw
https://pbs.twimg.com/profile_images/744944697257267201/V9xa-fze_normal.jpg
🤗 Having my breast implants removed fall 2017. Hate them and makes my Lymphedema crazy. #bcsm https://t.co/OA5gzl2sXg
glamomommy
https://pbs.twimg.com/profile_images/796543982985691136/z6oFrf_3_normal.jpg
T1 Am 3 wks post-bilateral mastectomy w/Diep Flap reconstruction. Age 43, atypical cells present in both breasts. Happy w/my decision. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@a4breastcancer I know you've had a lot of issues. Important that potential complications be discussed. Sometimes glossed over #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
I had neoAdj - time to decide - mom Dx, small breast, big tumor, big nodes, something on mmg to 'watch' in the 'good' AAA breast. #bcsm
glamomommy
https://pbs.twimg.com/profile_images/796543982985691136/z6oFrf_3_normal.jpg
@jamienholloway Same for me! #bcsm
drreginahampton
https://pbs.twimg.com/profile_images/2666733185/59d365f5e9b338bdbfc045675289cc27_normal.jpeg
I slow down the process by addressing the cancerous side 1st, complete adjuvant therapy, then re-vist CPM months later #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
@DrAttai @Jpete008 I have ILC, still choose to keep nipples as long as I could. Big for me. #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
I also think it matters if surgeon is cancer onco and not plastic surgeon. Thoughts? I think the focus is different. Thoughts? #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@DrAttai @Jpete008 Lots of practical concerns for sure: mammograms totally ineffective. One Dr. said he couldn't see #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
good question RT @TalkIBC I also think it matters if surgeon is cancer onco and not plastic surgeon. Thoughts? focus is different. #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@DrAttai @Jpete008 what was even going on in my breasts post cancer. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
T2 - in reading through the statement highlights, are there any points that stand out good or bad? https://t.co/Eo6YUtT8TK #bcsm
cardiooncology
https://pbs.twimg.com/profile_images/623893110121086976/DCuskb5H_normal.jpg
RT @JCO_ASCO: Could obesity be a risk factor for anthracycline- & trastuzumab-induced cardiotoxicity in breast cancer? https://t.co/Mud2wMpoKl #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
@Bethlgainer @DrAttai @Jpete008 Mine was not found w/ mammo, pathology from DCIS lumpectomy. #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
Re symmetry, curious abt physical (weight differential, balance, etc) vs appearance (clothing); which tends to have more impact? #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
RT @TalkIBC: I also think it matters if surgeon is cancer onco and not plastic surgeon. Thoughts? I think the focus is different. Thoughts? #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
@DrAttai @Jpete008 fear is big, but there are many fears... fear of cancer in other breast even if treatable is real fear #bcsm
thecancergeek
https://pbs.twimg.com/profile_images/430641398031740928/Edjlb7tB_normal.jpeg
@TalkIBC I thought the section on UK rates was interesting. There, surgeons learn oncoplastic techniques during training->? less CPM #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@TalkIBC yes - sometimes my plastic surgeons push CPM for symmetry. But nothing is guaranteed! Could be the CPM side w/ complications #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
T2: I liked that there was an attempt to address the patient perspective. That's good. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@thecancergeek @TalkIBC yes. But more US surgeons incorporating oncoplastics, teaming up with plastic surgeon for breast conservation #bcsm
talkibc
https://pbs.twimg.com/profile_images/567768906551410688/2nQXGPT4_normal.png
@DrAttai glad you mentioned BRCA. Gives a place to give education about risk. #bcsm
thecancergeek
https://pbs.twimg.com/profile_images/430641398031740928/Edjlb7tB_normal.jpeg
@DrAttai, do you think surgical training is changing in the US to mirror the UK more? #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
RT @DrReginaHampton: I slow down the process by addressing the cancerous side 1st, complete adjuvant therapy, then re-vist CPM months later #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@thecancergeek @DrAttai yes - see last tweet... #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@DrAttai @TalkIBC I still don't have symmetry. But after re-excision and lumpectomy 5 yrs after dx, breast very deformed #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
Many severe complications come from recon, very scary. #bcsm
drattai
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RT @Bethlgainer: T2: I liked that there was an attempt to address the patient perspective. That's good. #bcsm
glamomommy
https://pbs.twimg.com/profile_images/796543982985691136/z6oFrf_3_normal.jpg
Atypical cells had only been detected in left. Chose to have both removed. Post mast. pathology showed they were in right, undetected. #bcsm
a4breastcancer
https://pbs.twimg.com/profile_images/800797951954038784/_oPIkfbE_normal.jpg
My surgeon was very famous. back in 2007 he dictated.. I was not involved with shared decision making- caused surgical complications #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
@Bethlgainer Patient preference was my favorite part too, but we need more data #bcsm
cancerbttb
https://pbs.twimg.com/profile_images/624266832782868480/Yy9Ihn0E_normal.jpg
Happy to be doing you all this evening! #TNBC survivor, had #exchangesurgery 3 weeks ago #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@Elissa_Malcohn different for everyone. Some just want clothes to look decent. Some want to look like when they were 20... #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
@CancerBTTB Hope all is going well! #bcsm
drreginahampton
https://pbs.twimg.com/profile_images/2666733185/59d365f5e9b338bdbfc045675289cc27_normal.jpeg
Patients need time to process all the vast information. Don't be afraid schedule another visit and get questions answered #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @DrAttai: @thecancergeek @TalkIBC yes. But more US surgeons incorporating oncoplastics, teaming up with plastic surgeon for breast conservation #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@GlamOMommy Yes, I also had atypical cells -- in the "healthy" left breast. #bcsm
jpete008
https://pbs.twimg.com/profile_images/839685623124492288/FOELM1TN_normal.jpg
@paspears88 @DrAttai @Jpete008 But it is just fear, not supported. I have every acronym available b/n both breast. Statistics. #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@Elissa_Malcohn I do find most patients pretty realistic about results / expectations #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @DrAttai: T2 - in reading through the statement highlights, are there any points that stand out good or bad? https://t.co/Eo6YUtT8TK #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
RT @DrReginaHampton: Patients need time to process all the vast information. Don't be afraid schedule another visit and get questions answered #bcsm
cancerbttb
https://pbs.twimg.com/profile_images/624266832782868480/Yy9Ihn0E_normal.jpg
RT @denniskeim: @CancerBTTB Hope all is going well! #bcsm
a4breastcancer
https://pbs.twimg.com/profile_images/800797951954038784/_oPIkfbE_normal.jpg
YES! Scary and disappointing! RT @Jpete008: Many severe complications come from recon, very scary. #bcsm
harriseve
https://pbs.twimg.com/profile_images/597587858208108544/lciZB9-U_normal.jpg
Unsure what u mean..all fear is real but not all is rational. #bcsm https://t.co/hWMUvvMIB1
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
The number of surgeries in recon was interesting - my support group would concur - no one got by with 1 #bcsm
tiffanyandlupus
https://pbs.twimg.com/profile_images/806132390875856896/iG9PwnO3_normal.jpg
RT @DrReginaHampton: Patients need time to process all the vast information. Don't be afraid schedule another visit and get questions answered #bcsm
glamomommy
https://pbs.twimg.com/profile_images/796543982985691136/z6oFrf_3_normal.jpg
@Bethlgainer It definitely made me feel I made right decision. Why take a chance? #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
yes. Big surgery, many potential complications RT @Jpete008: Many severe complications come from recon, very scary. #bcsm
lgotl1230
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Sorry joining late. Wondering if this will be one of those always evolving discussions? Today is one way, tomorrow who knows... #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@paspears88 "one and done" is not common - many patients surprised by that #bcsm
talkibc
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@thecancergeek @DrAttai AA, do you think it is, considering what we see in the US vs UK ibc support groups? #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
@DrAttai If appearance, wonder if new mfg tech that makes something like https://t.co/GBH2YQQC5W more standard wd change decisions 1/2 #bcsm
dr_dana
https://pbs.twimg.com/profile_images/579082634212552704/9T6OXoy7_normal.jpeg
Very large breasts can be a problem.If need a mastectomy on one side,leaves 4-6 lbs on other side.Many opt for CPM or breast reduction #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@GlamOMommy I totally agree. Made a sound decision for me at that time in my life. #bcsm
a4breastcancer
https://pbs.twimg.com/profile_images/800797951954038784/_oPIkfbE_normal.jpg
YES! RT @paspears88: The number of surgeries in recon was interesting - my support group would concur - no one got by with 1 #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@lgotl1230 yes - consensus statements are "snapshots in time" - addressing current state and thoughts. #bcsm
lgotl1230
https://pbs.twimg.com/profile_images/668813417176698881/rB8M1R2n_normal.jpg
Also, did cpm 2003, no reconstruction. #bcsm
drreginahampton
https://pbs.twimg.com/profile_images/2666733185/59d365f5e9b338bdbfc045675289cc27_normal.jpeg
@paspears88 Yes, usually multiple procedures #bcsm
drattai
https://pbs.twimg.com/profile_images/679442428667891712/qlFbt3hK_normal.jpg
@Dr_Dana working more w/my plastic surgeons for bilateral reduction in those patients - great option. I know you're doing yourself #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @Dr_Dana: Very large breasts can be a problem.If need a mastectomy on one side,leaves 4-6 lbs on other side.Many opt for CPM or breast reduction #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
@DrAttai More 2 the point, would change in societal views help impact fashion help impact decisions? More acceptance, etc. #bcsm
glamomommy
https://pbs.twimg.com/profile_images/796543982985691136/z6oFrf_3_normal.jpg
Huge shoutout to Dr. Fischer and Dr. Ledoux of @DiepFlapBreast for their wonderful care. Recovery is going better than I expected. #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @lgotl1230 Also, did cpm 2003, no reconstruction. #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
@lgotl1230 no recon for me either #bcsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @DrAttai @lgotl1230 yes - consensus statements are "snapshots in time" - addressing current state and thoughts. #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
@harriseve Need to be able to talk about it in a way that fears can be addressed - every pt is different #bcsm
denniskeim
https://pbs.twimg.com/profile_images/485909281292562432/TJgndxCa_normal.jpeg
Since male breast cancer is rare, I did a current scientific lit. review & sent four key articles to oncologist before visit. Helped. #bcsm
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
@denniskeim Good for you! #bcsm
doctorkarpoff
https://pbs.twimg.com/profile_images/462256461435793408/4VilR0x2_normal.jpeg
RT @denniskeim: Since male breast cancer is rare, I did a current scientific lit. review & sent four key articles to oncologist before visit. Helped. #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@paspears88 @harriseve But fear is part of it all, isn't it? You go to a dr and s/he tells you that you have cancer. #bcsm
paspears88
https://pbs.twimg.com/profile_images/473657481466761216/ReZsLpdf_normal.jpeg
@stales @lgotl1230 no recon for me - even and no regrets #bcsm
elissa_malcohn
https://pbs.twimg.com/profile_images/2189266156/patchworkmajoritybuttonhand2_normal.jpg
Awesome! MT @denniskeim: I did a current scientific lit. review & sent four key articles to oncologist before visit. Helped. #bcsm
a4breastcancer
https://pbs.twimg.com/profile_images/800797951954038784/_oPIkfbE_normal.jpg
@Dr_Dana and @Drattai Great you are working more w/ plastic surgeons for bilateral reduction in patients with large breasts. #bcsm
bethlgainer
https://pbs.twimg.com/profile_images/750346713362227200/OWry4bgV_normal.jpg
@paspears88 @harriseve That is a major life changing moment. Fear from then on.... #bcsm