#hpm transcript

Healthcare Social Media Transcript

From: Wed Aug 20 18:00:00 PDT 2014
To: Wed Aug 20 19:15:00 PDT 2014

What is #hpm? Who were the influencers during this time period? #hpm analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

pallimed
https://pbs.twimg.com/profile_images/773598053186015233/XE_OZT_L_normal.jpg
RT @pamressler: Lots of tweets coming...I will be tweeting in the #hpm Tweetchat for the next 60 min
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
RT @pamressler: Lots of tweets coming...I will be tweeting in the #hpm Tweetchat for the next 60 min
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
Welcome to #HPM everyone! Let's get started with intros.
pallimed
https://pbs.twimg.com/profile_images/773598053186015233/XE_OZT_L_normal.jpg
RT @pamressler: Here's a link that hopefully works :-) http://t.co/oZf43De4Fe #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @pamressler: Welcome to #HPM everyone! Let's get started with intros.
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
@pamressler I may be a few minutes late, but looking forward to #hpm chat this evening!
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
For those who don't know me, I am Pam Ressler from Boston, nurse researcher, faculty member at Tufts in Pain Research, Ed, and Policy #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
Hi all - Natrice from Ontario retired Psw/caregiver listening in:) #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
RT @pamressler: Welcome to #HPM everyone! Let's get started with intros.
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @jfclearywisc: At life's end, we should respect people's choices - http://t.co/x6fQOU8Kdp From the Age, Australia! #Hpm #hpmglobal
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @pamressler: Welcome to #HPM everyone! Let's get started with intros.
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@pamressler Hi Pam joining in from Manila! Gia here #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @BelindaSetters: Are PTs who are kept alive w/ full vent/pressors support suffering? Active debate among family today in ICU. #hpm #ethics
granitedoc
https://pbs.twimg.com/profile_images/800774443589046272/pVcoXPdj_normal.jpg
Hi @pamressler! I'm Meredith, academic #palliative care MD at @DartmouthHitch in NH. Looking forward to #hpm chat!
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @pamressler: For those who don't know me, I am Pam Ressler from Boston, nurse researcher, faculty member at Tufts in Pain Research, Ed, and Policy #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@giasison Welcome Gia #hpm
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@pamressler Hi Pam, Jim Cleary @uwhealth Med Onc & #palliativecare joining #hpm for the next hr
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@GraniteDoc Hi Meredith! #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@jfclearywisc Great to see you tonight, Jim #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
Hey tweeps! Tonight's deluge o' tweets for the next hour are from the #HPM chat. @pamressler moderating!
ndccharity
https://pbs.twimg.com/profile_images/378800000229471917/12d08e7a2fea1cea3c0aefc492bf8504_normal.png
Study: Impact & future potential of new Digital Comms & #SocialMedia in Hospices @ehospicenews http://t.co/36klowZLDr @hospicedoctor #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
Renee Berry in Mountain View, CA. Work in tech & passionate advocate for hospice & palliative medicine, co-founded #hpm chat
supportmatters
https://pbs.twimg.com/profile_images/734531364490346496/dariydUt_normal.jpg
RT @CAPCpalliative: #Palliative Care & Depression: Clinical Challenges, CCCC webinar tomorrow! http://t.co/I75dR7QVOy #hpm @coalitionCCC
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@rfberry Hi Renee thanks for having me host tonight :-) #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
Hi all! I'm Lizzy Miles a hospice social worker in Columbus Ohio. Also known for my #DeathCafe activities #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
We will get started with our first topic in just a couple of minutes #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@pamressler @NatriceR Good evening all. Patient advocate/Health Educator Sanford chiming in from Austin. Finishing up #mhsm joining #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@LizzyMiles_MSW Welcome Lizzzy #hpm
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@rfberry I thought it was Renée Berry? LOL #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
< digital strategist, keen on the intersection of health & faith, online community building, panel-mate w/@PamRessler at #MedXsm #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@JeamesSailor Welcome! #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
RT @pamressler: Lots of tweets coming...I will be tweeting in the #hpm Tweetchat for the next 60 min
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@giasison Hi Gia from Manila!! #hpm #Hpmglobal
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@MeredithGould Hey my partner in crime :-) thanks for joining in #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
I have missed you guys! I'm staying up late tonight just for this! :) #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
Great to see so many Twitter friends. Been too long since I've attending this chat. Love hospice work. Sacred. #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@NatriceR Good evening Natrice! Great to see you again as usual! #hpm
granitedoc
https://pbs.twimg.com/profile_images/800774443589046272/pVcoXPdj_normal.jpg
@MeredithGould Look out, two Merediths in the house! #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
Rabid lover of #palliative end of life topics and social media. How fortuitious for me that they're topics tonite #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@GraniteDoc Let's see if we can get a third! #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@jfclearywisc Great to see you Jim! #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @KathyKastner: Rabid lover of #palliative end of life topics and social media. How fortuitious for me that they're topics tonite #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
Where is @christiansinclair? #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@KathyKastner Responded to your comment on @PamRessler's post. We agree. Again. Of course! #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
To preface a bit of what our discussion, @MeredithGould, @Colleen_Young and @SusannahFox will be discussion #SoMe at #Medx next month #hpm
glf64
https://pbs.twimg.com/profile_images/509390677768404992/vP7ht_A6_normal.jpeg
Okay, now another twitter chat I'm interested in #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
So good that we agree. Now if I could just get that 'look' you have with your hair...@MeredithGould @PamRessler #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@KathyKastner Hello kathy...great to see you joining again! I look forward to your insightful, juicy comments! #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@KathyKastner Hi Kathy thanks for your comments today #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
@jfclearywisc haha that is actually true. I don't have the patience to add the accent via mobile ;) #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
He, Annette here in Toronto. Health blogger and patient #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
So here we go...T1 coming up #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
Very generous of you considering comment...;-> RT @pamressler @KathyKastner Hi Kathy thanks for your comments today #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@JeamesSailor Great to see you Sanford #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
Tell me, which tool is better for Tweet Chats - Tweetchat or tweetdeck or something else? #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@KathyKastner What ARE you talking about? The comment was fabulous! #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
T1 Do we have different standards for use of #SoMe for those at #eol than those who are in active treatment of disease? #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
Yay! Canadian contingent, eh! RT @anetto @NatriceR #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@LizzyMiles_MSW I use tweetchat AND tweetdeck, but I also have 2 monitors going. #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@giasison Good morning! good evening Dr. Gia! Great having you in the boat with all of us! #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
RT @pamressler: T1 Do we have different standards for use of #SoMe for those at #eol than those who are in active treatment of disease? #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @pamressler: T1 Do we have different standards for use of #SoMe for those at #eol than those who are in active treatment of disease? #hpm
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@LizzyMiles_MSW @christiansinclair Tripit indicates he is in Detroit tonight! #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@NatriceR great to see you tonight #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@JeamesSailor Likewise Sanford! #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @pamressler: T1 Do we have different standards for use of #SoMe for those at #eol than those who are in active treatment of disease? #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
T1 Who is the "we" in this instance? #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@anetto Hi Annette #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
Hi all. Joining #hpm a bit late with slow internet.
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
@jfclearywisc Ha ha thanks. I spelled @ctsinclair wrong anyways so we were randomly calling out someone else #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
RT @pamressler: T1 Do we have different standards for use of #SoMe for those at #eol than those who are in active treatment of disease? #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
@pamressler thanks very much - listening intently! #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
Sanford, I am ablush with your delightful descriptiont @JeamesSailor #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
RT @pamressler: To preface a bit of what our discussion, @MeredithGould, @Colleen_Young and @SusannahFox will be discussion #SoMe at #Medx next month #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
RT @pamressler: T1 Do we have different standards for use of #SoMe for those at #eol than those who are in active treatment of disease? #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
T1 I respect everyone's right to tweet what they want. If not interested it's easy not to read #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@pamressler A1.The use of #SoMe has offered new important strategies to those in active tx. Some HCP maybe slow to implement this #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@colleen_young Thx for joining in while on holiday! another partner for #Medx #medsm #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
Will be at chat in a minute just got home from airport! #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @colleen_young: Hi all. Joining #hpm a bit late with slow internet.
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
Awriiigh - we have Western Canada represented by an Easterner @colleen_young #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
@colleen_young hi Colleen we Are all having issues with internet & twitter tonite it seems #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @anetto: T1 I respect everyone's right to tweet what they want. If not interested it's easy not to read #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
T1 IMO I find no difference just a common denominator of rendering compassionate care whether in treatment or EOL. #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
RT @giasison: T1 IMO I find no difference just a common denominator of rendering compassionate care whether in treatment or EOL. #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
@pamressler Hi Pam, Lovely to see you in person (as it were) #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@ctsinclair See you Christian #hpm
glf64
https://pbs.twimg.com/profile_images/509390677768404992/vP7ht_A6_normal.jpeg
T1: I hope not. I participate in #bcsm chat and I've been NED for 5 years #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @giasison: T1 IMO I find no difference just a common denominator of rendering compassionate care whether in treatment or EOL. #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
@pamressler super interesting Q, I think it's less about different standards & more about different cultural values in communities #hpm
zebrafinch
https://pbs.twimg.com/profile_images/641021662180208641/HKrxadh__normal.png
RT @colleen_young: Tonight @pamressler asks thought-provoking questions on #hpm chat at 9pm ET. Topics -> http://t.co/taVvE2OiaC #medx #medxsm #hcsmca
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@LizzyMiles_MSW I use tweetdeck. Can keep an eye on other feeds that may not the #Hpm or #hpmglobal hashtag
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
RT @rfberry: @pamressler super interesting Q, I think it's less about different standards & more about different cultural values in communities #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@giasison A1. I am not convinced yet there are advantages of #SoMe for #EOL at this point. More personal care is warranted here #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@rfberry Great point Renee @pamressler #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
@GLF64 #medXsm I take NED as No Expiry Date. It must have another meaning #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @rfberry: @pamressler super interesting Q, I think it's less about different standards & more about different cultural values in communities #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@rfberry Great point. Too often we ignore the socio-cultural nuances. #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
T1 Also different assumptions & understanding across community values, many opportunities for peer to peer listening/learning/insight #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
@jfclearywisc @LizzyMiles_MSW I have recently tried nurph and liked it quite a lot. http://t.co/31fSHV09GU #HPM
bacigalupe
https://pbs.twimg.com/profile_images/709076614018109440/0XU2Yhyc_normal.jpg
Oh @pamressler 2 preface a bit of what our discussion @MeredithGould @Colleen_Young and @SusannahFox will be discussion #SoMe at #Medx #hpm
granitedoc
https://pbs.twimg.com/profile_images/800774443589046272/pVcoXPdj_normal.jpg
T1 I think when in active tx, "safer" to talk about dz; when approaching #EOL more discomfort w/ subject and so viewed differently #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @pamressler: T1 Do we have different standards for use of #SoMe for those at #eol than those who are in active treatment of disease? #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@JeamesSailor That's another perspective too Sanford. More sensitivity challenges specially in EOL #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
T1 Socio-cultural stigma to listening and engaging when there is not the warrior image portrayed? #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
#eol can be very isolating, for patient as well as family caregivers. Social web can help connect. #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
#HPM I'm just going to RT everything @rfberry tweets.
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
(Late intro) - Christian Sinclair, board certified #hospice and #palliative care doc in Kansas City, editor @pallimed, fan of chatting #HPM
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @MeredithGould: #HPM I'm just going to RT everything @rfberry tweets.
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
+1 RT @colleen_young #eol can be very isolating, for patient as well as family caregivers. Social web can help connect. #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
T1 If Twitter is the place where you meet and connect I don't think a terminal diagnosis should separate you from life too soon #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
@MeredithGould thanks! Just thinking of the amount of assumptions/misunderstandings (offline) around #eol #hpm often see these online too
zebrafinch
https://pbs.twimg.com/profile_images/641021662180208641/HKrxadh__normal.png
#HPM = Hospice and Palliative Medicine chat. "...cultural stigma, fear, courage, vulnerability and ethics." It's complex.
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@ctsinclair Hi Christian thanks for including me in #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @MeredithGould: #HPM I'm just going to RT everything @rfberry tweets.
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@pamressler FWIW, the warrior image/language makes me (more) nuts.If anyone uses that as I'm dying I'll go ballistic! #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
T1 More of a gradient between active treatment/serious disease and end of life. Not a clear milepost sign (maybe in retrospect) #HPM
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
RT @MeredithGould @pamressler FWIW, the warrior image/language makes me (more) nuts.If anyone uses that as I'm dying I'll go ballistic! #hpm
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
RT @pamressler: +1 RT @colleen_young #eol can be very isolating, for patient as well as family caregivers. Social web can help connect. #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
There are many platforms for online social exchange, not just Fb and Tw. ie @VirtualHospice forums. #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@ctsinclair Great point #hpm
meredithgould
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@rfberry Because, IMO, there's precious little difference between online and face-to-face interactions/communities at this point. #HPM
bacigalupe
https://pbs.twimg.com/profile_images/709076614018109440/0XU2Yhyc_normal.jpg
RT @MeredithGould: @pamressler FWIW, the warrior image/language makes me (more) nuts.If anyone uses that as I'm dying I'll go ballistic! #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
Yes, thanks RT @colleen_young There are many platforms for online social exchange, not just Fb and Tw. ie @VirtualHospice forums. #hpm
kamiyamay
https://pbs.twimg.com/profile_images/682958553418612737/ZiFFOuvL_normal.jpg
Lurking before phone goes dead :-) CameaRN #hpm
meredithgould
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@colleen_young Visiting from vacay?? #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
MT @zebrafinch #HPM chat "...fear, courage, vulnerability and ethics." It's complex. "But w/ fun, friendly people people!" #HPM
shopshi
https://pbs.twimg.com/profile_images/628653339287400448/wWuT5bF1_normal.jpg
RT @anetto: He, Annette here in Toronto. Health blogger and patient #hpm
pamressler
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@Kamiyamay Hi...lurking is fine glad you are here #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
RT @MeredithGould: @rfberry Because, IMO, there's precious little difference between online and face-to-face interactions/communities at this point. #HPM
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@ctsinclair but when treatment goal shifts from curative to comfort care, people often self ostracize from existiing online communities #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@Kamiyamay Oh no Camea #hpm
zebrafinch
https://pbs.twimg.com/profile_images/641021662180208641/HKrxadh__normal.png
RT @ctsinclair: MT @zebrafinch #HPM chat "...fear, courage, vulnerability and ethics." It's complex. "But w/ fun, friendly people people!" #HPM
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @MeredithGould: @rfberry Because, IMO, there's precious little difference between online and face-to-face interactions/communities at this point. #HPM
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
RT @colleen_young: @ctsinclair but when treatment goal shifts from curative to comfort care, people often self ostracize from existiing online communities #hpm
drlfarrell
https://pbs.twimg.com/profile_images/634005986492084225/_erpgdzV_normal.png
T1 can be impossible to detrmine difference between active Rx +EOL care in e.g COPD CCF #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
Great way to end a day of hiking in the Rockies. RT @MeredithGould: @colleen_young Visiting from vacay?? #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
@pamressler I have a lot of empathy for people that do not connect with the warrior image, especially as they consider hospice #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
RT @colleen_young: @ctsinclair but when treatment goal shifts from curative to comfort care, people often self ostracize from existiing online communities #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@colleen_young Yes, and the switch may be difficult? #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@colleen_young Do you have empirical evidence of that or is that your gut sense? Not trolling you, just curious! #hpm
granitedoc
https://pbs.twimg.com/profile_images/800774443589046272/pVcoXPdj_normal.jpg
Yes! RT @drlfarrell: T1 can be impossible to detrmine difference between active Rx +EOL care in e.g COPD CCF #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@colleen_young @ctsinclair A good study to check on the whys #hpm
anetto
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@colleen_young If it is the choice of the patient fine, but do you think they need to self censor? #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
RT @rfberry @pamressler I have empathy for people that do not connect with the warrior image, especially as they consider hospice #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
T1 the difference may be in how people engage the broader world as they near EoL. Many people shrink their social circles, not expand #HPM
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
RT @ctsinclair: T1 the difference may be in how people engage the broader world as they near EoL. Many people shrink their social circles, not expand #HPM
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @drlfarrell: T1 can be impossible to detrmine difference between active Rx +EOL care in e.g COPD CCF #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
MT @ctsinclair T1 the difference may be in how people engage the broader world as they near EoL. #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
RT @ctsinclair: T1 the difference may be in how people engage the broader world as they near EoL. Many people shrink their social circles, not expand #HPM
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@MeredithGould not empirical unfortunately, but observed in online cancer communities #hpm
caitlinreicks
https://pbs.twimg.com/profile_images/658367729557221376/nxq83ECo_normal.jpg
MT“@NHPCO_news: #Hospice Experience of Care Survey - from RAND with support from @CMSGov #hpm http://t.co/EfkrJCUcjN via @RANDCorporation
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
Switching to T2 shortly #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
T1 I dunno I see a lot of "dying" video logs. There is a freedom of expression once it's EOL #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@ctsinclair Ok, getting it now. Right, that has been my experience w/hospice and EOL. #hpm
glf64
https://pbs.twimg.com/profile_images/509390677768404992/vP7ht_A6_normal.jpeg
@ctsinclair You are right. I think I would #hpm
etre_julie
https://pbs.twimg.com/profile_images/542714807875420160/M1Hegl8T_normal.jpeg
RT @colleen_young: There are many platforms for online social exchange, not just Fb and Tw. ie @VirtualHospice forums. #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@colleen_young I count qualitative data as super valuable! #hpm
granitedoc
https://pbs.twimg.com/profile_images/800774443589046272/pVcoXPdj_normal.jpg
@LizzyMiles_MSW i think pts may gain freedom at #eol but discussion is received differently #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
@anetto Probably very small sample size of people who have been really engaged in Twitter who have gone through serious illness->death #HPM
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @pamressler: +1 RT @colleen_young #eol can be very isolating, for patient as well as family caregivers. Social web can help connect. #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@anetto My observations, it was choice of patient. They no longer sensed shared experience. Didn't want to "bring others down" #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @LizzyMiles_MSW: T1 I dunno I see a lot of "dying" video logs. There is a freedom of expression once it's EOL #hpm
dlschermd
https://pbs.twimg.com/profile_images/724970700457533440/J-3i5SLr_normal.jpg
RT @colleen_young: @ctsinclair but when treatment goal shifts from curative to comfort care, people often self ostracize from existiing online communities #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
T2 Who determines or should determine appropriate use of #SoMe when a family member doing the posting on blogs, FB, Twitter and not pt? #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
Qualitative rules! RT @MeredithGould: @colleen_young I count qualitative data as super valuable! #hpm
rhgerard
https://pbs.twimg.com/profile_images/560971381392044032/4tLCwiiV_normal.jpeg
Hello, Robbie Gerard, Palliative Care Doc Metro DC/Maryland lurking on the couch tonight. Hello to some great tweeps! #hpm
bacigalupe
https://pbs.twimg.com/profile_images/709076614018109440/0XU2Yhyc_normal.jpg
#hpm @colleen_young @ctsinclair this is such an interesting observation, like @MeredithGould I want to hear more, writing abt communities
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
May need to shift community. RT @pamressler: @colleen_young Yes, and the switch may be difficult? #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @pamressler: T2 Who determines or should determine appropriate use of #SoMe when a family member doing the posting on blogs, FB, Twitter and not pt? #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
@LizzyMiles_MSW Has anyone curated those YT vids? There would be lots of approaches to understanding/analyzing. (Respectfully) #HPM
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@rhgerard Hi Robbie thanks for joining in #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@colleen_young And doesn't that "bring others down" language just capture a key issue. Why don't we view it as illuminating? #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @pamressler: T2 Who determines or should determine appropriate use of #SoMe when a family member doing the posting on blogs, FB, Twitter and not pt? #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
RT @pamressler: T2 Who determines or should determine appropriate use of #SoMe when a family member doing the posting on blogs, FB, Twitter and not pt? #hpm
caitlinreicks
https://pbs.twimg.com/profile_images/658367729557221376/nxq83ECo_normal.jpg
#Medicare to Pay Docs Who Coordinate Needs of Chronically Ill Patients. #hpm knows value of care coord. http://t.co/or7l82Ypkk” @GregR02
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
@colleen_young @anetto Ihave seen that as well #HPM
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@ctsinclair That has been my observation in online conversations as well. #hpm
bacigalupe
https://pbs.twimg.com/profile_images/709076614018109440/0XU2Yhyc_normal.jpg
@pamressler great question #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@bacigalupe Thanks #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
@pamressler T2 It must be hard to have family member do updates but many friends want to share good wishes, virtual cards #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
T1 Can't talk about this topic without bringing up the video logs by one of our own...@exitstrategydbo #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@MeredithGould Let me add that the community didn't want them to censor or felt it "brought them down". It was the individuals choices. #hpm
bacigalupe
https://pbs.twimg.com/profile_images/709076614018109440/0XU2Yhyc_normal.jpg
@anetto @MeredithGould @colleen_young count qualitative data as super valuable! #hpm why the qualifier? good research is just good research
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
@pamressler that becomes challenging if the #SoMe is embedded in/finds comfort online & the patient doesn't/requests more privacy. #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
T2 So difficult to assess, people freight everything with personal meaning and feelings. #hpm
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@pamressler T2; Info of #SoMe should really be sensitive to the patient. Should not be identifying if without permission of pt. #hpm
kamiyamay
https://pbs.twimg.com/profile_images/682958553418612737/ZiFFOuvL_normal.jpg
@ctsinclair #hpm agree - people are individuals each different like snow flakes - each with own needs and ideals differ even within family
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
@MeredithGould Yes, it's an experience we will all have eventually. People who die are missed #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @Kamiyamay: @ctsinclair #hpm agree - people are individuals each different like snow flakes - each with own needs and ideals differ even within family
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @ctsinclair: T1 the difference may be in how people engage the broader world as they near EoL. Many people shrink their social circles, not expand #HPM
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@bacigalupe Because when I was in academic sociology, quantitative was entering its heyday as "real" and more valuable than qual! #hpm
drlfarrell
https://pbs.twimg.com/profile_images/634005986492084225/_erpgdzV_normal.png
RT @Kamiyamay @ctsinclair #hpm agree - pple are individuals each different like snow flakes -with own needs/ideals differ even within family
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
T2 @jfclearywisc what if the patient is no longer communicative? #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
T2 In this case I would always respect what the patient wants. It's an individual choice. #hpm
bacigalupe
https://pbs.twimg.com/profile_images/709076614018109440/0XU2Yhyc_normal.jpg
#eol is a relational (not just individual) process, it may take some time ti figure how it plays out virtually #hpm
drlfarrell
https://pbs.twimg.com/profile_images/634005986492084225/_erpgdzV_normal.png
giasison hi Gia #hpm
pallimed
https://pbs.twimg.com/profile_images/773598053186015233/XE_OZT_L_normal.jpg
Very relevant article on "Deathbed Tweets" by @DrMarkTaubert from @EAPCOnlus http://t.co/qfz2VgBPDM #hpm #hpmglobal
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
RT @Pallimed Very relevant article on "Deathbed Tweets" by @DrMarkTaubert from @EAPCOnlus http://t.co/J7qfl3zClX #hpm #hpmglobal
pallimed
https://pbs.twimg.com/profile_images/773598053186015233/XE_OZT_L_normal.jpg
RT @jfclearywisc: @pamressler T2; Info of #SoMe should really be sensitive to the patient. Should not be identifying if without permission of pt. #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
@MeredithGould And for me, I spent 20 years facilitating qualitative research #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@pamressler T2: That depends on what is being shared how and why. Is the caregiver sharing to gget support for him/herself? 1/2 #hpm
pallimed
https://pbs.twimg.com/profile_images/773598053186015233/XE_OZT_L_normal.jpg
RT @pamressler: T2 Who determines or should determine appropriate use of #SoMe when a family member doing the posting on blogs, FB, Twitter and not pt? #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@pamressler @NatriceR A2. Great question. I think the use of #SoMe has to be the decision of the pt.Family members should ask first. #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
Ironically, dealing with sharing news of impending death, arranging funeral. All electronically: lotsa emotions flying imo all good #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @pamressler: T2 Who determines or should determine appropriate use of #SoMe when a family member doing the posting on blogs, FB, Twitter and not pt? #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@drlfarrell Liam!!!!!!! #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
T2 What if the patient doesn't know or hasn't expressed what s/he wants? And doesn't it shift to supporting the living at some pt? #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
@ctsinclair Have you seen this book? http://t.co/RyDEPaDbXw #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
RT @Pallimed: Very relevant article on "Deathbed Tweets" by @DrMarkTaubert from @EAPCOnlus http://t.co/qfz2VgBPDM #hpm #hpmglobal
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @giasison: T2 In this case I would always respect what the patient wants. It's an individual choice. #hpm
colleen_young
https://pbs.twimg.com/profile_images/534118819749306368/pwv05PjT_normal.png
@pamressler T2:: Or telling the story of the patient with or without consent? #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
@drlfarrell Liam! #hpm
dlschermd
https://pbs.twimg.com/profile_images/724970700457533440/J-3i5SLr_normal.jpg
RT @Kamiyamay: @ctsinclair #hpm agree - people are individuals each different like snow flakes - each with own needs and ideals differ even within family
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@pamressler Even if communicative, I should not go on-line & talk abt "my dying relative” w/out their permission! #hpm Same with live talk.
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
T2 This is an issue with pediatric #eol -- as parents are generally ones that are engaging #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
@anetto Yep, that was my training and research practice. Still my preference. #hpm
drlfarrell
https://pbs.twimg.com/profile_images/634005986492084225/_erpgdzV_normal.png
@KathyKastner hi Kathy #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @LizzyMiles_MSW: @ctsinclair Have you seen this book? http://t.co/RyDEPaDbXw #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @KathyKastner: Ironically, dealing with sharing news of impending death, arranging funeral. All electronically: lotsa emotions flying imo all good #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
@ctsinclair A few years ago I started a list of video logs and was going to content analyze but ended up not going academic so didn't #hpm
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
RT @pamressler: T2 This is an issue with pediatric #eol -- as parents are generally ones that are engaging #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
@colleen_young Have seen some people post a lot on Caring Bridge during serious illness #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @LizzyMiles_MSW @ctsinclair Have you seen this book? http://t.co/zIjOAegSnF "Not until just now! Good find, do U recommend?" #HPM
jeamessailor
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@KathyKastner Great use of #SoMe to inform all family members of health updates. Still has to have okay from patient in my opinion #hpm
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@MeredithGould That’s the difficulty. We even have pts tell us not to tell family they are dying. Have to respect that wish! #hpm
rfberry
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@pamressler especially challenging if a family member finds comfort in #SoMe community & the patient doesn't/requests more privacy. #hpm
ctsinclair
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@LizzyMiles_MSW you and I need to talk with @rossjeanette about these YT videos. Still a role for understanding them! #HPM
bacigalupe
https://pbs.twimg.com/profile_images/709076614018109440/0XU2Yhyc_normal.jpg
@MeredithGould qualitative research always has to prove itself as if it were the foster kid in social sciences #hpm
pamressler
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T2-a May be in conflict with a family member's needs to vent or share their experience with the patient's need for privacy? #hpm
cuomoelia
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@MeredithGould: Great to see so many Twitter friends. Been too long since I've attending this chat. Love hospice work. Sacred. #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @colleen_young @pamressler T2:: Or telling the story of the patient with or without consent? "Need to be careful here." #HPM
lizzymiles_msw
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@ctsinclair Yes and no. It's now a few years old and as you and I have talked, things are CHANGING so quickly! #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@KathyKastner When my father was in hospice care, he directly instructed us to tell no one except direct family. No colleagues told #hpm
kamiyamay
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RT @jfclearywisc: @pamressler Even if communicative, I should not go on-line & talk abt "my dying relative” w/out their permission! #hpm Same with live talk.
kathykastner
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@JeamesSailor Ah: patient too out of it to give direction. Helping her 6 kids+extended fam to do some private ish venting, too #hpm
meredithgould
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@jfclearywisc <sigh> I know. Painful. Raises so many issues. I believe digital has changed how we view self-disclosure. #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
RT @JeamesSailor @KathyKastner When my father was in hospice care, he directly instructed us to tell no one except direct family. #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @KathyKastner: @JeamesSailor Ah: patient too out of it to give direction. Helping her 6 kids+extended fam to do some private ish venting, too #hpm
glf64
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I wonder, how different are "deathbed tweets" from grave markers? A way to state "I was here", "I lived", "I mattered"? #hpm
jeamessailor
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RT @giasison: @JeamesSailor That's another perspective too Sanford. More sensitivity challenges specially in EOL #hpm
ctsinclair
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T2 Re: Telling a patient's story online. On @pallimed we publish cases that are composites, or fabricated/inspired by real events. #HPM
lizzymiles_msw
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@ctsinclair but I hung out with Dr. Sofka in Hong Kong and I know she's still has that research interest if you want an introduction #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
@JeamesSailor Same with my mother and father: DNT-A (Do Not Tell- Anyone) #hpm
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
RT @GLF64 I wonder, how different are "deathbed tweets" from grave markers? A way to state "I was here", "I lived", "I mattered"? #hpm
bacigalupe
https://pbs.twimg.com/profile_images/709076614018109440/0XU2Yhyc_normal.jpg
@ctsinclair @colleen_young @pamressler Or telling the story of the patient with or without consent? "Need to be careful.." #HPM” good point
rfberry
https://pbs.twimg.com/profile_images/643938386114252801/ReJkUtdi_normal.jpg
@MeredithGould who/how are you defining the 'living' ? #hpm :)
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @GLF64: I wonder, how different are "deathbed tweets" from grave markers? A way to state "I was here", "I lived", "I mattered"? #hpm
lizzymiles_msw
https://pbs.twimg.com/profile_images/657217311024148480/cgH6I9ME_normal.jpg
Can someone retweet T2 question. Moving so fast I can't keep up. (Which is awesome!) #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @KathyKastner: @JeamesSailor Same with my mother and father: DNT-A (Do Not Tell- Anyone) #hpm
jfclearywisc
https://pbs.twimg.com/profile_images/688562342288846849/wHbQCcpo_normal.jpg
@rfberry: esp challenging if a family member finds comfort in #SoMe community & the patient doesn't/requests more privacy. #hpm —> Agree!!
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
@LizzyMiles_MSW Will do #hpm
meredithgould
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@rfberry Not brain dead? #hpm
drlfarrell
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T2 my last tweet will be "either that wall-paper goes or I do" #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@GLF64 Wow! Great point here."Deathbed tweets". I tend to believe that we all would like to think 'we mattered' to someone. #hpm
rhgerard
https://pbs.twimg.com/profile_images/560971381392044032/4tLCwiiV_normal.jpeg
RT @LizzyMiles_MSW: @ctsinclair Have you seen this book? http://t.co/RyDEPaDbXw #hpm
anetto
https://pbs.twimg.com/profile_images/745352997685858304/PZQteVmi_normal.jpg
T2 Always should be up to patient, but we all have friends and relatives who act 'inappropriately' #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @pamressler: T2 Who determines or should determine appropriate use of #SoMe when a family member doing the posting on blogs, FB, Twitter and not pt? #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
MT @jfclearywisc @rfberry: esp challenging if fam member finds comfort in #SoMe but patient doesn't/requests more privacy.—> Agree!! #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
Topic 2 is here: https://t.co/d5DNoh1O59 @LizzyMiles_MSW #HPM
pamressler
https://pbs.twimg.com/profile_images/2780612519/72b0fec71d3b61bd552e6dbf5f52b020_normal.jpeg
T2 Who determines appropriate use of #SoMe when a family member is doing the posting on FB, blogs, Twitter not the patient #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
And the wallpaper stays? ;-) RT @drlfarrell: T2 my last tweet will be "either that wall-paper goes or I do" #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @JeamesSailor: @GLF64 Wow! Great point here."Deathbed tweets". I tend to believe that we all would like to think 'we mattered' to someone. #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
@LizzyMiles_MSW T2 Who determines appropriate use of #SoMe when a family member doing the posting on blogs, FB, Twitter and not pt? #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
RT @drlfarrell: T2 my last tweet will be "either that wall-paper goes or I do" #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
RT @anetto: T2 Always should be up to patient, but we all have friends and relatives who act 'inappropriately' #hpm
ctsinclair
https://pbs.twimg.com/profile_images/799086391221067777/9trLk4H3_normal.jpg
RT @MeredithGould: And the wallpaper stays? ;-) RT @drlfarrell: T2 my last tweet will be "either that wall-paper goes or I do" #hpm
giasison
https://pbs.twimg.com/profile_images/843968812093394944/xnAeTOZg_normal.jpg
FACT! RT @anetto: T2 Always should be up to patient, but we all have friends and relatives who act 'inappropriately' #hpm
kathykastner
https://pbs.twimg.com/profile_images/787494233531908096/3XaopCMo_normal.jpg
My m-i-l didn't want her grandkids (my kids) to know - one of whom was out of town.They p*ssed: we thot: whose death is it? #hpm
meredithgould
https://pbs.twimg.com/profile_images/589625219943399424/rCd2b3eL_normal.jpg
T2 Family members who want/need online community support could create a private FB. #hpm
rfberry
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@jfclearywisc I think abt it often, from a caregiver perspective- if they need community support. From pt perspective, may need privacy #hpm
jeamessailor
https://pbs.twimg.com/profile_images/580581492948144128/w7F9IgYh_normal.jpg
@anetto "Inappropriate" behaviors may sometime be a family member's way of trying to help. We all feel helpless during #EOL #SoMe help #hpm
natricer
https://pbs.twimg.com/profile_images/842519517439901696/vsw6ffng_normal.jpg
@NatriceR @NatriceR: T2 having seen spneeds families share exp w/ kids, I think support overwhelms the ?of whether appropriate? #hpm
jfclearywisc
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@anetto Probably shouldn’t agree with that to loudly or strongly!!!!! #hpm
ctsinclair
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T2 I have seen many times where a family has taken over FB and Caring Bridge Updates. Can be great way to cut down on phone ringing #HPM