#GynCSM transcript

Healthcare Social Media Transcript

From: Wed May 10 18:00:00 PDT 2017
To: Wed May 10 19:15:00 PDT 2017

What is #GynCSM? Who were the influencers during this time period? #GynCSM analytics


Healthcare Conference  - Healthcare Tweet Chats  -  Healthcare Analytics

gyncsm
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Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
womenofteal
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Join us now #gyncsm ! https://t.co/CqKkSyH6LP
gyncsm
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Our co-moderators are @womenofteal @btrfly12 #gyncsm
womenofteal
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RT @gyncsm Welcome to #gyncsm - a passionate community of gynecologic cancer survivors, caregivers, advocates and health care providers.
gyncsm
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Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
womenofteal
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RT @gyncsm: Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
gyncsm
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We start out with 10 min of intro's - Please take a moment to introduce yourselves. #gyncsm
womenofteal
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RT @gyncsm Our health care moderators are @ShannonWestin @DrMarkham @journeycancer and our mental health moderator @DrBeckerSchutte #gyncsm
garmischgirl
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Hello All - joining here first time. Regular over at #bcsm I see others I recognize from there too. #gyncsm
btrfly12
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Christina Lizaso – passionate re: community engagement and cancer. I’ll be moderating as @gyncsm today. #gyncsm
womenofteal
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Dee here! Dx #ovca Stage3B 2005, OC research advocate, blogger & co-moderator #gyncsm
btrfly12
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@garmischgirl welcome :) #gyncsm
womenofteal
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@garmischgirl Welcome Linda. Glad you are joining us. #gyncsm
gyncsm
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If you prefer to listen only during the chat, we'd love for you to tweet "#gyncsm" when you join just to let us know you are here. #gyncsm
embosu
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Hi all! I'm Erica, a (Certified) Genetic Counselor at @MDAndersonNews focusing on hereditary gyn cancers #gyncsm https://t.co/8BfryL6Pbq
drmarkham
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Hi #gyncsm friends - I'm a medical oncologist at @UFHealthCancer.
gyncsm
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Pls continue intro's & welcomes - we'll start in w/ the "ground rules" :) #gyncsm
journeycancer
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Hey everyone! Rick Boulay Gyn Onc I seem to be a little heavy in the Y chromosomes for the discussion tonight. I may lurk and learn #gyncsm
gyncsm
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The #gyncsm chat promotes community in a public forum. Learn more about risks/benefits: https://t.co/TipZUv1jQy
womenofteal
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@EMBOSU @MDAndersonNews and @DrMarkham @journeycancer Hi! Good to see you all #gyncsm
womenofteal
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Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #gyncsm
garmischgirl
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Dx 4/16 IA MSH6 probable Lynch. Waiting further testing. Total hyster 5 wks ago doing well. #gyncsm
womenofteal
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Remember- Twitter is an open social network & posts are public.Use a DM to exchange email addresses/personal info #gyncsm
robinsmrtptient
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Good to see you all! Robin here from https://t.co/Vn6IUq0QAi. Come talk #gyncsm with us!
gyncsm
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#gyncsm is not a forum for medical advice. Resources and referrals are provided solely for information and convenience.
brcainfo
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Hi Dee Christina & Limda 🙌 #gyncsm chat time
womenofteal
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#gyncsm community is here 2 support and inform survivors, med workers & loved ones w/ gyn cancer interest
gyncsm
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We also welcome all those “listening in”. You can always tweet us or email us with questions/comments after the chat is over. #gyncsm
womenofteal
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@BRCAinfo Waving back. so glad to see you here #gyncsm
garmischgirl
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Third different cancer in 5 years. TNBC breast cancer 4/12, BCC skin cancer 6/14. Gotta roll with it. #gyncsm
suziesiegel
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I'm a 14+ survivor of vaginal #leiomyosarcoma and longtime #sarcoma advocate. #gyncsm
womenofteal
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A special thanks to everyone who tweeted during the past month with the #gyncsm hashtag and those who RT'd about this chat
womenofteal
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@SuzieSiegel Hello Suzie. #gyncsm
gyncsm
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Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
womenofteal
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RT @gyncsm: Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
jamienholloway
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Hi, I'm Jamie, joining tonight from #bcsm, 4yrs NED after early stage triple negative breast cancer. #gyncsm
womenofteal
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RT @gyncsm Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
gyncsm
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As moderator, I'll introduce new Topics with T1, T2... Pls include corresponding T# at front of answer -hard to remember but helpful #gyncsm
brcainfo
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Hi Erica Dr Markham & Dr Boulay #gyncsm
pippilotta08
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#gyncsm Super tired and crampy tonight but I’m here for as long as I last tonight. Hope everyone is well.
journeycancer
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RT @gyncsm: Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
embosu
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RT @gyncsm: Tonight on #gyncsm we will discuss Womanhood, Femininity and Cancer
womenofteal
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@jamienholloway Hello - Thanks for join g us tonight. Saw your question re living with cancer. Will get back to you with my ideas #gyncsm
btrfly12
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@Pippilotta08 good to see you - sending love and light #gyncsm
gyncsm
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See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/ityuepE8wv
womenofteal
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@Pippilotta08 Feel better and thanks for joining us. #gyncsm
jamienholloway
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@womenofteal Great, thanks! Would appreciate any insight! #gyncsm
drmarkham
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@BRCAinfo Hello again! #gyncsm
btrfly12
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RT @gyncsm: See this link for a listing of all the #gyncsm topic questions that will be coming up: https://t.co/ityuepE8wv
womenofteal
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MT @gyncsm link #gyncsm topic questions that will be coming up: https://t.co/93ClsvZDSf
gyncsm
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There are several studies on the impact breast cancer and mastectomies have on femininity... #gyncsm
gyncsm
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On today's gyn cancer community chat, we'll discuss how many cancer related diagnoses, surgeries and treatments impact femininity. #gyncsm
taylorjolyn
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#gyncsm looking forward to the tweetchat! I'm a gyn onc fellow at MDACC.
gyncsm
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Here comes Topic 1 (T1:)... #gyncsm
journeycancer
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RT @gyncsm: On today's gyn cancer community chat, we'll discuss how many cancer related diagnoses, surgeries and treatments impact feminini…
womenofteal
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@TaylorJolyn Hello and Welcome! Do you work with Shannon Westin? #gyncsm
btrfly12
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For those used to seeing our topics well in advance, apologies I didn't get them posted much in advance this time around. #gyncsm
gyncsm
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T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas? #gyncsm
womenofteal
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RT @gyncsm T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas? #gyncsm
garmischgirl
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Forgot to mention joining from Bend OR - beautiful day in desert. #gyncsm
journeycancer
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RT @gyncsm: T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas? #gyncsm
taylorjolyn
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@womenofteal Yes, I'm fortunate enough to work with Dr. Westin! #gyncsm
btrfly12
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T1: I've always struggled with femininity to begin with. Now that I work from home I never even wear make-up. #gyncsm
suziesiegel
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T1. I was a feminist when I was growing up and didn't strive to be feminine although some see me that way. #gyncsm
womenofteal
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RT @gyncsm: T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas? #gyncsm
garmischgirl
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T1: city grandma gave me etiquette books - farm grandma led by example could do anything man could. I was tomboy. #gyncsm
btrfly12
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T1: I grew up in a Mr. Mom household so I definitely had some strong gender related experiences growing up. #gyncsm
drbeckerschutte
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Woo-hoo. Actually made it to a #gyncsm chat before 2017 is over.
brcainfo
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T1. Womanhood / femininity = watching mom makeup high heels pretty clothes #gyncsm
garmischgirl
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City grandma concerned I wasn't girl enough I felt. #gyncsm
womenofteal
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T1 I grew up loving math and science and and though I learned to sew wasn't into frilly dresses. #gyncsm
womenofteal
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@DrBeckerSchutte Hurrah! Hello there Anne. So glad you are joining us. #gyncsm
jamienholloway
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T1: I always liked girly things, but never felt limited as a girl. Math/science were always my favorite. But love a good lipstick! #gyncsm
btrfly12
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T1: So I guess I didn't relate to the femininity I was seeing in most other families, community. I related to pushing boundaries. #gyncsm
gyncsm
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Topic 2 (T2:) coming up... https://t.co/ityuepE8wv #gyncsm
drbeckerschutte
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Ann from KC, psychologist, mom, #gyncsm mental health mod and recent resistor of #AHCA.
drbeckerschutte
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RT @gyncsm: #gyncsm Community: Womanhood, Femininity and Cancer Chat - May 10th 9pmET. See Topics: https://t.co/Xidn7k41hq
garmischgirl
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T1: adolescence very confusing and teenage boys feeling entitled to impose their will - girls were second class citizens. #gyncsm
drbeckerschutte
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@btrfly12 I'm with you there--except that I work in my office and I don't wear makeup. I hate the way it feels. #gyncsm
subatomicdoc
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Good evening! Matt Katz, radiation oncologist in Massachusetts. Sorry to join late! Getting kids to bed #gyncsm
gyncsm
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T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be removed? #gyncsm
subatomicdoc
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RT @gyncsm: T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be rem…
garmischgirl
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My mother was college educated and way ahead of her time in so many ways but she didn't advise me well how to navigate public life. #gyncsm
drbeckerschutte
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T1: I was never a traditionally"girly" girl--largely because I associated being a girl with being limited/different rules. #gyncsm
drbeckerschutte
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RT @gyncsm: T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be rem…
womenofteal
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@subatomicdoc Hi Matt! #gyncsm
womenofteal
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@garmischgirl My aunt was the same way - ahead of her time. #gyncsm
stigetta
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Hello! Sorry to be late. Annie Ellis, ovarian cancer survivor and research advocate. #gyncsm
womenofteal
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T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be removed? #gyncsm
womenofteal
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@Stigetta Hi friend . Thanks for joining us. #gyncsm
robinsmrtptient
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T1: @DrBeckerSchutte Yes! Boys got to do things, girls got to cheer. I envied the do-ers. #gyncsm
btrfly12
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T2: found out I was CHEK2, my doc immediately said go see a breast surgeon for consultation. A lot to take in. Overwhelmed I'd say. #gyncsm
womenofteal
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@RobinSmrtPtient @DrBeckerSchutte That makes 3 of us. #gyncsm
subatomicdoc
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@womenofteal Hi Dee! How are you? #gyncsm
suziesiegel
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T2. I had friends who didn't understand how part of my vagina could be removed b/c they thought of it as a space, not an organ. #gyncsm
embosu
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It seems to vary from person to person...some women "want everything out/I don't need these organs" to preferring no/minimal surgery #gyncsm https://t.co/1pSE0vgQ9X
btrfly12
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T2: I'm more concerned with being around for my kids, but I certainly feel the weight of what body change may mean. #gyncsm
womenofteal
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@subatomicdoc Doing well. Busy with family. #gyncsm
suziesiegel
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T2. Also, many people think the word "vagina" includes the vulva. #gyncsm
jamienholloway
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T2: Still have reproductive organs, but haven't had any upsetting comments re: bilateral mastectomy. Most supportive/understanding #gyncsm
womenofteal
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T2 Even though I was in my late 40's when dx . It saddened me to loose what had nurtured my 2 children. #gyncsm
garmischgirl
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T2 I've had great support though medical community dismisses losing ovaries after menopause. I fear 4 bones and heart in long run. #gyncsm
btrfly12
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T2: My mom and aunt have had mastectomies but it isn't something we have ever talked about. #gyncsm
drbeckerschutte
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A2: I know that I have worked with clients who struggle with losing body parts that are so identified as "female." #gyncsm
brcainfo
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#gyncsm depends on age of patient too. Childbearing? Near menopause? https://t.co/jvSgzh9TVT
drbeckerschutte
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RT @btrfly12: T2: My mom and aunt have had mastectomies but it isn't something we have ever talked about. #gyncsm
womenofteal
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@SuzieSiegel lots of misunderstanding . Many don't know where they are located. #gyncsm
drbeckerschutte
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RT @garmischgirl: T2 I've had great support though medical community dismisses losing ovaries after menopause. I fear 4 bones and heart in…
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @womenofteal: T2 Even though I was in my late 40's when dx . It saddened me to loose what had nurtured my 2 children. #gyncsm
btrfly12
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RT @EMBOSU: It seems to vary from person to person...some women "want everything out/I don't need these organs" to preferring n…
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @jamienholloway: T2: Still have reproductive organs, but haven't had any upsetting comments re: bilateral mastectomy. Most supportive/un…
suziesiegel
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T2. In general, everyone I know is horrified by my story. #gyncsm
drbeckerschutte
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RT @btrfly12: T2: I'm more concerned with being around for my kids, but I certainly feel the weight of what body change may mean. #gyncsm
stigetta
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T2 pt 1: I bargained 4 body parts while signing consent forms 4 initial ovca surgery. Wanted 2 keep cervix. #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
@Stigetta Always glad to have folks join in--at any time! #gyncsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
@SuzieSiegel T2 It still surprises me how little we talk about intimacy+our bodies when we're healthy. It makes it harder to discuss if we're not #gyncsm
itsthebunk
https://pbs.twimg.com/profile_images/378800000039909031/8ff8f7b0589438cc10bd19b7a36f6a50_normal.jpeg
RT @DrAttai: Talking to your oncologist about clinical trials via @CureForward @MightyCasey https://t.co/MWlOf69SqA #bcsm #gyncsm #lcsm #bt
stigetta
https://pbs.twimg.com/profile_images/3090981685/20fc09c1dc68053f1d77b152d72d3836_normal.jpeg
T2 pt 2: Doc didn't think it was cancer. Went under not knowing how many organs I'd wake up with. #gyncsm
gyncsm
https://pbs.twimg.com/profile_images/770723734781042688/kshBJZ8j_normal.jpg
Topic 3 (T3:) coming up... https://t.co/ityuepE8wv #gyncsm
brcainfo
https://pbs.twimg.com/profile_images/694516642806636545/1GEflJ6m_normal.jpg
@DrBeckerSchutte Yes. When everything is removed it's tough to feel female. Took awhile for that feeling to pass for me as well #gyncsm
suziesiegel
https://pbs.twimg.com/profile_images/760660866794713089/Zy4XVqeA_normal.jpg
T2. I should add that I got a radical hysterectomy that included the rest of my "lady parts." #gyncsm
drmarkham
https://pbs.twimg.com/profile_images/798994412671942656/pZA-aI5L_normal.jpg
RT @subatomicdoc: @SuzieSiegel T2 It still surprises me how little we talk about intimacy+our bodies when we're healthy. It makes it…
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
wow, must have been awful MT @Stigetta: T2 Doc didn't think it was cancer. Went under not knowing how many organs I'd wake up with #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
@subatomicdoc @SuzieSiegel : This is huge. If we set a standard of taking about intimacy, sex, and our bodies early, it might help. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
@Stigetta My docs didn't think it would be the extensive surgery it was either. #gyncsm
stigetta
https://pbs.twimg.com/profile_images/3090981685/20fc09c1dc68053f1d77b152d72d3836_normal.jpeg
T2 pt 3: saw clock in recovery rm and knew there was much less of me #GYNCSM
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
@DrBeckerSchutte @SuzieSiegel Thanks Ann! How are you BTW? #gyncsm
gyncsm
https://pbs.twimg.com/profile_images/770723734781042688/kshBJZ8j_normal.jpg
T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring this up? #gyncsm
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
I feel like cat with nine lives already. Not sure how many more bullets I can dodge. Is disconcerting to have parts removed ever. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
@Stigetta My first thought was - lunch time - it wasn't supposed to take that long. #gyncsm
embosu
https://pbs.twimg.com/profile_images/793548952796659712/-oOlnWp3_normal.jpg
@DrBeckerSchutte @subatomicdoc @SuzieSiegel Agreed! Awareness & familiarity with our own bodies is important! Makes a huge difference when knowing your family history of cancer #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring this up? #gyncsm
suziesiegel
https://pbs.twimg.com/profile_images/760660866794713089/Zy4XVqeA_normal.jpg
My tumor was large enough to poke out of my body. I told my gyn onc that I was OK with a vaginectomy if that was what was needed. #gyncsm https://t.co/lbXDiLmEk1
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
T2: as Susan Gubar writes about - the word and the act of "debulking" is just awful #gyncsm
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
T3: Doc discussed loss of sensation w/mastectomy but didn't really consider what that meant. Just wanted the cancer out. #gyncsm
suziesiegel
https://pbs.twimg.com/profile_images/760660866794713089/Zy4XVqeA_normal.jpg
And health-care professionals need to keep the conversation going. #gyncsm https://t.co/2YigxORLuw
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
@BRCAinfo This is huge. We need tools to help women identify femininity that isn't tied to body parts. #gyncsm
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
After all I've been thru I put limits. Kept my nodes and told Dr regardless of what she saw to sew me up as is - no rearrangement. #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
T3: I was surprised to see so little written outside of the breast cancer space on the topic if femininity and cancer... (1/2) #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
@btrfly12 I agree with Ms Gubar on that. #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
T3: (2/2...) maybe breast cancer has broken enough taboos for women to feel comfortable being open about it #gyncsm
brcainfo
https://pbs.twimg.com/profile_images/694516642806636545/1GEflJ6m_normal.jpg
In my case it was: my life or my body parts #gyncsm https://t.co/Qst5kigjHw
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @womenofteal: T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring…
brcainfo
https://pbs.twimg.com/profile_images/694516642806636545/1GEflJ6m_normal.jpg
RT @DrBeckerSchutte: @BRCAinfo This is huge. We need tools to help women identify femininity that isn't tied to body parts. #gyncsm
embosu
https://pbs.twimg.com/profile_images/793548952796659712/-oOlnWp3_normal.jpg
T3: young women w/ high risk to develop cancer face these questions when considering risk reducing surgeries @BeBrightPink #gyncsm #gencsm https://t.co/oKZXRvYQd7
suziesiegel
https://pbs.twimg.com/profile_images/760660866794713089/Zy4XVqeA_normal.jpg
T3. I had just finished a master's in women's studies. So, I didn't question whether I was still a woman or not.#gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @SuzieSiegel: T3. I had just finished a master's in women's studies. So, I didn't question whether I was still a woman or not.#gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @EMBOSU: T3: young women w/ high risk to develop cancer face these questions when considering risk reducing surgeries…
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @btrfly12: T3: I was surprised to see so little written outside of the breast cancer space on the topic if femininity and cancer... (1/2…
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @btrfly12: T3: (2/2...) maybe breast cancer has broken enough taboos for women to feel comfortable being open about it #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @jamienholloway: T3: Doc discussed loss of sensation w/mastectomy but didn't really consider what that meant. Just wanted the cancer out…
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @EMBOSU: @DrBeckerSchutte @subatomicdoc @SuzieSiegel Agreed! Awareness & familiarity with our own bodies is important! Makes…
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @gyncsm: T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring this…
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
T3 The very large scar - now that bothered me for a long time. Bothered me more than loosing my hair #gyncsm
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
THIS. RT @btrfly12: After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @jamienholloway: T3: Doc discussed loss of sensation w/mastectomy but didn't really consider what that meant. Just wanted the cancer out…
gyncsm
https://pbs.twimg.com/profile_images/770723734781042688/kshBJZ8j_normal.jpg
Topic 4 (T4:) coming up... https://t.co/ityuepE8wv #gyncsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
lurking and waving. #gyncsm
determined2cure
https://pbs.twimg.com/profile_images/533852971797200896/5-q86ogn_normal.png
The #determinedtocure Daily is out! #d2c https://t.co/gPfrcpKEb5 Stories via @ONSAlec @womenofteal @CraigsCause #cancer #breastcancer
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @DrBeckerSchutte: @subatomicdoc @SuzieSiegel : This is huge. If we set a standard of taking about intimacy, sex, and our bodies early, i…
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @btrfly12: After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
jamienholloway
https://pbs.twimg.com/profile_images/745643964150185984/xaDosqpC_normal.jpg
@stales Hi Alicia! #gyncsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @gyncsm: Topic 4 (T4:) coming up... https://t.co/ityuepE8wv #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
@stales helloooo :) #gyncsm
suziesiegel
https://pbs.twimg.com/profile_images/760660866794713089/Zy4XVqeA_normal.jpg
T3. There is so little about women who have had vaginectomies. For me, it's about sexual function, not appearance. #gyncsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @jamienholloway: THIS. RT @btrfly12: After the survival mode phase, certainly could us more resources on long term healing of mind and…
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
RT @womenofteal: T3 The very large scar - now that bothered me for a long time. Bothered me more than loosing my hair #gyncsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @btrfly12: After the survival mode phase, certainly could us more resources on long term healing of mind and spirit #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
T3 Found1 study : Altered Sexuality and Body Image after Gynecological Cancer Treatment https://t.co/45nm6ibpVw #gyncsm
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
"Treatment" is so nebulous - always wondering when next shoe will drop. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
@stales Hi there Alicia #gyncsm
stales
https://pbs.twimg.com/profile_images/1765572205/stales_LS_normal.jpg
@btrfly12 hey just wanted to say hi! #GYNCSM
stigetta
https://pbs.twimg.com/profile_images/3090981685/20fc09c1dc68053f1d77b152d72d3836_normal.jpeg
T3: although my husband and I had decided not to have more children, I struggled that the option was taken away from me #gyncsm
jenrossboyd
https://pbs.twimg.com/profile_images/626937032518938624/uvsCR8Gc_normal.jpg
RT @PeerView: Share your experiences with #ovariancancer by taking this 15 min survey if you are a patient or caregiver: https://t.co/cTzIN…
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
@womenofteal link being funny - maybe post straight into twitter and add hashtag :) #gyncsm
suziesiegel
https://pbs.twimg.com/profile_images/760660866794713089/Zy4XVqeA_normal.jpg
T3. I should mention that I have a urostomy & colostomy. But they don't bother me nearly as much as not having a functional vagina. #gyncsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @womenofteal: T3 Found1 study : Altered Sexuality and Body Image after Gynecological Cancer Treatment https://t.co/45nm6ibpVw #gyncsm
gyncsm
https://pbs.twimg.com/profile_images/770723734781042688/kshBJZ8j_normal.jpg
T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support? #gyncsm
drmarkham
https://pbs.twimg.com/profile_images/798994412671942656/pZA-aI5L_normal.jpg
RT @gyncsm: T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support…
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
Want to say my Dr and care were really good. It's entire cancer care paradigm that needs overhaul. #gyncsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @gyncsm: T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support…
robinsmrtptient
https://pbs.twimg.com/profile_images/378800000630697672/ba325c85db9cd23900a4032da7701014_normal.png
@Stigetta Yes, funny how different the emotions are between "I don't want to" and "You can't!" #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
@Stigetta Wish loss of fertility was something discussed more. #gyncsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @womenofteal: @Stigetta Wish loss of fertility was something discussed more. #gyncsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
@Stigetta T3. Yes, it's very a different feeling when you have the choice, vs. having it taken from you. Another sense loss of control #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSxVppYr #gyncsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @btrfly12: How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSx…
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @gyncsm: T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support…
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @subatomicdoc: @Stigetta T3. Yes, it's very a different feeling when you have the choice, vs. having it taken from you. Another se…
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @btrfly12: How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSx…
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support? #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
RT @btrfly12: How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSx…
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @btrfly12: How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/ZQYSx…
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
via @womenofteal “I Feel Different”: Ovarian Cancer and Sexual Self-Concept “Womens reproductive health” https://t.co/93kDttexIA #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
Yes. Even if most invasive option recommended. RT @womenofteal @Stigetta Wish loss of fertility was something discussed more. #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @btrfly12: via @womenofteal “I Feel Different”: Ovarian Cancer and Sexual Self-Concept “Womens reproductive health” https://t.co/93kDtte…
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @RobinSmrtPtient: @Stigetta Yes, funny how different the emotions are between "I don't want to" and "You can't!" #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @garmischgirl: Want to say my Dr and care were really good. It's entire cancer care paradigm that needs overhaul. #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @SuzieSiegel: T3. I should mention that I have a urostomy & colostomy. But they don't bother me nearly as much as not having a functiona…
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
Not there yet and have fear about trying intercourse. Dr said ok to use estrogen cream twice a week. Need to talk to breast Onc too. #gyncsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @btrfly12: via @womenofteal “I Feel Different”: Ovarian Cancer and Sexual Self-Concept “Womens reproductive health” https://t.co/93kDtte…
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
@btrfly12 How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies? https://t.co/45nm6ibpVw #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
@Stigetta It is always difficult to feel as though we have lost choice--especially over such critical issues. #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
T4: At some point the hubs and I will have to have some discussions because at whatever point, I am not doing reconstruction. #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
The Hystersisters group has some resources and community for those thrown into menopause. #gyncsm
suziesiegel
https://pbs.twimg.com/profile_images/760660866794713089/Zy4XVqeA_normal.jpg
T4. I had sex in other ways for a while. But my body is so damaged that I have no usable orifices left. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
Altered Sexuality and Body Image after Gynecological Cancer Treatment: How Can Psychologists Help? https://t.co/d4MPBj2pH1 #gyncsm
onehandedpotter
https://pbs.twimg.com/profile_images/781531525447770112/WaNMq8h__normal.jpg
RT @womenofteal: T3 Found1 study : Altered Sexuality and Body Image after Gynecological Cancer Treatment https://t.co/45nm6ibpVw #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @btrfly12: The Hystersisters group has some resources and community for those thrown into menopause. #gyncsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @womenofteal: Altered Sexuality and Body Image after Gynecological Cancer Treatment: How Can Psychologists Help? https://t.co/d4MPBj2p…
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @btrfly12: T4: At some point the hubs and I will have to have some discussions because at whatever point, I am not doing reconstruction.…
garmischgirl
https://pbs.twimg.com/profile_images/691819418674925568/rL5Yh-UO_normal.jpg
I think all cancer survivors must become very zen and live in moment - future too scary. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
RT @DrBeckerSchutte: @Stigetta It is always difficult to feel as though we have lost choice--especially over such critical issues. #gyncsm
drmarkham
https://pbs.twimg.com/profile_images/798994412671942656/pZA-aI5L_normal.jpg
Good tip for women having hysterectomies/oophorectomies. https://t.co/gHIfa1yvqH
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
FYI #gyncsm https://t.co/rRjt8BVQyL
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
T4: @cancerLGBT https://t.co/4a1RssQsJX has good resources including related to HPV, ovarian in lesbian, bi-sexual and transgender #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
RT @ShereesePubHlth: FYI #gyncsm https://t.co/rRjt8BVQyL
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @btrfly12: T4: @cancerLGBT https://t.co/4a1RssQsJX has good resources including related to HPV, ovarian in lesbian, bi-sexual and transg…
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
A4: I always hope that people facing these choices are getting good mental health support. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
Really having a hard time in tweetchat. switching to twitter directly. #gyncsm
brcainfo
https://pbs.twimg.com/profile_images/694516642806636545/1GEflJ6m_normal.jpg
RT @ShereesePubHlth: FYI #gyncsm https://t.co/rRjt8BVQyL
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
RT @btrfly12: T4: @cancerLGBT https://t.co/4a1RssQsJX has good resources including related to HPV, ovarian in lesbian, bi-sexual and transg…
suziesiegel
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@subatomicdoc @Stigetta I've benefited from being OK with whatever surgery might be needed. I knew sarcoma was deadly. #gyncsm
btrfly12
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Here comes the final topic T5: #gyncsm
subatomicdoc
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@garmischgirl Some don't - everyone handles a cancer dx differently. But the stress of the situation is an opportunity to refocus on what matters #gyncsm
gyncsm
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T5: What are some pelvic health resources for those impacted by cancer-related diagnoses? #gyncsm
shereesepubhlth
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@DrBeckerSchutte That seems 2 depend on SDOH & BDOH. According 2 ACS, many doctors don't discuss MH options w/ patients, depending on socio-economics #gyncsm
shereesepubhlth
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RT @gyncsm: T5: What are some pelvic health resources for those impacted by cancer-related diagnoses? #gyncsm
womenofteal
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T4 : It really helped to go to a support group . Not the convo you have over coffee with friends. Needed someone to understand. #gyncsm
btrfly12
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@DrBeckerSchutte #wholepersonhealthcare I worry about that. Need teams and referrals and more doc's to bring things up I think. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
RT @gyncsm: T5: What are some pelvic health resources for those impacted by cancer-related diagnoses? #gyncsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @gyncsm: T5: What are some pelvic health resources for those impacted by cancer-related diagnoses? #gyncsm
suziesiegel
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T4. I don't dwell on this, but I wish I could find a nice impotent man to cuddle with. #gyncsm
subatomicdoc
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@gyncsm T5. Good resource for some with pelvic radiotherapy side effects, or concerns of them https://t.co/gEQr3SS7zl #gyncsm #radonc
womenofteal
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@ShereesePubHlth @DrBeckerSchutte glad my cancer center has social worker assigned to gyn ca patients. #gyncsm
drbeckerschutte
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@ShereesePubHlth I think you totally nailed it. And that kills me. Know it's real life, but wish all had access. #gyncsm
eloder
https://pbs.twimg.com/profile_images/701568693331841024/84UHTKo7_normal.jpg
RT @DrAttai: Widespread hype about winning war on cancer gives false hope to cancer pts via @LizSzabo https://t.co/da6bjaEaQf #bcsm #lcsm #…
btrfly12
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Cancer Treatment and Pelvic Health By Elizabeth E. Houser, MD https://t.co/68T7XVvYDD #gyncsm
shereesepubhlth
https://pbs.twimg.com/profile_images/832595302800621568/88c3mo5V_normal.jpg
RT @btrfly12: Cancer Treatment and Pelvic Health By Elizabeth E. Houser, MD https://t.co/68T7XVvYDD #gyncsm
btrfly12
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Pelvic physical therapy is something I've only head about recently. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
RT @subatomicdoc: @gyncsm T5. Good resource for some with pelvic radiotherapy side effects, or concerns of them https://t.co/gEQr3SS7zl #gy
stigetta
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T4: 2 years before I talked abt femininity & sexuality in support grp or counseling. W/ recurrences these issues seemed secondary #gyncsm
suziesiegel
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T4. I lost my online support group when an MD turned on me b/c of policy differences & orchestrated an attack campaign. #gyncsm
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
RT @btrfly12: Cancer Treatment and Pelvic Health By Elizabeth E. Houser, MD https://t.co/68T7XVvYDD #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
RT @womenofteal: @ShereesePubHlth @DrBeckerSchutte glad my cancer center has social worker assigned to gyn ca patients. #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @btrfly12: Cancer Treatment and Pelvic Health By Elizabeth E. Houser, MD https://t.co/68T7XVvYDD #gyncsm
btrfly12
https://pbs.twimg.com/profile_images/482193872156905472/3xMtd71T_normal.jpeg
RT @subatomicdoc: @gyncsm T5. Good resource for some with pelvic radiotherapy side effects, or concerns of them https://t.co/gEQr3SS7zl #gy
drbeckerschutte
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@SuzieSiegel So sorry to hear that. #gyncsm
shereesepubhlth
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@btrfly12 Me too. I've been wondering if there are studies showing its effectiveness. May make a deliberate attempt to find out #gyncsm
drkdhoffman
https://pbs.twimg.com/profile_images/1525601985/maurakdh2_normal.jpg
RT @MommysCancer: #LivingWithCancer #cancertreatment #breastcancer #cervicalcancer #ovariancancer #bcsm #gyncsm #vacation #Retreat
jamienholloway
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@btrfly12 Biofeedback PT is commonly used for pelvic floor therapy after childbirth. Impt to find a specially trained therapist #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
RT @Stigetta: T4: 2 years before I talked abt femininity & sexuality in support grp or counseling. W/ recurrences these issues seemed secon…
robinsmrtptient
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@SuzieSiegel I hate it when people play politics with cancer patients. #gyncsm
garmischgirl
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I moved from Los Angeles to small town Bend - only one gyn onc here. Thankfully she's good but no support referrals. I come here ;-) #gyncsm
suziesiegel
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T4. I went to a support group @MoffittNews until they got rid of the facilitator for hugging patients & other atrocities. #gyncsm
drbeckerschutte
https://pbs.twimg.com/profile_images/658686304952029188/kDxseqYU_normal.jpg
I hate it when people play politics with people. RT @RobinSmrtPtient I hate it when people play politics with cancer patients. #gyncsm
btrfly12
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@SuzieSiegel always sad to hear of these too common situations - we seek connection but sometimes we turn on each other in cmty #gyncsm
stigetta
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RT @subatomicdoc: @garmischgirl Some don't - everyone handles a cancer dx differently. But the stress of the situation is an opportun…
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
RT @jamienholloway: @btrfly12 Biofeedback PT is commonly used for pelvic floor therapy after childbirth. Impt to find a specially trained t…
suziesiegel
https://pbs.twimg.com/profile_images/760660866794713089/Zy4XVqeA_normal.jpg
T4. @MoffittNews made it a psychosocial group & the leader yelled at me for bringing small gifts & telling others about resources. #gyncsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @jamienholloway: @btrfly12 Biofeedback PT is commonly used for pelvic floor therapy after childbirth. Impt to find a specially trained t…
gyncsm
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Thanks for all the open sharing. Already time to start sharing closing thoughts on Femininity and Cancer. TIL: (today I learned) #gyncsm
robinsmrtptient
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TIL how fast an hour goes when a topic hits home. #gyncsm
canpaleochick1
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RT @BRCAinfo: In my case it was: my life or my body parts #gyncsm https://t.co/Qst5kigjHw
womenofteal
https://pbs.twimg.com/profile_images/768192873971978241/6KLK2ros_normal.jpg
RT @gyncsm: Thanks for all the open sharing. Already time to start sharing closing thoughts on Femininity and Cancer. TIL: (today I learned…
garmischgirl
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@ShereesePubHlth @DrBeckerSchutte Thanks for fighting for all of us. How we treat those with least resources is actual state of state. #gyncsm
btrfly12
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I'm in a FB group for CHEK2 but already seeing some divisions and un-welcoming behavior... #gyncsm
suziesiegel
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TIL ... won't know until I look at all the links shared! Thanks to everyone! #gyncsm
ericboyd
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RT @DrAttai: Widespread hype about winning war on cancer gives false hope to cancer pts via @LizSzabo https://t.co/da6bjaEaQf #bcsm #lcsm #…
womenofteal
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TIL that we need to make others aware that the emotional needs of gyn cancer patients are as important as the physical needs #gyncsm
brcainfo
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TIL we are not alone in our need to connect with others going thru the same as us 💕 #gyncsm
btrfly12
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This was a tough topic to work on for me, but I think it is good to shine a light on the tough things about cancer. Thanks all. #gyncsm
btrfly12
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RT @womenofteal: TIL that we need to make others aware that the emotional needs of gyn cancer patients are as important as the physical nee…
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @BRCAinfo: TIL we are not alone in our need to connect with others going thru the same as us 💕 #gyncsm
subatomicdoc
https://pbs.twimg.com/profile_images/1243747643/Dr_Katz2_normal.jpg
RT @womenofteal: TIL that we need to make others aware that the emotional needs of gyn cancer patients are as important as the physical nee…
embosu
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TIL that cancer dx impacts personal views of femininity, self esteem, function & should be remembered+part of patient-centered care #gyncsm https://t.co/PzYN68Pn8d
gyncsm
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Thanks again for today's conversation. Next #gyncsm chat: Wed June 14 at 9pmET on Radiation Oncology - What is it? When is it used?