#paccr transcript

Healthcare Social Media Transcript

From: Thu Nov 14 0:00:00 PST 2013
To: Fri Nov 15 0:00:00 PST 2013

What is #paccr? Who were the influencers during this time period? #paccr analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
@sharonfterry @Lilly_COI @gfrias @MightyCasey @takmad we have a hashtag #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @ReginaHolliday: @sharonfterry @Lilly_COI @gfrias @MightyCasey @takmad we have a hashtag #paccr
takmad
https://pbs.twimg.com/profile_images/778297046373728257/EpdBsCIm_normal.jpg
RT @ReginaHolliday: @sharonfterry @Lilly_COI @gfrias @MightyCasey @takmad we have a hashtag #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
@alsadvocacy raise your hand so I can find you. #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
We're talking Patients at the Center of Clinical Research today with some amazing patient advocates and industry pros. Follow hashtag #PACCR
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
At @Lilly_COI talking Patients at Center of Clinical Research today w/some advocates + industry pros. Follow along! #paccr
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
Excited to kick off the #paccr conference! Looking forward to hearing the patients perspective in drug development.
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
Valuing diverse perspectives... Yes! #PACCR
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
#PACCR just started. Already hearing that Lilly is in listening mode, ready to learn from patients.
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @JonBausman: Excited to kick off the #paccr conference! Looking forward to hearing the patients perspective in drug development.
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
#PACCR: Patient At the Center of Clinical Research meeting at Eli Lilly, w/ e-patient rockstars incl. @AfternoonNapper @ReginaHolliday
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @gfry: #PACCR just started. Already hearing that Lilly is in listening mode, ready to learn from patients.
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
@FingoHead describes herself as the canary in the coal mine #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
RT @gfry: #PACCR: Patient At the Center of Clinical Research meeting at Eli Lilly, w/ e-patient rockstars incl. @AfternoonNapper @ReginaHol…
sharonfterry
https://pbs.twimg.com/profile_images/804460416462000128/HCzHC_m9_normal.jpg
RT @gfry: #PACCR just started. Already hearing that Lilly is in listening mode, ready to learn from patients.
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Kicking off the morning at Eli Lilly w/ @Lilly_COI team & colleagues to workshop clinical trials process & focus more on patients. #PACCR
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
Just told the assembled multitude that #pharma should view e-patients as their partners in shifting FDA from "stop" to "go" ... #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
Patient advocate Gary Poteat says he'd like to change the perception that #clinicaltrials are a "Hail Mary." #PACCR #patients
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
Gary Poteat: clinical trials should not be just a hail Mary last resort. #paccr
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
The amazing Gary & Susan Poteat introduction at #PACCR: SmartPatients members w/ personal experience with clinical trials, seen as best care
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @FingoHead: Gary Poteat: clinical trials should not be just a hail Mary last resort. #paccr
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
Hearing patient advocates stories and why they do what they do at the #paccr conference.
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
RT @FingoHead: Gary Poteat: clinical trials should not be just a hail Mary last resort. #paccr
stirispres
https://pbs.twimg.com/profile_images/515922285371224064/dV4KcQdw_normal.jpeg
Feeling humbled while listening to the introductions at #PACCR and hearing how clinical research changed their lives.
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
#paccr @ReginaHolliday full access to real time records empowers patients.
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Going through brief introductions, one can hear a quaver in pt voices—it's hard to tell our stories, both failures & successes. #PACCR
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @StirisPres: Feeling humbled while listening to the introductions at #PACCR and hearing how clinical research changed their lives.
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
"Today is going to jilt my perspective in a good way" #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
Looking forward to announcing the winners of the #CTDesign challenge later this morning. Stay tuned! http://t.co/3McAgLScF5 #PACCR
stirispres
https://pbs.twimg.com/profile_images/515922285371224064/dV4KcQdw_normal.jpeg
"Do studies that patients want done. If u can improve quality of life in the meantime, that would be awesome." via @AfternoonNapper #PACCR
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
RT @ReginaHolliday "Today is going to jilt my perspective in a good way" #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
@AfternoonNapper do trials that patients want done & address issues like geographic isolation. #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @StirisPres: Feeling humbled while listening to the introductions at #PACCR and hearing how clinical research changed their lives.
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
RT @StirisPres: "Do studies that patients want done. If u improve quality of life too, that would be awesome." @AfternoonNapper #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
@gmatczak #paccr there is passion on both sides to make trials better.
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
If the stars align, the people in the room with me right now are gonna make history, change healthcare. Booyah. #paccr
stirispres
https://pbs.twimg.com/profile_images/515922285371224064/dV4KcQdw_normal.jpeg
One goal for today is learning how to incorporate the patient voice throughout the entire lifecycle of drug development. #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
"I am first and foremost an artist." ~@gfry #paccr
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
RT @MightyCasey If the stars align, the people in the room with me right now are gonna make history, change healthcare. Booyah. #paccr
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
RT @FingoHead: @gmatczak "there is passion on both sides to make trials better." #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @MightyCasey: If the stars align, the people in the room with me right now are gonna make history, change healthcare. Booyah. #paccr
shaiunfiltered
https://pbs.twimg.com/profile_images/822349758434045953/cZ65TPDv_normal.jpg
RT @ReginaHolliday: "I am first and foremost an artist." ~@gfry #paccr
sarahlance
https://pbs.twimg.com/profile_images/1149939783/sarah_lance_normal.jpg
RT @ReginaHolliday: "I am first and foremost an artist." ~@gfry #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @MightyCasey: If the stars align, the people in the room with me right now are gonna make history, change healthcare. Booyah. #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
@gfry telling us about the history of ACOR and the growth of the second iteration SmartPatients #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
"We are in charge of own health, ultimately we must live with the consequence.' WE MUST ADVOCATE FOR OURSELVES. #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Topics arising in conversations already? Trust. Collaboration. Trust. Innovation. Trust. Information. Did I mention trust? #paccr
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
RT @AfternoonNapper: Topics arising already? Trust. Collaboration. Trust. Innovation. Trust. Information. Did I mention trust? #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
OOHHH, we are going to hear about eConsent #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @StirisPres: "Do studies that patients want done. If u improve quality of life too, that would be awesome." @AfternoonNapper #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
Lilly team tells me to "keep freaking ppl out" with social media and clinical trials conversation. #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Regarding consent: I want to hear from any pt who has ever NOT signed the consent form and/or specific clauses therein. #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
Lilly member shares the overdose his Mother had in cancer journey and I watch his eyes, I see the memory of terror. I cry with him #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @FingoHead: Lilly team tells me to "keep freaking ppl out" with social media and clinical trials conversation. #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
@FingoHead I can tell you that you've already inspired me to "freak ppl out" by sharing more abt experiences. #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @ReginaHolliday: "Today is going to jilt my perspective in a good way" #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @AfternoonNapper: @FingoHead I can tell you that you've already inspired me to "freak ppl out" by sharing more abt experiences. #paccr
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
+1=> RT @AfternoonNapper: @FingoHead I can tell you you've already inspired me to "freak ppl out" by sharing more abt experiences. #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
#paccr @RebarInter how can we make clinical trials a better product for patients?
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @AfternoonNapper: @FingoHead I can tell you that you've already inspired me to "freak ppl out" by sharing more abt experiences. #paccr
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
"What we want to know is, what is useful to you [the patients]. If you can tell us, partner with us, that would be meaningful to us." #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
"We usually gather the data useful for FDA, not for patients. We need to get the data that is useful to patients" #paccr
aftjae
https://pbs.twimg.com/profile_images/756818410701332484/SgEnKgwF_normal.jpg
@BMC_series #Interviews reveal Y people take prt in health research #MedicalEthics http://t.co/eNeakk7RcZ Pt "To get better care" #paccr MT
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @FingoHead: #paccr @RebarInter how can we make clinical trials a better product for patients?
aftjae
https://pbs.twimg.com/profile_images/756818410701332484/SgEnKgwF_normal.jpg
RT @FingoHead: #paccr @RebarInter how can we make clinical trials a better product for patients?
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
WRITE A BETTER NARRATIVE for patients. Oh hellz yes. #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
New favorite word: imagineering. #paccr
suissepatiente
https://pbs.twimg.com/profile_images/732215132621799424/IYCcY9MR_normal.jpg
RT @ReginaHolliday: "We are in charge of own health, ultimately we must live with the consequence.' WE MUST ADVOCATE FOR OURSELVES. #paccr
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
Me too! => RT @AfternoonNapper: New favorite word: imagineering. #paccr
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
"I want to hear the mismatches, I want to hear the stories. Then we can put them together." #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @JonBausman: "I want to hear the mismatches, I want to hear the stories. Then we can put them together." #paccr
sharonfterry
https://pbs.twimg.com/profile_images/804460416462000128/HCzHC_m9_normal.jpg
Barry is looking for the friction in the clinical trial system to fire up his imagineering. Send us at #paccr @lilly_COI your 'friction'!
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
News flash: pharma ppl are real and passionate to affect change. they are patients too with their own stories to bear. #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
@alsadvocacy clinical trials ARE a hail Mary for ALS pts and need to be a FAST hail Mary. #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @AfternoonNapper: Topics arising already? Trust. Collaboration. Trust. Innovation. Trust. Information. Did I mention trust? #paccr
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @FingoHead: @alsadvocacy clinical trials ARE a hail Mary for ALS pts and need to be a FAST hail Mary. #paccr
suissepatiente
https://pbs.twimg.com/profile_images/732215132621799424/IYCcY9MR_normal.jpg
I LOVE those kinds of days!! Enjoy "@ReginaHolliday: "Today is going to jilt my perspective in a good way" #paccr"
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
Clinical trials in ALS have to be a very fast Hail Mary. Most my rolladex is gown now. ~ @alsadvocacy #paccr
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
I am most excited to meet so many of you, the patient advocates, today at #paccr
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @sharonfterry: Barry is looking for the friction in the clinical trial system to fire up his imagineering. Send us at #paccr @lilly_COI…
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Hey, @rareadvocates, @fastercures, @SDFatPhRMA, @lisamjarvis — I hope you'll tune in to this conversation w/ @Lilly_COI. #paccr
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
@AfternoonNapper @RareAdvocates @fastercures @lisamjarvis @Lilly_COI I am following on Twitter. #Paccr looks like dynamic & important convo
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
RT @FingoHead: @alsadvocacy clinical trials ARE a hail Mary for ALS pts and need to be a FAST hail Mary. #paccr
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
RT @AfternoonNapper: Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
joltdude
https://pbs.twimg.com/profile_images/1600285497/SDIM2073fuzzy2_normal.png
RT @ReginaHolliday: You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
EPatient Panelist- Patients at the Center of Clinical Trials Workshop @ Eli Lilly in Indy.Great Group. #Bensfriends #PACCR #RareDisease
purple4courage
https://pbs.twimg.com/profile_images/532316357170171905/lm1CO0Gy_normal.jpeg
RT @AfternoonNapper: Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
Help us with our #clinicaltrials "imagineering." Tell us where you think the most friction exists. Tag with #PACCR. #patients
haroldsmith3rd
https://pbs.twimg.com/profile_images/715577466828361728/uCZomMrI_normal.jpg
RT @ReginaHolliday: You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Sharing our stories abt not being able to get into a clinical trial (despite our best efforts to do so). #paccr
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
Eclectic Group of E Patients, Patient Advocates, Researchers &, Eli Lilly employees working to improve clinical trials for patients. #PACCR
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
Hearing the stories of the patient advocates on our panel today...powerful. #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
In can be really hard to get access to a clinical trial. #paccr
indrasahril
https://pbs.twimg.com/profile_images/506085007618625537/-O51gwot_normal.jpeg
RT @ReginaHolliday: In can be really hard to get access to a clinical trial. #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
Even I as a pro researcher and journalist could not access clinical trial info. What does that say for everyone else? @MightyCasey #PACCR
takmad
https://pbs.twimg.com/profile_images/778297046373728257/EpdBsCIm_normal.jpg
RT @sharonfterry: Barry is looking for the friction in the clinical trial system to fire up his imagineering. Send us at #paccr @lilly_COI…
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
RT @Lilly_COI: Help us with our #clinicaltrials "imagineering." Tell us where you think the most friction exists. Tag with #PACCR. #patients
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
.@AfternoonNapper is pointing out the barriers to participation that #clinicaltrial schedules & locations presented for her. #PACCR
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
#paccr @AfternoonNapper would throw herself at research to make progress in understanding her rare disorder, but no takers.
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
.@MightyCasey says she's get a barcode tatooed to her neck if it meant she didn't have to fill out another dang form. :) #PACCR
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
"I went on record saying I would get a bar code tattooed to my neck if I didn't have to fill out a darn form." - @mightycasey #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @FingoHead: #paccr @AfternoonNapper would throw herself at research to make progress in understanding her rare disorder, but no takers.
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
#paccr @mightyCasey will get a bar code tattooed to her neck if it meant not filling out forms.
stirispres
https://pbs.twimg.com/profile_images/515922285371224064/dV4KcQdw_normal.jpeg
Px jokingly teling us they would b willing to tattoo a barcode on their neck if it reduced forms they have 2 keep filling out forms #PACCR
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
Geographic location is a major barrier to clinical trials #paccr
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
What are the barriers to Clinical Studies? #PACCR #bensfriends #raredisease
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @JonBausman: Geographic location is a major barrier to clinical trials #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @ChiariTracy: What are the barriers to Clinical Studies? #PACCR #bensfriends #raredisease
sharonfterry
https://pbs.twimg.com/profile_images/804460416462000128/HCzHC_m9_normal.jpg
MT @fingohead: #paccr @MightyCasey will get a bar code tattooed to her neck if it meant not filling out forms. @Reg4ALL provides a solution.
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
Even if a trial fails, you learned from it. Now you know something you didn't before. - @AfternoonNapper #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
"No one ever asks you if want to be de-identified or not." ~@ReginaHoliday. Many #raredisease #patients excluded. They're "too rare." #PACCR
sharonfterry
https://pbs.twimg.com/profile_images/804460416462000128/HCzHC_m9_normal.jpg
.@ReginaHoliday Noone asks you if you want to be deidentifiable. It's why we created @Reg4ALL as a tool to set sharing and access. #paccr
rebarinter
https://pbs.twimg.com/profile_images/586612228452966400/Wuai4rQu_normal.jpg
.@reginaholliday No one even asks if clinical trial participants want to be de-identified. Some people don't want to. #PACCR
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
#Informedconsent is about us (the researcher) informing you about what we want. How do we change it to reflect what #patients want? #PACCR
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @JonBausman: Even if a trial fails, you learned from it. Now you know something you didn't before. - @AfternoonNapper #paccr
curelauncher
https://pbs.twimg.com/profile_images/3540121861/8ab5b11edd6de7319baa7c440e451bd3_normal.png
RT @AfternoonNapper: Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
rebarinter
https://pbs.twimg.com/profile_images/586612228452966400/Wuai4rQu_normal.jpg
@sharonfterry says we need dynamic and granular consent #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @JonBausman: Geographic location is a major barrier to clinical trials #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @RebarInter: @sharonfterry says we need dynamic and granular consent #PACCR
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @RebarInter: @sharonfterry says we need dynamic and granular consent #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
#paccr past 24 months of onset very few ALS patients are allowed on a trial - @alsadvocacy
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
Informed consent (IC) is telling you what we get from you. Missing is reverse IC, where you'd tell what you want from trial sponsor #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
If your disease is 24 mths past onset you're often excluded from #clinicaltrials. Many #patients not diagnosed that soon @alsadvocacy #PACCR
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
RT @Lilly_COI: RT @FingoHead: #paccr @AfternoonNapper would throw herself at research to make progress in understanding her rare disorder,…
elinsilveous
https://pbs.twimg.com/profile_images/463466580052295681/GLoU2EA4_normal.jpeg
.@Lilly_COI Include details on possible benefits, risks/harms and unknowns. #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
#paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvocacy
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @ReginaHolliday: #paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvocacy
geneticalliance
https://pbs.twimg.com/profile_images/64088183/GeneticAlliance_colorSquare_normal.jpg
RT @ElinSilveous: .@Lilly_COI Include details on possible benefits, risks/harms and unknowns. #PACCR
geneticalliance
https://pbs.twimg.com/profile_images/64088183/GeneticAlliance_colorSquare_normal.jpg
RT @RebarInter: @sharonfterry says we need dynamic and granular consent #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @ElinSilveous: .@Lilly_COI Include details on possible benefits, risks/harms and unknowns. #PACCR
geneticalliance
https://pbs.twimg.com/profile_images/64088183/GeneticAlliance_colorSquare_normal.jpg
RT @Lilly_COI: RT @ReginaHolliday: #paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvoc…
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Shout out to #MedX and the "dream big" philosophy for changing healthcare, specifically clinical trials, from @alsadvocacy. #paccr
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
What do you think about informed consent? http://t.co/SvrmrFuv5Y #PACCR #BENSFRIENDS #RAREDISEASE #alanROYGBIV
elinsilveous
https://pbs.twimg.com/profile_images/463466580052295681/GLoU2EA4_normal.jpeg
.@Lilly_COI Also, participant access to the clinical trial information/data and a promise that it is reported via #OpenAccess. #PACCR
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Mention of an information science problem re: clinical trials data management... is this an opportunity for #medlibs? @pfanderson #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
#paccr in ALS we have more registries than Carter has liver pills - @alsadvocacy
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
"If you can't cure me, learn from me." @alsadvocacy's mother #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
"The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
"My mother felt like the FDA was 'protecting me' to death." - @alsadvocacy #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @AfternoonNapper: "The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
"If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
"The FDA is protecting us to death." Hard, sad truth. #paccr #s4pm HT @ALSadvocacy
abrewi3010
https://pbs.twimg.com/profile_images/828638485238013952/scwHuLni_normal.jpg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
rebarinter
https://pbs.twimg.com/profile_images/586612228452966400/Wuai4rQu_normal.jpg
RT @AfternoonNapper: "The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Re: pts connecting w/ researchers/doctors... I mine articles, studies for email addresses & reach out via @FMDChat's newsletter. #paccr
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
Phases of Clinical Trials. http://t.co/2SlaRsEang #paccr #bensfriends #RareDisease
pfanderson
https://pbs.twimg.com/profile_images/615239024236572676/dUaJlfbG_normal.png
@AfternoonNapper Absolutely! #medlibs intimately involved with #datacuration #datasci #datamgmt #escience etc #paccr @mandosally
fqure
https://pbs.twimg.com/profile_images/724696437246832642/HW1vOvlQ_normal.jpg
RT @MightyCasey: "The FDA is protecting us to death." Hard, sad truth. #paccr #s4pm HT @ALSadvocacy
elinsilveous
https://pbs.twimg.com/profile_images/463466580052295681/GLoU2EA4_normal.jpeg
Sadly true. “.@ReginaHolliday: You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton”
spoonieswift91
https://pbs.twimg.com/profile_images/804088100251205632/B9U0d_kE_normal.jpg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
wecan4health
https://pbs.twimg.com/profile_images/421351109286838272/JsQvNcxe_normal.jpeg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @RebarInter: @sharonfterry says we need dynamic and granular consent #PACCR
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
Such beautiful words from @alsadvocacy's mother, "If you can't cure me, learn from me." #paccr
jodyms
https://pbs.twimg.com/profile_images/760604357/ls_0009_SchogerSmallerPortrait_normal.jpg
Yes! RT @AfternoonNapper "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
RT @AfternoonNapper: "The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
Have you ever joined a clinical trial? Why or why not? Tell me your story. #PACCR #bensfriends #RareDisease
lisamjarvis
https://pbs.twimg.com/profile_images/710329372595490816/wg7Y6pcB_normal.jpg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
elinsilveous
https://pbs.twimg.com/profile_images/463466580052295681/GLoU2EA4_normal.jpeg
“.@ChiariTracy: Phases of Clinical Trials. http://t.co/hXrRxkL47v #paccr #bensfriends #RareDisease” #CER #Health #pharma
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
Getting kicked out or delayed from starting #clinicaltrials due to technicalities or paperwork issues can be devastating #PACCR #patients
elinsilveous
https://pbs.twimg.com/profile_images/463466580052295681/GLoU2EA4_normal.jpeg
If you're following #PACCR you might also be interested in new #PCORI funding awards for individuals, small groups http://t.co/LHzKaMmq76
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Don't fear pts using social media, educate them abt the implications w/in the context of a clinical trial, says @fingohead. YES! #paccr
disparityreport
https://pbs.twimg.com/profile_images/1797776256/Nguyen-casual-sm_vrsn_normal.jpg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
disparityreport
https://pbs.twimg.com/profile_images/1797776256/Nguyen-casual-sm_vrsn_normal.jpg
RT @Lilly_COI: RT @ReginaHolliday: #paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvoc…
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Shout out to @patientslikeme re: surveys, trial development, pt community via @fingohead. #paccr
vidscrip
https://pbs.twimg.com/profile_images/794250451441029120/HwEuOwe4_normal.jpg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
EPatients use Social Media to connect for better Illness information, support and understanding that we find from Med. Providers. #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
A big "Thank You" to the #PACCR Patient Panel for sharing their stories and teaching us so much today. http://t.co/OkRnp0eBiL
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
HA! Invent a great MS drug, package it such that MS pts can't open it = #fail. Remember not to cut corners. #paccr
elinsilveous
https://pbs.twimg.com/profile_images/463466580052295681/GLoU2EA4_normal.jpeg
RT @Lilly_COI: RT @ReginaHolliday: #paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvoc…
pfanderson
https://pbs.twimg.com/profile_images/615239024236572676/dUaJlfbG_normal.png
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
pfanderson
https://pbs.twimg.com/profile_images/615239024236572676/dUaJlfbG_normal.png
RT @AfternoonNapper: Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/x5VyME2PiV #PACCR
pfanderson
https://pbs.twimg.com/profile_images/615239024236572676/dUaJlfbG_normal.png
RT @RebarInter: .@reginaholliday No one even asks if clinical trial participants want to be de-identified. Some people don't want to. #PACCR
curelauncher
https://pbs.twimg.com/profile_images/3540121861/8ab5b11edd6de7319baa7c440e451bd3_normal.png
RT @Lilly_COI: Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/x5VyME2PiV #PACCR
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
"Innovation is urgent: bcause the pt is waiting, not at the end of the journey, but at every step along the way."—Eli Lilly banner #paccr
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
RT @Lilly_COI: Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/7jBqnFt6p5 #paccr
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
RT @AfternoonNapper: Innovation is urgent: pt is waiting, not at end of journey, but at every step along the way.—Eli Lilly banner #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @ElinSilveous: If you're following #PACCR you might also be interested in new #PCORI funding awards for individuals, small groups http:/…
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
rebarinter
https://pbs.twimg.com/profile_images/586612228452966400/Wuai4rQu_normal.jpg
.@takmad is about to announce the winner of the Clinical Trial Visualization challenge. *drumroll* #PACCR
curelauncher
https://pbs.twimg.com/profile_images/3540121861/8ab5b11edd6de7319baa7c440e451bd3_normal.png
@AfternoonNapper YES! This is why CureLauncher exists! To match patient to trial not trial to patient & advocate thru whole journey. #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies. ~@takmad #PACCR
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @MightyCasey: "The FDA is protecting us to death." Hard, sad truth. #paccr #s4pm HT @ALSadvocacy
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
Here comes the reveal of the Clinical Trial Visualization Redesign challenge.... #paccr
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @RebarInter: .@reginaholliday No one even asks if clinical trial participants want to be de-identified. Some people don't want to. #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @RebarInter: .@takmad is about to announce the winner of the Clinical Trial Visualization challenge. *drumroll* #PACCR
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
RT @Lilly_COI: Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/x5VyME2PiV #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @JonBausman: Here comes the reveal of the Clinical Trial Visualization Redesign challenge.... #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
The purpose of #CTDesign challenge was to learn how to present information about #clinicaltrials in more patient-friendly way. #PACCR
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
MT @Lilly_COI http://t.co/wgcTYHfz21 gets abt 98,000,000 pageviews/month, abt 1/2 pts or caregivers looking for studies. ~@takmad #paccr
stirispres
https://pbs.twimg.com/profile_images/515922285371224064/dV4KcQdw_normal.jpeg
Patients usually don't find out about clinical trials through their doctor. They find #clinicaltrials on the internet. #PACCR #in
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
Drumroll! MT @Lilly_COI: Up next, we'll announce winners of Clinical Trial Visualization Redesign Challenge... http://t.co/rH99wiilkA #PACCR
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
What do patients want to see in Clinical Trials? Does it answer your questions in a user friendly format? #PACCR #Bensfriends #RareDisease
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @ChiariTracy: What do patients want to see in Clinical Trials? Does it answer your questions in a user friendly format? #PACCR #Bensfrie…
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
@takmad presenting winners of the Clinical Trial Visualization Redesign Challenge. http://ctdesign.challenge.post #paccr
ehr_evolution
https://pbs.twimg.com/profile_images/3192969760/d93ce4c6b5d82e9028c176a12a1ba3a4_normal.jpeg
RT @ChiariTracy: What do patients want to see in Clinical Trials? Does it answer your questions in a user friendly format? #PACCR #Bensfrie…
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @gfry: @takmad presenting winners of the Clinical Trial Visualization Redesign Challenge. http://ctdesign.challenge.post #paccr
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @AfternoonNapper: Shout out to @patientslikeme re: surveys, trial development, pt community via @fingohead. #paccr
gretchenturner
https://pbs.twimg.com/profile_images/378800000721328062/0254e9cb6cc8b1e22811298e5964b949_normal.jpeg
RT @gfry: @takmad presenting winners of the Clinical Trial Visualization Redesign Challenge. http://ctdesign.challenge.post #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
Healthcare has almost been forgotten when it comes to user experience and good design ~"Spread the Cure" team #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
And the winners of the Clinical Trial Visualization Redesign Challenge are...http://t.co/v6HuOY3GTD Congratulations to all! #PACCR
stirispres
https://pbs.twimg.com/profile_images/515922285371224064/dV4KcQdw_normal.jpeg
RT @Lilly_COI: Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/x5VyME2PiV #PACCR
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
Are Hassan Seguias and Shajah Junco on Twitter? @Lilly_COI? #paccr
chiaritracy
https://pbs.twimg.com/profile_images/453765124503789568/sQqJPt14_normal.jpeg
RT @AfternoonNapper: "The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @AfternoonNapper: Are Hassan Seguias and Shajah Junco on Twitter? @Lilly_COI? #paccr
jonbausman
https://pbs.twimg.com/profile_images/1815410026/Jon_Bausman_normal.jpg
Interested in the next @Lilly_COI sponsored challenge? Learn more and register here: http://t.co/H7RvfxuV79 #paccr
lillypad
https://pbs.twimg.com/profile_images/582648545926254592/fzNfPMnV_normal.jpg
RT @Lilly_COI: A big "Thank You" to the #PACCR Patient Panel for sharing their stories and teaching us so much today. http://t.co/OkRnp0eBiL
curelauncher
https://pbs.twimg.com/profile_images/3540121861/8ab5b11edd6de7319baa7c440e451bd3_normal.png
@Lilly_COI We are thrilled 2 have won the Popular Choice Award! Thank you everyone who voted! #PACCR #clinicaltrials http://t.co/MoKF5PSE1U
geek_nurse
https://pbs.twimg.com/profile_images/799055242201591808/ab5ZFVSP_normal.jpg
RT @gfry: @takmad presenting winners of the Clinical Trial Visualization Redesign Challenge. http://ctdesign.challenge.post #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @JonBausman: Interested in the next @Lilly_COI sponsored challenge? Learn more and register here: http://t.co/vGKwtNcEBc #paccr
geek_nurse
https://pbs.twimg.com/profile_images/799055242201591808/ab5ZFVSP_normal.jpg
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @ReginaHolliday: #paccr in ALS we have more registries than Carter has liver pills - @alsadvocacy
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @cureLauncher: @Lilly_COI We are thrilled 2 have won the Popular Choice Award! Thank you everyone who voted! #PACCR #clinicaltrials htt…
sdriver_tweet
https://pbs.twimg.com/profile_images/1654040703/Picture3_normal.png
RT @AfternoonNapper: "Innovation is urgent: bcause the pt is waiting, not at the end of the journey, but at every step along the way."—Eli …
healthhashtags
https://pbs.twimg.com/profile_images/776176153593720832/e_wO9ivm_normal.jpg
New Health Hashtag: #paccr http://t.co/xfTW2YHlim Thank you @ReginaHolliday #hcsm "Patient at the Center of Clinical trials Workshop"
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @healthhashtags: New Health Hashtag: #paccr http://t.co/xfTW2YHlim Thank you @ReginaHolliday #hcsm "Patient at the Center of Clinical tr…
bigsciencemedia
https://pbs.twimg.com/profile_images/725454846585896961/jc9L06pd_normal.jpg
RT @AfternoonNapper: "Innovation is urgent: bcause the pt is waiting, not at the end of the journey, but at every step along the way."—Eli …
afternoonnapper
https://pbs.twimg.com/profile_images/828284166156537857/MpXWOQ9l_normal.jpg
@healthhashtags I was JUST thinking about tagging you guys! @ReginaHolliday #paccr
erikpupo
https://pbs.twimg.com/profile_images/828246281248186369/nTqNBDPe_normal.jpg
RT @healthhashtags: New Health Hashtag: #paccr http://t.co/xfTW2YHlim Thank you @ReginaHolliday #hcsm "Patient at the Center of Clinical tr…
sharonfterry
https://pbs.twimg.com/profile_images/804460416462000128/HCzHC_m9_normal.jpg
The suspense is over, we were a judge. Winner of clinical trial design site competition: Spread the Cure. #paccr http://t.co/5f0JdO5yzp
fevertheory
https://pbs.twimg.com/profile_images/559826029393764352/5QkZqqT6_normal.jpeg
RT @gfry: Informed consent (IC) is telling you what we get from you. Missing is reverse IC, where you'd tell what you want from trial spons…
sdriver_tweet
https://pbs.twimg.com/profile_images/1654040703/Picture3_normal.png
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
rarepov
https://pbs.twimg.com/profile_images/827340665990287360/R3qSlXvg_normal.jpg
RT @JonBausman: Interested in the next @Lilly_COI sponsored challenge? Learn more and register here: http://t.co/H7RvfxuV79 #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
#theWalkingGallery in the house at #paccr http://t.co/eIA1ixiopp
joltdude
https://pbs.twimg.com/profile_images/1600285497/SDIM2073fuzzy2_normal.png
RT @ReginaHolliday: #theWalkingGallery in the house at #paccr http://t.co/eIA1ixiopp
couragesings
https://pbs.twimg.com/profile_images/700576657610936320/zrlX0yG7_normal.jpg
RT @ReginaHolliday: #theWalkingGallery in the house at #paccr http://t.co/eIA1ixiopp
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
Lookin' good! RT @ReginaHolliday: #theWalkingGallery in the house at #paccr http://t.co/crLyyFKFLo
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
"What if #patients were viewed as collaborators in drug development, instead of sources of data?" ~@takmad #PACCR #clinicaltrials
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
What if patients were viewed as collaborators in drug development, not sources of data? #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
"What if #patients were viewed as the heroes of #clinicalresearch? How would we do things differently?" ~@takmad #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
What if geographic distance, data access and technical language were not barriers to patient participation in clinical trials? #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
What if patients... considered clinical trials as just another part of their HC treatment options #paccr
dbarthjones
https://pbs.twimg.com/profile_images/2364130865/55svxk70p5n6a5s1xuur_normal.jpeg
Is it ethical to remove rare/genetic diseases within De-identified Data to protect against re-identification? http://t.co/cGRxe9Kzv5 #PACCR
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
MT @ReginaHolliday: What if geography, data access & technical language were not barriers 2 patient participation in #clinicaltrials? #paccr
peterngilbert
https://pbs.twimg.com/profile_images/378800000770981356/3bd4ac5343a3ff169eb391c90ca4d7de_normal.jpeg
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
medexofme
https://pbs.twimg.com/profile_images/378800000406208436/730c39f186d927efcc1663ee1ad99e03_normal.png
RT @gfry: What if patients... considered clinical trials as just another part of their HC treatment options #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @dbarthjones: Is it ethical to remove rare/genetic diseases within De-identified Data to protect against re-identification? http://t.co/…
elinsilveous
https://pbs.twimg.com/profile_images/463466580052295681/GLoU2EA4_normal.jpeg
“.@Lilly_COI: "What if #patients were viewed as collaborators in drug development..." ~@takmad #PACCR #clinicaltrials” #PCORI .@PCORI #CER
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility? #paccr
jmcelio
https://pbs.twimg.com/profile_images/791090030563434497/1eItglUJ_normal.jpg
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @gfry: What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility? #paccr
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr
lillytrials
https://pbs.twimg.com/profile_images/695623132942594048/zxyrEm72_normal.png
RT @gfry: What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility? #paccr
ithealthnonprof
https://pbs.twimg.com/profile_images/461222090964611072/94mHP6yx_normal.jpeg
RT @dbarthjones: Is it ethical to remove rare/genetic diseases within De-identified Data to protect against re-identification? http://t.co/…
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
Do you no how amazing it is to be livetweeting a a roundtable at @Lilly_COI? A few years ago there is no way this would be allowed #paccr
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @Lilly_COI: RT @gfry: What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility…
mswz
https://pbs.twimg.com/profile_images/476158328855605248/ONoPgwb3_normal.jpeg
RT @Lilly_COI: MT @ReginaHolliday: What if geography, data access & technical language were not barriers 2 patient participation in #clinic…
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @gfry: What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr
elinsilveous
https://pbs.twimg.com/profile_images/463466580052295681/GLoU2EA4_normal.jpeg
RT @ReginaHolliday: Do you no how amazing it is to be livetweeting a a roundtable at @Lilly_COI? A few years ago there is no way this would…
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
@Lilly_COI we need the voice of the patient in development. #paccr
gfry
https://pbs.twimg.com/profile_images/666485598178246656/6WMSArCG_normal.jpg
What if patients... received study information in a form that was easy to understand, in their own context #paccr
mightycasey
https://pbs.twimg.com/profile_images/627469730119454720/VAL0wCjB_normal.png
WERD => RT @gfry: What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @Lilly_COI: "What if #patients were viewed as the heroes of #clinicalresearch? How would we do things differently?" ~@takmad #PACCR
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @FingoHead: @Lilly_COI we need the voice of the patient in development. #paccr
zorgenzo
https://pbs.twimg.com/profile_images/828710439596998656/gPNsmUGS_normal.jpg
RT @FingoHead: @Lilly_COI we need the voice of the patient in development. #paccr
alsadvocacy
https://pbs.twimg.com/profile_images/81737939/alsadvocacytwitter_normal.jpg
RT @ReginaHolliday: Do you no how amazing it is to be livetweeting a a roundtable at @Lilly_COI? A few years ago there is no way this would…
mindthecompany
https://pbs.twimg.com/profile_images/565554844782825475/h3YUqGbS_normal.png
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
dbarthjones
https://pbs.twimg.com/profile_images/2364130865/55svxk70p5n6a5s1xuur_normal.jpeg
Orphan Drugs treat diseases w/ < 200,000 people in U.S., yet 7,000 rare diseases affect ~30 million Americans (1 in 10 people). #PACCR
fingohead
https://pbs.twimg.com/profile_images/719642014602674176/ClwQIQ6J_normal.jpg
RT @gfry: What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility? #paccr
mindthecompany
https://pbs.twimg.com/profile_images/565554844782825475/h3YUqGbS_normal.png
RT @gfry: What if patients... received study information in a form that was easy to understand, in their own context #paccr
mindthecompany
https://pbs.twimg.com/profile_images/565554844782825475/h3YUqGbS_normal.png
RT @FingoHead: @Lilly_COI we need the voice of the patient in development. #paccr
gmatczak
https://pbs.twimg.com/profile_images/450670103936249856/fgXNROgc_normal.png
RT @MightyCasey: RT @FingoHead: @gmatczak "there is passion on both sides to make trials better." #paccr
trishwhetzel
https://pbs.twimg.com/profile_images/2582727052/566vwtsruq96mm3px0kz_normal.jpeg
RT @sharonfterry: The suspense is over, we were a judge. Winner of clinical trial design site competition: Spread the Cure. #paccr http://t…
mindthecompany
https://pbs.twimg.com/profile_images/565554844782825475/h3YUqGbS_normal.png
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
mindthecompany
https://pbs.twimg.com/profile_images/565554844782825475/h3YUqGbS_normal.png
RT @AfternoonNapper: Don't fear pts using social media, educate them abt the implications w/in the context of a clinical trial, says @fingo…
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
Haven't heard much about the use of archimedes modeling in conjunction with clinical trials... #paccr
reginaholliday
https://pbs.twimg.com/profile_images/618502167679270912/4ZltQen3_normal.jpg
RT @dbarthjones: Orphan Drugs treat diseases w/ < 200,000 people in U.S., yet 7,000 rare diseases affect ~30 million Americans (1 in 10 peo…
pdxmda
https://pbs.twimg.com/profile_images/740234810614898688/skZZmVN0_normal.jpg
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr